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bjcirceleb
Pileated woodpecker
Joined: Dec 26, 2010
Posts: 191
Location: Australia
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 Posted: Sun Jan 30, 2011 4:40 am Post subject: |
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Autism Societies in each state in Australia have massive lists not just of who can diagnose, but also those that treat and/or assist with the condition. They have specailists in every single conceivable number of fields. The occupational therapists association, Australian psychological society and the like, also have lists on their websites of on accredited autism specailists, who have done some level of professional development in autsim and who claim to have experience, they do list how many years, not sure of other fields, but I suspect it would be similar.
Having said that it all depends on what you want to be told. There are professionals out there who will tell you you have XXX disorder, because it is the only thing they could possibly consider, to them every single thing of that nature means XXX. If you want that diagnosis, great, if you want another one, not so great. It is amazing to me just how many parents pick and choose the specialists they see to find the one that will give them the diagnosis they want. I know of a child who was assessed by 307 different pediatricians and child psychologists, the majority of whom said he had XXXX, the parents were not happy which is why they kept searching for another diagnosis. They ended up seeing Toni Attwood and got the diagnosis they wanted of Aspergers. It was the ONLY diagnosis they would accept. I can say that there is not one thing that I see in this child that is typical of someone on the spectrum, but then again Toni Attwood does not diagnose anything else. I know of people who have seen him and he has saved their lives and there children's lives, but diagnosing every single person who has the slightest bit of social isolation as aspergers is not necessarily making someone a good diagnositican. I do respect what he writes and a lot of what he has said, but some of the people who see him really do have questionable diagnosis to my eyes, but then again in his state in Australia the rate of Autism Spectrum Disorders is now at 1 in 30 children?? Are we honestly going to say that we are that common. Because that would mean that being on the spectrum is more common than wearing glasses, having blonde hair, etc. But when the only daignosis that gets you any services is autism spectrum disorders is it any wonder that people go looking for that diagnosis.
I was daignosed as a child, but it meant nothing and I had no documentation. I was rediagnosed a number of years ago as an adult in their mid thirties on the advice of a psychiatrist that does not do those diagnoses, that has never done one, but could see that that was really what my issues were. When parents diagnose their own children and then search out a professional to give them the word they want to hear, I have a problem. When they go asking for a diagnosis for this, rather than saying I think there is something wrong and I would like your assessment I have a problem. I agree that parents know the child better than anyone, but they are not specialists and there are so so so many conditions that all overlap each other, and when there is no definitive test then it murky's the water all the more.
Yes we are diagnosing better and as a result seeing an increase, but there is also a huge amount of wrong diagnosis going on. At one stage one in 20 children had ADHD that has now changed, but in doing so we have 1 in 30 on the spectrum. It seems to me like we are taking the same problems and labelling them with something else. That does not mean that such conditions do not and cannot co-orrur but when the rates are that low in one area and not others one really does have to question what is happening. |
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Elismom
Emu Egg
Joined: Mar 09, 2011
Posts: 3
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| Posted: Wed Mar 09, 2011 2:20 pm Post subject: Where in Wisconsin?? |
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| So this is a little off topic as we don't need a good diagnosing doc. We need a good pediatrician who understand all that goes along with Autism. Anyone have any good ideas. Preferably in the west central Wisconsin area. |
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tskin1
Raven
Joined: Mar 08, 2011
Posts: 119
Location: Michigan, USA
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| Posted: Thu Mar 10, 2011 2:27 am Post subject: |
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Elismom- it's not west wisconsin but at least next state over lol Our pediatrician is fantastic she will bend over backward to help in any way she can has even in our case overseen williams medications to avoid having to deal with the idiot pych's around here who would like to see him drool in a corner .. doesn't expect you to travel every month or 3 for a med review, will let you adjust the meds slightly with a call to her office nurse.. We drive 3 hours to see her every year for his well child which is the only visit she expects and yet she continues to be as involved as we ask her to be...she also has no problem with them seeing a different doctor for simple illnesses in the meantime. Unlike most doctors who shuffle you in and out as quickly as possible she takes the time to listen and cares not only about how the child is doing but the parents/siblings as well.
Dr. Cynthia Statler
Mackinac straights Hospital
Saint Ignace, MI 49781
phone-906) 643-0400
her waiting list is generally about 3 months out
Other great docs in Michigan ....
University of Michigan has a great Autism center but the waiting list is a few years as i recall
Web & Devers Psychological Services
Bob Devers
906-635-7270
Sault ste. Marie, MI 49783
(diagnosed william with PDD-NOS at 3yrs old and was able to get him secured with speech also helped me fight the schools in making sure he had the services he needed he actually came to the IEP)
L. Humberto Covarrubias MD, P.C.
497 East Columbia Ave Suite 15
Battle Creek, Mi 49015
269-965-6406
(this was the one who diagnosied williams AS and ADHD , this one was available via teleconference if needed during the IEP a med review was expected every 3 months which ment a 6 hour drive but otherwise he and staff were fantastic)
it's very difficult to find good doctors but my suggestion is to find one who is willing to give you some power as parents to make the choices for your kids, one that is willing to be available for IEP's if nessesary and one who will take the extra time needed to make your child feel comfortable during visits.
I second whichever of you posted as being a nurse i feel the same thing myself.. i have been a nurse for more than 20 years and yet my opinion counts for squat with all but the three doctors listed above.... especially psychiatrists who see your child for maybe an hour (usually less) usually on a good day who presume to know more about your child than you do. I have a theory that most know the DSMV diagnostic criteria but care very little about what it's like to be the parent or the patient. |
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Aflowerinyourhair
Emu Egg
Joined: May 14, 2009
Age: 41
Posts: 8
Location: USA
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| Posted: Wed Mar 30, 2011 10:53 pm Post subject: |
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For Nebraska USA.
Williamsburg Behavioral Psychology
3801 Union Dr # 206
Lincoln, NE 68516-6652
(402) 489-2218
There are a few Dr's in this office that can diagnose.
Dr Palmer-Wilson or Dr Diane Marti are two that I have spoken with and are very good!
Dr Marti Diagnosed my sons and myself
_________________
Some evils you have endured and others you still have survived. But the worst evils of all, were the ones that never arrived --- self |
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snarrkyone
Emu Egg
Joined: Apr 03, 2011
Age: 39
Posts: 4
Location: Tennessee
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| Posted: Sun Apr 03, 2011 4:50 pm Post subject: qualified treating professionals |
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I'm in Cookeville Tennessee USA
I have 2 here I can list.
Dr. Daniel Donovan
ADHD clinic
105 Cherry Ave.
Cookeville, TN 38501
931-528-5811
Dr. Donald Atkinson
Plateau Mental Health Center
1200 S. Willow Ave.
Cookeville, TN 38506
931-432-4123
I have a son (16) with Aspergers, ADHD, ODD. Both these doctors have been a God send. He's finally on the right meds and getting help with social skills. This is the happiest he has ever been. Thanks to these 2 doctors my son is college bound and excited about it. |
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yesterdaysmom
Emu Egg
Joined: May 18, 2011
Posts: 6
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| Posted: Mon May 23, 2011 3:15 am Post subject: Southwest Virginia? |
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| Anyone know where to go for both Children's and adult diagnosis in Southwest Virginia or nearby? I live in Buchanan County which is sandwiched between Pike County Kentucky and McDowell County West Virginia. NE TN and NW NC and Central VA are also close enough for us if need be. Thanks! |
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808Friend
Emu Egg
Joined: May 24, 2011
Posts: 1
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| Posted: Tue May 24, 2011 11:15 am Post subject: Another facility in Honolulu, Hawaii |
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| As a friend of a family with an autistic son in Hawaii - it is clear to me that there is a place in Hawaii that is a God-send for families dealing with autism and other developmental challenges. The place is the Loveland Academy. Good luck! |
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Daria
Emu Egg
Joined: May 10, 2011
Posts: 7
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| Posted: Fri May 27, 2011 9:18 am Post subject: |
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| jelibean wrote: | SUSSEX, UNITED KINGDOM
DR GEOFF KEWLEY ........................The Learning Assessment Centre
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Thanks for the recommendation. Just been to him - he is great |
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tiffanymm
Emu Egg
Joined: Jul 02, 2011
Posts: 8
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| Posted: Sat Jul 02, 2011 11:21 pm Post subject: |
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In California
I would recommend Dr. Ken Grelling, drgrelling (dot) com - He was really helpful when we were needing some parenting help when our son was a toddler. Completely showed us ways to teach our son discipline in ways that worked without having to resort to hitting him.
Grelling psychology associates
61 Avenida de Orinda #100
Orinda, CA 94563
925-215-8694
In Florida
I would recommend Dr. Drew Rubin, drewrubin (dot) com - He specializes in children with special needs and their families. He did our son's testing as well has our marriage counseling. I can honestly say he saved my marriage. Our son's unique personality and challenges put our marriage through a wringer. He helped us understand how to deal better with our son as well as each other.
Neuropsychological Consultation Associates
1860 N Pine Island Rd Suite 101
Plantation FL 33322
Phone: 954-778-7808 |
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pollyfinite
Sea Gull
Joined: Jul 07, 2011
Posts: 246
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| Posted: Wed Jul 13, 2011 9:42 am Post subject: For Kansas |
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For children in Kansas and the surrounding states:
You'll want to contact Heartspring http://www.heartspring.org/ It is an autism hospital is the best way I can describe it. They have live in care and outpatient services. The facility is beautiful and the staff is amazing. My children have a team. They work with the University of Kansas for their psychiatry (it was listed earlier, we go to the Wichita campus), Heartspring for their OT, speech, they have physical therapy, hearing, everything you need for children but they only do children.
Dr. Valarie L. Kerschen, MD is THE expert pediatrician on neurological issues. She is board certified in them and has a huge waiting list. Still, she is easier to get into than heartsping and is good for a first step.
For adults in Kansas:
The university of kansas is the best bet for adults. Call their psychiatry department.
Also the http://www.counselingcenteratmha.com/ is a good place to start. They have an aspergers group (it's just for children right now) and they have the resources you'll need to get help. They are connected with the county through comcare so this is a great place to start.
Sorry, I just wanted to add more about the MHA because honestly they are wonderful and my kids are in their aspergers group and I prefer their therapy over Heartspring because they have a wraparound service where they come to your child's school, home, take them out in the community, that is in addition to what the schools offer and heartspring does not go out into the community with your child like MHA will.
So, for therapy, we go to MHA, for meds, we go to KU wichita campus and for OT and Speech we go to heartspring.
_________________
It's an emu egg |
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Todesking
Suspected Cannibal
Joined: Apr 23, 2010
Age: 43
Posts: 3087
Location: Depew NY
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| Posted: Thu Jul 14, 2011 11:51 am Post subject: |
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I was tested by this psychologist. Western. NY Outside of Buffalo
Michael P. Santa Maria Ph.D
DeGraff Memmorial Hospital
445 Tremont Street Suite 323
P.O. Box 750
North Tonawanda, NY 14120-0750
(716) 690-2560
Dr. Santa Maria sent to this psychologist.
Drew C. Messer J.D. Ph.D
Clinical and Child Psychologist
5888 Main Street
Williamsville, NY 14221
(716) 961-9435
E-Mail: dc.messer@live.com
www.electronicgamingtherapy.com
Dr. Messer also has Aspergers Syndrome so he knows what you are going through.
_________________
There he goes. One of God's own prototypes. Some kind of high powered mutant never even considered for mass production. Too weird to live, and too rare to die -Hunter S. Thompson
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albaemme
Hummingbird
Joined: Jun 25, 2011
Posts: 23
Location: Long Island
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| Posted: Fri Jul 29, 2011 2:50 am Post subject: The Cody Center |
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For undiagnosed Asperger's/HFA adults in the NY area: stay away from the Cody Center in Suffolk County. Maybe their clinic is fine for the evaluation of children and some adults. I don't see how. My experience was awful. I was told upfront they're understaffed and underfunded.
The staff showed no empathy whatsoever (ironically). I was treated like a lab animal. The non-medical staff varied from stupid to rude to talking down to me. They didn't understand or care about how they were upsetting me. I started having meltdowns at home.
Self-administered questionaires to fill out at home. One hour intake session, over a month and a half later. No structured, organized interview. The psychiatrist had me go on about my past for the full hour while he scribbled on a pad and every now and then switched his eyes from me to the social worker next to me. I think he actually used what he knew of my past and the recent complaints I'd made to the administrator to deliberately provoke a distressed reaction, by recreating situations and behavior that upset me. Except I was too inhibited in person to outwardly react. If his behavior was deliberate it was sick and twisted. Another graduate from the Josef Mengele School of Medicine.
I was cleared for an evaluation with a psychologist. One standardized test-the ADOS. That was all the psychiatrist ordered for me. I cancelled the appointment. I don't think I want anything more to do with ANY department of the Stony Brook University Medical Center, based on past experiences.
I just switched to the Fay J. Lindner Center in Nassau County. The doctors and other clinical staff are all women. They give individualized attention, a full, proper evaluation and offer an enormously comprehensive number of services. The young woman who took my info over the phone was very kind. |
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kevsmom
Butterfly
Joined: Sep 27, 2011
Posts: 10
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| Posted: Sun Oct 16, 2011 2:09 pm Post subject: |
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Dr. Frank Ailleo
2021 Concert Dr
Virginia Beach, VA 23456
Phone: (757) 668-2840
He is a developmental ped. He also practices in Newport News I believe. |
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aspburgers
Emu Egg
Joined: Oct 31, 2011
Posts: 5
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| Posted: Mon Oct 31, 2011 9:10 am Post subject: |
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| 5j5j |
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LabPet
alchemist
Joined: Jan 05, 2007
Posts: 4034
Location: UK
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| Posted: Mon Oct 31, 2011 10:14 am Post subject: Re: The Cody Center |
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| albaemme wrote: | For undiagnosed Asperger's/HFA adults in the NY area: stay away from the Cody Center in Suffolk County. Maybe their clinic is fine for the evaluation of children and some adults. I don't see how. My experience was awful. I was told upfront they're understaffed and underfunded.
The staff showed no empathy whatsoever (ironically). I was treated like a lab animal. The non-medical staff varied from stupid to rude to talking down to me. They didn't understand or care about how they were upsetting me. I started having meltdowns at home.
Self-administered questionaires to fill out at home. One hour intake session, over a month and a half later. No structured, organized interview. The psychiatrist had me go on about my past for the full hour while he scribbled on a pad and every now and then switched his eyes from me to the social worker next to me. I think he actually used what he knew of my past and the recent complaints I'd made to the administrator to deliberately provoke a distressed reaction, by recreating situations and behavior that upset me. Except I was too inhibited in person to outwardly react. If his behavior was deliberate it was sick and twisted. Another graduate from the Josef Mengele School of Medicine.
I was cleared for an evaluation with a psychologist. One standardized test-the ADOS. That was all the psychiatrist ordered for me. I cancelled the appointment. I don't think I want anything more to do with ANY department of the Stony Brook University Medical Center, based on past experiences.
I just switched to the Fay J. Lindner Center in Nassau County. The doctors and other clinical staff are all women. They give individualized attention, a full, proper evaluation and offer an enormously comprehensive number of services. The young woman who took my info over the phone was very kind. |
albaemme, Very sorry about your experience. And, regarding albaemme's post: an important issue has been raised regarding AS individuals. Therapeutic abuse can be devastating and, at present, there are no stop-gap measures to prevent bad practice. Of course, there are gradations of bad practice and no real concern about minor upsets (& there is normal variability; not every practitioner works for everyone). However, in the remote event of therapeutic abuse (which has not yet been raised on this forum board), what resources are available?
The Human Rights Commission may be a resource but therapeutic abuse can be woefully ignored. In the remote event of an emergency, do not hesitate to call 999 (or 911) and for any Aspie who feels threatened by a practitioner, NEVER enter any office alone unless you have protection. Keep a log of what has occurred and contact legal authority right away.
I had a life-changing brutal experience with certain neuro/psych "professionals." Never again and the damage is very real. For one relatively minor instance, one who telephoned me at past 9pm, asking for sex whilst he was intoxicated. Then, he was sexually fondling himself in my presence. A stalker. This is scary and painfully unprofessional. Worse, I promise, there is no resouce for protection and the backlash I received was horrific. Cascade of nightmarish "professionals," including a public health nurse from Hades.
Ironically, I do not, at all (and never did) need their services. Unfortunately, they did complicate my life unnecessarily. Then, I did purposely seek them out to report activities. Now, there are fewer neuro/psych professionals as 3 are no longer in service - at present, at least one is in jail. Lab Pet, the Therapist Slayer at work.
In all seriousness, if anyone does know of resources for therapeutic abuse, please do let us know.
_________________
"Barn's burnt down, now I can see the moon." - Masahide, circa 1700. Haiku poetry. |
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