Am i the only one who thinks living with autism is Hell?

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Laz
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04 May 2011, 11:52 am

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Although I'm not as different to NTs as what cats and dogs are to eachother, I still feel useless at times, especially being on job-seekers. I've been on job-seekers for 3 years now, and I have attended placements, work experiences, courses, ect, but nobody will employ me, because of the mad stereotype some NTs have against AS and Autism. They just think, ''ohh she's Autistic - she won't talk to anyone or know anything,'' even though I've given them a CV with GCSEs on, previous work experiences, and sat right in front of them at an interview speaking to them as normal as the next person would. But that's the way this offensive, upsetting stereotype goes. I don't think it's fair because if I was an employer I would give everybody a chance, especially those with disabilities


Your biggest barrier to employment is that your under 25 quite frankly


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04 May 2011, 4:20 pm

Well other people I know who are my age seem to be in work now, just doing the same type of work I'm looking for, like retail, office, catering, nursery, ect.


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05 May 2011, 3:51 pm

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When there's a mindsplitting noise near you, which hurts like hell, literally, because it takes your attention hostage, and your attention is you, do you wish you were deaf? Probably, then and there. But deaf is forever, unlike that noise. Very difficult for us autistics to remember that all nows are temporary while they so obviously seem eternal from within


I just wish your ears were like your eyes. If you don't want to see something, you can just close your eyes, and I wish it were the same with your ears, without having to touch your ears. I wish there was some sort of muscle active in our ears what block out sound, so that when you hear a noise, you don't need to make it look obvious that the noise has startled you. Example, when a toddler screams (it's the sound I hate the most) I wish I could just ''pull'' down this muscle and still walk or stand about without no-one else knowing that I'm not hearing the sound. I wish our bodies had that.


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maxxim
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05 May 2011, 11:24 pm

886 wrote:
I'm about to move out soon, but honestly living with autism is an absolute nightmare. I don't really care to offend anyone, but if I had the option at birth to not have autism I would gladly of lived without it.



I'm with you on that one. Hell. I'd rather be a one-handed ex-child soldier with HIV if it meant that I'd have a working brain instead of what I've got.



techstepgenr8tion
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06 May 2011, 6:46 am

I completely agree with the OP statement. Regardless of what I've been able to achieve in terms of school or profession, even friendships in certain areas, I get daily - stark - reminders that I'm inexorably different, that I mess with people who are generally rational enough to where it is my fault even though its parts of my behavior (like shiftiness) that are caused by a neurological/sensory malfunction rather than being anything I can control. I'm also finally in a position where I'm quite concerned with my employment, for several reasons but also because - not being anywhere near the center of a bellcurve for thought - if I'm told to be an adult and trust my own judgement 9 times out of 10 it will go well but that 10th time I can and will do certain things that no one will be able to relate to and, right now I could be let go over something that was an honest mistake but where for all anyone else can see my judgement went off the deep end.

The problem with neurological conditions like this is that when we, trying to the best of our ability to meet society half way, fail, we get full weight and credit for our disability - ie. its completely our fault whether we can help it or not and we deserve all of the consequences of our condition. When people offer that the world is just ignorant of it and that people really don't understand what they're seeing - its of even less comfort, often I feel significantly better by telling myself that the rules just dictate that adults with four limbs and no sign of mental retardation are fully responsible for what their oddities inflict on them in life. The fact that so many people don't understand or don't intend to actually tells us that, quite likely in the Darwinian scheme of things, they aren't supposed to - rather we're supposed to be ostracized in nature and starving by ourselves or left to fend against wild animals.

Obviously I can think of many situations worse than autism and suffice to say we live in a really disgusting world. Obviously still though - any condition under the sun where one's best efforts are smacked down and where they are held in contempt or held to be of less honor or value despite their best efforts - is incredibly demoralizing.


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Molecular_Biologist
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06 May 2011, 8:57 am

Dasaniman wrote:
There is so many fools on this site that are against a cure they should be banned, but moderators favor them waaayy too much.


Its all part of this ridiculous AS culture. Its why I avoid AS meetup groups

There are few things more stupid than having to listen to someone on disability welfare prattle on about how AS isn't a disease and how its such a gift.

I'm more functional than most and I recognize the ruination it has brought to my life.



Daryl_Blonder
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06 May 2011, 9:32 am

Zen wrote:
Delirium wrote:
Daryl_Blonder wrote:
...Think of it this way... living without it can be hell, too. Plenty of people out there don't have autism and are positively miserable, just as much as you are.

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No offense, but it's really tacky to plug your IMDB page when you're trying to give someone advice.

It's a signature. Just for some reason not in the signature block.


There is no way I know of to include hyperlinks in a signature so I just put it at the bottom of every post.



techstepgenr8tion
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06 May 2011, 9:46 am

purchase wrote:
Can be. Hate it when people who supposedly understand my diagnosis, even professionals, expect me to be able to do stuff the same way the average (neurotypical) person can. Not possible. I'm not being lazy, I'm not being bratty, I'm not being melodramatic, I'm not being difficult. I just feel everyday life at an intensity most people do not and it is exhausting and severely limiting. It is hellish when even the people paid to help you tell you you're not trying hard enough and you have to make a choice to get better. For God's sake! Being overwhelmed is not a choice! No more than being disgusted by a food you hate the taste of is a choice. How is this not understandable. Were it a choice I'd choose myself out of this ridiculous helpless state I'm in. All right, enough of my horrible-mood rant.

:star: :star: :star: :star: :star:

Very well said.


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techstepgenr8tion
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06 May 2011, 9:54 am

willem wrote:
Some scattered thoughts:

- People are not the world. People don't dominate the world any more than your nose hairs dominate you. People do dominate each other's attention, and "world" is to a mind all things it pays attention to. Try not to let people dominate your attention.

- Some of the hell you're experiencing may be due to trying to be something you're not. Are you really the social animal your parents and "peers" told you you are, or "should be" (whatever that means)? Do you believe your social needs are as extensive as those of nonautistics, but your needs aren't met due to your lack of social skills? Or are you really serving other people's needs and not your own when trying to be social? Do a lot of your social behaviors not make you feel like you're a bear made to dance on a ball? A disgrace, a rather pathetic shadow of your actual nature?
I feel my limited social skills more or less match my limited social needs. I'm generally fine when alone and there's no noise or other people-generated crap going on around me. But when I'm not being left alone I usually feel miserable to the point of desiring death. So clearly I'm not a social animal. I do appreciate friendly interaction with a few people I know well and trust, but human interaction is not the essence of life. More like salt in food. A nonautistic (i.e. "normal") human life, if I were to lead it, would be like a plate of salt with some bits of meat and vegetable in it. Horrible. Lethal, most likely.

- Some of the hell you're experiencing is due to actually being in hell, in a way. The hell that people make for each other. All the things that bother me because I'm autistic, they didn't exist in earlier times, or to a much lesser degree. There were fewer people, small communities instead of large societies, none of the noise that's "normal" today. It's like humankind is trying to create the most hectic state of affairs possible.

- When there's a mindsplitting noise near you, which hurts like hell, literally, because it takes your attention hostage, and your attention is you, do you wish you were deaf? Probably, then and there. But deaf is forever, unlike that noise. Very difficult for us autistics to remember that all nows are temporary while they so obviously seem eternal from within.

- When I'm unhappy, it's because I care (about something or someone). But deciding not to care would also make me unhappy, as it would make my life feel pointless. So there must be some golden middle there, a decent compromise. Care as much as you can tolerate. No more, no less. And accept that caring hurts, at least a bit.

- Nonautistics reportedly "think in words". No light and no space in their minds, just an inner voice yapping perpetually. Seems pretty hellish to me.

Whether in attempting to be social we're a) being who we really are but are physically/neurologically hampered b) because our parents/friends tell us to or c) just because we can't pay the bills without it - seems like its very specific to the person in question and I believe that all of us are in authentically different circumstances with regard to that.


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Delirium
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06 May 2011, 10:46 am

Daryl_Blonder wrote:
Zen wrote:
Delirium wrote:
Daryl_Blonder wrote:
...Think of it this way... living without it can be hell, too. Plenty of people out there don't have autism and are positively miserable, just as much as you are.

**************************************************************************************************

Check out my IMDB page!


No offense, but it's really tacky to plug your IMDB page when you're trying to give someone advice.

It's a signature. Just for some reason not in the signature block.


There is no way I know of to include hyperlinks in a signature so I just put it at the bottom of every post.


How about you put "Check out my IMDB page: http: / / linkgoeshere.com"?


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LMon14
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30 Apr 2018, 5:39 pm

Nope, hate it too. Caused emotional loss, which is awkward due to the fact that I need to see the person lost each day. Also makes me feel like I've a target painted on my back and am constantly mocked and made fun of due to the fact that i openly discuss my annoyances, primarily noise and most take it upon themselves to use it against me.



886
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03 May 2018, 4:09 pm

Dasaniman wrote:
I feel like im the only who is diagnosed who ISNT in love with this disorder/disability.

Hell is supposedly fire, but i feel autism is hell in a different kind of way.

Alot of the ppl here who love and support autism live very comfortably in their parents home and have everything paid for them, but in real life when your on your own, its waaayyyyyyyyy difffrent.

Oh no, I hate it. Some days I'd prefer cancer. it's all just a figure of speech that all those with any disability use, the "gotta live your life" mantra. And, it works for many people I'm sure, never once did for me.


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SadGhost
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03 May 2018, 10:00 pm

I hate my condition, despite having support from my parents. I'm constantly being told that I should move out, get a job, get my license etc. and live completely independently. Believe me, of it were that easy I definitely would have by now. I have both an ASD and a GAD diagnosis which create many issues for me. I tried getting my license but anxiety attacks during driving tests led me to fail despite being able to drive perfectly with driving instructors. As for moving out, 1) I don't have a mode of transportation 2) I've got zero social support to help me accomplish this 3) Getting a job is next to impossible right now because I'm still in school and my resume has been empty since 4 years ago. I have a hard time managing school and part time work (tried it before). I don't disclose my ASD diagnosis IRL because people (NT's) have told me before that I use it as an excuse to not work and get my license... :roll:


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04 May 2018, 9:36 am

I'm not in love with it, either. I'm not even formally diagnosed, nor do I want to be. I think it could only hurt me at this point. I worked so hard to get to my current level of functioning and don't want to lose any gains I have made. I have been told so many times that I can't (or shouldn't) do certain things. A formal diagnosis, for me, would take certain things I want to do off the table forever. I won't tolerate that.



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04 May 2018, 3:03 pm

I'm more with you than embracing ASD as lovely.

That's why I was motivated to figure out how to treat it - and I did, 5+ years ago, and shared it here. But there are so many people here in love with their Autism that they're very much against learning anything about anything that can actually treat their symptoms and so they call me names instead.

But for those that have had enough of their ASD symptoms messing with their lives, there are viable treatment options available & I'm sure more will be developed and refined over time.


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04 May 2018, 8:19 pm

goldfish21 wrote:
I'm more with you than embracing ASD as lovely.

That's why I was motivated to figure out how to treat it - and I did, 5+ years ago, and shared it here. But there are so many people here in love with their Autism that they're very much against learning anything about anything that can actually treat their symptoms and so they call me names instead.


That's not the reason why they call you names. And until you address the reason, you're not going to have any credibility regarding autism treatment.