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schleppenheimer
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28 Apr 2008, 8:34 am

Lainie,

As I read your original post, I became concerned that this comment that your son is too "engaging" to be on the spectrum sounds like a school district/school personnel's way of avoiding a formal diagnosis, because then they would be required to spend money on his special needs in order to fulfil his IEP.

We lived in the Sacramento area, and had a horrible time with the district personnel, trying to get them to acknowledge our son's needs. It was all about money for them. The district's job was to minimize perceived problems and avoid doing what they should do for a child if he has special needs. We were just in a bad district -- if we had moved one district over, to the Folsom school district, we would have been better off. As it was, we moved back to Pittsburgh, PA (where we came from) and received all the services that we fought for an entire year to get in Rocklin, CA.

I would really look into getting some sort of support to help you at these meetings, somebody who is schooled in AS and who knows the law of what the school districts are required to do to support a child with AS. Just be aware that the school districts often are in the business of AVOIDING any costs, especially costs associated with special needs children.

Kris



AnnieDog
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28 Apr 2008, 4:37 pm

DW: I know a kid just like that! (And I've been told I was one too.) :)

Moms know when their kid has a fever, without a thermometer. Trust your gut, advocate, and you'll get the support you need (eventually). Schleppenheimer is right, you may need an outsider to help prove your case. The "Little Professor" description is one I really like for kids on the spectrum. They may engage adults, but in this very adult manner that is abnormal for kids. It's a bit aggravating that a professional doesn't know that particular affectation.

When I pick my son up tonight, I'm sure I will get a 20-minute, non-stop rundown on exactly what happened today - who did what, what activities they did, what he saw... I call it his daily digest. If I interrupt him or don't pay attention, I will pay the price in a meltdown. It's odd, but it's normal for him. If I don't get the digest, then something went really wrong today and he's afraid.


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equinn
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28 Apr 2008, 4:52 pm

Smelena wrote:
Lainie wrote:
You know I just realized....

Doctors are listening too much to other Doctors and not enough people or parents who have kids on the spectrum.

Would you all agree?

Lainie


Yes! Yes! Yes!

That's why I LOVE Tony Attwood. He listens to Aspies! He listens to parents! He is always open to learning.


You must live in California? I wish I lived near Tony Atwood. He would be the one I would want for my son's next evaluation.

equinn

Helen



Lainie
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29 Apr 2008, 3:43 pm

Equinn,
Are you asking me or Smelena about living in cali? I'm in cali but I think Smelena is in Austrailia along with Tony Atwood right?

Are you in Calif?

Lainie



sinagua
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30 Apr 2008, 2:08 pm

KimJ wrote:
My son fits the mold here too. Social engagement is another one of those stereotypes that "experts" interpret differently than we (the families) do. My son's "obsessions" include social interaction. So, once he learned how to talk, he appears to be very engaging. But he's domineering the conversation, activity and attention. Another misunderstanding is the verbal expression. My son may go up to you, look into your eyes, say polite greetings and "chat" but then unleash a monologue you never invited.


LOL you could be describing my son...or me, some days. ;) I admit it. For YEARS - maybe my entire childhood, teen years, and at least half my twenties, I would write New Year's Resolutions, and the first one was "STOP TALKING SO MUCH! SHUT UP!!" I finally stopped writing those damned resolutions. ;) Especially ones that made me feel badly about something that was obviously such an intrinsic part of my personality - after all, if it was something I could really change/stop, I wouldn't have to remind myself every bloody year that it was my Main Priority to stop doing it, right? I finally realized I was actually bullying myself. :?

Many people don't understand that my son has social engagement issues because he is SO verbose. But they don't get that he's not generally talking TO them, he's talking AT them. He's sharing fascinating, valuable information with them, like how many bicycles there are in China, or what mastodons ate, or who won the Superbowl in 1978, and by what margin. And most adults who first meet him are so enamored/impressed/spooked by his vocabulary and demeanor just think he's very bright (which he is), but that's it. When I was a child (very much like him), the word used was "precocious."

Anyway, we and his teachers have been working with him on social reciprocity, and letting other people have a turn in conversation, etc. Since this is STILL sometimes a problem I struggle with personally (and I'm nearly 40), I appreciate what a challenge this can be.

"unleashing a monologue you never expected" - yep, that's pretty much my life, and my son's life too. We're both either very quiet/aloof/solitary, or we'll talk your ear off. :?



Mikomi
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30 Apr 2008, 3:29 pm

ster wrote:
my daughter says she has friends, but the reality is: there are "friends from Girl Scouts" ( which she only sees every 2 weeks at Girl Scouts), and then "friends from school" ( which she only sees at school).

daughter and son both tend to be overly bossy when playing with peers. they also get frustrated when their peers don't understand the language they use


Sounds EXACTLY like me as a child. Exactly.


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ster
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30 Apr 2008, 5:10 pm

honestly, we treat daughter as if she's aspie....we assume she is......teachers at school this year have been really great about letting her know about transitions ahead of time, about working with her to avoid the inconsolable crying, about working with her on understanding non-concrete language.

yesterday was the first day i heard anyone ever mention about daughter's speech pattern. not sure if that's a spectrum issue or not, though. daughter overexaggerates certain syllables in words & certain words in sentences. she also has a tendency to use a babyish sort of voice.



Aspie1
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30 Apr 2008, 6:11 pm

ster wrote:
Daughter and son both tend to be overly bossy when playing with peers. They also get frustrated when their peers don't understand the language they use

Yup, that was me as a kid. Adults seemed very endeared by my mature (or in NT terminology, pedantic) choice of words, and constantly complimented me on my intelligence. Peers, on the other hand, laughed at pretty much every word I said. Needless to say, this puzzled me. I could never understand why scientific terminology was so funny.



9CatMom
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30 Apr 2008, 8:04 pm

Sinagua,

I, too, stopped writing New Year's resolutions when I discovered they were the same ones every year.



sinagua
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30 Apr 2008, 8:57 pm

9CatMom wrote:
Sinagua,

I, too, stopped writing New Year's resolutions when I discovered they were the same ones every year.


:) Glad to hear you came to your senses, too! ;) :lol: