HORRIBLE news...

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I went to the doctor today...and about TWO things are certain now:

1. I AM going to loose my vision after all. And they don't think that it is macular degeneration...

2. I have anemia.


*sighs* s**t.


-SpaceCase

OMG THAT SUCKS

1.How are you gonna lose your vision???
2.WTF is anemia???

1. They thought it was macular degeneration at first,but now they think it's just a rare gene or something,or perhaps a more serious eye disease.

2. Anemia is problems with your oxygon blood cells.


-SpaceCase

Oh crap. I'm sorry to hear that, hon.

You'll get through this. It'll be rough, but you'll find a way.

That must be horrible.

Oh,then god just loves being a jackass bigoted ****

That really IS horrible,no offence if any taken.

http://www.hno.harvard.edu/gazette/2004/02.19/01-retina.html

I am so sorry....I do not have words. I cannot know definitely, but I suspect Aspies are especially resilient. Can you prepare your other senses to compensate (I have enhanced senses which overlap)? Still, I am sad for you.

May I share? I see a neuro/psych doctor for my medication needs. Anyway, while in the lobby yesterday I saw and overhead someone remarkable that may inspire you! I am an Alaskans and a couple of years ago a hunter was seriously mauled by a grizzly bear in the bush - it was plastered in the news since this is quite unusual (bears are not mean, just protective). The hunter was mauled in the face and tragically lost both eyes. This hunter was actually at my dr.'s office yesterday and speaking to two other men there. I only recalled the newstory after he relayed his experience. After his accident, he chose to go back to school. He just received his PhD in psychology and will be working professionally to help others in need. He expressed a deep self-confidence and extraordinary compassion too. Extraordinary, yes?

No!! !! !! !! !! I am so sorry Michelle.

Are you a vegetarian? Or is it a different kind of anemia (which can be spelt anaemia)? If you were told what type it was, could you tell me? I have various texts...

I'll bet your mum had some sarky comment about that. If she does, giver her hell!

That sucks!! ! Anemia is treatable, isn't it? Don't know about your eye condition.

You know, my work cafeteria is actually managed by a blind couple. The lady recently had some groundbreaking surgery so she can see, albeit not 20/20 by any stretch of the imagination. But she was on the local news saying how amazing it was when she saw the mountains in UT for the first time. Her husband is totally blind, but he manages this little cafeteria. They do have a short-order cook that is not visually impaired and he works at the grill. Otherwise, they do EVERYTHING themselves. Quite amazing people.

Anyway, would you ever be able to get a cornea transplant to fix your problem? Just wondering - it seems like it's becoming a common thing to do for a lot of degenerative problems.

I found the news story they did about her:

http://www.ksl.com/index.php?sid=888609&nid=148

I wish it didn't happen and you'd keep your eyesight...

I am sorry to hear this, it must be pretty difficult to face. I hope maybe they find that there is something that can be done afterall.

Definitely see if there is some academic-affiliated eye center that you can go to, if you haven't done so already. They'd be the most knowledgeable on the matter. The Moran Eye Center, where that lady had her eyes reconstructed, is affiliated with the University of Utah. They also restored my father-in-laws sight after his stroke, even though he was told it couldn't be done. I'm not trying to criticize non-academic eye doctors - most of them do a great job with typical problems such as glasses, lasik, cataract removal, etc. But these unusual types of problems are best handled by people in highly specialized clinics. Even when my father in law went to the Moran Eye Center, the first doctor told him that he didn't think it could be done, and he was referred from specialist to specialise until the third or fourth guy ended up being an expert on the type of damage he had suffered.

In other words, ask your eye doctor if he knows of an expert on your condition. If not, try to look for one on the internet and get e referral to him. I would think that second opinions on a probllem like this should be covered by insurance. And I think that you should be tenacious about getting another opinion, as some of these types problems need to be fixed early on.