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IceCreamGirl
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11 May 2011, 6:21 pm

Is there a difference between "mild" and "high-functioning" autism? I know a few people with autism who seem to be mild, but not exactly high-functioning. They are fairly independent and can have a conversation, but they have some learning issues.



potatomasher
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11 May 2011, 6:35 pm

That is a really good question. I started out asking a psychiatrist if I had a "touch or autism" or "mild autism." Turns out that I have either Aspergers or High-Functioning-Autism depending on an answer to a question about my vocabulary at three. Nobody knows the answer.

He didn't use the term "mild."

Technically "high-functioning" means autism with an IQ above 70 (or 80 or 85 depending on who you read). High-functioning doesn't refer to how successful one is.

So maybe "mild" means the lower end of high-functioning?

I suspect that "mild" means "not as bad as some cases people have in mind."

But I really like the question. Worth thinking about.



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11 May 2011, 7:07 pm

The difference between Mild and High-Functioning Autism is probably based on one's IQ. Not that IQ even comes close to accurately depicting one's potential, though.



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11 May 2011, 7:19 pm

Those terms are not diagnostic nor official, so, the answer is that technically, no one knows. For example, I have ASD and my IQ is high, but I am only partially verbal. I have been called everything from Asperger's (because I can speak at all) to HFA to MFA to autistic disorder (no qualifier) to ASD to PDD. All by professionals. This mass confusion is why your best bet is to say "autism" and describe your own unique set of gifts and challenges.



wavefreak58
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11 May 2011, 9:10 pm

It drives me crazy trying to rate the degree of my autism. Outwardly I'm "OK", but nobody knows how I live in a constant state of extreme tension, a few bad events away from a total meltdown. Such a collapse would look like regression to anyone peering in from the outside. I'm not sure I would retain all my so call "high functioning" traits. So when people ask about high v.s. low functioning, I just scratch my head and wonder how to even make those distinctions.


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Verdandi
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12 May 2011, 2:04 am

Since I am able to do so, I've been removing elements from my life that cause overload and shutdown, so while I may appear somewhat functional, my range of activity is pretty restricted. If I go beyond that range in certain ways, I may very well come off as being more severe.

I'm not really satisfied with my current solution, either.

Couple this with people seeing what they want to see: My therapist seems to think I do much better socially than I really do because I do decently in a one-on-one setting where I can talk to her about myself for an hour. Never mind that she constantly misreads my moods, intentions, and emotions, and keeps trying to do psychotherapy as she would with an NT, thus either confusing or frustrating me because we end up wasting time on therapy that sounds like it's more for her benefit than mine.

Er, anyway, what I mean is, I don't really know how severe or mild my autism is. I know what I can and can't do, and I know what, when I do it, will cost me in some way. I have no idea how to rate it and no way to work out how other people see me.



Phonic
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12 May 2011, 2:44 am

Verdandi wrote:
Couple this with people seeing what they want to see: My therapist seems to think I do much better socially than I really do because I do decently in a one-on-one setting where I can talk to her about myself for an hour. Never mind that she constantly misreads my moods, intentions, and emotions, and keeps trying to do psychotherapy as she would with an NT, thus either confusing or frustrating me because we end up wasting time on therapy that sounds like it's more for her benefit than mine.

Er, anyway, what I mean is, I don't really know how severe or mild my autism is. I know what I can and can't do, and I know what, when I do it, will cost me in some way. I have no idea how to rate it and no way to work out how other people see me.


I am able to yap on about myself and my interests endlessly, I think only a fool would interpret with as good social skills.

"mild" is how funtioning you are, HFA is autism with a normal IQ and language delay, aspergers is autism with a normal IQ (and IQ tests are BS btw) and no language delay. So you can have someone with HFA who is reletively dependant and severe, maybe as bad as classic autism, and someone with aspergers who is severe.
So you can be high funtioning severe, high funtioning mild.

But it's pointless to think about it because the DSM is getting rid of this crap and replacing with severity labels alone, no more HFA or aspergers, just "severe ASD" "moderate ASD" "mild ASD".
I'm probably moderate or above

Verdandi wrote:
Since I am able to do so, I've been removing elements from my life that cause overload and shutdown, so while I may appear somewhat functional, my range of activity is pretty restricted. If I go beyond that range in certain ways, I may very well come off as being more severe.

I'm not really satisfied with my current solution, either.


I would appear as a lost child in a crowd and a boy genuis alone. The curse and gift of autism :( :)


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potatomasher
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12 May 2011, 9:50 pm

I think the labels must have been invented by an NT psychologist. Mild or High-Functioning are probably aimed at observable behaviors and don't take into account the problems inside. I describe myself to NTs as "High-Functioning-Autism" and when people look at me like I said something crazy I say: Autistic with an IQ over seventy. When they still look puzzled I say: "I put a tremendous amount of effort into coping." I think that they take "Mild" or "High-Functioning" as "getting along without much effort.

Part of the problem is that all the diagnostic criteria seem to be aimed at observable behavior and not at what is going on inside.

On using IQ as a measure: I have a nephew who has an IQ easily thirty or forty points above mine who is much less "successful" at coping with the NT world. Using IQ as a divider isn't too helpful.



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12 May 2011, 10:17 pm

It's not just that they were invented by NTs--it's that they've got absolutely no basis in reality. They mean nothing more than what the doctor perceives you to be, which may have little to nothing to do with your actual ability or the actual degree to which your autistic traits cause problems for you.


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Verdandi
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13 May 2011, 1:59 am

Phonic wrote:
I am able to yap on about myself and my interests endlessly, I think only a fool would interpret with as good social skills.


Yeah, my therapist doesn't really have a lot of experience with autism.

Quote:
"mild" is how funtioning you are, HFA is autism with a normal IQ and language delay, aspergers is autism with a normal IQ (and IQ tests are BS btw) and no language delay. So you can have someone with HFA who is reletively dependant and severe, maybe as bad as classic autism, and someone with aspergers who is severe.
So you can be high funtioning severe, high funtioning mild.


It's interesting - Asperger's Syndrome requires no speech delay, but a diagnosis of autism or PDD-NOS does not require a delay. Also, most who are diagnosed with AS fit the criteria for autism or PDD-NOS anyway.

Or what Callista said in the previous post. It's all arbitrary.

Quote:
But it's pointless to think about it because the DSM is getting rid of this crap and replacing with severity labels alone, no more HFA or aspergers, just "severe ASD" "moderate ASD" "mild ASD".
I'm probably moderate or above


I don't really think about it - I just call myself "autistic."



Dylanperr
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01 Jun 2018, 3:09 am

They are the same exact thing.



xatrix26
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01 Jun 2018, 4:35 am

High functioning Autism versus mild Autism is really a measure of IQ and speech delay as I understand it. My IQ is rated at somewhere between 140 and 150 and is considered above-average to exceptional but I still have severe social deficits like all Autistics and Aspies do.

Mild Autistics have severe speech delay up to 5 years old to as late as 18 years old in very rare cases from what I hear but even I experienced speech impediments in many situations and can become non-verbal if I get confused or emotionally distressed.

Regardless of IQ and speech delay we are all bound by the same limitations that all Autistics experience so even though we have many classifications being mentally disabled is our commonality and bond.


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01 Jun 2018, 11:28 am

My boy is mild autism and/or high functioning. he is 7 (almost 8 ). He does have an IQ around 80 (I'd have to look at his paperwork again) or so and severe learning disabilities, but for the most part he is able to care for himself. He can dress himself, feed himself, potty trained (99% there, an occasional accident), and generally good nature. However, his reading level is about 3 years behind, same with his writing. He has a speech delay and was in therapy for three years just to get him where he is now.

My youngest boy (6) is getting his diagnosis near the end of July. He is more than likely Asperger + IED. No speech delay, was reading at 3 years old and no one taught him. He is not potty trained beyond peeing in a toilet, so we have to have four timers every day to take him to the toilet and make him sit there for at least 30 minutes. Plus the extreme emotional outbursts and the constant dissatisfaction and depression.


I struggled with potty training growing up, and everything made me cry. When i was in third grade, back in the early 90's, i was put in special ed and was test with a very high IQ, and was placed in 9th grade mathematics and college level reading and comprehension.


So...yeah, spectrum.



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01 Jun 2018, 5:38 pm

Functioning labels are limited. Mild, severe, high functioning, and low functioning all have little meaning. IQ measures only one's ability to pass a test.


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01 Jun 2018, 6:13 pm

I was diagnosed as ASD, Level 1-requires support.

I like that because it doesn't convey impressions that will vary from audience to audience. I'm sure it could as easily be Asperger's or mild or HFA, but I like the numerical designation and the acknowledgment that I require support.


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01 Jun 2018, 7:12 pm

At the time I was diagnosed, the words 'mild' or 'high-functioning' were not used in my case of AS...

I wonder why, for some research studies, the IQ cutoff score is 80 (instead of 70)?


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