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Noca
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23 Oct 2016, 12:26 am

I find red LED bulbs don't trigger problems when I have migraines but still allow me to see where I am going in the dark. Home depot carries them. They are really easy on the eyes, especially with a lamp shade on them.



somanyspoons
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25 Oct 2016, 7:07 pm

I have chronic daily migraine. It's been 7 years now. I've had a few periods of relief, but in general, I always have a headache. It flaires up every once in a while into a fullblown migraine that lasts between one and two weeks. Really blows.

I know ALL the tricks. If you want some advice, let me know.

I gotta say, that one medicine, I never tried. Your doctor is getting creative. I'm kind of intreged. Its a catagory of meds I've never used. All the antidepressant migraine medicines that are supposed to make you so sleepy give me insomnia. I wonder if a med that is supposed to make you wired would knock me out at night.



B19
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25 Oct 2016, 9:18 pm

Migraine affects me and some other members of my family. Interestingly we are the only ones in the family who also have gut problems - most notably celiac disease in our case. I wondered today if a gut-migraine link had been explored, and found some suggestive studies, like this one http://headacheandmigrainenews.com/larg ... -migraine/

This study interested me too:
http://europepmc.org/articles/pmc4240046



feral botanist
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25 Oct 2016, 10:49 pm

Thanks for the great information.

Has anyone tried Botox for migraines?

My doctor suggested it yesterday.



somanyspoons
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26 Oct 2016, 8:29 am

^^^Yes. LOVE it. Botox works for me. Not 100% but enough that I can have my life back and not overuse other medicines. I also use lot of herbs, rest, and diet. But I am able to function. I only use my fiorcet about 5 times a month now, which keeps me from getting dependent on it.

One warning. Botox means 31 shots to the head. It does hurt. And after that, you'll get a day or two of intense pain, followed by muscle pain in your neck for a while. Its worst on the first attempt. Gets progressively better, neck pain wise as your body adjusts. But I really wouldn't call it worth it if I wasn't truly chronic. I think the threshold is 15 migraine days or more?



feral botanist
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26 Oct 2016, 4:42 pm

somanyspoons wrote:
I think the threshold is 15 migraine days or more?


I met that threshold in the last 15 days.



somanyspoons
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26 Oct 2016, 5:19 pm

I'm an alternative medical provider. i really prefer to stay away from western medicine, but I was so glad I tried botox. I had to go through a fair number of hoops first. My insurance required me to try topamax first and it caused memory problems so severe that I wound up on route 10, in my car, with no idea how I had gotten there, or what day it was, or what time. Freaky.



feral botanist
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26 Oct 2016, 8:29 pm

I am on topomax and was during this bad episode,so it wasn't very successful

I just tried Depakote and felt dissociated and suicidal.

I hope I have met the requirements.



somanyspoons
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26 Oct 2016, 9:10 pm

That would do it for my insurance company. Just a heads up, while you are considering going forward; Botox doesn't break a migraine that is already present. In fact, the day or two after your injections are sure to be doozies because the injections irritate the nerves. It takes a few weeks for the affects to set in. I started taking a fiorcet before my injection appointments, to prevent me from tightening up with the pain of it, and that seems to help a lot. I would ask first of course. I don't know your full picture. but I really suggest at least a few advil before your appointment.

Also, the affect when your muscles freeze is seriously weird. I watched my forehead stop moving as the day went on. It was about one week after the first injection. I thought it was really terrible at first, as I'm used to being very expressive with my eyebrows, but I'm cool with it now. It's not bad. It's just different.



feral botanist
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07 Nov 2016, 12:14 pm

My doctor has told me numerous times that it is not an abortificant, but the sooner I start it, the sooner it might start working.

As for the muscle freeze, I am faceblind, so I probably wont notice the difference in the mirror, but I will likely feel it.



somanyspoons
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07 Nov 2016, 9:42 pm

My doc just gave me something new. It's a powder called Cambia. It was a sample, so I didn't pay. But its supposed to be crazy expensive. Apparently, you can get diclofenan potassium in pill form and it's way less expensive. I have no idea if it works for me yet, but some people say that it breaks really hard to break headaches.