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gwynfryn
Velociraptor
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Joined: Aug 22, 2004
Posts: 413
Location: France
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 Posted: Sun Jan 18, 2009 4:27 pm Post subject: Re: NLD Information and Support Thread |
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| LostInSpace wrote: | Short description of NLD (nonverbal learning disorder) for quick reference:
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Thanks for that; it's more or less my interpretation of the condition, from reason of my experience on Aspie sites, but there are differences; I've posted my e-mail, get in touch? |
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vivinator
Deinonychus
Joined: Nov 16, 2008
Age: 29
Posts: 300
Location: MD
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| Posted: Tue Jan 20, 2009 7:44 pm Post subject: |
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well I got dx'ed last week. my dx is in my signature.
though I didn't have a neuropsych eval which is required for an nld diagnosis. though i'd like a neuropsych eval since I'm curious and for a 2nd opinion. also to see what else i may have.
http://www.wrongplanet.net/postt88685.html
_________________
All men are frauds. The only difference between them is that some admit it. I myself deny it.
-HL Mencken
-as of now official dx is ADHD (inattentive type) but said ADD (314.00) on the dx paper, PDD-NOS and was told looks like I have NLD |
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vivinator
Deinonychus
Joined: Nov 16, 2008
Age: 29
Posts: 300
Location: MD
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| Posted: Tue Jan 20, 2009 7:45 pm Post subject: |
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I've agreed to start doing the neurofeedback sessions maybe starting tomorrow. plus cognitive behavioral therapy. at the drake institute which i think i mentioned earlier
_________________
All men are frauds. The only difference between them is that some admit it. I myself deny it.
-HL Mencken
-as of now official dx is ADHD (inattentive type) but said ADD (314.00) on the dx paper, PDD-NOS and was told looks like I have NLD |
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zen_mistress
* ENFP *
Joined: Jun 12, 2007
Age: 32
Posts: 2196
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| Posted: Fri Jan 30, 2009 4:55 am Post subject: |
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| I think I have aspergers, but I am not aspergersy enough to fulfil all that criteria stuff. |
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masonjarjar
Emu Egg
Joined: Feb 04, 2009
Posts: 3
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| Posted: Thu Feb 05, 2009 11:06 am Post subject: |
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(I just was informed there is a sticky on NLD, so here's my original post, since it will probably get lost down the road..)
Hello, I'm the father of a 9 year old girl with Non-Verbal Learning Disorder. I'm wanted to know if anyone here has been diagnosed with this particular ASD?
It's very similar to Aspergers, with a few exceptions. While many with Aspergers/Autism have no trouble with math, my daughter just does not get anything math-related very well. She's in 4th grade and still can't do simple addition in her head. She also has trouble with time. She seldom knows what day it is, can't really tell you what tomorrow is going to be, and sometimes will ask if she has school today in the middle of the day on Saturday. Her short term memory (a few days or weeks) seems to get very confused, but she remembers things that happened years ago with amazing clarity.
She doesn't have the razor-sharp interest focus that some Aspie's have, but she does love to spend time organizing her things.. (stuffed animals, rock collection, lincoln log houses).
She uses what I call "snippets" in her speech. Little bits of phrases that sound like they have no business coming out of the mouth of a 9 year old kid.
She toe-walks, which could also be attributed to her mild Cerebral Palsy, but I've also heard that this can be an AS trait. Sometimes you just don't know where these things come from.
She also has been having a really difficult time recently with socializing at school, and sadly, it seems to be getting worse every year, as the kids get older, they seem to get more cruel, esp. the other girls.. She's just the kind of kid, so desparate sometimes to find a friend, that she'll fall for the same tricks over and over.. then when *she* lashes out in frustration, it's her fault. Instead of trying to educate the others, they put this all on her. As if she doesn't have enough to worry about!
We fear that Jr. High (in a few years) might be too much to handle for her and have been looking into other options, though the options in our area that we can afford are limited.
I was just wondering if anyone has any experience with this disorder. I know her particular place on the spectrum isn't exactly the same as anyone elses, maybe you recognize some of the issues listed above in yourself or someone you know.
Thanks,
mjj |
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masonjarjar
Emu Egg
Joined: Feb 04, 2009
Posts: 3
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| Posted: Thu Feb 05, 2009 11:20 am Post subject: Re: NLD Information and Support Thread |
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| LostInSpace wrote: |
General characteristics of NLDers:
Verbal IQ is often much higher than Performance IQ
Reliance on verbal mediation (“talking oneself through a task”)
Focus on details while missing the big picture
Difficulty with sarcasm and a tendency towards literal thinking
Preference for routine and difficulty with novelty or change
May appear naïve and gullible
Very prone to anxiety and depression
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Re: my daughter with NLD:
Verbal IQ - She's always been a great reader, and she has an awesome vocabulary.
Focus on details - While she's a great reader, it would be hard for her to summarize or find a 'higher meaning' or theme to something she just read.
Sarcasm - at a young age, of course, she didn't get it, but we've made a point to introduce her to the concept over the years and she's getting pretty good at it herself!
Literal thinking - we sometimes refer to her as "miss literal" - enough said!
Preference for routine and difficulty with novelty or change - she has shown this trait over the years, once she knows something is a "rule" she can become quite bossy.. esp. with other kids.
May appear naïve and gullible - this is one of her bigger social problems at school. She just doesn't get when someone is being her "friend" just to they can tease her. The school doesn't take this seriously at all.
Very prone to anxiety and depression - she's always been such a happy kid, but recently she's started to dislike going to school. I think the social issues she has is starting to get to her as she's becoming more self-aware. |
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pineapple
Velociraptor
Joined: May 01, 2006
Age: 25
Posts: 467
Location: san francisco
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| Posted: Mon Feb 16, 2009 8:57 pm Post subject: |
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| masonjarjar wrote: | (I just was informed there is a sticky on NLD, so here's my original post, since it will probably get lost down the road..)
Hello, I'm the father of a 9 year old girl with Non-Verbal Learning Disorder. I'm wanted to know if anyone here has been diagnosed with this particular ASD?
It's very similar to Aspergers, with a few exceptions. While many with Aspergers/Autism have no trouble with math, my daughter just does not get anything math-related very well. She's in 4th grade and still can't do simple addition in her head. She also has trouble with time. She seldom knows what day it is, can't really tell you what tomorrow is going to be, and sometimes will ask if she has school today in the middle of the day on Saturday. Her short term memory (a few days or weeks) seems to get very confused, but she remembers things that happened years ago with amazing clarity.
She doesn't have the razor-sharp interest focus that some Aspie's have, but she does love to spend time organizing her things.. (stuffed animals, rock collection, lincoln log houses).
She uses what I call "snippets" in her speech. Little bits of phrases that sound like they have no business coming out of the mouth of a 9 year old kid.
She toe-walks, which could also be attributed to her mild Cerebral Palsy, but I've also heard that this can be an AS trait. Sometimes you just don't know where these things come from.
She also has been having a really difficult time recently with socializing at school, and sadly, it seems to be getting worse every year, as the kids get older, they seem to get more cruel, esp. the other girls.. She's just the kind of kid, so desparate sometimes to find a friend, that she'll fall for the same tricks over and over.. then when *she* lashes out in frustration, it's her fault. Instead of trying to educate the others, they put this all on her. As if she doesn't have enough to worry about!
We fear that Jr. High (in a few years) might be too much to handle for her and have been looking into other options, though the options in our area that we can afford are limited.
I was just wondering if anyone has any experience with this disorder. I know her particular place on the spectrum isn't exactly the same as anyone elses, maybe you recognize some of the issues listed above in yourself or someone you know.
Thanks,
mjj |
I can't offer much advice, but I can definitely relate to your daughter. I wasn't diagnosed with NLD until I was 17, and it was really hard to be so different with no clear reason why. When I was your daughter's age, I was able to make friends through Girl Scouts, outside of my school. Getting her involved with groups/clubs related to her interests might be a good start. Maybe she'll have a better time making friends outside of school, since people will see her in a different context.
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chuck norris does not sleep. he waits.
Go here, be asexy------> http://theonepercentclub.blogspot.com |
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vivinator
Deinonychus
Joined: Nov 16, 2008
Age: 29
Posts: 300
Location: MD
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| Posted: Wed Mar 11, 2009 11:20 pm Post subject: |
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I pasted this in an early post:
I read once as far as emotions
NLD'ers feel the normal range of emotions but are inept at expressing them.
As'ers do not feel the normal range of emothions.
didn't ask is this true?
I actually think I'm more of an AS'er in this instance
_________________
All men are frauds. The only difference between them is that some admit it. I myself deny it.
-HL Mencken
-as of now official dx is ADHD (inattentive type) but said ADD (314.00) on the dx paper, PDD-NOS and was told looks like I have NLD |
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Lightning88
Prefers Flamingos
Joined: Aug 05, 2006
Age: 20
Posts: 3847
Location: Indiana
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| Posted: Wed Mar 11, 2009 11:33 pm Post subject: |
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I actually get extremely emotional. I don't know if it's because of my age or what. Apparently I was a very good baby and toddler, and I didn't start really feeling like this until I was about twelve. But when I get mad, everyone better get out of my way. I'm not afraid of attacking, which is extremely bad on my part. But that could also be because I grew up in an inner-city school district, so that could also be playing some factors. And now I'm just rambling on..  |
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GreatCeleryStalk
Velociraptor
Joined: Mar 19, 2008
Age: 26
Posts: 492
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| Posted: Thu Mar 12, 2009 1:10 am Post subject: |
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| Experiencing the emotion and appropriate expression are different things. People often confuse my expression of confusion with me being upset or angry, for example. I'm confused about a reaction or a social situation, but not angry. |
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starygrrl
Deinonychus
Joined: Apr 13, 2009
Posts: 326
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| Posted: Mon Apr 13, 2009 11:35 pm Post subject: |
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I was diagnosed with NLD when i was 7. Most of the pervasive visual features were treated when I was seven and eight through an intense visual training program.
The social issues were barely understood when I was treated, much of what the nine year old girl is going through sounds so familiar. While I have differences, such as I never had the difficulties with mathematics, and I have the singular subject focus more common with AS.
I have to say the main reason I was diagnosed with NLD was the fact I was imaginative (and could do imaginative play) and had full emotional range.
The problem is I have difficulty understanding others emotions and processes emotions differently. The fact is I have a hard time understanding other people at times in terms of motivations in general. I am also shy, though less so as an adult. I mean I could go on and on. I do know the NLD diagnosis, but I would not be shocked if there was another diagnosis when I was a child. It was an incredibly new diagnosis when I was younger, and I think they only caught diagnosed it as NLD because of the visual issues.
I think my parents suspected that it was a little more than the visual issues and there was some similarities to AS.
I never had loving parents. While they treated the visual issues they were rather intolerant with the social issues which lead to a poor home life, in a addition to a school life which was worse. These social issues were barely understood when I was diagnosed.
This is not to say all is bad, by all means I fall under a success story. I have an advanced degree, a great job, recorded several albums, and play several musical instruments. I also having a lovely relationship with a fellow who does make an effort to understand me. |
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Luluchan531
Hummingbird
Joined: Mar 16, 2009
Age: 23
Posts: 18
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| Posted: Tue Apr 14, 2009 1:02 am Post subject: |
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| masonjarjar wrote: | (I just was informed there is a sticky on NLD, so here's my original post, since it will probably get lost down the road..)
Hello, I'm the father of a 9 year old girl with Non-Verbal Learning Disorder. I'm wanted to know if anyone here has been diagnosed with this particular ASD?
It's very similar to Aspergers, with a few exceptions. While many with Aspergers/Autism have no trouble with math, my daughter just does not get anything math-related very well. She's in 4th grade and still can't do simple addition in her head. She also has trouble with time. She seldom knows what day it is, can't really tell you what tomorrow is going to be, and sometimes will ask if she has school today in the middle of the day on Saturday. Her short term memory (a few days or weeks) seems to get very confused, but she remembers things that happened years ago with amazing clarity. |
Though I'm pretty good with math, I have a lot of the same memory problems you are describing that are in your daughter. I have a hard time remembering what day it is and I have a piss-poor concept of time (especially if I'm tired).
| masonjarjar wrote: |
She doesn't have the razor-sharp interest focus that some Aspie's have, but she does love to spend time organizing her things.. (stuffed animals, rock collection, lincoln log houses).
She uses what I call "snippets" in her speech. Little bits of phrases that sound like they have no business coming out of the mouth of a 9 year old kid.
She toe-walks, which could also be attributed to her mild Cerebral Palsy, but I've also heard that this can be an AS trait. Sometimes you just don't know where these things come from. |
I have the worst organization skills ever for me being a college student. I would say that the fact that her organization skills seem to be an interest is somethimg to be encouraged.
And for the "snippets" get used to it. people with NLD tend to be very verbose and use verbal mediation a lot (when my processing can keep up; I do the same...and win my arguments  ).
| masonjarjar wrote: |
She also has been having a really difficult time recently with socializing at school, and sadly, it seems to be getting worse every year, as the kids get older, they seem to get more cruel, esp. the other girls.. She's just the kind of kid, so desperate sometimes to find a friend, that she'll fall for the same tricks over and over.. then when *she* lashes out in frustration, it's her fault. Instead of trying to educate the others, they put this all on her. As if she doesn't have enough to worry about!
We fear that Jr. High (in a few years) might be too much to handle for her and have been looking into other options, though the options in our area that we can afford are limited.
I was just wondering if anyone has any experience with this disorder. I know her particular place on the spectrum isn't exactly the same as anyone else's, maybe you recognize some of the issues listed above in yourself or someone you know. |
Jr. High is tough, for NT or anyone else. I suggest a small, private or charter school that can understand the needs of those with NLD. Here are a few links that may help:
http://www.greatschools.net/cgi-bin/showarticle/2967
http://www.nldline.com/
http://www.wrightslaw.com/info/sec504.index.htm
http://www.ed.gov/about/offices/list/ocr/504faq.html
http://www.ed.gov/parents/needs/speced/iepguide/index.html
http://www.staracademy.org/
http://www.fa-ct.org/
http://www.orionacademy.org/index.shtml |
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Greentea
Goddess of Wisdom
Joined: Jun 15, 2007
Age: 47
Posts: 5496
Location: Middle East
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| Posted: Tue Apr 14, 2009 1:55 pm Post subject: |
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That was an interesting read for me, starygrrl. I can't even start to comprehend what it may be like to be diagnosed and get help, at least with some of the issues, from an early age, rather than be blamed and ridiculed for all the symptoms forever by family.
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So-called white lies are like fake jewelry. Adorn yourself with them if you must, but expect to look cheap to a connoisseur. |
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starygrrl
Deinonychus
Joined: Apr 13, 2009
Posts: 326
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| Posted: Tue Apr 14, 2009 4:24 pm Post subject: |
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Greentea, while the visual elements were treated, I was still blamed and rediculed by my family for the social issues. I ultimately broke apart with them because it was an abusive family relationship. We just don't talk anymore, and because we don't talk my life is significantly less stressful.
I will say, I look at any article on NLD and bullying with a case study, it always sounds so familiar. It also shows me schools are pretty clueless in terms of what to do, and plain and simply just do not get it at all. |
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mikemmlj
Pileated woodpecker
Joined: Mar 14, 2009
Age: 38
Posts: 192
Location: Albuquerque, NM
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| Posted: Sat May 09, 2009 4:41 am Post subject: |
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The one thing I noticed with several of you is the same thing I dealt with High Verbal IQ (88 %) and low performance IQ (39%). It seems NLDer's are always told "You're so smart, just stop being so lazy." A term I learned to hate!
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The Giants and Trolls win, let us die on the right side with Father Odin. |
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