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BrixBrix
Tufted Titmouse
Joined: Jul 05, 2008
Posts: 37
Location: ChineseSleepChant
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 Posted: Sat Jul 05, 2008 8:59 pm Post subject: How did your diagnosis come? |
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| When you were officially diagnosed, was it a surprise or did you go to your doctor telling them to test you for AS? |
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PowerGirl
Raven
Joined: Oct 08, 2007
Posts: 104
Location: Angelica Castle on the planet Sedna
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| Posted: Sat Jul 05, 2008 11:36 pm Post subject: |
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| It happened when I was 11. I was going to start sixth grade. My 5th grade teacher called my mom in once and she showed her an article about someone with AS. My mom read it and, "that's her" so she took me to some speech theripist. I was diagnosed with AS and went to speech therapy all that year. -Power Girl |
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chocoholic
Velociraptor
Joined: May 22, 2008
Posts: 420
Location: At a Chocoholics Anonymous meeting
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| Posted: Sat Jul 05, 2008 11:42 pm Post subject: |
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My mom took me to a specialist just before I turned 2 and he diagnosed me as being autistic, specifically PDD-NOS.
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sinsboldly
Free Range Aspie
Joined: Nov 22, 2006
Age: 57
Posts: 7048
Location: The Emerald Forest
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| Posted: Sun Jul 06, 2008 1:57 am Post subject: |
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I have gone to three psychologists for evaluation and each one of them have cancelled or appointments with me for one reason or another. (no, not for NOT having it, one of them just took another job before our first meeting.) I have a job, I have good health insurance, they just seem to think there is no pressing reason for me to be evaluated. One even said 'ok, if you want to have it so much, then just tell people you have it, it's not like it matters unless you are a child and we can help you."
Being an adult before AS was 'discovered' can be a problem.
Merle
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Aspies invented the internet so we could find each other (Y.C.) |
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Danielismyname
something something
Joined: Apr 03, 2007
Posts: 5380
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| Posted: Sun Jul 06, 2008 2:57 am Post subject: |
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No one would have brought it up if I didn't discover such myself (which is really, really funny as no one has disputed such due to being so stereotypical to them), I would have continued to be the OCD man-boy who is lazy and afraid of everything but monsters.
When I brought it up to the psychiatrist after two years of denial to myself, he said he always saw me as someone with Asperger's. Thanks dude, that's what I paid you for, to withhold information and send me down the path of treatment that was of no use to me in reality (CBT can only go so far for someone who sees and perceives the world differently to the majority of humans). I hurt myself for no reason trying to be what I wasn't.
It was determined that I actually have Autism, albeit "high-functioning" due to my level of speech and cognition as an adult (it's funny, I see "delay" in the DSM-IV-TR, which is just as valid as "lacking and not gaining"). Julie Fox at Attwood's said I had Asperger's compared to Autism for the same reason, which I do if one uses their diagnostic criteria (as does those with "LFA", funnily enough).
I don't like socializing, I'm self-dubbed as socially and emotionally aloof (as well as called such by others, a parent and clinician alike).
At the old age of 25. |
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velodog
Gold Supporter
Joined: Mar 16, 2008
Posts: 1251
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| Posted: Sun Jul 06, 2008 3:55 am Post subject: |
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| Feb. of 2007, an article about Nikki Bacharach killing herself made me look up articles on Aspergers Syndrome. As I read more and more I came to the realization that I did not have the self DXed mutant strain of Social Anxiety Disorder that I thought, for about four days I was happy to know that there were others like me. Then I felt like total crap for 11 months when I realized that I could never fix myself. On 4/9/08 I was DXed by a Dr who works with the UCSF Autism Clinic in a private consultation as being "on the spectrum, but too high functioning to be Aspergers". If that diagnosis is correct then I guess I should be happy to not have a stronger version of this crap. I started to refer to Nikki as Burt Bacharach and Angie Dickinsons daughter, but that isn't fair to her since Nikki Bacharach was one of us, an individual who had her own life. I didn't post on forums then, I just read them. People on that forum did their own reading on AS and did not understand that it could be bad enough to warrant suicide for some that have it. I understood well why it could. |
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Mon
Blue Jay
Joined: Jul 03, 2008
Posts: 87
Location: Unknown
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| Posted: Sun Jul 06, 2008 3:56 am Post subject: |
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My 4 year old daughter started seeing a psychologist due to various reasons and her IQ test showed a large VIQ/PIQ difference, with the former being superior, indicating social deficits among others but high verbal abiltiy. She has other symptoms consistent with AS, and we receive her 'formal' diagnosis this Wednesday.
As for me, I noticed her symptoms were the same as mine, and my mothers AND fathers (lucky me). I went to see a neuropsycholgist to see whether this could be why I always thought of myself as highly intelligent yet stupid at the same time with a dash of weirdness. She asked me to explain to her why I thought I may have AS and I did. At the end (after 10 minutes) she said that I have very strong AS traits and proceeded to deal with my anxiety issues. I asked her if I could do a formal test and she said that there was no need as she had enough info with my accounts and the characteristics of both my parents and daughter to say that I had very strong traits. I wasn't sure how I felt about this but went with it anyway.
To formalize it (as I really wanted to do some kind of test) I've done the AQ online test, which is actually one of the tests mentioned in Tony Attwood's book as well as the Aspie Quiz. Both tests yeilded very high AS results.
I've also read 3 books on AS recently, and what I read confirms what I now know.
It seems that in adults there is no pressing need to diagnose unless the adult is not functioning in certain areas of life, even then psychologists tend to 'deal' with the issues on hand, ie. anxiety, depression etc. In kids its different as they need to get through school and have access to services IF they have a diagnosis. |
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Sora
Illogical, Irrational
Joined: Sep 16, 2006
Age: 20
Posts: 2483
Location: Europe
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| Posted: Sun Jul 06, 2008 7:35 am Post subject: |
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I went to a diagnostician and said I suspected AS and wanted a professional opinion. This shrink didn't even react and concluded I was traumatised and had a PD and stuff. So I didn't go to see them again, since they just kept saying I was lying and all. I saw another diagnostician in a bigger city who was experienced with ASDs teens. And this one totally agreed which surprised me. I didn't think I was such an obvious case.
And that's how I came to my diagnosis at age 18. Simplified. The whole process lasted 1 year.
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The trouble with having an open mind, of course, is that people will insist on coming along and trying to put things in it. Terry Pratchett |
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BrixBrix
Tufted Titmouse
Joined: Jul 05, 2008
Posts: 37
Location: ChineseSleepChant
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| Posted: Sun Jul 06, 2008 4:03 pm Post subject: |
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| sinsboldly wrote: | I have gone to three psychologists for evaluation and each one of them have cancelled or appointments with me for one reason or another. (no, not for NOT having it, one of them just took another job before our first meeting.) I have a job, I have good health insurance, they just seem to think there is no pressing reason for me to be evaluated. One even said 'ok, if you want to have it so much, then just tell people you have it, it's not like it matters unless you are a child and we can help you."
Being an adult before AS was 'discovered' can be a problem.
Merle |
My mom is one of those people who is against putting labels on people. She says it's just a way to make people who are different think they are sick or that something is "wrong". She's said to be before, "It's like you want to have Asperger's." But she is wrong. I don't think anyone wants AS or any other disorder. What it is with me is that I honestly have felt for 2 years like this is exactly what is wrong with me and I'm frustrated that people are so quick to dismiss it as a possibility.
Also, my little cousin who turned 3 last week is A LOT like me in many ways. He is very hypersensitive, routine, and doesn't seem to feel pain. He also refuses to play with other children and lines his toys up daily. Regular methods of discipline do not work with him. He just now started saying his first words. 2 people have told his mom that he is probably on the spectrum, but since my own mom is so against labeling people, she told my cousin's mom not to worry about him because he's just like me and I'm fine. Personally, I think he's HFA or AS, and I think his mom should go on and get him evaluated, because I don't want him being 16 years old, finally figuring out that he's autistic, and going through what I am going through with getting a diagnosis. |
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BrixBrix
Tufted Titmouse
Joined: Jul 05, 2008
Posts: 37
Location: ChineseSleepChant
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| Posted: Sun Jul 06, 2008 4:07 pm Post subject: |
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| velodog wrote: | | On 4/9/08 I was DXed by a Dr who works with the UCSF Autism Clinic in a private consultation as being "on the spectrum, but too high functioning to be Aspergers". |
In one book on the Autistic Spectrum, it said that there are people who are "near the spectrum", so I guess that means people who obviously have autistic traits but function "too highly" to get an official diagnosis. |
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anbuend
Oak-Type Autie
Joined: Jul 06, 2004
Posts: 3055
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| Posted: Sun Jul 06, 2008 4:35 pm Post subject: |
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Total surprise. I thought I was in treatment for either depression or general "craziness" at the time.
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"We may seem in the gutter from up there where you are but maybe you don't know we still see the same stars." -Donna Williams |
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ASPERGERSJOHN
Deinonychus
Joined: May 23, 2007
Posts: 383
Location: ON MY COMPUTER OR AT THE FOOTBALL GROUND
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| Posted: Sun Jul 06, 2008 5:18 pm Post subject: |
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| My dad is a doctor and he went to my doctor asking him to get me referred to a specialist to see if i have AS although it was expected i had it like it was confirmed i do. |
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Belfast
Vast Ambivalence
Joined: Jul 18, 2005
Age: 35
Posts: 1579
Location: New England
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| Posted: Sun Jul 06, 2008 6:49 pm Post subject: Re: How did your diagnosis come? |
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| BrixBrix wrote: | | When you were officially diagnosed, was it a surprise or did you go to your doctor telling them to test you for AS? |
Total shock-hadn't even heard of autism other than "LFA" version (made familiar through media).
Don't know if dr. even "tested" me with a particular quiz, it seemed more like process of elimination (not this, not that-or somewhat this & a few features of that, but they all add up to AS). Also, the thing where the dr. just has sense (from practice over years, in addition to the literature finally including material on AS/HFA, and broadening of the DSM criteria) of "this is a person with an ASD"-recognition of it when it's not obvious/blatant manifestation (within me).
At time of dx (Jan. '04) I was 30 & in process of crushing life crisis (divorce). Went to clinic & this time (had been there many years before) they had new different dx (AS) which (eventually-it took long time for me to get used to/accept/understand) fit me much better than previous labels.
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