Boss called. Says not yet.
Ah well.
AuroraBorealisGazer wrote:
^
It's unfortunate that you may not be able to get a proper diagnosis. If the overlapping conditions you mentioned include Ehlers-Danlos and mast cell disease, there are some things you can do on your own to help. Only two of my meds address 2 out of the 3 major diseases (POTS and mast cell) and in some ways being aware of the mechanisms has been just (maybe more) as helpful.
Ignore this if it isn't helpful but here are some things that can be done without medical intervention:
POTS:
- Compression stockings (waist high is best)
Increasing salt intake (provided you don't have high blood pressure)
- Getting plenty of potassium rich foods
- Elevating yourself in bed
- Rising slowly from bed
- Engaging your muscles (small movements like clenching your feet and hands muscles will do if muscle weakness makes other movements difficult)
Ehlers-Danlos:
- Physical therapy techniques geared towards EDS to build joint strength (the Muldowney protocol is specifically for EDS. There's a book you can buy that will show you the exercises).
- Recognition of hypertension and gradually correcting
Mast Cell:
- For some people, avoiding high histamine foods helps (didn't work for me but does for others)
- Avoiding quick changes in temperature or exposure to extreme temperatures
- Learning your triggers (fairly broad and they can change, but it's really helpful to know what causes a flare)
Interesting ideas.
Never heard of compression stockings before.
But there's gotta be a reason why I walk and twirl a lot and something still felt missing from all that moving.
Been elevating myself in bed for different reasons; I got chronic rhinitis, and been doing it for breathing issues.
Got no issues with joint strength, but mine sure pops a LOT. I've been known for it even.
My blood pressure's norm is a bit below the usual norm. It always been.
It's unknown if I'm also anemic, but I do have more signs and symptoms of it whenever the time of the month comes.
Histamine related issues may or may not related to my chronic rhinitis.
My triggers may even be more idiopathic than allergic. Or actually both.
Sometimes I can't exactly avoid the sudden changes in temperatures.
Yet I haven't noticed any issues about it. Maybe I've yet to notice or realize any subtle effects, maybe not.