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PsycStudent
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09 Jan 2012, 7:57 am

Hello,

I'm a final year psychology student studying in Dublin Business School. As part of my course, I'm completeing an independent research project. My particular project is looking at the stress and attitudes towards help seeking behaviours in parents of children with or without autism spectrum disorders (autism, aspergers syndrome, ADHD, etc.).

If you are a parent of children or dependent young adults, I would greatly appreciate if I could ask for a few minutes of your time to fill out a questionaire. By filling out the questionaire you are not only helping me but anyone else looking into the welfare of families and caregivers of children with ASD.

All the information gathered in anonymous and will remain confidential. The information will only be used as part of this study and will not be passed onto any other parties. You are not obliged to take this survey and if you change your mind, you are free to stop. There is no strict expiry date on this survey although the project will be finished up by the end of March. Please feel free to pm me if you have any questons or comments. I will put up my final conclusions on this thread when I have them finalised.

Thank you for time.

https://docs.google.com/spreadsheet/vie ... TXVQZ3c6MQ


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Wreck-Gar
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09 Jan 2012, 8:59 am

I started answering your questions but sorry, you will need to improve the survey before I can answer all the questions. You need to have a "N/A" option. My son is ASD but does not have self-injurious behaviors or problems with transitions, for example.

Sorry!



PsycStudent
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09 Jan 2012, 9:14 am

Thanks for the feedback

I've modified that section to include Not Applicable (N/A) in the responses. :)


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Fnord
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09 Jan 2012, 9:16 am

Yes, presumptive questioning seems to skew the results toward a foregone conclusion.



Wreck-Gar
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09 Jan 2012, 9:26 am

PsycStudent wrote:
Thanks for the feedback

I've modified that section to include Not Applicable (N/A) in the responses. :)


Great, I have completed the survey.



Eureka-C
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09 Jan 2012, 9:47 am

I have two children, one male and one female, but I can't get it to allow me to mark both the male and female box. There should be two questions: How many female children do you have? How many male children do you have? The format of the question is confusing. Even if you fix it so I can mark both male and female, do I mark 2 children (male,female) - meaning I have two children, one male and one female or do I mark 1 child (male,female) - meaning I have 1 child male and 1 child female?



Eureka-C
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09 Jan 2012, 9:49 am

on question #3, what if someone has a child with ASD and another child with special needs?
If the above is true for question #3, how would you answer #4?



PsycStudent
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09 Jan 2012, 10:06 am

Eureka-C wrote:
I have two children, one male and one female, but I can't get it to allow me to mark both the male and female box. There should be two questions: How many female children do you have? How many male children do you have? The format of the question is confusing. Even if you fix it so I can mark both male and female, do I mark 2 children (male,female) - meaning I have two children, one male and one female or do I mark 1 child (male,female) - meaning I have 1 child male and 1 child female?


Thanks for pointing that out. I've changed the format of the question so you simply type youur answer. So if you have one son and one daughter you can type that into the box below the question however suits you.


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PsycStudent
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09 Jan 2012, 10:11 am

Eureka-C wrote:
on question #3, what if someone has a child with ASD and another child with special needs?
If the above is true for question #3, how would you answer #4?


Thanks for that. I've changed the format so you can now choose more than one answer for question 3.

For question 4 (Gender and number of child/children with ASD) you can answer for your other special needs child. You don't have to specifiy the diagnosis of your other child/children but may include it if you wish in the last question (the 'is there anything else you wish to add' question).

thanks again


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diniesaur
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09 Jan 2012, 11:59 am

1. Why did you ask just the parents and not the actual people? We know a lot more about our own brains than our parents do.

2. Why are you a psychology student at a business school? Wouldn't a business school be better for degrees in business?

3. Under "gender," you should put a third option like "ambiguous" or "androgynous" or "intersexed" rather than just Male or Female because if my mom were doing this survey about me she wouldn't be able to answer that question correctly. Alternatively, you could change the question to "sex," but you would still have to put a third option, "intersexed," because it is surprisingly common for people to be born with ambiguous sex or genitals.

I started to ramble on that third one, but it became unecessary, so I deleted it. Thank you!



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09 Jan 2012, 12:01 pm

Oh! I forgot to mention that to my knowledge ADHD is not an autism spectrum disorder. I may be wrong, though, since you're a psychology student and I'm not. Am I wrong?



Marcia
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09 Jan 2012, 12:07 pm

diniesaur wrote:
1. Why did you ask just the parents and not the actual people? We know a lot more about our own brains than our parents do.


As explained in the OP, this survey is designed to gain information about the parents, not about their children.



Eureka-C
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09 Jan 2012, 12:31 pm

diniesaur wrote:
Oh! I forgot to mention that to my knowledge ADHD is not an autism spectrum disorder. I may be wrong, though, since you're a psychology student and I'm not. Am I wrong?


I had to read it three times, but I finally saw that it said with or without Autism Spectrum Disorders. The parenthesis with the examples should have been "with ASD (Autism, Aspergers, PDD-NOS, Fragile X...) or with another emotional, neurological, and/or medical diagnosis (ADHD, ODD, GAD, Down's Syndrome....)"

This student is obviously learning the ins and outs of being very clear and particular in the wording of surveys and data collection instruments. She has been very open to correction, and observations critical of the survey and open to changing where necessary. The snide comment "since your a psychology student and I'm not" seemed unnecessary and obnoxious.



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10 Jan 2012, 4:54 am

Hi
I would like to do this, but my daughter is only at the assessment stage just now - so no diagnosis. Therefore, I can't answer question 3 accurately.


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PsycStudent
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10 Jan 2012, 5:06 am

diniesaur wrote:
1. Why did you ask just the parents and not the actual people? We know a lot more about our own brains than our parents do.

2. Why are you a psychology student at a business school? Wouldn't a business school be better for degrees in business?

3. Under "gender," you should put a third option like "ambiguous" or "androgynous" or "intersexed" rather than just Male or Female because if my mom were doing this survey about me she wouldn't be able to answer that question correctly. Alternatively, you could change the question to "sex," but you would still have to put a third option, "intersexed," because it is surprisingly common for people to be born with ambiguous sex or genitals.

I started to ramble on that third one, but it became unecessary, so I deleted it. Thank you!


1. My research is looking at parental stress and parental attitudes. Im comparing parents of children with autism spetrum disorders against parents of children without autism spectrum diosorders. Thats why Im asking questions to parents.

2. The psychology degree in DBS in accreditied by the Irish Psychological Society, whose standards are on par with and recognised by the British Psychological Society and American Psychology Association. Very few colleges in Ireland do accredited psychology courses so that why Im studying here.

3. Only one question in the survey in required (if you have a child/children with ASD or not). If there is any one questions, besides this, that a peson does not wish to fill out, they can leave it blank. I'm more than happy to get surveys that are only part completed.

Also, when looking at research into ASD, others have categorised ADHD as being an ASD. To make life easier, this has been edited out so individual parents can decide if they consider it to be an ASD or not.


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PsycStudent
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10 Jan 2012, 5:10 am

Mummy_of_Peanut wrote:
Hi
I would like to do this, but my daughter is only at the assessment stage just now - so no diagnosis. Therefore, I can't answer question 3 accurately.


Thanks for that. I forgot how long it took for my parents and many others to get a formal diagnosis. Some I know still don't have full diagnosis to explain so very obvious special needs. I've added in an option for undiagnosised/under diagnosis special need for anyone who doesn't know if its ASD or not at this point.


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