RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

Post Reply New Topic

I'd think I'd say ... WP Section for Parents of Children with Classic Autism, PDD-NOS and/or Speech Delays

My son's diagnosis is "Autism", but he's borderline PDD-NOS so I could acceptably label him that too, he's also a case of regressive autism because he had some language prior to 18 months then regressed into a non-verbal for another 6 months before slowly relearning words ... and even when he was non-verbal the neurologist said he considered him HFA (though I'd say he was moderate functioning, I don't know why people see the need to say high or low and when there is a middle ground) ....

Ok I'm happy to go with Washi's suggestion. Does anybody else have an alternative at this point.?

I also think Washis suggestion seems the best, covers what we want it to nicely I think.

Well that's three votes for "WP Section for Parents of Children with Classic Autism, PDD-NOS and/or Speech Delays"

Vote number 4

Thanks Liloleme,

Then lets wait for DW to change the title.
In the meantime I hope you all enjoy your weekend.

Unfortunately the character limit comes at the dash in PDD-NOS ..

Lol, TOTALLY harder than it should be, isn't it?

... "Classic Autism, PDD-NOS & Speech Delays"

Yep thats good above.
Oh I played the Autism card today for the first time, we took James to the hospital and saw the sign saying 3hr wait. We told reception and the triage nurse that he has Autism and is non verbal and that he might get upset at waiting a long time and can't tell us when he's in pain, so we only waited about 1/2hr.
I might've exaggerated just a little bit..but hey us parents of ASD kids have a hard enough time with everything else, so need to take all the advantages we can get

On a holiday to Disneyland we were stuck in LAX airport for 6 hours in a customs queue as the computer systems were down.

As we waited in queue my wife and I became agitated at the real prospect of my then 4 yr old daughter having a meltdown. Luckily for us the length of the flight from Australia mean't she was sufficiently tired to rest on mommies knee. Other NT children were not handling the wait so well with plenty going ballistic and few going AWOL.

During the wait a very tall African american customs officer came and entertained the kids and so fortunately my daughter was a little entertained but have to say it was our biggest challenge given she normally doesn't like waiting in crowded long queues.

We played the autism card at the airports. We took a trip around the US to see family and my husbands daughter before leaving for France. It was nice to see my husbands daughter, my husband has not seen her since she was born (kind of a one night stand situation) and our kids had a lot of fun with her. Anyway....we flew on four different airplanes then we flew on another to France. My kids did really good and I think a lot of it was that we planned every thing really well and we did tell people that our kids had Autism. We had a direct flight from LAX California to Paris so that was a big help as well. I dont think there is anything wrong with it because it does help to lower wait times....our kids do not like waiting and its more stressful for them, us and anyone around us LOL.
I especially dont blame you, Nostromo for doing so in the hospital when your son was having febrile seizures. Its like when I used to have to take my oldest in to the ER with asthma...I told them right away and we got in really fast. Certainly not like we are lying or doing anything underhanded.

My kid has a new thing. He likes to say "Ow! Ow! OW!" when he's not getting his way which is embarrassing (especially to his Dad) in public places. I've tried ignoring him and scolding him right away, scolding at least tends to make him stop for the moment but not in the long run. Suggestions?

Also, it looks like the title of the thread got botched a bit ... I don't think the "RE: Kids w/" is supposed to be there?

My daughter largely slept from Sydney to LAX but woke up on landing and her ears were hurting because of the de-pressurizing cabin lasting over 30 minutes, My daughter used to always seek the bathroom when she is in pain and my wife carried her to the bathroom but was told to go back to the seat as the plane was landing. She tried to explain to the cabin crew that my daughter was autistic and wanted to go to the bathroom. In the end she was allowed to walk around with my daughter while the plane landed.

The American passengers sitting next to us were very polite and understanding. The Australians unfortunately complained about the noise (would you believe it!). One Australian lady on my left told me that she has a daughter the same age and thought it was cruel of us to take her in a long haul flight at her tender age.

Nowadays my daughter is much better with long plane flights and her ears don't hurt as much. Must have been a developmental phase.

I added that to keep people entering from the front page from being confused. On the front page you can't tell that the thread lives in parenting. But maybe the abbreviations aren't universal enough? Its all I could fit.

I really hate people with comments who try to tell you how you should be raising your kids. I had some old guy at a book store when we were still in the US go on and on about my daughters pacifier and how it would ruin her teeth and I was very polite and I told him that her teeth were fine and that she only used her pacifier when she was stressed, he kept going on and on so then I told him she had Autism and that she needed it to keep her calm in crowded places. Then he told me that I was going to be really sorry and that I was going to make my daughters teeth look all crooked and plus she had the retardation.....My husband had to keep me from killing him. I know I said some very choice words but he really pissed me off!
If you want a pointer for next time you fly take some candy or gum with you and give it to your daughter before landing, peppermint candy works the best if she will take it because it will make her swallow more and keep her ears open. They also have these little ear plugs that you can buy online that hold the ear open to keep the pressure down. My son had motion sickness so we have little pressure point bracelets for him to wear. I was worried and had the little bag ready for him but he was fine with the bracelets and the candy.

Last edited by liloleme on 07 Jun 2011, 3:43 am, edited 1 time in total.