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LKL
Phoenix
Joined: Jul 22, 2007
Age: 33
Posts: 1274
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 Posted: Fri Jun 06, 2008 1:54 pm Post subject: |
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| when actual autistics try to debate anything on their message boards, they are banned. |
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beau99
Logophile
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Joined: Nov 06, 2007
Age: 23
Posts: 1365
Location: PHX
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| Posted: Fri Jun 06, 2008 2:19 pm Post subject: |
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| LKL wrote: | | when actual autistics try to debate anything on their message boards, they are banned. |
O RLY?
I've debated issues on there since November. I haven't been banned.
Same goes for some others. The only people who get banned actually deserve it.
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My site: Thoughts of an Autistic (last updated August 2009) |
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Shidash
Blue Jay
Joined: May 12, 2007
Age: 15
Posts: 80
Location: Maine
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| Posted: Fri Jun 06, 2008 6:08 pm Post subject: |
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| catspurr wrote: | | Shidash wrote: | | I dislike Autism Speaks because of what others have said, but because they also support the unsafe practice of tying young children on the spectrum to dogs. |
This is new to me. What do you mean? |
On one of their pages I found several links to the pages of service dog organizations that 'tether' young children to dogs. This is very unsafe for both the dog and the child.
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"A person shielded by a true, benevolent passion is invincible!" |
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The_Cucumber
Phoenix
Joined: May 05, 2007
Posts: 665
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| Posted: Fri Jun 06, 2008 6:30 pm Post subject: |
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The problem with Autism Speaks has 3 main causes:
1. They are called "Autism Speaks" yet membership and leadership is mainly comprised of family members of severely autistic children. Thus their very name is seen as misleading
2. The vast majority of their funding goes to fund cure research. And this cure research mainly focuses around identifying the genes associated with autism with the purpose of creating a prenatal screening test, which would effectively cause a genocide of autistic individuals, while doing nothing to help people who are already autistic.
3. They push a purely tragic picture of autism. Completely ignoring the high functioning end of the spectrum, they certainly don't talk about people like me where my symptoms boil down to just a few more quirks then the average person.
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The improbable goal: Fear nothing, hate nothing, and let nothing anger you. |
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Chibi_Neko
Want a Cookie
Joined: Oct 24, 2007
Age: 27
Posts: 1800
Location: Newfoundland, Canada
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| Posted: Sat Jun 07, 2008 5:39 pm Post subject: |
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| catspurr wrote: | | Shidash wrote: | | I dislike Autism Speaks because of what others have said, but because they also support the unsafe practice of tying young children on the spectrum to dogs. |
This is new to me. What do you mean? |
Basically parents are getting too lazy to hold on to their children's hands, so they tie them onto a dog and assume that all is well.
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Humans are intelligent, but that doesn't make them smart. |
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KingdomOfRats
Phoenix
Joined: Nov 01, 2005
Age: 25
Posts: 3583
Location: Manchester
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| Posted: Sat Jun 07, 2008 7:50 pm Post subject: |
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| The_Cucumber wrote: | The problem with Autism Speaks has 3 main causes:
1. They are called "Autism Speaks" yet membership and leadership is mainly comprised of family members of severely autistic children. Thus their very name is seen as misleading
2. The vast majority of their funding goes to fund cure research. And this cure research mainly focuses around identifying the genes associated with autism with the purpose of creating a prenatal screening test, which would effectively cause a genocide of autistic individuals, while doing nothing to help people who are already autistic.
3. They push a purely tragic picture of autism. Completely ignoring the high functioning end of the spectrum, they certainly don't talk about people like me where my symptoms boil down to just a few more quirks then the average person. |
they are biased and ignoring of,towards adults who come under the 'severe' end as well,they try to push beliefs to others that LFAs can never use the internet,communicate in any form or type,and any users on their forum who are LFA are non existant because are using a forum,its not just aspies and HFAs they're ignorant of,its adult LFAs to.
Not all the AS supporters are ignorants or bad,quite a few have hfa/aspie children to,so it's not all of them.
maybe its that all the actual members of AS need to have their children become adults to see what spectrumers had been telling them already.
and AS should become something more like the NAS.
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Shidash
Blue Jay
Joined: May 12, 2007
Age: 15
Posts: 80
Location: Maine
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| Posted: Sat Jun 07, 2008 9:40 pm Post subject: |
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Yes, AS needs to become like the NAS. The NAS sounds wonderful.
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"A person shielded by a true, benevolent passion is invincible!" |
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LKL
Phoenix
Joined: Jul 22, 2007
Age: 33
Posts: 1274
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| Posted: Sun Jun 08, 2008 2:37 am Post subject: |
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| beau99 wrote: | | LKL wrote: | | when actual autistics try to debate anything on their message boards, they are banned. |
O RLY?
I've debated issues on there since November. I haven't been banned.
Same goes for some others. The only people who get banned actually deserve it. |
there was a thread a few months ago that linked to a debate (about vaccines?) on the Autism Speaks site, and the person (from WP) who posted there was banned for being to aggressive/insulting/whatever; I read the thread in question, and she (?) wasn't being insulting - merely saying, 'what you are saying is incorrect, and here is the evidence to back me up.' Someone else from WP joined in the discussion, and they were banned too. I don't think that the second person was being insulting either. I don't remember either of their names.
two people aren't a lot to base a whole analysis on, but they were clearly being banned for political reasons rather than any actual impoliteness. |
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demoluca
Phoenix
Joined: Nov 17, 2007
Posts: 617
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| Posted: Tue Jun 10, 2008 6:00 pm Post subject: |
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I just wish they would shut up for once.
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roche12
Blue Jay
Joined: Jun 10, 2008
Age: 26
Posts: 78
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| Posted: Wed Jun 11, 2008 1:20 am Post subject: |
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This is what is wrong with them.
"You dont live with autism"
So those of us that learned to communicate decently have no idea about what an autistic that cant talk is going through but a parent of an autistic child does. We experience the world the same ways they do but dont understand what they are feeling, but the parents who dont experience the world the autistic way know what its like.
What I would like for these people to do is give me a list of things they cant stand, sounds, music, smells, lights, colors, ect. Let me know all the worst things that could happen to them. Then I am going to put them in a room full of people that do not speak their language and tell all those people to do these things. Maybe then they will "get it", maybe then they will understand the violent outbursts, the screaming and the self damaging things their severe autistic children(as they like to call them) do.
"I dont want a cure for me, its for them"
SURE!!!!!!! This is a lie they like to tell themselves so they dont feel bad. Ever notice how the parents of lfa children who dont want a cure have nothing bad to say about their child. They view them no different than any other child. The ones who want a cure see their children as suffering somehow.
"Autism for you is different because you can talk"
No its not, HFAs are just better then LFAs at fixing our problems, better at coping. So here is a crazy idea, lets all find a way to help LFAs deal with their world. Of course that would require listening to HFAs like the real experts do because we know more then anyone else does because we can best describe what is happening.
IMO they are upset that they dont have the super smart kid, they cant show off how great their child is. Funny part is they appear to be out to destroy the very thing they wanted from their child. You know, the great inventors, scientists and artists of the world.... the ones who all seem to be on the spectrum.....
Anyways, AutismSpeaks seems to believe that you can "cure" autism without killing the person. I dont believe this is possible, you cant rewire a brain without destroying it. Many of these people are the ones who think cancer would be better than autism because it kills those who suffer from it.... because death is sooooooooooooooo much better than life, rather funny because if I was given the option of death or forced cure I would take death, the idea of not being me is rather scary. |
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ImMelody
Phoenix
Joined: Jun 10, 2008
Posts: 1012
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| Posted: Wed Jun 11, 2008 7:30 am Post subject: |
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My view of Autism Speaks is that they are a group of well meaning adults with misguided information. It's because of our local Autism Speaks president that three new bills were passed in my state. I cannot say that this is a bad thing, even if where they were coming from was wrong. I just spent a day volunteering for their walk this past weekend. While I don't agree with where the money was going, it was nice to see families out and participating in the festivities that went along with it. (Though, I whole-heartedly disagree with some of the "vendors" that were set up.)
I never see where the money from AS goes. They rarely offer grants to families to assist with any of their large medical bills, but instead, they ask those same families to donate money. They never seem to have a lot of answers to questions of where families should turn once they realize they are living with autism. So yeah, my two cents as someone that first had contact as a part of autistic child now learning that she herself is aspie. |
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Buttersboy142
Hummingbird
Joined: Jul 17, 2007
Posts: 21
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| Posted: Sat Jun 14, 2008 2:12 am Post subject: Re: Autisim Speaks |
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| Sylfa wrote: | | I've noticed some people on Wrong Planet really dislike Autism Speaks. Why is that? I'm new to the Aspergers/Autistic Spectrum community. Is there some reason I should avoid this group? |
Because alot of Autistic people and people with AS find the idea of a cure insulting. Myself I would like a cure. I believe Autism/ AS is nothing but "a condition that affects social interactions, creates abnormal behaviors, and affects ones everyday life." I dont't understand why anybody would choose to remain the way we are. I mean the thought of not being AI is like walking to the unknown and its scary but it could also be alot better. Plus if there is a possibility that I could have a child and have them live without this impairment I would love that. |
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t0
Phoenix
Joined: Mar 24, 2008
Posts: 798
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| Posted: Sat Jun 14, 2008 10:35 am Post subject: Re: Autisim Speaks |
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| Buttersboy142 wrote: | | I dont't understand why anybody would choose to remain the way we are. |
It depends on where you are on the spectrum. I feel that the ability I have to focus intently on my areas of interest offsets the sensory overload and other issues I may face. If I had a magic pill to take that would get rid of my sensory issues - would it leave me with the advantages? Or would it change me as a whole?
All things considered, I'd rather be me. |
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hadapurpura
Phoenix
Joined: May 29, 2005
Posts: 594
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| Posted: Fri Jun 27, 2008 4:19 pm Post subject: |
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There's an interesting take on this here:
autisticcbfhblogspot.com
What she says is right. Autism Speaks is NOT an organization made to help people with autism. It's an organization made to help parents who feel burdened and embarrased by having an autistic child. Their biggest accomplishment is this movie called "Autism everyday", where you can finds pearls like these:
Mother talks about killing her autistic daughter and herself
This is the seven minutes version of the film for Youtube:
Autism Everyday ---> as you can see, comments have been disabled for the video (well, for every video by Autism Speaks, actually).
Nevermind that they have threatened to sue not one, but two autistic kids for speaking up against Autism Speaks.
Generally, when I bump into organizations to help people with "x" or "y" condition (a lot of them run by parents or families of children with said condition, just like in AS's case), comments I see or hear talk about both the negative and positive side of it, what they learned and gained in life thanks to it, what makes their children special in the good sense of the word. Also, they tend to focus on how to help their children to adapt themselves to the world and to take advantage of what makes them unique. There's not a lot of denial about having rough times, but above all things, there's love for their children and looking for what's best for them. And this is true for blindness, musical talent, Down's syndrome, left-handedness or AIDS. -so not being run by autistic people is not an excuse, either.
Is there a list of some sort with the names of celebrities or companies that sponsor or help AS? it'd be cool to write to them. |
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Flipmode
Pileated woodpecker
Joined: Jul 16, 2008
Age: 20
Posts: 198
Location: Houston, Texas
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| Posted: Sun Jul 20, 2008 2:33 am Post subject: |
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Were these the people that were advocating shock therapy? I heard there were people that believe that giving electric shocks to autistic kids would cure something, I hate those Nazi's
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