jelibean
Phoenix
Joined: Mar 24, 2008
Posts: 576
Location: United Kingdom/www.jelibean.com
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 Posted: Sun Oct 12, 2008 10:17 am Post subject: |
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| ajpmom wrote: | I would recommed Dr. Michael Chez with the Sutter Neurosciences Group in Sacramento, CA.
Both my boys see him and he is very good. He is also associated with the M.I.N.D. Institute at UC Davis. |
Brilliant!! I have two mums in CA who are desperate, that is really useful. I knew this thread was going to be a goldmine!!
For anyone in Cornwall England.........................Dr John Doe, St Austell, Sedgemoor Centre. Consultant Child Psychiatrist who knows his stuff and is VERY NICE and gentle with both parents and children!
Many thanks for everyones's contribution. Come on the rest of the world, wherever you are and if you are happy or UNHAPPY then this is the place!!
Great work everyone. Keep it up. I don't think there is anywhere else on the net that has this very valuable information.
To all those who are not sure, try the AQ test on line. Google in Prof Simon Baron Cohen AQ TEST. It is not DIAGNOSTIC but will give an idea! It is free!
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Emen
Tufted Titmouse
Joined: Jul 19, 2008
Posts: 39
Location: New Zealand
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| Posted: Sat Oct 18, 2008 3:28 pm Post subject: |
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Hi there,
This topic is is a great idea.
I'm in New Zealand and can't recommend any clinicians personally.
It may be of interest to fellow kiwis though, that I recently went to an education conference where a very well known (in NZ) Kiwi clinical psychologist, Nigel Latta, was speaking.
To paraphrase - he said he wouldn't dream of diagnosing ASD because he didn't know enough about it, yet there were people out there who knew a lot less than him and who were diagnosing it all the time. He also said that there were only a couple of people in NZ competent to diagnose ASD. So kiwis beware.
As well, he said that psychological testing was a waste of time for ASD and that all that was needed for a diagnosis was an assessment by an Educational psych. and a neuropsychologist. Interesting eh? |
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Saffy
Sea Gull
Joined: Sep 15, 2008
Posts: 230
Location: New Zealand
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| Posted: Sat Oct 18, 2008 6:49 pm Post subject: |
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| I would be pretty wary of a Ed psych in NZ doing an ASD diagnosis, ( although I can think of one that I work with who would do a good job ) there are no objective tests for ASD, the closest is the ADOS, ( which is still subjective ) and that is only just beginning to be used in NZ. I know in Dunedin there are varying levels of competency in clinicians of all areas. I would also like to suggest that Nigel Latta, is not familiar with every clinician in the country, and saying there are only 1-2 competent is just not correct. I did not see his name on the list of people that attended the last Autism NZ conference. In saying that he has indeed demonstrated that he is not competent to make a diagnosis. |
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Emen
Tufted Titmouse
Joined: Jul 19, 2008
Posts: 39
Location: New Zealand
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| Posted: Mon Oct 20, 2008 1:45 am Post subject: |
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Just to clarify, my point was that people without appropriate experience and training are diagnosing ASD. Obviously, within every profession there are varying levels of competence.
Nigel Latta suggested that both an Ed. psych. and a Neuropsych. assessment were needed for an accurate diagnosis, not either/or.
You are correct, Saffy, in saying that Dr. Latta is not competent to make an ASD diagnosis, which is exactly why he doesn't do so. It is a pity that others don't always have the insight to recognise their limitations in this regard.
I merely thought that these words from someone working in psychological medicine, particularly his reference to types of assessment, might be of interest to other parents. |
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zen_mistress
~*~*~*~*~*~
Joined: Jun 12, 2007
Age: 35
Posts: 6320
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| Posted: Tue Oct 28, 2008 11:39 pm Post subject: |
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| Emen wrote: | Just to clarify, my point was that people without appropriate experience and training are diagnosing ASD. Obviously, within every profession there are varying levels of competence.
Nigel Latta suggested that both an Ed. psych. and a Neuropsych. assessment were needed for an accurate diagnosis, not either/or.
You are correct, Saffy, in saying that Dr. Latta is not competent to make an ASD diagnosis, which is exactly why he doesn't do so. It is a pity that others don't always have the insight to recognise their limitations in this regard.
I merely thought that these words from someone working in psychological medicine, particularly his reference to types of assessment, might be of interest to other parents. |
I am from New Zealand and I am being referred to a clinical psychiatrist perhaps. I dont know what the name is, and I dont think I would publish it here anyway. But I feel there are some good people here in New Zealand. One thing about New Zealand is that it does try very hard to keep up with the rest of the world.
_________________
"Caravan is the name of my history, and my life an extraordinary adventure."
~ Amin Maalouf
Taking a break. |
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FrogGirl
Phoenix
Joined: Oct 14, 2008
Age: 38
Posts: 770
Location: Lost wherever I am
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| Posted: Fri Nov 07, 2008 11:45 pm Post subject: |
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| I didn't see Nebraska on there. |
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Jenk
Deinonychus
Joined: Jul 02, 2008
Posts: 388
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| Posted: Sun Nov 30, 2008 3:54 pm Post subject: |
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*Edit parent :/
Last edited by Jenk on Sat Dec 06, 2008 4:10 pm; edited 2 times in total |
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jelibean
Phoenix
Joined: Mar 24, 2008
Posts: 576
Location: United Kingdom/www.jelibean.com
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| Posted: Sun Nov 30, 2008 4:10 pm Post subject: |
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Hiya Jenk,
Where in the world are you? Sometimes depending on location ages of DX and services are limited. It may be that after 21 it is more difficult to get a Dx OR help.
Don't let you daughter be put off. Our family have found that once you are diagnosed life is a lot easier. At least we know what we are dealing with! Well that is how I have found it anyway! And once you realise that you are not alone and amongst thousands and thousands......literally, life doesn't seem that lonely anymore.
Do keep in contact, anything we can help with just yell. Tell your daughter to embrace who she is and learn about her special gifts and talents that undoubtably she has. Don't take what your professional said to heart. I have heard worse! Keep the faith and keep up the great work. |
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Jenk
Deinonychus
Joined: Jul 02, 2008
Posts: 388
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| Posted: Sat Dec 06, 2008 2:39 pm Post subject: |
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| My mother posted ( wow 8O ) Wrong thread, hijacker. |
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CelticGoddess
Lost in a song
Joined: Feb 07, 2006
Age: 38
Posts: 2968
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| Posted: Sat Jan 24, 2009 9:06 pm Post subject: |
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| Dr. Mark Handley-Derry - Toronto, Ontario, Canada - Developmental Paediatrician specializing in ADHD and Autism. He is also on the Board of Directors for the Geneva Centre of Autism and on the Advisory Board for ADD/ADHD Advocacy Canada. Out of everyone we have worked with, he is my favourite. I couldn't possibly speak more highly of him. |
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LabPet
alchemist
Joined: Jan 05, 2007
Posts: 4051
Location: UK
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| Posted: Fri May 08, 2009 9:31 pm Post subject: |
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Lab Pet is a grad student (Fairbanks, Alaska) BUT....I just recently attended a lecture/presentation by a special guest, Dr. Charles Cowan.
Dr. Charles Cowan is from Seattle, Washington, developmental pediatrician with expertise in Autism.
Medical Director of the Autism Clinic in Seattle WA
Very impressed with him - he obviously loves his work and the Autistics he works with. He quickly 'recognized' that I am Autistic prior to presentation and was more than nice, asked me questions about what I do - I wrote in response. Also, he has a great sense of humor and is very supportive of those he works with.
But, Alaska does not have specialists in Autism. I've had two in AK that are really great! But others that are downright scary - beware, Alaskans.
_________________
"Barn's burnt down, now I can see the moon." - Masahide, circa 1700. Haiku poetry. |
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CRD
Phoenix
Joined: Jun 07, 2009
Age: 36
Posts: 704
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| Posted: Tue Jun 16, 2009 2:50 am Post subject: |
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Dr. Root ----- gentices
Albuquerque New Mexico USA
she did a great job with my son and saw him fairly quickly for a review after our last move when his primary wanted his Dx reviewed. lot of goood information and great bedside maner. Frist time in 6yrs after Dx that we we're told that he was doing realy well and has a bright future< what I've alway thought> and she didnot equate his autism with being hopelessly retared and sugjest as some other Dr did that we put him away and just be happy we have one "health" child just because jake doesn't speek more then once every few weeks. I hope this helps someone and sorry for the vent . |
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LabPet
alchemist
Joined: Jan 05, 2007
Posts: 4051
Location: UK
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| Posted: Tue Jun 16, 2009 10:56 pm Post subject: |
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***Resource tip for all those interested in buying a weighted blanket***
Personal Note: Lab Pet LOVES my weighted blanket. They are for all ages, not just children, and ameloriate sensory discomfort, very soothing is one is feeling 'melty' (we know what that means.....). I'm a grad at University and study underneath my weighted blanket so I can feel safer (at my apartment). At my lab (University) I have a weighted blanket lap-pad. For sleep problems the weighted blanket can be my only relief, or else I tend to not sleep until I literally collapse for exhaustion. Oh, to add: I have no affiliation with this company and am not endorsing.
Anyway, I've bought my weighted blankets from Dream Catchers and their site is www.weightedblanket.net
Their site explains about choosing the correct blanket for your needs and they are very courteous and prompt.
Ok - weighted blankets are pricey! A tip I've learned: Avoid those blankets made with rice or grains (such as lentils)! Dream Catchers doesn't sell those anyway. Here's why: Those fillers can become rancid (yuck). Even worse, attract rodents or insects and blankets made with these fillers are NOT washable and will degrade over time. Best to stick with silica beads or similar.
I just orders a NEW blanket from this site (above) just for my bed. Customer has choice of any sort of custom fabric, colors, etc (good for those with sensitivity to textures, color....). There are special fun prints for kids too.
Dream Catchers gave me this message to pass-on to Wrong Planet inhabitants: If you order from them mention "I know of your weighted blankets from Wrong Planet." Or similar wording. They will automatically give you 10% off any order! Good deal.
Also know weighted blankets are covered by some major medical insurance providers! You may ask your medical provider too. Further, weighted blankets are tax deductible as a medical expense so keep your receipt. Since weighted blankets can be cost prohibitive this business does have a Blanket Exchange Program - mostly for kids who may have 'outgrown' their weighted blanket size. Check out that option (blankets are washable).
Hope that helps for those who are needing therapeutic weighted blankets.
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"Barn's burnt down, now I can see the moon." - Masahide, circa 1700. Haiku poetry. |
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Jeana
Butterfly
Joined: Jul 06, 2009
Posts: 12
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| Posted: Thu Jul 09, 2009 10:49 am Post subject: |
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Nobody here in Kentucky that we are really excited about yet!!! We've been to Weisskopf and they didn't give us any information that we didn't already know!
Also, yes we can go private, but most of us can't afford it or have to go deep in debt to go to a private doctor or organization. For example, there is a supposedly great group here call Square One with developmental pediatricians, consultants, and therapists. However, the first visit is $300, the second is $200, and everyone thereafter is $100, and they do not accept any insurance. That's not even including any psychological testing, only the physicians fees. Soooooo, we have been very disheartening and frustrated in finding the right doctor. We go to a wonderful therapist for social skills and group work, but she is private and does not accept any insurance. We are going to have to scale back on this in the next few months because it is more than we can afford right now.
If anyone has any recommendations close to Kentucky or Indiana in the US, please post your ideas!
Thanks so much for starting this thread. We all need to help each other out as much as possible!
Jeana |
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Syl
Emu Egg
Joined: Jul 16, 2009
Posts: 1
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| Posted: Thu Jul 16, 2009 1:54 am Post subject: resources for Asperger's |
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| thank you so much for these resources- so helpful. My daughter who is 5 has Asperger's and I just discovered this site. I am looking forward to being a part of this community. |
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