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HisMom
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15 Jan 2014, 11:49 pm

So, I have been trying to toilet train my non-verbal 4 year old with no success. I was told that he wasn't ready because he goes pee very very frequently (once every 30 minutes at least, if not sooner) AND his bowel movements are very erratic & unpredictable. I was told that to get him on a schedule, he needs to be able to hold his pee for at least an hour and a half, and have a major bowel movement at a consistent time every day.

Am I out of luck ? Please help ?



ASDMommyASDKid
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16 Jan 2014, 6:49 am

There are things that pediatricians are under-informed about regarding ASDs but I would trust a pediatrician's assessment of physical signs for potty training readiness. If you truly have doubts, you could try a developmental pediatrician (if you do not already have one) but I would under no circumstances push a kid who is biologically not capable into potty training.



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16 Jan 2014, 7:19 am

ASDMommyASDKid wrote:
There are things that pediatricians are under-informed about regarding ASDs but I would trust a pediatrician's assessment of physical signs for potty training readiness. If you truly have doubts, you could try a developmental pediatrician (if you do not already have one) but I would under no circumstances push a kid who is biologically not capable into potty training.


Agreed.


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Washi
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16 Jan 2014, 8:22 am

My determination for readiness was whether or not mine would willingly sit on the potty/toilet, I had to focus on just that part for a long time. If you can do that much then I would probably make sitting on the potty for a few moments just before taking a bath a regular part of his routine to start with. My son used to pee constantly for the first year, I know that is exhausting! :(



HisMom
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18 Jan 2014, 5:12 am

ASDMommyASDKid wrote:
There are things that pediatricians are under-informed about regarding ASDs but I would trust a pediatrician's assessment of physical signs for potty training readiness. If you truly have doubts, you could try a developmental pediatrician (if you do not already have one) but I would under no circumstances push a kid who is biologically not capable into potty training.



WOW ! !! Judgmental much ? Who told you that this was said to me by a pediatrician ? I was told this by his ABA program supervisor and just wanted to verify if this was true or not. Please don't jump on my throat now because you don't believe in ABA blah blah blah (trust me, I have heard that, too).

All I need to know is how to determine potty training readiness, I was merely verifying what my son's program supervisor told me, with other parents here. I certainly didnt expect a holier-than-thou "I wouldn't push a child" comment. If you can't provide constructive feedback, then please don't respond at all (and this also goes for the person below you who responded with "I agree"- well, whatever).



HisMom
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18 Jan 2014, 5:20 am

Washi wrote:
My determination for readiness was whether or not mine would willingly sit on the potty/toilet, I had to focus on just that part for a long time. If you can do that much then I would probably make sitting on the potty for a few moments just before taking a bath a regular part of his routine to start with. My son used to pee constantly for the first year, I know that is exhausting! :(


He has begun to sit on the potty, but won't necessarily always pee when he is on it (which is, as you said, the first step). The problem really is that he pees too often to get him schedule-trained. I did have him medically checked out to rule out an underlying bladder problem, but he is fine. I actually even had him tested for diabetes (because he drinks a lot which probably led to a lot of peeing, too) but that isn't a problem, either. Thank God !

Could you share how often your son peed during that first year ? What about bowel movements ? My son refuses to go poop in the toilet and starts to cry if I place him on the potty after spotting him trying to hide and making pushing noises. He screams bloody murder, then fights me off and goes all over the bathroom floor. It is exhausting ! I wonder why he won't poop in the potty while he willingly pees in it (not always, but some of the times, at least) ?



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18 Jan 2014, 8:41 am

HisMom wrote:
ASDMommyASDKid wrote:
There are things that pediatricians are under-informed about regarding ASDs but I would trust a pediatrician's assessment of physical signs for potty training readiness. If you truly have doubts, you could try a developmental pediatrician (if you do not already have one) but I would under no circumstances push a kid who is biologically not capable into potty training.



WOW ! !! Judgmental much ? Who told you that this was said to me by a pediatrician ? I was told this by his ABA program supervisor and just wanted to verify if this was true or not. Please don't jump on my throat now because you don't believe in ABA blah blah blah (trust me, I have heard that, too).

All I need to know is how to determine potty training readiness, I was merely verifying what my son's program supervisor told me, with other parents here. I certainly didnt expect a holier-than-thou "I wouldn't push a child" comment. If you can't provide constructive feedback, then please don't respond at all (and this also goes for the person below you who responded with "I agree"- well, whatever).


HisMom

Responding because I agree with ASDMommyASDKid.

No one is passing judgment and no one is jumping down your throat. And no one made a holier-than-thou comment.

When you are around long enough, as many of us with older children have been, you will see many things repeatedly. One of these things is parents who try to implement potty training methodologies on children who are simply physiologically not ready. It leads to a lot of frustration for both the parent and the child, and it is highly counterproductive. And it is not uncommon for parents to think their child must be ready because they have hit a certain age. I get that. Having a kid in diapers becomes problematic at some point and you want to get past it.

A reminder that physiological readiness must precede implementation is not an attack, and a statement not to push if he/she is not is advice, not an attack.

It is hard to read tone in written form, I know. But it doesn't feel good when you try to give someone helpful feedback and they jump down your throat and accuse you of having a holier-than-thou attitude.

People are just trying to help.


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ASDMommyASDKid
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18 Jan 2014, 10:10 am

InThisTogether wrote:
HisMom wrote:
ASDMommyASDKid wrote:
There are things that pediatricians are under-informed about regarding ASDs but I would trust a pediatrician's assessment of physical signs for potty training readiness. If you truly have doubts, you could try a developmental pediatrician (if you do not already have one) but I would under no circumstances push a kid who is biologically not capable into potty training.



WOW ! !! Judgmental much ? Who told you that this was said to me by a pediatrician ? I was told this by his ABA program supervisor and just wanted to verify if this was true or not. Please don't jump on my throat now because you don't believe in ABA blah blah blah (trust me, I have heard that, too).

All I need to know is how to determine potty training readiness, I was merely verifying what my son's program supervisor told me, with other parents here. I certainly didnt expect a holier-than-thou "I wouldn't push a child" comment. If you can't provide constructive feedback, then please don't respond at all (and this also goes for the person below you who responded with "I agree"- well, whatever).


HisMom

Responding because I agree with ASDMommyASDKid.

No one is passing judgment and no one is jumping down your throat. And no one made a holier-than-thou comment.

When you are around long enough, as many of us with older children have been, you will see many things repeatedly. One of these things is parents who try to implement potty training methodologies on children who are simply physiologically not ready. It leads to a lot of frustration for both the parent and the child, and it is highly counterproductive. And it is not uncommon for parents to think their child must be ready because they have hit a certain age. I get that. Having a kid in diapers becomes problematic at some point and you want to get past it.

A reminder that physiological readiness must precede implementation is not an attack, and a statement not to push if he/she is not is advice, not an attack.

It is hard to read tone in written form, I know. But it doesn't feel good when you try to give someone helpful feedback and they jump down your throat and accuse you of having a holier-than-thou attitude.

People are just trying to help.


I did make some assumptions that the OP had heard that from a professional as it was not stated otherwise. I assumed a pediatrician, but regardless if I interpreted the question incorrectly then that is my bad. It is not the first time I have misinterpreted the question and it will not be the last. I don't think it is central to the questions. The question in my mind had two components: Is this a valid criteria for precluding toilet training? and should I go forth, anyway?

I addressed both of these by saying if you don't like what one professional said (erroneously assuming a pediatrician) go ask another one (developmental pediatrician). Secondly, I said if the professionals say that it not a good idea, then believe them because all sorts of trouble can occur when you attempt to hurry along something that is not physiologically possible.

I stand by both pieces of advice.


I would assume similar assumptions of competence for an ABA who routinely tackles toilet training. Not ready =not ready.

If the OP wanted to focus primarily on asking if anyone has had successful potty training experience despite being told not to proceed, or wanted the specifics of the given criteria debated then then should have been more clearly laid out. I am not a mind reader and I interpret things the best I can.

HisMom: I don't see anything self-righteous in my post. We had difficulties with training as well, and I felt my advice was constructive. The fact that it was not the advice you wanted is not my fault. It is no reason to be rude to people trying to help. Any message board is going to have miscommunications, and when you are on a board with people with communication issues you can probably expect more of them.

[more unsolicited advice]If you get upset every time someone misinterprets your questions, or answers questions you did not intend to ask, on here, you are going to get angry a lot. [/more unsolicited advice]

InThisTogether,

Thanks.



HisMom
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18 Jan 2014, 1:48 pm

ADVISE ? Telling me to basically believe that everything a professional says is true is your "advise " ? While in the same post you openly admit that pediatricians are frequently "under informed" about ASD AND in another post, you liken ABA to be similar to training "a rat to navigate a maze" ?

BTW, do you have data or research studies to back up your assertion that potty training is one of the few things that pediatricians and behavior therapists are not incorrect about ?

Secondly, if a poster is directed to follow a professional, what is the point of this forum, then ? From your own posts, it is obvious that you have disagreed with many a professional and openly admit to it. So, is it solely your prerogative to disagree with the pros while you believe that parents of lower functioning kids have no such right ? THAT was my real problem with your original and subsequent posts - that the pros are suddenly experts in my son's case while you retain the right to disagree with them where your own child is concerned (major reason why you are homeschooling your kid is because you don't believe in the professionals, right) ? #supremeirony.

[Unsolicited advise] If you reserve the right to misinterpret posts and give "advise" that shows your double standards, the poster to whom you pontificate will reserve the right to call you out on it. Not everyone is going to want to gang up with you against someone else, yeah ? [/unsolicited advise]

And, as for the claim I am new here, no I am not, I have been here for a while, I just don't post that much anymore. In any case, parenting a higher functioning kid or an older kid doesn't make you an expert anymore than parenting an NT kid would make me even superior to those parenting a higher functioning but autistic kid. We don't get to pick our kids or their levels of functioning.



Last edited by HisMom on 18 Jan 2014, 5:12 pm, edited 5 times in total.

HisMom
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18 Jan 2014, 1:50 pm

Trying to get this thread back on track.

How can I get my son who pees frequently and has erratic bowel movements ready for toilet training ? Anyone here who experienced this but were ultimately successful in getting their child at least partially trained ? Thanks for sharing.



HisMom
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18 Jan 2014, 5:12 pm

InThisTogether wrote:

HisMom

Responding because I agree with ASDMommyASDKid.

No one is passing judgment and no one is jumping down your throat. And no one made a holier-than-thou comment.

When you are around long enough, as many of us with older children have been, you will see many things repeatedly. One of these things is parents who try to implement potty training methodologies on children who are simply physiologically not ready. It leads to a lot of frustration for both the parent and the child, and it is highly counterproductive. And it is not uncommon for parents to think their child must be ready because they have hit a certain age. I get that. Having a kid in diapers becomes problematic at some point and you want to get past it.

A reminder that physiological readiness must precede implementation is not an attack, and a statement not to push if he/she is not is advice, not an attack.

It is hard to read tone in written form, I know. But it doesn't feel good when you try to give someone helpful feedback and they jump down your throat and accuse you of having a holier-than-thou attitude.

People are just trying to help.


How are they trying to help ? By telling me to shut up and just blindly follow the "professionals" when they themselves admit that the pros don't always know everything ? When they admit to misreading my post and then come out and stick to their guns anyway and claim that their "advise" is to go by the pros, because GOD FORBID THEY ADMIT THEY MADE A MISTAKE ? All of a sudden, the pros are the experts on someone else's child, right ?

I don't care about how long people have been here, and if there are groups here that will jump to each others' defenses. I am not going to be intimidated by people ganging up against me, I survived high school politics, after all. I am here seeking help for my son, not to trade in accusations & counter accusations. I asked a simple question, I was told that the professionals know best by someone who openly admits that the pros don't always know everything. I won't stand for that sort of hypocrisy. Telling me to just blindly believe the doctors or the BCBAS isn't constructive advise. #iamentitledtomyopinion



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18 Jan 2014, 5:32 pm

HisMom wrote:
ADVISE ? Telling me to basically believe that everything a professional says is true is your "advise " ? While in the same post you openly admit that pediatricians are frequently "under informed" about ASD AND in another post, you liken ABA to be similar to training "a rat to navigate a maze" ?

BTW, do you have data or research studies to back up your assertion that potty training is one of the few things that pediatricians and behavior therapists are not incorrect about ?

Secondly, if a poster is directed to follow a professional, what is the point of this forum, then ? From your own posts, it is obvious that you have disagreed with many a professional and openly admit to it. So, is it solely your prerogative to disagree with the pros while you believe that parents of lower functioning kids have no such right ? THAT was my real problem with your original and subsequent posts - that the pros are suddenly experts in my son's case while you retain the right to disagree with them where your own child is concerned (major reason why you are homeschooling your kid is because you don't believe in the professionals, right) ? #supremeirony.

[Unsolicited advise] If you reserve the right to misinterpret posts and give "advise" that shows your double standards, the poster to whom you pontificate will reserve the right to call you out on it. Not everyone is going to want to gang up with you against someone else, yeah ? [/unsolicited advise]

And, as for the claim I am new here, no I am not, I have been here for a while, I just don't post that much anymore. In any case, parenting a higher functioning kid or an older kid doesn't make you an expert anymore than parenting an NT kid would make me even superior to those parenting a higher functioning but autistic kid. We don't get to pick our kids or their levels of functioning.



Ok, so your main point is you have an issue with me. That is fine. You don't have to agree with me, on this or anything else and I really do not care what you have inferred. I am not trying to rack up popularity points. I am not going to waste my time debating every post I have ever made on here. If you have specific issues with what I say you can post on the relevant threads.



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18 Jan 2014, 5:37 pm

ASDMommyASDKid wrote:
HisMom wrote:
ADVISE ? Telling me to basically believe that everything a professional says is true is your "advise " ? While in the same post you openly admit that pediatricians are frequently "under informed" about ASD AND in another post, you liken ABA to be similar to training "a rat to navigate a maze" ?

BTW, do you have data or research studies to back up your assertion that potty training is one of the few things that pediatricians and behavior therapists are not incorrect about ?

Secondly, if a poster is directed to follow a professional, what is the point of this forum, then ? From your own posts, it is obvious that you have disagreed with many a professional and openly admit to it. So, is it solely your prerogative to disagree with the pros while you believe that parents of lower functioning kids have no such right ? THAT was my real problem with your original and subsequent posts - that the pros are suddenly experts in my son's case while you retain the right to disagree with them where your own child is concerned (major reason why you are homeschooling your kid is because you don't believe in the professionals, right) ? #supremeirony.

[Unsolicited advise] If you reserve the right to misinterpret posts and give "advise" that shows your double standards, the poster to whom you pontificate will reserve the right to call you out on it. Not everyone is going to want to gang up with you against someone else, yeah ? [/unsolicited advise]

And, as for the claim I am new here, no I am not, I have been here for a while, I just don't post that much anymore. In any case, parenting a higher functioning kid or an older kid doesn't make you an expert anymore than parenting an NT kid would make me even superior to those parenting a higher functioning but autistic kid. We don't get to pick our kids or their levels of functioning.



Ok, so your main point is you have an issue with me. That is fine. You don't have to agree with me, on this or anything else and I really do not care what you have inferred. I am not trying to rack up popularity points. I am not going to waste my time debating every post I have ever made on here. If you have specific issues with what I say you can post on the relevant threads.


No, I don't even know you, and wouldnt know you if we ran into each other in the street. My problem was with your advise that I should believe the professionals (in this case the BCBA) blindly. That is a sensitive spot and the way you worded your post hurt me.



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18 Jan 2014, 7:17 pm

HisMom wrote:
ASDMommyASDKid wrote:
HisMom wrote:
ADVISE ? Telling me to basically believe that everything a professional says is true is your "advise " ? While in the same post you openly admit that pediatricians are frequently "under informed" about ASD AND in another post, you liken ABA to be similar to training "a rat to navigate a maze" ?

BTW, do you have data or research studies to back up your assertion that potty training is one of the few things that pediatricians and behavior therapists are not incorrect about ?

Secondly, if a poster is directed to follow a professional, what is the point of this forum, then ? From your own posts, it is obvious that you have disagreed with many a professional and openly admit to it. So, is it solely your prerogative to disagree with the pros while you believe that parents of lower functioning kids have no such right ? THAT was my real problem with your original and subsequent posts - that the pros are suddenly experts in my son's case while you retain the right to disagree with them where your own child is concerned (major reason why you are homeschooling your kid is because you don't believe in the professionals, right) ? #supremeirony.

[Unsolicited advise] If you reserve the right to misinterpret posts and give "advise" that shows your double standards, the poster to whom you pontificate will reserve the right to call you out on it. Not everyone is going to want to gang up with you against someone else, yeah ? [/unsolicited advise]

And, as for the claim I am new here, no I am not, I have been here for a while, I just don't post that much anymore. In any case, parenting a higher functioning kid or an older kid doesn't make you an expert anymore than parenting an NT kid would make me even superior to those parenting a higher functioning but autistic kid. We don't get to pick our kids or their levels of functioning.



Ok, so your main point is you have an issue with me. That is fine. You don't have to agree with me, on this or anything else and I really do not care what you have inferred. I am not trying to rack up popularity points. I am not going to waste my time debating every post I have ever made on here. If you have specific issues with what I say you can post on the relevant threads.


No, I don't even know you, and wouldnt know you if we ran into each other in the street. My problem was with your advise that I should believe the professionals (in this case the BCBA) blindly. That is a sensitive spot and the way you worded your post hurt me.

I read a guide to participating in forums like this once that said: try not to give or take offense.
I am not always good at that, but I try.

I cannot say that your interpretation is wrong, but it struck me differently and I wonder if you have considered alternative interpretations than the one that pained your sensitivities?

She is a really amazing person, I think.

I have some thoughts about the topic that I might share in a little while, but I read your wounded posts with a little sadness and hoped to say something that might help make peace.



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18 Jan 2014, 7:53 pm

Of course I did not mean that I am the only one entitled to weigh the value of what professionals say. In my mind, physiology is a much more settled science than a lot the other things we talk about. If the OP or anyone else disagrees, that is fine. I am a direct person, and so maybe my directness, or the emphatic nature of my post was the issue, but I don't always remember to qualify what I say, and sometimes I say things with more certitude than is called for.

I don't think trusting expert advice on physiology means that I need to accept every expert's take on everything, or for that matter the fact that I don't accept everything experts say, does not mean I don't accept opinions on other things. it is not all or nothing. I don't view that as contradictory.

As far as the HFA/LFA, issue I am equally befuddled as to where that came from. I don't even believe it is a clear divide so much as a linguistic convention and short cut. Kids on the spectrum have such different arrays of skills. One kid can be low functioning in one thing and highly skilled in another, One kid might need completely different approaches than another irrespective of whether someone applied an LFA or HFA label on him.

This particular response was quite baffling to me especially given the fact that when the OP was on here a while back with speech issues I was one of quite a few posters who told her that lack of communication does not mean MR and not to take experts on their word on that.

The particular advice I gave here would have been the same for someone with any form of ASD or an NT. I could explain it further but I am afraid it would dig myself in deeper. Suffice it to say, this is my particular view on toilet training and other people obviously have different views, and I withhold further comment on the subject so those who align better with the OP can post.

Anyway, thank you Adamantium, for the kind words. I do my best to say what I mean, and maybe I succeed sometimes and maybe I don't. I meant nothing other than to give advice.



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18 Jan 2014, 9:53 pm

ASDMommyASDKid wrote:
Of course I did not mean that I am the only one entitled to weigh the value of what professionals say. In my mind, physiology is a much more settled science than a lot the other things we talk about. If the OP or anyone else disagrees, that is fine. I am a direct person, and so maybe my directness, or the emphatic nature of my post was the issue, but I don't always remember to qualify what I say, and sometimes I say things with more certitude than is called for.

I don't think trusting expert advice on physiology means that I need to accept every expert's take on everything, or for that matter the fact that I don't accept everything experts say, does not mean I don't accept opinions on other things. it is not all or nothing. I don't view that as contradictory.

As far as the HFA/LFA, issue I am equally befuddled as to where that came from. I don't even believe it is a clear divide so much as a linguistic convention and short cut. Kids on the spectrum have such different arrays of skills. One kid can be low functioning in one thing and highly skilled in another, One kid might need completely different approaches than another irrespective of whether someone applied an LFA or HFA label on him.

This particular response was quite baffling to me especially given the fact that when the OP was on here a while back with speech issues I was one of quite a few posters who told her that lack of communication does not mean MR and not to take experts on their word on that.

The particular advice I gave here would have been the same for someone with any form of ASD or an NT. I could explain it further but I am afraid it would dig myself in deeper. Suffice it to say, this is my particular view on toilet training and other people obviously have different views, and I withhold further comment on the subject so those who align better with the OP can post.

Anyway, thank you Adamantium, for the kind words. I do my best to say what I mean, and maybe I succeed sometimes and maybe I don't. I meant nothing other than to give advice.


You misunderstand. I am not looking for "yes men", I wanted to have a detailed discussion on what constitutes "readiness" markers for toilet training. Given how much my son has worked this last year, I would be hard pressed to push him more & more. HOWEVER, he is 4.5 years old now, still in diapers and I worry. What bothers me is that most people have different yardsticks for "readiness". For this reason, and because the BCBA told me a lot of things that did not end up being the case, I wanted a frank is discussion on my son's particular toilet profile because I am sure there have been (or are) other kids just like him. I just didnt know why you assumed I was looking for people to come in and support my "agenda" or that I was pushing my son when he was not really ready (which I am disputing, anyway). At least that is how I interpreted your first post (your statement "I wouldn't try to do this" seemed to imply that I was !)