Loss Of Self: Dissociation & Depersonalization episodes

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I have an ASD and...
... I am already diagnosed with DPD. 7%  7%  [ 4 ]
... I strongly suspect I might have DPD. 36%  36%  [ 20 ]
... I weakly suspect I might have DPD. 14%  14%  [ 8 ]
... I am not sure if I have DPD or not. 9%  9%  [ 5 ]
... I probably don't have DPD. 5%  5%  [ 3 ]
... I most likely don't have DPD. 7%  7%  [ 4 ]
... I don't think anything is real (I have derealization). 11%  11%  [ 6 ]
... I exclusively experience some other type of episode not listed. 11%  11%  [ 6 ]
Total votes : 56

mystyc
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21 Dec 2008, 8:19 am

"A Loss Of A `Sense Of Self' ": Surveying experiences of Dissociation and Depersonalization episodes


I am trying to assess if others on the autism spectrum have experienced reoccurring and impairing episodes of dissociation and depersonalization, where the "sense of self" is lost for a temporary period of time. This time span can range from seconds to minutes to hours to days, but it is not a permanent state. Rather, it is a deviation from your normal state.

So what is dissociation and depersonalization?
Dissociative disorders are a class of disorders recognized by the DSM-IV, which includes depersonalization, derealization, dissociative amnesia, dissociative fugue, and dissociative identity disorder (multiple personality disorder). Here, I am only strictly interested in depersonalization disorder, explicitly without derealization.

Depersonalization disorder (DPD w/out derealization, DPD w/out DR, or just DPD):
The symptoms of DPD include a loss of a sense of self, a sense of automation, going through the motions of life but not experiencing it, feeling as though one is in a movie, feeling as though one is in a dream, feeling a disconnection from one's body; out-of-body experience, a detachment from one's body, a sense of watching yourself control your body like a marionette from across a chasm, etc.... All of one's memories and thoughts are intact, and concepts can still be understood, but the perspective has shifted such that they are as much a part of you as a tea cup.

An important normal cognitive trait that is retained by those suffering from DPD is the understanding that experience itself is not "real"; the individual is not delusional and realizes they have or had a self, and everything is in fact real, rather than thinking this is a permanent state and is the truth. This cognitive trait is known as "reality testing". Those who lack the trait of reality testing suffer from derealization, and instead of "feeling" that their self is "unreal", they "know" that reality is "unreal". This is a common symptom of schizophrenia.

To an observer of someone with DPD experiencing an episode, there may be no obvious outward signs, and if the episode is not too distressing or impairing, the individual can seem to function and be responsive as normal.

Episodes of DPD are often associatied with depression, anxiety, agitation, and thought confusion. Usually these are seen as triggers of DPD, though personally I they can also be results of DPD. Occasional and infrequent episodes are actually very common in the general population. But it is frequent impairing episodes that define the disorder.

So are you on the autism spectrum and you think you might suffer from DPD?

Notes:

  • Do not confuse a DPD episode with derealization, where you actually think things are unreal. This is a symptom of schizophrenia.
  • Also, do not confuse this with an information/emotional overload episode or "meltdown".
  • DPD = Depersonalization Disorder, i.e., "the loss of a sense of self".



Magliabechi
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21 Dec 2008, 8:34 am

There's a notable flaw in your poll, Mystyc-

mystyc wrote:
I have an ASD and...
... I am already diagnosed with DPD.
... I strongly suspect I might have DPD.
... I weakly suspect I might have DPD.
... I am not sure if I have DPD or not.
... I probably don't have DPD.
... I most likely don't have DPD.
... I don't think anything is real (I have derealization).
... I exclusively experience some other type of episode not listed.

You have not included any option for the overwhelming majority of people with AS who do not suffer from these kinds of psychological maladies.

Magliabechi.



Danielismyname
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21 Dec 2008, 8:58 am

Er, every second? I don't feel real, and neither does anyone or anything else; like drawings on paper [or a movie].

No one has ever brought this disorder up with me; they say the feelings of unreality I have are a part of my autism.



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21 Dec 2008, 9:04 am

Two years ago, I read about DPD and thought for sure that I must have it.
These days, I am skeptical. I think that what I experienced did share a number of the symptoms, but was more of a defense-mechanism against the level of stress that I was living with at that time...
I think I have a predisposition to "de-personalize" in times of high anxiety, but it is not consistent/persistent enough to warrant some kind of disorder.


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mystyc
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21 Dec 2008, 9:16 am

Magliabechi wrote:
There's a notable flaw in your poll, Mystyc-
mystyc wrote:
I have an ASD and...
... I am already diagnosed with DPD.
... I strongly suspect I might have DPD.
... I weakly suspect I might have DPD.
... I am not sure if I have DPD or not.
... I probably don't have DPD.
... I most likely don't have DPD.
... I don't think anything is real (I have derealization).
... I exclusively experience some other type of episode not listed.

You have not included any option for the overwhelming majority of people with AS who do not suffer from these kinds of psychological maladies.

Magliabechi.


There's a notable flaw in your ability to read, Magliabechi-
mystyc wrote:
I have an ASD and...
... I most likely don't have DPD.


You have not made an honest effort to read the poll and to give me the benefit of the doubt in your rash interpretations.

mystyc.



mystyc
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21 Dec 2008, 9:19 am

Acacia wrote:
Two years ago, I read about DPD and thought for sure that I must have it.
These days, I am skeptical. I think that what I experienced did share a number of the symptoms, but was more of a defense-mechanism against the level of stress that I was living with at that time...
I think I have a predisposition to "de-personalize" in times of high anxiety, but it is not consistent/persistent enough to warrant some kind of disorder.


I considered adding that to the OP. I think what you describe is "shutting down" due to an informational and/or emotional overload. These two types of episodes are distinctly different, but do share some similarities. I have experienced both, and have known at least one other who has as well.



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21 Dec 2008, 9:21 am

Sometimes, yes.But it's just because I'm usually just in my own little world though. I don't pay attention to the detail of the real world.


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Johan_Xenophile
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21 Dec 2008, 9:45 am

This is a very interesting topic.

I will educate myself more about this information.



ephemerella
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21 Dec 2008, 9:51 am

Johan_Xenophile wrote:
This is a very interesting topic.

I will educate myself more about this information.


True, I have never seen this before, and it is relevant to what I have experienced 2 times in my past, and what I am thinking about right now.

Great job of finding something both novel and relevant... to help with the problem-solving.

I'm going to think and do some more reading, first.



Isthisreal
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21 Dec 2008, 11:43 am

I have been diagnosed with depersonalization disorder. I've had it for a long time. I can't remember when it first started. It's possible that I've had DPD for fifteen years.

I want to be able to feel again. :cry:



Sora
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21 Dec 2008, 1:58 pm

I don't understand the concept of derealisation and how 'reality' must feel like, but I'm pretty sure from what I currently understand about depersonalisation that I don't have that.


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anna-banana
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21 Dec 2008, 2:18 pm

Isthisreal wrote:
I have been diagnosed with depersonalization disorder. I've had it for a long time. I can't remember when it first started. It's possible that I've had DPD for fifteen years.


your username seems very well-suited for that disorder ;)

personally, I kind of know the feeling of
Quote:
a sense of automation, going through the motions of life but not experiencing it, feeling as though one is in a movie, feeling as though one is in a dream, feeling a disconnection from one's body


but that doesn't happen often and never lasts very long, so I chose the option of "probably not have it". I do have ADHD though and when I zone out I lose all sense of reality, but it feels nothing like what you've described as DPD.


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21 Dec 2008, 2:35 pm

ive defintley had depersonalization in the past, much like the monster that came out of the lake it was because of my nasty anxiety and depession :(


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Callista
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21 Dec 2008, 2:49 pm

I picked "other".

What I do always in times of extreme stress, and often at other times, is to distance my thoughts from my feelings. Intellectualizing everything, including things like crying uncontrollably or being in a state of extreme fear, is the way I dealt with abuse as a girl. I am told this is a relatively common defense mechanism, and one of the better ones to use; however, it does cause a sense of being a detached observer of my own feelings--which I understand quite well, but do not feel completely connected to.


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mystyc
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21 Dec 2008, 3:00 pm

Isthisreal wrote:
I have been diagnosed with depersonalization disorder. I've had it for a long time. I can't remember when it first started. It's possible that I've had DPD for fifteen years.

I want to be able to feel again. :cry:


Thanks Isthisreal. You also have 2 threads that people might find interest here if they have more questions on this, particularly the difference between "meltdowns" and DPD.
WP threads:
Meltdowns v.s. depersonalization

Does anyone here have depersonalization disorder?



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21 Dec 2008, 3:22 pm

I've never heard of DPD but I've had experiences like those you describe, particularly on drugs where I've sometimes felt like I'm watching everything on a screen in front of me. Or at other times, in a group of people I can become utterly passive, listening to the conversation as if it's music, forgetting I have a presence in the room, then remembering but finding that I'm unable to say or do anything.
I think it's got alot to do with avoiding the anxiety that comes with social situations. After leaving university, where this anxiety drove me crazy, I swore I'd never get like that again and often became overly passive in the sense I've described. Curiously enough, I got interested in Buddhism, with it's concept of no-self. It seemed like a way out.
By the time I got diagnosed with AS, I was pacing round the house saying to myself "I exist!" over and over.


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