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BurntOutMom
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12 Apr 2011, 12:21 pm

DW wrote:
Is our goal here to raise children that make us happy, or to raise children that ARE happy?"


*HUGS!*

That is what I appreciate about being here.

In regards to the counselor, the only other time I've gotten what I perceived to be a negative reaction is when I recently commented that I no longer care what report cards say. Maybe he was just shocked that I said that, considering that I place high importance on education... However, I no longer think that a report card gives a true reflection of my child, nor should I hold him to the expectations of other children.. What now matters to me is that he tries to do his best... and that I do my best to make education meaningful to him... I don't see how I can expect more, or how doing so is beneficial to him.



Silas
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12 Apr 2011, 12:37 pm

I think the counselor was worried about some of the crazy stuff you hear on the web about autism, including:

1. Vaccines cause autism
2. You can correct autism through diet
3. Strange alternative therapies

Asperger's Syndrome and ASD runs in my wife's side of the family: it is clearly a genetic issue or predisposition. Toxic chemicles, vaccines, etc. didn't "cause" my kid to develop Asperger's or PDD-NOS.

of course there is the other issue as to whether Asperger's is a "disorder" at all ...



claudia
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15 Apr 2011, 5:37 am

Janissy wrote:
BurntOutMom wrote:
The truth is, his reaction was the same as I get from everyone else. The school and the psychiatrist do this to me every time I mention a therapy or pose a question based on something I've discovered on line. The reality is that no one has given me information. They don't recommend books. They've never given me a pamphlet. They don't give me comparative ideas. People in my everyday life are not really as supportive as I need because they either don't really understand or simply don't try to.

.


I got a similar reaction from a similar professional and now I just keep this to myself. I didn't mention WP by name but said that I had gotten advice about stimming from a forum populated mainly by autistic adults. He had tried to get me to use ABA to get my daughter to stop stimming. I was using things I'd learned here to justify to him why I was not going to follow that advice. He wasn't happy with that and said, "they aren't objective- you are doing your daughter a disservice by listening to them". So I just keep such things to myself now.

Unlike you, I was given a pamphlet and the pamphlet had a reading list. However none of the books were written by autistic authors (you'd think bestsellers like "Look Me In The Eye" or "My Life In Pictures" would be natural recommendations). And to be perfectly honest, the best written parent-specific advice I've gotten has been Tracker's e-book. I now recommend it to similarly frustrated parents.


I also don't stop stimming for the same reason (thank you WP!). I use ABA method to help my son with his language issues but without adversives. I think Autistic people are objective instead, I find them very rational. I don't like the attitude of some professionals who think they are impaired people and they are not able to give advices. Autstic people's writings proved that many theories about them were wrong and I think that more of them should research on their condition. I appreciated Michelle Dawson's positions for instance.



ominous
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15 Apr 2011, 6:45 am

I'm sorry that happened to you BOM. I had a similar response from a phone counsellor recently. :roll:



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15 Apr 2011, 2:02 pm

I don't know if anyone else has mentioned this in the thread yet but... is this a counsellor you are paying? Because if so, I strongly suspect he gave you that reaction intentionally to dissuade you from getting support here for free, when it's his pocketbook you are padding with his fees.


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BurntOutMom
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15 Apr 2011, 2:08 pm

He is paid.. but due to recently my getting laid off, I lost my excellent insurance and Medicaid now pays for my son's counseling, so he's not making great money off us.

And really, he is generally very supportive. I think 1) he's never been here and doesn't have an understanding of the types of conversations or the quality of the posters here.and 2) apparently doesn't trust me to discern good advice from bad, or maybe to remember that what applies to one, doesn't apply to all.

And I think option number two is what offended me.



Tracker
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15 Apr 2011, 3:16 pm

Well, I would be wary too. There is plenty of crazy people out there on the internet. Although I think they prefer to be called nuerotypical... Ah! There is one reading this post now! Run away!

wefunction wrote:
Thank him for his warning. Tell him that with all the time you spent on WrongPlanet, nobody ever asked for your insurance information or a co-pay so OBVIOUSLY this was a bad place that you had no place being. I mean, what's support and compassion if you're not paying for it?


Note to self, ask for co-pay.


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momsparky
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15 Apr 2011, 3:18 pm

Tracker wrote:
Note to self, ask for co-pay.


We've been sayin' :wink:



BurntOutMom
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15 Apr 2011, 3:22 pm

LOL! I don't think my insurance would let you bill, but you're more than welcome to try! I've gotten more good advice from you guys than anywhere else!

............................ not trying to be dense.. was the NT poke at me? It's ok if it was... (well, not ok if I come off that way, if so.. I have some apologizing to do!)



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15 Apr 2011, 3:37 pm

Tracker wrote:
Well, I would be wary too. There is plenty of crazy people out there on the internet. Although I think they prefer to be called nuerotypical... Ah! There is one reading this post now! Run away!

wefunction wrote:
Thank him for his warning. Tell him that with all the time you spent on WrongPlanet, nobody ever asked for your insurance information or a co-pay so OBVIOUSLY this was a bad place that you had no place being. I mean, what's support and compassion if you're not paying for it?


Note to self, ask for co-pay.


Forget co-pay. You should be trying to find a literary agent. Every person who has read your Strange Kid e-book thinks it has publishing potential.



ediself
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15 Apr 2011, 4:08 pm

Janissy wrote:
Tracker wrote:
Well, I would be wary too. There is plenty of crazy people out there on the internet. Although I think they prefer to be called nuerotypical... Ah! There is one reading this post now! Run away!

wefunction wrote:
Thank him for his warning. Tell him that with all the time you spent on WrongPlanet, nobody ever asked for your insurance information or a co-pay so OBVIOUSLY this was a bad place that you had no place being. I mean, what's support and compassion if you're not paying for it?


Note to self, ask for co-pay.


Forget co-pay. You should be trying to find a literary agent. Every person who has read your Strange Kid e-book thinks it has publishing potential.

That's still not done?? Come on Tracker, get your paperwork in order and shake that executive dysfunction!! ! I thought it had been published long ago....



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15 Apr 2011, 4:56 pm

ediself wrote:
Janissy wrote:
Tracker wrote:
Well, I would be wary too. There is plenty of crazy people out there on the internet. Although I think they prefer to be called nuerotypical... Ah! There is one reading this post now! Run away!

wefunction wrote:
Thank him for his warning. Tell him that with all the time you spent on WrongPlanet, nobody ever asked for your insurance information or a co-pay so OBVIOUSLY this was a bad place that you had no place being. I mean, what's support and compassion if you're not paying for it?


Note to self, ask for co-pay.


Forget co-pay. You should be trying to find a literary agent. Every person who has read your Strange Kid e-book thinks it has publishing potential.

That's still not done?? Come on Tracker, get your paperwork in order and shake that executive dysfunction!! ! I thought it had been published long ago....


I don't know how to get a literary agent. But I bet somebody on WrongPlanet does. If fact I know somebody on WrongPlanet does....John Robison of Look Me In The Eye fame. He got one. He must ghave some tips. Tracker: maybe you could make a "how do I get a literary agent?" thread on the General Forum. It's entirely possible somebody here will know, perhaps John Robison himself, who actually has one. He posts inGeneral from time to time.

Sorry for the derail, OP, I just think Tracker's book is Best Book For Parents Ever and I think it has broad appeal and great potential if it ever gets published. If a literary agent wants proof that there is a market, Tracker can use us as proof-of-interest.



BurntOutMom
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15 Apr 2011, 5:33 pm

By all means, derail!! LOL
I agree with you. (Though I'm not going to b***h that I got excellent advice for free)
But he put a lot of insight and good advice into that book. He's helped a lot of us with it.
Just think of all the people who haven't found WP. Just think of all the crappy books that are out there.
It'd be nice to have some real advice on the book shelves.

I say we just start a thread "Tracker, publish your damn book" and just keep it at the top of the list until he does!

We can just derail the whole damn forum. :tongue:



momsparky
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15 Apr 2011, 6:32 pm

Though it should be noted, there is a Paypal donation link on Tracker's site...obviously I couldn't pay what the advice was worth (I don't think enough money exists) but I sent a token.



BurntOutMom
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15 Apr 2011, 7:01 pm

Thank you momsparky... I had completely let that fact slip my mind.

Excuse me.. I need to go make something right!



Tracker
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15 Apr 2011, 7:19 pm

BurntOutMom wrote:
............................ not trying to be dense.. was the NT poke at me?


No, it wasn't a poke at you. It was intended as a humorous comment to say that normal people are crazy when viewed from an atypical perspective. Usually it is the autistic person who is labeled as 'weird' or 'crazy', because their thought process is so different from the majority way of thinking. But on these forums, it is the autistic people who have the majority, thus 'normal' people are in the minority,and seem crazy by comparison to the majority. The humor is found in the juxtaposition of perspectives and social norms.

Anyways, I have said this about the book before and I guess I shall repeat myself. The book isn't published because I don't feel right about charging people for advice which should be free. Also, I am never really satisfied with my work, and publishing a faulty book just seems like half-assing it to me. If I were ever to publish it, I would want to go through and re-write a lot of the problem areas, expand on quiet a few sections, and probably break it up into 2 books.

There would be a shorter 100ish page intro book, like 'The basics of what you need to know', and then maybe a 200 page FAQ book that goes through things like medication, therapies, socializing, schooling, education choices, IEPs, etc. And the problem is that would take me a few months to write up (The current book itself took 7 months) and I have just been too busy with schooling. Although I am graduating in 2 1/2 weeks with no job lined up, so I might have a few month break after all :?

And lastly:
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LOL! I don't think my insurance would let you bill, but you're more than welcome to try!

I never said I would bill your insurance, I just wanted the co-pay. No need to get the bureaucracy involved :P


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