Please listen, parents. Hate on me for it if you want.

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Kurgan
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21 Feb 2014, 1:04 pm

cubedemon6073 wrote:
How do you know with certainty that growing up strong and not being treated as if you did not belong to a marginalized group led to you functioning better? Can you prove a direct causation and not just a correlation? Correlation does not equal causation.


It's anecdotal evidence, but other people I've seen who've received a lot of sheltering, who've been treated differently, and who've been brought up to live on disability, struggle with learned helplessness. The common denominator in almost everyone with AS I've seen who work, live independently, have families, drive cars, and so on, is that they were given the same opportunities as everyone else, as well as treatment pinpointing specific areas, rather than being labelled as a special ed. case and given the same treatment as people with intellectual disability. In those who can't function in day-to-day situations without loads of supervision, the common denominator seems to be unnecessary institutionalization.

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What is the rubric that you use that determines functionality? What are your premises that lead you to conclude that they are more mild degree of Aspergers than you?


I'm a mild case (and so is most people with Asperger's), and I have managed fine, despite having limited hand-to-eye coordination, almost non-existant social intuition, rigid routines, special interests, and language problems. Since I've never gotten anything free (which ultimately boils down to lack of social skills), this has taught me to work hard.

Functionality isn't necessarily determined by how mild or severe someone is. A person with moderate AS, good athletic skills, a high IQ, and a good education, can live a happy life, work in a job that requires little multitasking, and live independently. A mild case who isn't given oportunities, is treated like a child well into adulthood, and so on, won't function well.

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Let's look at all people who were tossed were tossed to the wolves whether they were AS or not. For some people, it did not teach and you can look up the suicide rates that back this up. In addition, what about people who are committed and placed in group homes or institutions?


Do you honestly think the suicide rates would be lower if you gave someone a very sheltered upbringing (thus rendering them "institutionalized") and taught them to be helpless?

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The claim that you all are making by implication is all people who are tossed to the wolves will be able to fend them off. If this was considered a hypothesis in a scientific experiment the experiment would not be reproducible because there would be some failures.


Home schooling your kids would be worse in most cases.

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If there is a claim that All Swans are White and one can find a black Swan than the claim is proven false. The suicides and the committed prove your claim false.


You make the mistake of jumping to post hoc ergo propter hoc reasoning yourself on this one. Do you honestly think that someone with AS is better of in a sheltered workshop, being treated like a child, being talked down to, and living as a patient for the rest of his or her life? What precisely about this would make the suicide rates lower?

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Why? What is the essence of strength? What is the essence of happiness?


Happiness is subjective, but being treated as if you were ret*d is almost never a part of being happy.

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Instead of examining and dissecting your interlocutor's arguments you're going to put up some trite, hackneyed and meaningless slogan that comes from a culture that lacks any substance and is all about style, pizzazz and one up man ship. If a new parent came in, looked at what you wrote, why should they take you seriously at all?


Because I have the disorder myself. Being talked down to or being underestimated feels just as bad as being bullied. I think I speak for 90% of this board if I say that people with Asperger's want to be treated like everyone else, apart from the fact that you should also be aware of their boundaries.



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21 Feb 2014, 1:49 pm

Kurgan, there is a time to shelter and a time to throw.

I can tell you that my son would NOT have the bright future he has today if I had NOT sheltered him during certain periods of his life. I saw him checking out and giving up, choosing a different road that no one wants to see their child take. I SAW it. I KNOW where he would have gone, and have encountered plenty of kids on that road solely because they did not get what they needed.

Is there a time to throw? Yes, that too. I've had people who didn't hesitate to tell me when they thought I was holding on too tight, and that I should let my son struggle through something. I listened because I knew they were right for that moment in time, and it was just my fear that was keeping me from getting there instinctively.

But it doesn't change all the moments where shelter was, without a doubt, the right thing to do.

A baby bear cub needs to stay in its cave through out the winter or it will not survive. The same can be true for people. The problem comes when you don't realize spring has arrived and it is time to go outside.

No mom will sit and watch ideally as their child is born torn to shreds either physically or emotionally, no matter how strongly she advocates a tough approach. Of course you pull your child out of the water when their face is quietly slipping beneath the surface! Of course you run (or shoot) when a wild animal charges your child. EVERY parent protects and shelters to some degree, and often without even knowing it.

These conversations are good because sure, some parents go too far. Keep them thinking and checking in. We parents need that. But remember there are no absolutes.


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21 Feb 2014, 1:57 pm

OliveOilMom wrote:
I've been unglued for several weeks now. No, I am not doing ok. I'm at the point now though where I just want to speak out about things that I haven't before. Not like I do about social issues, like when i marched against racism and attended the press conference as moral support for gay marriage. But things that average, normal, every day people can do to make things better for average, normal every day people (not saying that blacks or gay people aren't average, normal every day people, just saying something that isn't about a social issue).

I do know what my life would have been like. And I know what it was like for the first 12 years, where I wasn't allowed to go outside cause of the pollen, or play with legoes cause I could choke on them (AT TEN????) or watch most tv at all because it would be "too much for me" or do any freaking thing ever where my mother or grandmother weren't hovering over me to make sure I ate a certain diet, or did exactly what they wanted, etc. It would have been the continuation on of that. It would have sucked so much worse than it already did.


I missed this. I know we've talked a bit privately, but I want to say here, since this was posted here, how much I feel for your situation and hope things turn soon. Do what you need to take care of yourself. Put yourself first whenever you can. We are no good to anyone if we let ourselves slip too far.

As for your mother - she clearly went too far. Pretty obvious. But don't assume every cautious parent is exactly the same.


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cubedemon6073
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21 Feb 2014, 2:24 pm

Quote:
It's anecdotal evidence, but other people I've seen who've received a lot of sheltering, who've been treated differently, and who've been brought up to live on disability, struggle with learned helplessness. The common denominator in almost everyone with AS I've seen who work, live independently, have families, drive cars, and so on, is that they were given the same opportunities as everyone else, as well as treatment pinpointing specific areas, rather than being labelled as a special ed. case and given the same treatment as people with intellectual disability. In those who can't function in day-to-day situations without loads of supervision, the common denominator seems to be unnecessary institutionalization.


I've seen people who were forced into things they could not do and it destroyed them. There is truth to what you say as well. I think the key to all of this is balance.

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What is the rubric that you use that determines functionality? What are your premises that lead you to conclude that they are more mild degree of Aspergers than you?


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I'm a mild case (and so is most people with Asperger's), and I have managed fine, despite having limited hand-to-eye coordination, almost non-existant social intuition, rigid routines, special interests, and language problems. Since I've never gotten anything free (which ultimately boils down to lack of social skills), this has taught me to work hard.


When you were younger did you have to pay for own treatment? If you did not then you did receive it for free.

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Functionality isn't necessarily determined by how mild or severe someone is. A person with moderate AS, good athletic skills, a high IQ, and a good education, can live a happy life, work in a job that requires little multitasking, and live independently. A mild case who isn't given oportunities, is treated like a child well into adulthood, and so on, won't function well.


I think balance is key.



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Do you honestly think the suicide rates would be lower if you gave someone a very sheltered upbringing (thus rendering them "institutionalized") and taught them to be helpless?


Agreed, no it would not have. Again, this is why balance is key.



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Home schooling your kids would be worse in most cases.


How do you figure?



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You make the mistake of jumping to post hoc ergo propter hoc reasoning yourself on this one. Do you honestly think that someone with AS is better of in a sheltered workshop, being treated like a child, being talked down to, and living as a patient for the rest of his or her life? What precisely about this would make the suicide rates lower?


I have things I have to do now and I am tired so I will have to look at this later. I need to get some coffee.



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Happiness is subjective, but being treated as if you were ret*d is almost never a part of being happy.


No, it isn't. I do understand where you're coming from. How does one truthfully tell if someone is capable of being independent or not?


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Because I have the disorder myself. Being talked down to or being underestimated feels just as bad as being bullied. I think I speak for 90% of this board if I say that people with Asperger's want to be treated like everyone else, apart from the fact that you should also be aware of their boundaries.


I do want to be treated with decency and respect. Here is the thing. I did not get the proper treatment like others did on here. Honestly, I need help with certain areas of understanding. I wish others in front street would provide this help. If I was treated like everyone else then I would be expected to obtain employment without any assistance, instruction, help or guidance.

In addition, I would be expected to be something I am not. To be treated like everyone else assumes all people are the same and equal in abilities, backgrounds, thoughts, ideas and beliefs. With respect to humanity, decency and respect I want to be treated like a human being and in this sense like everyone else but in the sense of abilities and aptitude at this time I do not since I'm not equal to everyone else in this department.

Things aren't cut and dry as you think.



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21 Feb 2014, 2:53 pm

cubedemon6073 wrote:
Babybird, OOM and I are cool with each other. You asked if I am on some kind of conquest. I don't think of it in this way but in a way I guess I am. One day in the future my wife and I will become parents. This is one reason. What I have discovered about myself is that I am ignorant in many areas. For a long time, I did not know that I was ignorant. Now, I have this awareness. Like the great philosopher Socrates, I ask questions to obtain a greater understanding of the world around me. I desire to be an excellent father. How do I with my wife raise our child to be the best he or she can be? What is this best? How shall we all live? What does success mean? Does it mean having excellent virtue or lots of money?

This concept can be extended outside of raising a child as well. What OOM says on further examination does have some truth to it but it is not strictly true. Those who take the opposing viewpoint have some truth to their beliefs a well. What I have come to conclude is that most of us in our society and other society have some beliefs which do have some truth to them. Beliefs are both shaped by our genetics and our environment. To me, there are greater truths than others and both of you have but just one aspect of a greater truth.

Where does evil come from? I've come to the conclusion like Socrates that evil comes from ignorance more specifically the unawareness of our own ignorance. Let's look at Christopher Dorner. He felt like he was wronged and attempted to right the wrongs of the LAPD through the proper channels. He believed what he did was the only thing he could do and he believed he was a virtuous warrior for justice. Was he doing evil or did he believe he was doing good? This makes me conclude something else as well like Socrates did. No one does evil knowingly or intentionally.

How do we all live with goodness and virtue including the children? How do we raise our current and future children to live good lives and noble lives? If evil is caused by the lack of the awareness of our own ignorance then to prevent evil one has to examine what it is and the root of it. Evil to me comes from our own erroneous conclusions which are built upon faulty premises. If society is to improve and greater truths and beliefs are to be discovered including childrearing techniques we have to question other people's thinking and our own thinking as well. We have to route out contradictions.

To prevent evil, one must uproot it. To uproot evil, one must know the root. If the root of evil is ignorance than ignorance is the disease and knowledge and questioning of beliefs including our own is the cure. Imagine if Dorner's beliefs were questioned. Imagine if Adam Lanza's beliefs were thoroughly questioned and examined. Maybe murders would've been prevented.

OOM, does have some truth to what she says. So does momsparky, InThisTogether, and others on here. If we're to get to greater truths and understanding to live our lives better maybe we ought to look at other people's beliefs to determine if there is some truth to them and incorporate them in our own.

Am I on a conquest? Yes, I am on a conquest. What is my conquest? It is to obtain better truths and better beliefs for us all as a society so we can live a good, happy, prosperous, noble and virtuous life?


Thanks for that. I get where you are coming from now.

I will think about this for a bit while I go for my run.


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21 Feb 2014, 4:35 pm

I do agree what was written and even Temple Grandin has said something about it too but not rough like the OP. I find when you're calmed down and then write out your feelings, you sound nicer. That is the key to sounding more civil. It's a lot easier to do then when you're not so upset.

I don't think mine ever sheltered me. I still play with other kids and was allowed to go to other peoples houses and to going to a birthday party but in my teens I was not allowed to go on the honor roll trip because my parents knew I would get anxiety and not have fun and would ruin it for the other kids and told me they will take me up to the Edmonton Mall sometimes and they did five years later for my birthday. When I was in high school, I wasn't allowed to work during the school year because it would have been too stressful for me and I wouldn't have been able to handle work and school. But in my senior year I was allowed to work at the folkshop and it wasn't very long. But I still ended up on my own and learned to drive and got a job. I think it depends on the child so I try not to judge when I hear a parent say they won't let their ASD kid drive or go somewhere alone.


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21 Feb 2014, 4:40 pm

I actually made myself not post for a little while so I could think about exactly what I want to say and how to best get the point across. I tend to get passionate about something and run off at the mouth and end up pissing everybody off when I didn't mean to. That happens in real life too, so I'm used to it.

First off, I'm not at all advocating that parents turn a blind eye to bullying or the fact that the kid is being basically tortured at school, or absolutely refuse to ever accomodate severe sensory problems, etc. Never, ever would I say that. I'm talking about the parents who can't allow their kid to even be upset. The parent who feels like "I can't do anything about his AS, so I will do everything I can to never allow him to be inconvenienced or upset, no matter what it does to the rest of his life". Thats the kind of thing that can mess up a kid, AS or not.

Let me give you a couple of examples so you might get what I'm saying better. OK, first off imagine if the kid had a broken back instead of AS. Of course the parent is going to wait on them, take care of them, buy them things, try and take their mind off it, etc. But most parents would make them go to physical therapy and leave the room if they had to while the therapist pushed them to do the painful job of learning to walk all over again. It has to be done. The kind of parenting I'm talking about in this thread is the kind of parent that would say "Oh, he can't do it! It hurts him! Leave him alone, lets put him in a wheelchair and never ask him to do anything for himself again". That's an analogy. That is the kind of thing that some of the more overprotective parents do, metaphorically.

We really do have it hard enough in life trying to fit in and deal with things that don't come naturally to us, so being made to learn how to do them is more of a help than a problem, even if we don't like the learning about it part at the time.

I guess that's kind of what I'm trying to say. That while it's good to coddle them about some things, and make sure they know that home and family is a safe place and comfortable, that you can't fight all the battles for them or do everything for them yourself. Yes, they will get emotionally hurt and physically hurt in life, but so does everybody. You can't be there for them all their lives, and it's not preparing them for real life or for how they will have to live when you are gone, if you don't teach them early on to deal with some level of discomfort and to thicken their skin up to not let other people get to them so much. It might make the parent feel better at the time, but it doesn't do the child any good at all. Does that make any sense?


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21 Feb 2014, 5:25 pm

OliveOilMom wrote:
Does that make any sense?


All kinds of sense.

The real needs of each child vary, but that principle remains the same. If they can be prepared for independence, then you should help them to really face all of what that means, and that means letting them deal with things on their own just as soon as they can.



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21 Feb 2014, 5:36 pm

OliveOilMom,

Actually, I think we are all saying this, although maybe not as well as in your last post. I think we mainly differ on where the lines are. I think we all would agree that we should scaffold and protect when we have to, and let go when we can. It is knowing when to do what, with the particular child in front of us that is sometimes the hard part.



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21 Feb 2014, 5:54 pm

My way would be to just let them do their own thing in their own time.

I like to take it easy and so does my daughter.


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21 Feb 2014, 8:14 pm

this is true for all kids, NT, ASD or whatever! Each child is different, unique in needs and care.


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OliveOilMom
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21 Feb 2014, 8:40 pm

MMJMOM wrote:
this is true for all kids, NT, ASD or whatever! Each child is different, unique in needs and care.


I agree. Also, while we will never see eye to eye on a lot of things, I need to say this. I'm sorry I was such a b***h to you, you didn't deserve it. That's on me. We good?


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21 Feb 2014, 9:02 pm

OliveOilMom wrote:
Does that make any sense?


Absolutely.

I think that what happens with situations like this is that when someone is passionate about something, they tend to speak in absolutes (not just you, pretty much anyone), which ends up sounding like "all parents who are ever protective of their children are OVERprotective" followed by accusations that parental actions are actually damaging their kids, disrespectful, or in some other way negative. This ends up ruffling the feathers of people who consider themselves to be rightfully protective (rightfully so). Especially since I have "had it up to here" with people who are telling me I am overprotective when they don't know jack about my kids and what they are and are not able to tolerate. Sensory issues are a good example of this. No. I can't just make them "do it" because what you and I may experience as unpleasant may be torturous for them. I think most of us can recognize that most NTs seem to think that sensory issues are just something you "get over" because they do not understand what it means to feel that your mouth is filled with vile, putrid slime. Until I had children with sensory issues, I know I certainly didn't understand it. So, while I do not expect others to understand, I would appreciate if they would back off on the judgment a bit.

I think most parents here understand that their children may not be at their chronological age when it comes to social/emotional development. That is not due to coddling, it is just the developmental gap that they face. Kids handle these kinds of situations differently. At my daughter's age, my son with wrought with anxiety and self-loathing because he was not like his peers. It was heart breaking to watch. He had had no interventions at that point, no support at school, nothing. He was undiagnosed and most of my attention had been focused on his diagnosed younger sister. Prior to her, I knew he was different, though I didn't know how, and I tried to find ways to help him, but his sister's issues were much more apparent so she was diagnosed first and in hind sight I realize my attention to her detracted from the attention he needed. . In second grade, he went downhill emotionally rather quickly. If I would have stepped back at that time instead of stepping in, he may not be here today. That is the honest truth. My daughter, on the other hand, knows she is different, but is generally not as upset by it. I happen to think that this is at least partially due to the fact that she has gotten the support and understanding she needed from day one. It has made her much more confident and sure of herself.

To cut my rambling from continuing...I agree with those who say it depends upon the kid. :wink:


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21 Feb 2014, 9:56 pm

InThisTogether wrote:
OliveOilMom wrote:
Does that make any sense?


Absolutely.

I think that what happens with situations like this is that when someone is passionate about something, they tend to speak in absolutes (not just you, pretty much anyone), which ends up sounding like "all parents who are ever protective of their children are OVERprotective" followed by accusations that parental actions are actually damaging their kids, disrespectful, or in some other way negative. This ends up ruffling the feathers of people who consider themselves to be rightfully protective (rightfully so). Especially since I have "had it up to here" with people who are telling me I am overprotective when they don't know jack about my kids and what they are and are not able to tolerate. Sensory issues are a good example of this. No. I can't just make them "do it" because what you and I may experience as unpleasant may be torturous for them. I think most of us can recognize that most NTs seem to think that sensory issues are just something you "get over" because they do not understand what it means to feel that your mouth is filled with vile, putrid slime. Until I had children with sensory issues, I know I certainly didn't understand it. So, while I do not expect others to understand, I would appreciate if they would back off on the judgment a bit.

I think most parents here understand that their children may not be at their chronological age when it comes to social/emotional development. That is not due to coddling, it is just the developmental gap that they face. Kids handle these kinds of situations differently. At my daughter's age, my son with wrought with anxiety and self-loathing because he was not like his peers. It was heart breaking to watch. He had had no interventions at that point, no support at school, nothing. He was undiagnosed and most of my attention had been focused on his diagnosed younger sister. Prior to her, I knew he was different, though I didn't know how, and I tried to find ways to help him, but his sister's issues were much more apparent so she was diagnosed first and in hind sight I realize my attention to her detracted from the attention he needed. . In second grade, he went downhill emotionally rather quickly. If I would have stepped back at that time instead of stepping in, he may not be here today. That is the honest truth. My daughter, on the other hand, knows she is different, but is generally not as upset by it. I happen to think that this is at least partially due to the fact that she has gotten the support and understanding she needed from day one. It has made her much more confident and sure of herself.

To cut my rambling from continuing...I agree with those who say it depends upon the kid. :wink:


There are some things I believe I can conclude in the context of your children and other people's children but the concept can be applied in other areas though.

1. No person wishes evil or harm to come to their children.
2. Each person has their own idea as to what harm and evil are.
3. Each person's ideas comes from their experience and genetics as well.

4. Where does evil come from? Evil comes from ignorance as to what evil and harm is.
5. Conclusion: It would seem to me, by not having children of my own, to not commit evil or harm to one's children one has to examine with others to obtain a more solid understanding of what evil and harm consists of, one must be willing to have some flexibility with it, one must have an open mind, and one must be willing to change his mind as more information comes in.

OOM may have a bit of truth to what she says. So do you InThisTogether. So does Momsparky. So does Adamantium. So does Mikassyna. So does Babybird and others.

What I can derive from this conclusion is that the path to wisdom and knowledge is the awareness of one's ignorance of many things. InThisTogether, when you say that people don't know jack about your kids you're right they do not know. In fact, I don't even know nor understand your kids either. OOM, I did not really understand your rationale until you stated your background and experiences with your mother and grandmother. Again, I am sorry for what you went through OOM. I do believe that you're trying to protect your kids from evil and harm in your own way. It is still a bit difficult for me to fathom and grasp still but my lack of understanding is less.

For myself, this solidifies for myself that I know nothing and I know that I know nothing and the more I learn the more this proves this true. The wisdom and knowledge that I think I have is truthfully nothing at all.

OOM, you asked what my life was like. To answer your question, Like Socrates, I know not how to effectively run my own life so how can I run other people's lives and tell them what to do? Therefore, this is why I question everything and examine what is above, what is in front and what is below. I have more questions than answers especially when my wife and I have children in the future.

To cut my rambling as well, who would like to have pizza with extra cheese? :lol:



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21 Feb 2014, 10:21 pm

cubedemon6073 wrote:
1. No person wishes evil or harm to come to their children.


So it may seem hyperpedantic and silly, especially when I agree with the spirit of what you are saying, but I feel compelled to point out that point one is not quite correct.

People regard parents who really do want to hurt their children as aberrant and abhorrent, and generally try to avoid thinking about them, but the evidence is overwhelming that they do exist.

Granted, they are very rare.


OK, I feel better now. Please forgive the interruption. :oops:



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21 Feb 2014, 10:36 pm

OliveOilMom wrote:
Does that make any sense?


Yes, nicely expressed.


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