Am i the only one who thinks living with autism is Hell?
Your biggest barrier to employment is that your under 25 quite frankly
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"Tall people can be recognized by three things: generosity in the design, humanity in the execution and moderation in success"
I just wish your ears were like your eyes. If you don't want to see something, you can just close your eyes, and I wish it were the same with your ears, without having to touch your ears. I wish there was some sort of muscle active in our ears what block out sound, so that when you hear a noise, you don't need to make it look obvious that the noise has startled you. Example, when a toddler screams (it's the sound I hate the most) I wish I could just ''pull'' down this muscle and still walk or stand about without no-one else knowing that I'm not hearing the sound. I wish our bodies had that.
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I'm with you on that one. Hell. I'd rather be a one-handed ex-child soldier with HIV if it meant that I'd have a working brain instead of what I've got.
techstepgenr8tion
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I completely agree with the OP statement. Regardless of what I've been able to achieve in terms of school or profession, even friendships in certain areas, I get daily - stark - reminders that I'm inexorably different, that I mess with people who are generally rational enough to where it is my fault even though its parts of my behavior (like shiftiness) that are caused by a neurological/sensory malfunction rather than being anything I can control. I'm also finally in a position where I'm quite concerned with my employment, for several reasons but also because - not being anywhere near the center of a bellcurve for thought - if I'm told to be an adult and trust my own judgement 9 times out of 10 it will go well but that 10th time I can and will do certain things that no one will be able to relate to and, right now I could be let go over something that was an honest mistake but where for all anyone else can see my judgement went off the deep end.
The problem with neurological conditions like this is that when we, trying to the best of our ability to meet society half way, fail, we get full weight and credit for our disability - ie. its completely our fault whether we can help it or not and we deserve all of the consequences of our condition. When people offer that the world is just ignorant of it and that people really don't understand what they're seeing - its of even less comfort, often I feel significantly better by telling myself that the rules just dictate that adults with four limbs and no sign of mental retardation are fully responsible for what their oddities inflict on them in life. The fact that so many people don't understand or don't intend to actually tells us that, quite likely in the Darwinian scheme of things, they aren't supposed to - rather we're supposed to be ostracized in nature and starving by ourselves or left to fend against wild animals.
Obviously I can think of many situations worse than autism and suffice to say we live in a really disgusting world. Obviously still though - any condition under the sun where one's best efforts are smacked down and where they are held in contempt or held to be of less honor or value despite their best efforts - is incredibly demoralizing.
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The loneliest part of life: it's not just that no one is on your cloud, few can even see your cloud.
Molecular_Biologist
Deinonychus
Joined: 18 May 2010
Age: 47
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Its all part of this ridiculous AS culture. Its why I avoid AS meetup groups
There are few things more stupid than having to listen to someone on disability welfare prattle on about how AS isn't a disease and how its such a gift.
I'm more functional than most and I recognize the ruination it has brought to my life.
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Check out my IMDB page!
No offense, but it's really tacky to plug your IMDB page when you're trying to give someone advice.
It's a signature. Just for some reason not in the signature block.
There is no way I know of to include hyperlinks in a signature so I just put it at the bottom of every post.
techstepgenr8tion
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Very well said.
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The loneliest part of life: it's not just that no one is on your cloud, few can even see your cloud.
techstepgenr8tion
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- People are not the world. People don't dominate the world any more than your nose hairs dominate you. People do dominate each other's attention, and "world" is to a mind all things it pays attention to. Try not to let people dominate your attention.
- Some of the hell you're experiencing may be due to trying to be something you're not. Are you really the social animal your parents and "peers" told you you are, or "should be" (whatever that means)? Do you believe your social needs are as extensive as those of nonautistics, but your needs aren't met due to your lack of social skills? Or are you really serving other people's needs and not your own when trying to be social? Do a lot of your social behaviors not make you feel like you're a bear made to dance on a ball? A disgrace, a rather pathetic shadow of your actual nature?
I feel my limited social skills more or less match my limited social needs. I'm generally fine when alone and there's no noise or other people-generated crap going on around me. But when I'm not being left alone I usually feel miserable to the point of desiring death. So clearly I'm not a social animal. I do appreciate friendly interaction with a few people I know well and trust, but human interaction is not the essence of life. More like salt in food. A nonautistic (i.e. "normal") human life, if I were to lead it, would be like a plate of salt with some bits of meat and vegetable in it. Horrible. Lethal, most likely.
- Some of the hell you're experiencing is due to actually being in hell, in a way. The hell that people make for each other. All the things that bother me because I'm autistic, they didn't exist in earlier times, or to a much lesser degree. There were fewer people, small communities instead of large societies, none of the noise that's "normal" today. It's like humankind is trying to create the most hectic state of affairs possible.
- When there's a mindsplitting noise near you, which hurts like hell, literally, because it takes your attention hostage, and your attention is you, do you wish you were deaf? Probably, then and there. But deaf is forever, unlike that noise. Very difficult for us autistics to remember that all nows are temporary while they so obviously seem eternal from within.
- When I'm unhappy, it's because I care (about something or someone). But deciding not to care would also make me unhappy, as it would make my life feel pointless. So there must be some golden middle there, a decent compromise. Care as much as you can tolerate. No more, no less. And accept that caring hurts, at least a bit.
- Nonautistics reportedly "think in words". No light and no space in their minds, just an inner voice yapping perpetually. Seems pretty hellish to me.
Whether in attempting to be social we're a) being who we really are but are physically/neurologically hampered b) because our parents/friends tell us to or c) just because we can't pay the bills without it - seems like its very specific to the person in question and I believe that all of us are in authentically different circumstances with regard to that.
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The loneliest part of life: it's not just that no one is on your cloud, few can even see your cloud.
**************************************************************************************************
Check out my IMDB page!
No offense, but it's really tacky to plug your IMDB page when you're trying to give someone advice.
It's a signature. Just for some reason not in the signature block.
There is no way I know of to include hyperlinks in a signature so I just put it at the bottom of every post.
How about you put "Check out my IMDB page: http: / / linkgoeshere.com"?
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I don't post here anymore. If you want to talk to me, go to the WP Facebook group or my Last.fm account.
LMon14
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Nope, hate it too. Caused emotional loss, which is awkward due to the fact that I need to see the person lost each day. Also makes me feel like I've a target painted on my back and am constantly mocked and made fun of due to the fact that i openly discuss my annoyances, primarily noise and most take it upon themselves to use it against me.
Hell is supposedly fire, but i feel autism is hell in a different kind of way.
Alot of the ppl here who love and support autism live very comfortably in their parents home and have everything paid for them, but in real life when your on your own, its waaayyyyyyyyy difffrent.
Oh no, I hate it. Some days I'd prefer cancer. it's all just a figure of speech that all those with any disability use, the "gotta live your life" mantra. And, it works for many people I'm sure, never once did for me.
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SadGhost
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Joined: 26 Mar 2018
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I hate my condition, despite having support from my parents. I'm constantly being told that I should move out, get a job, get my license etc. and live completely independently. Believe me, of it were that easy I definitely would have by now. I have both an ASD and a GAD diagnosis which create many issues for me. I tried getting my license but anxiety attacks during driving tests led me to fail despite being able to drive perfectly with driving instructors. As for moving out, 1) I don't have a mode of transportation 2) I've got zero social support to help me accomplish this 3) Getting a job is next to impossible right now because I'm still in school and my resume has been empty since 4 years ago. I have a hard time managing school and part time work (tried it before). I don't disclose my ASD diagnosis IRL because people (NT's) have told me before that I use it as an excuse to not work and get my license... ![]()
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So how about we become monsters together?
I'm not in love with it, either. I'm not even formally diagnosed, nor do I want to be. I think it could only hurt me at this point. I worked so hard to get to my current level of functioning and don't want to lose any gains I have made. I have been told so many times that I can't (or shouldn't) do certain things. A formal diagnosis, for me, would take certain things I want to do off the table forever. I won't tolerate that.
goldfish21
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I'm more with you than embracing ASD as lovely.
That's why I was motivated to figure out how to treat it - and I did, 5+ years ago, and shared it here. But there are so many people here in love with their Autism that they're very much against learning anything about anything that can actually treat their symptoms and so they call me names instead.
But for those that have had enough of their ASD symptoms messing with their lives, there are viable treatment options available & I'm sure more will be developed and refined over time.
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No
That's why I was motivated to figure out how to treat it - and I did, 5+ years ago, and shared it here. But there are so many people here in love with their Autism that they're very much against learning anything about anything that can actually treat their symptoms and so they call me names instead.
That's not the reason why they call you names. And until you address the reason, you're not going to have any credibility regarding autism treatment.
