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violet_yoshi
Phoenix
Joined: Aug 16, 2004
Age: 27
Posts: 1385
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 Posted: Thu Dec 06, 2007 2:40 am Post subject: |
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Nice, so psychologically manipulating parents by putting them in the position, as being responsible for their child's "disability" is ok, as long as they get their child psychological help? Why would someone think they should get help for their child, from an emotional sadist who terrifies parents into beliving they're making their child suffer from something they were born with?
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"Sprinkle, sprinkle, little bar, what I wonder is a cat" - Cheese from Foster's Home for Imaginary Friends |
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violet_yoshi
Phoenix
Joined: Aug 16, 2004
Age: 27
Posts: 1385
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| Posted: Thu Dec 06, 2007 2:56 am Post subject: |
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I sent this letter to them:
A friend of mine e-mailed me excerpts from your ransom note campaign. With such highlights as:
We have your son. We will make sure he will no longer be able to care for himself or interact socially as long as he lives. This is only the beginning…Autism.
• We are in possession of your son. We are making him squirm and fidget until he is a detriment to himself and those around him. Ignore this and your kid will pay…ADHD
• We have your son. We are destroying his ability for social interaction and driving him into a life of complete isolation. It's up to you now…Asperger's Syndrome
It's not right to terrify parents, and put them in a position of personal responsibility for something their child was born with. I have never heard of anything so egregious, since people thought the reason children had Autism, was because they had "refrigerator mothers".
I have Asperger's Syndrome. I am not in a life of complete isolation, I PERFER TO BE ALONE. Of course, it's wrong to consider what people who actually have these "devestating" conditions feel right. Your child isn't out being social, making friends, doing drugs, having sex. Oh wait, we don't want to hear about the problems that result from being social right?
How would you feel if one of your children were kidnapped. Think about that you are inflicting that fear and terror into parents, when you suggest that their child is being kidnapped by a disorder. That unless they get help from your organization, they are helpless. That if they don't get help, it's the equivelant to a parent who refuses to pay ransom to save their child from a kidnapper? Do you have any idea what stigma is out there for parents who don't buy into the idea that their children need to be cured, that they are fine as they are? It's ok to suggest to parents, that parents who accept their children are akin to parents who just let a kidnapper keep their child?
You are dragging two completely different issues into this. Child neglect, and disability. Disability does not happen due to child neglect, it happens for a variety of reasons. Genetic, or otherwise. It is not the fault of anyone. Try to come up with a campagin that doesn't guilt-trip parents into joining your organization. Although I do feel the whole cure campaign, is somewhat cultish in it's techniques, this is going too far. It's no different than someone who says your child will suffer the end of this world, unless you join our cult.
Preying on parent's worst fears, so you can get a edge on dealing with psychatric orders is not just wrong. It's absolutely disgusting. It's like inflicting a horror film on parents, and you're putting parents into situations where they are forced to see what their child MIGHT become based on stigmatic information, and telling them this is the ONLY way to help save them.
I have Asperger's Syndrome. My parents love me AS I AM. They do not see any point in trying to change me. I am happy with myself and HAVING ASPERGER'S SYNDROME. Did I rain on your little terror campaign?
Those of us with the "disabilities" you list in your campaign do have a voice, and we demand to be heard.
* I said I was e-mailed the information, because somehow I think that might seem more valid to them than, I read it off a bulletin board.
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"Sprinkle, sprinkle, little bar, what I wonder is a cat" - Cheese from Foster's Home for Imaginary Friends |
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lau
Really nice person to know. :)
Joined: Jun 18, 2006
Age: 60
Posts: 9467
Location: Somerset UK
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pakled
"Bless his Heart"
Joined: Nov 13, 2007
Age: 52
Posts: 6727
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| Posted: Sat Dec 22, 2007 4:56 pm Post subject: |
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..but no one wants to pay the ransom...
good gravy... If there was a 'cure' (until someone comes up with recombinant DNA engineering or something), you'd have a 'hostage' situation (how many kidnappers hold someone forever? It's a temporary thing, so there'd have to be a 'cure'..
this is the same thing they have on the evening news (new report- we've found the 11,114th scary thing you have to protect your children from...film at 11.. And they think we're crazy... |
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LeKiwi
Phoenix
Joined: Nov 27, 2007
Posts: 2651
Location: The murky waters of my mind...
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| Posted: Sat Dec 22, 2007 5:38 pm Post subject: |
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ARGHGHGHHHHHHHHAAAAAAAARGHHHHHHHHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!
LEMME GO LEMME GO LEMME GO!
IT'S GOT ME! THE ASPERGER'S HAS GOT ME! LET ME GO! PAY THE BLOODY RANSOM!
AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAARGH!!!!!!!!!!
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We are a fever, we are a fever, we ain't born typical...
New Blog: http://onelittleaspergian.blogspot.com/ |
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bheid
Velociraptor
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Joined: Nov 22, 2006
Age: 20
Posts: 445
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| Posted: Sat Dec 22, 2007 6:06 pm Post subject: |
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| SleepyDragon wrote: | I have to admire the sheer brilliance of the ransom-note campaign as a marketing tactic. Play on parents' fears at the most primal level, then hit 'em in the hip pocket. Ignore the fact that these "illnesses" can arise from vastly different causes, but stress the fact that they all require expensive intervention.
Once again, it all comes down to money. |
It is indeed genius, and also sinister. Like regular advertising. (Only it promotes rubbish instead of pepsi.) |
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Douglas_MacNeill
Phoenix
Joined: May 11, 2007
Age: 45
Posts: 741
Location: Edmonton, Alberta
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| Posted: Sat Dec 22, 2007 6:31 pm Post subject: |
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No; I am holding my autism to ransom!
And I demand nothing less than the right to live
independently, with the right to keep any gains I have
made from my experience with it as well as
compensation for any damage it, or its sequelae, may
have done to me.
Take that, NYU! |
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SusyQ
Raven
Joined: Feb 27, 2006
Posts: 116
Location: Indiana
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| Posted: Sat Dec 22, 2007 10:07 pm Post subject: |
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Autism is holding me ransom-but I'm putting up a good fight and with the Lord's help am escaping from my captors  |
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zendell
Art of Zen
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Joined: Nov 11, 2007
Posts: 1174
Location: Austin, TX
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| Posted: Sat Dec 22, 2007 10:58 pm Post subject: |
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I've felt that autism was holding me ransom. I wanted to make friends, but I didn't now how. I wasn't able to understand other people so I never fit in. I was rejected because I was different. It made me lonely and depressed and I thought about killing myself.
Nevertheless, I'm very offended at the ads because they call autism a psychiatric disorder. It hasn't been considered a psychiatric disorder for 27 years since the DSM-III was published in 1980. Autism is most likely a medical condition caused by either heavy metals and/or chronic infection(s). We autistics should be respected and accepted for who we are, be allowed to receive biomedical treatment to correct any medical problems, receive help to work on our weaknesses, and help to live in our society. What we don't need is organizations like this who label us as mentally ill patients who need big pharma's drugs to treat behaviors that make intolerant people uncomfortable. |
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MysteryFan3
Ex-COBOL dinosaur. roar.
Joined: Jun 09, 2007
Age: 52
Posts: 1358
Location: Indiana
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| Posted: Sun Dec 23, 2007 1:26 am Post subject: |
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"Here I come to save the brain"
That means that Curebie Mouse is on the way
Yes, when you're wrong for being right
Then Curebie Mouse your work will slight
On the job or in the home
That mouse will never leave your brain a-lone!
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To eliminate poverty, you have to eliminate at least three things: time, the bell curve and the Pauli Exclusion Principle. Have fun. |
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violet_yoshi
Phoenix
Joined: Aug 16, 2004
Age: 27
Posts: 1385
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| Posted: Sun Dec 23, 2007 3:21 am Post subject: |
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| Douglas_MacNeill wrote: | No; I am holding my autism to ransom!
And I demand nothing less than the right to live
independently, with the right to keep any gains I have
made from my experience with it as well as
compensation for any damage it, or its sequelae, may
have done to me.
Take that, NYU! |
That reminds me of a hair product ad I saw. Where this girl was supposed to be holding herself hostage, in a chair, and torturing her own hair. It was so rediculous, and silly. Like, oh no her hair is being tortured..like the Saw film or something. Heh.
_________________
"Sprinkle, sprinkle, little bar, what I wonder is a cat" - Cheese from Foster's Home for Imaginary Friends |
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Douglas_MacNeill
Phoenix
Joined: May 11, 2007
Age: 45
Posts: 741
Location: Edmonton, Alberta
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| Posted: Sun Dec 23, 2007 10:33 am Post subject: |
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Violet_Yoshi:
Let me set my remarks in context for you.
Recent ads by the Child Study Center of New York University
featured a series of fake ransom notes alleged to be
written by various pediatric psychiatric illnesses, including
Asperger's Syndrome. The idea behind those ads was to
persuade parents of children who might have these conditions
to report to the CSC at NYU for screening tests.
I and others in this forum found the ads objectionable, to say
the least. Persons who have experienced Asperger's Syndrome,
as I have, are prepared to take both the losses and the gains from it.
My personal reaction to these adverts was to challenge the premise: that
persons with Asperger's Syndrome are passive victims of the
syndrome rather than people struggling to overcome its negative effects.
I hope this clarifies things for you.
| violet_yoshi wrote: | | Douglas_MacNeill wrote: | No; I am holding my autism to ransom!
And I demand nothing less than the right to live
independently, with the right to keep any gains I have
made from my experience with it as well as
compensation for any damage it, or its sequelae, may
have done to me.
Take that, NYU! |
That reminds me of a hair product ad I saw. Where this girl was supposed to be holding herself hostage, in a chair, and torturing her own hair. It was so rediculous, and silly. Like, oh no her hair is being tortured..like the Saw film or something. Heh. |
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SusyQ
Raven
Joined: Feb 27, 2006
Posts: 116
Location: Indiana
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| Posted: Sun Dec 23, 2007 12:04 pm Post subject: |
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| zendell wrote: | I've felt that autism was holding me ransom. I wanted to make friends, but I didn't now how. I wasn't able to understand other people so I never fit in. I was rejected because I was different. It made me lonely and depressed and I thought about killing myself.
Nevertheless, I'm very offended at the ads because they call autism a psychiatric disorder. It hasn't been considered a psychiatric disorder for 27 years since the DSM-III was published in 1980. Autism is most likely a medical condition caused by either heavy metals and/or chronic infection(s). We autistics should be respected and accepted for who we are, be allowed to receive biomedical treatment to correct any medical problems, receive help to work on our weaknesses, and help to live in our society. What we don't need is organizations like this who label us as mentally ill patients who need big pharma's drugs to treat behaviors that make intolerant people uncomfortable. |
Amen! |
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Douglas_MacNeill
Phoenix
Joined: May 11, 2007
Age: 45
Posts: 741
Location: Edmonton, Alberta
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| Posted: Sun Dec 23, 2007 3:56 pm Post subject: |
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I've heard that some people on this forum object to the suggestion
that Asperger's Syndrome is a psychiatric disorder.
To clarify my own opinion on the matter:
When I say that autism spectrum disorders are "psychiatric"
disorders, I mean that psychiatry (rather than orthopedics, or
oncology, or gynecology, or even pediatrics) is the competent
specialty within medicine for treating Asperger's Syndrome.
Having said that, I find that a rehabilitative approach in
general, and occupational therapy in particular, is better
prepared than psychiatry to provide effective and
appropriate treatment for this syndrome. I say this
because the people I usually work with are professional
practitioners of occupational therapy who also happen
to be teachers of OT at the university level. |
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KimJ
Legend in my own mind
Joined: Jun 11, 2006
Posts: 2540
Location: Arizona
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| Posted: Sun Dec 23, 2007 4:12 pm Post subject: |
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I think it's more accurate to call it a neurological disorder. Though, ironically a neurologist doesn't diagnose autism, a developmental psychiatrist does. For us that's the extent of the psychiatrist's involvement in the care of my son. I personally have never been to a psychiatrist (for my own therapy).
My son's case at school is "overseen" by a psychologist but that's because she's the person in charge of all IEP's. She serves as an educated administrator. Back home in California it was a special ed teacher that oversaw his IEP, with heavy input from a SLP and a psychologist. |
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