Life with AS is a living hell

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Agreed. I'm guessing you made a concentrated effort to improve these things about yourself via forcing yourself to practice them, pushing yourself outside your comfort zone etc. That's certainly one way.

Then there are therapies like ABA and other currently approved methods of treating/improving ASD.

Then there's the approach I take, via diet/medicine, dealing with the digestive intestinal component of AS in order to improve my functioning level & behaviours. It's been more than 5 years that I've been doing this now and life is pretty good compared to 6 years ago when it was a living hell.

The most distressing part for me can't be fixed so it doesn't matter if I'm high functioning and uber social, life will still be hell.

For me, the social issues improved as soon as I was FORCED into social situations; at school they'd mollycoddled me and allowed me to avoid class participation - they even stopped bothering to call my name in registration, because I was so quiet . Once I left school and entered the real world, this ceased to be the case.

Everything else involved a gradual effort at self-improvement over time, but the social problems were solved literally within weeks of leaving school - almost overnight.

What part is that?

The f*****g overemotional part that makes me want to stab myself.

good stuff
simplification is always good. i tend to feel a sense of urgency and take on a lot of stuff at once to feel like i've "caught up" with something, but then inevitably get burnt out later...
you don't need a lot.

i'll stress the importance of ones life philosophy fitting their LIVED EXPERIENCE. very little has made sense in my life and a lot of what i read seems to contradict what i've experienced



i have. maybe i'm not as far along as prometheus says he is, but i've learned. i agree that it doesn't help to be coddled, especially throughout school.

That's EXACTLY what it takes! It's refreshing to read that attitude here. There are several who have it, but it seems there are plenty more who refuse to accept personal responsibility for themselves, their health, their situation etc and thus do nothing to affect positive change upon themselves and simply choose to continue to complain about the things they don't like about themselves or their lives vs. opting to do anything about any of it at all. SO glad to read those words here instead!

So, we're talking about suicidal/self harming thoughts?

For myself, these ceased entirely when I detoxed excess salicylate acids by using epsom salts on my skin all the time. Once I'd excreted the excess acids, by by worst depression ever, sky high anxiety, extreme audio sensitivity, and very frequent suicidal thoughts.

Not saying I Know it will work for you, but stats straight out of ASD medical studies say that 70% of people on the spectrum are sensitive to salicylate acids.

Do you think I haven't tried 200 thousand billion things?
Drugs
Positive thinking
Detachment from reality
Supplements
Diet
Exercise
Seton
Fasting
Probiotics
Hemp

Not talking about suicidal thoughts, talking about inability to regulate emotions.

Good stuff.

Reminder: It doesn't matter what prometheus has done, or what I have done. It matters what you have done to help move yourself forward. Maybe over the passed year it's been an inch, and over the next it might be a 1/4 inch, and the following an entire foot. You might have a couple inch setback the following year. Doesn't matter, though, as long as You keep moving yourself forward & measure and compare only to who you used to be.

The only value in knowing what others have done is know that it can be done. And possibly as inspiration to keep going yourself. And possibly as insightful for new methods that you may want to try out for yourself. But in terms of What others have achieved compared to what you have achieved for yourself? Doesn't matter one iota. Zip, zilch, zero. We all too often measure and compare ourselves to someone who's been more successful & usually all that serves to do is solidify in our own minds that we "failed," to move the same 3 feet.. and when we focus on that, we don't acknowledge the success we made in moving 3 inches we hadn't before. If you're going to make a habit of comparing yourself to someone else in order to measure success of any kind, make that person the person you used to be and no one else.

None of us have tried everything. The important part is that you do try & continue to try new things to see if they work.

Have you tried using magnesium sulphate (epsom salts) to gradually detox excess food acids and see if they result in an emotionally more stable Raleigh? If not, it's an extremely simple and inexpensive experiment to give a go. 4kg of salts runs less than $10 & would last for several weeks+.

You get worn out from trying.
Then you see people saying "they're not even trying, just complaining"
You don't know what people have tried.

I buy Epsom salts in 20kg bags, thank you.

Like everyone else, I only know about people what they post here. IF all they do is complain (you do Not) then all we know about is that they complain. If they try things and never share that they did (again, Not you), then how am I or anyone else here to know they've tried anything at all?

So then take a break from trying, do whatever relaxes you. Meditate, go for a jog/swim, take a vacation, read a book, build something, smash something, dig a hole, climb a tree, pick wildflowers, go to the zoo, isolate yourself from everything and everyone.. whatever, doesn't matter what it is so long as it's something that helps you feel better in the moment.. and then whenever you're ready, whether 5 minutes or 5 months later, try something again. Just never, ever, EVER give up.

There are reasons more than just 'can't' or 'laziness'. Not even 'circumstances' can explain why.
More than just in the head or the matter of perspective. More complicated than just lacking motivation, resources, accessibility, skills, knowledge, or maturity to make sense of things let alone attain and actually do it.

Doesn't help with the EF issues. EF issues impedes action and solution, and the lack of solution causes EF issues...
It's another trapping cycle, just as worse as anxiety creating issues and issues causing anxiety. Personally, at best I just wonder how many of those cycles exists overall across the spectrum.

Cycles are not easy to break in my experience, they are tricky that requires certain precisions, the right knowledge and circumstances to figure, that it goes beyond just 'trying' or even 'get it done' -- that willpower alone, no matter how renewable, cannot solve.


Why people complain about AS making their life a living hell? Mostly because they thought AS denies them of fulfillment and that's usually it. Underneath that can be something but not limited to as a simple circumstance or reason, rationalized, unrealistic, or complicated. Just as anything can br an excuse.
And somehow I'd bet half the time, their problems have little to do with being autistic. Thus sticking with wrong ideas, wrong contexts, wrong messages... Wrong solutions. What happens if people don't give up on this??

And blindly giving people solutions... Can overwhelm a person, and not just annoy them with talks about attitude and motivation.
If I try to explain the whole bit, it'll take too long...



To me? It's not AS. It's being human. The wants and needs against the human limit.
With too many wants and needs, and without the means, knowledge, time and resources, skills, or maturity to make sense of, maintain, be patience with, afford, and fulfill...
I myself is my worst problem -- not the world and things around me, but the things that held be back from whatever fulfillment needing or wanting.
And it's mostly just me really.


Autism is just but a significant fragment that fulfills and denies my own human wants and needs. Humans would just tend to look for problems.

Exactly what he said.

It sucks n things cd be improved with way more support but still it cannot fix my actual brain
N my son.. he wd definitely be up against a whole lot less pain n struggle if ASD symptoms were mitigated



But in an ideal environment or culture tht wd accommodate n understand I can see autism as being less of a burden.

The worst is often other conditions overlap with it. Eg inability to communicate/speech delays, inability to walk/eat properly, EDS, palsy, etc. N no two ppl are the same which is like UGH!! !!