RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

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nostromo
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08 Jun 2011, 5:58 am

That seems silly, my guy goes to Kindy and he is a complete Autie, not toilet trained, he has a full time carer with him. They have a 'quiet room' that he can go to when its noisy and he gets stressed.
Does your boy have a dx? Is there any special education service for him, some type of govt service that helps the kindy with understanding and accommodating his needs, an IEP or something like that?



Solvejg
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08 Jun 2011, 6:07 am

nostromo wrote:
That seems silly, my guy goes to Kindy and he is a complete Autie, not toilet trained, he has a full time carer with him. They have a 'quiet room' that he can go to when its noisy and he gets stressed.
Does your boy have a dx? Is there any special education service for him, some type of govt service that helps the kindy with understanding and accommodating his needs, an IEP or something like that?


L is dx as LFA. He gets all the services and such but the aussie system atm is really geared for social interaction and ages. So even gifted kids are being kept back until they are socially ready for the year level.

I am so pissed off about it. L knows all his letter, numbers, colours, grade 1 violin and they are saying he isn't ready for kindy. :x


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08 Jun 2011, 7:08 am

Solvejg wrote:
L is dx as LFA. He gets all the services and such but the aussie system atm is really geared for social interaction and ages. So even gifted kids are being kept back until they are socially ready for the year level.
I am so pissed off about it. L knows all his letter, numbers, colours, grade 1 violin and they are saying he isn't ready for kindy. :x


I had this problem last year when my daughter was in kinder. Australian curriculum in kinder and pre-schools isn't properly equipped for autistic kids. Our children show interest in reading and numbers and they force them into social integration that makes them want to shut down.

It's too late for my girl but there really should be classes in pre-schools that cater for bright kids with special needs. This could also include kids with Downs syndrome, ADHD and other DSM type disorders.



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09 Jun 2011, 10:30 am

That makes no sense! Its "normal" for our kids to be behind socially and some times they are above average or beyond the other kids academically. Social interaction should have nothing to do with school, they are supposed to learn not socialize :roll: ....how silly! I dont put much into social skills for my autie she does what she feels comfortable doing. With my Aspie I have to help him as he does want to be social and does not know how....of course Im not the best at teaching social skills :wink: but I do try to teach him manners ect. Since Im aspie too we have come up with sayings or words for certain things like "make people feel good lies". These are used for when people say things like "do I look fat?" and they do, we say "No" because it makes the other person feel good. I also agree with him that it is silly but there are certain things we have to do to get along if we want to make friends, which he does.
My daughter is also ahead academically but she is not very social, much more than she was last year but its not important to her. I cant understand why they would keep your son back when he is already ahead of the other kids. He will be bored in school if they dont let him proceed!

cyberdad my daughter went to a special autism program for preschool when we lived in the US and they put reading and writing on her IEP because she was already doing that so they saw no reason to hold her back.



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09 Jun 2011, 9:32 pm

liloleme wrote:
cyberdad my daughter went to a special autism program for preschool when we lived in the US and they put reading and writing on her IEP because she was already doing that so they saw no reason to hold her back.


Yeah I know that the US and UK are well ahead of Australia in terms of special education. A couple of years ago a top Australian lawyer here in Melbourne decided to sell up her Law practice and move to the UK because she felt her 12 year old autistic daughter was not being challenged academically (particularly in math) in the private school she was enrolled. The teachers didn't cater for the daughter's needs ahead of the rest of the class - they focused on how she could better integrate with her class - all this did was disrupt her learning.



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10 Jun 2011, 1:27 am

I have moderate to severe pdd-with autistic traits and they put me in middle school when I was 10 and then kept me there for 4 years instead of 3 because my reading skills were very good but they found my social skills were terrible. I hated middle school...a bunch of socail canabals, they were!
I wished I was homeschooled. I told mom that later, but she said that she could not teach me because she did not know how to work around my language based learning disability. Truth is neither did they. I remeber when I was in Georgia history and I was in mid terms and I had no idea what the confederacy was even though the teacher talked about it constantly. I was put into full time sp.ed after that which made matters worse cause they put the behavior disordered kids with the learning disabled and I wanted to be like my friends in class so I devloped a sort of behavior problem too just to fit in with my classmates. :roll:
Our state is one of the worst in the US for special needs kids...as you can see why.


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nostromo
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10 Jun 2011, 1:35 am

cyberdad wrote:
liloleme wrote:
cyberdad my daughter went to a special autism program for preschool when we lived in the US and they put reading and writing on her IEP because she was already doing that so they saw no reason to hold her back.


Yeah I know that the US and UK are well ahead of Australia in terms of special education. A couple of years ago a top Australian lawyer here in Melbourne decided to sell up her Law practice and move to the UK because she felt her 12 year old autistic daughter was not being challenged academically (particularly in math) in the private school she was enrolled. The teachers didn't cater for the daughter's needs ahead of the rest of the class - they focused on how she could better integrate with her class - all this did was disrupt her learning.

Yeah I thought about moving to Aus from NZ for that reason, but when I looked into it services were not really any better than here.



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10 Jun 2011, 1:46 am

nostromo wrote:
cyberdad wrote:
liloleme wrote:
cyberdad my daughter went to a special autism program for preschool when we lived in the US and they put reading and writing on her IEP because she was already doing that so they saw no reason to hold her back.


Yeah I know that the US and UK are well ahead of Australia in terms of special education. A couple of years ago a top Australian lawyer here in Melbourne decided to sell up her Law practice and move to the UK because she felt her 12 year old autistic daughter was not being challenged academically (particularly in math) in the private school she was enrolled. The teachers didn't cater for the daughter's needs ahead of the rest of the class - they focused on how she could better integrate with her class - all this did was disrupt her learning.

Yeah I thought about moving to Aus from NZ for that reason, but when I looked into it services were not really any better than here.


NZ and Australia are on Par...



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10 Jun 2011, 1:56 am

jojobean wrote:
I was put into full time sp.ed after that which made matters worse cause they put the behavior disordered kids with the learning disabled and I wanted to be like my friends in class so I devloped a sort of behavior problem too just to fit in with my classmates. :roll: .


Thanks for your post Jojobean
You make a good point about what happens in Special Ed.

Georgia doesn't sound much different to Australia. It will take another 20 years for autism education to reach a point where special needs can be catered for on an individual basis. It's probably a resourcing and logistical issue at the moment.

We know that 70-80% of what my daughter is learning is from home classes we do with her (using PECs and other tools) and through speech therapy. We'll persist with school for the moment.



liloleme
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10 Jun 2011, 5:07 pm

Its funny because you read that certain places are ahead in autism services. i read an article that said that Australia was way ahead in Autism services and then I hear from a lot of parents that this is not true. I just made friends with a mom of an autistic girl who is my daughters age and about the same functioning level in the UK and she also has serious problems getting services. Depending on where you live in the US services can be really bad. Here in France....well, dont get me started. At least we are getting things ironed out but my daughter has regressed and there is nothing I can do about it because i can not recover this past year. Not that Im saying she will not progress more because I know that she will but still Im angry and some what guilty for moving here even though we had to and there are a lot of good things for us here that we could not have in the US. Like the help I get for my health problems and the fact that both my kids have aides....that would have been impossible due to budget cuts in the US. I guess I have to take the good with the bad but they need to educate the educators if you ask me. At least here in France academics so take precedence over social skills. They are more worried about my sons dyslexia than his Asperger's and are impressed with my daughters higher level of academic skills but dont seem to upset about the fact that her communication skills are slipping. My husband and I have made a lot of noise about it though so they are making more of an effort to help her with communication....she will have two specialized teachers and her regular teacher plus her aide next year. My son is going to a specialized school for kids with learning disabilities....Im hoping he will encounter some fellow aspies there. I think in some cases this is the key....making lots of noise, being pushy, threatening....never giving up. I have a hard time being confrontational but I can act like a Mother bear where my kids are concerned.



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10 Jun 2011, 7:34 pm

liloleme wrote:
Its funny because you read that certain places are ahead in autism services. i read an article that said that Australia was way ahead in Autism services and then I hear from a lot of parents that this is not true. I just made friends with a mom of an autistic girl who is my daughters age and about the same functioning level in the UK and she also has serious problems getting services. Depending on where you live in the US services can be really bad. Here in France....well, dont get me started. At least we are getting things ironed out but my daughter has regressed and there is nothing I can do about it because i can not recover this past year. Not that Im saying she will not progress more because I know that she will but still Im angry and some what guilty for moving here even though we had to and there are a lot of good things for us here that we could not have in the US. Like the help I get for my health problems and the fact that both my kids have aides....that would have been impossible due to budget cuts in the US. I guess I have to take the good with the bad but they need to educate the educators if you ask me. At least here in France academics so take precedence over social skills. They are more worried about my sons dyslexia than his Asperger's and are impressed with my daughters higher level of academic skills but dont seem to upset about the fact that her communication skills are slipping. My husband and I have made a lot of noise about it though so they are making more of an effort to help her with communication....she will have two specialized teachers and her regular teacher plus her aide next year. My son is going to a specialized school for kids with learning disabilities....Im hoping he will encounter some fellow aspies there. I think in some cases this is the key....making lots of noise, being pushy, threatening....never giving up. I have a hard time being confrontational but I can act like a Mother bear where my kids are concerned.


Thats still better than Georgia...where they warehouse them till they drop out of school. 75 percent of kids in GA specail ed drop out before they are 18. I was the ONLY special ed kid in my class that graduated with a regular diplomia, those that did graduate got a spoecial ed dipomia which is worthless and they had to get their GED afterwards


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10 Jun 2011, 7:34 pm

liloleme wrote:
Its funny because you read that certain places are ahead in autism services. i read an article that said that Australia was way ahead in Autism services and then I hear from a lot of parents that this is not true. I just made friends with a mom of an autistic girl who is my daughters age and about the same functioning level in the UK and she also has serious problems getting services. Depending on where you live in the US services can be really bad. Here in France....well, dont get me started. At least we are getting things ironed out but my daughter has regressed and there is nothing I can do about it because i can not recover this past year. Not that Im saying she will not progress more because I know that she will but still Im angry and some what guilty for moving here even though we had to and there are a lot of good things for us here that we could not have in the US. Like the help I get for my health problems and the fact that both my kids have aides....that would have been impossible due to budget cuts in the US. I guess I have to take the good with the bad but they need to educate the educators if you ask me. At least here in France academics so take precedence over social skills. They are more worried about my sons dyslexia than his Asperger's and are impressed with my daughters higher level of academic skills but dont seem to upset about the fact that her communication skills are slipping. My husband and I have made a lot of noise about it though so they are making more of an effort to help her with communication....she will have two specialized teachers and her regular teacher plus her aide next year. My son is going to a specialized school for kids with learning disabilities....Im hoping he will encounter some fellow aspies there. I think in some cases this is the key....making lots of noise, being pushy, threatening....never giving up. I have a hard time being confrontational but I can act like a Mother bear where my kids are concerned.


Thats still better than Georgia...where they warehouse them till they drop out of school. 75 percent of kids in GA specail ed drop out before they are 18. I was the ONLY special ed kid in my class that graduated with a regular diplomia, those that did graduate got a spoecial ed dipomia which is worthless and they had to get their GED afterwards


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11 Jun 2011, 5:56 am

liloleme wrote:
Its funny because you read that certain places are ahead in autism services. i read an article that said that Australia was way ahead in Autism services


Could I get the name of that article Liloleme.



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11 Jun 2011, 6:28 am

Im looking for it but I havent found it again. When I located it Ill post it. I just found a post on another site where the woman said she was so glad her daughter was born in the UK as she got the best services. I think it may be down to where you are...I know they have many lists of states in the US where the services are the best...California topping the list so I count myself lucky to have lived there when my kids were diagnosed. Ill keep looking for the article.



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11 Jun 2011, 6:47 am

Kuma is from somewhere in the US, And I think his son got excellent early services.



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11 Jun 2011, 6:55 am

nostromo wrote:
Kuma is from somewhere in the US, And I think his son got excellent early services.


Wasn't his son profoundly gifted? that would probably compensate.