The Autistic Generation Gap
@Eloa...
Love da Bees!! ! That was so freakin' cool!!
I just liked Sheldon because I could find things in the writing for the character that spoke to me. That's changing now as they try to make him too much the focus or trying to take away that annoyance he inspires in others.
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Diagnosed April 14, 2016
ASD Level 1 without intellectual impairments.
RAADS-R -- 213.3
FQ -- 18.7
EQ -- 13
Aspie Quiz -- 186 out of 200
AQ: 42
AQ-10: 8.8
(Sherlock from Sherlock seems like a weird example for autism. He is totally non-disabled in every way except his social interaction and nicotine addition, and his social interaction problems seem so different from what most autistic people seem to deal with. There were a couple examples where he was confused, but for the most part, it seemed like his social skills and communication skills were great and he was just apathetic about other people's feelings.)
Autism is a brain abnormality. It doesn't go away as far as I know. It's not like recovering from an illness. It's an actual biological difference in the way the brain developed. If I were to find a way to be happy, and to learn to socialize, get a full-time job, and have a real life, how would that change my brain?
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It makes absolutely no sense to me. There's no cure for autism.
A deaf person can use sign language, read lips, and learn to speak. They can use numerous devices to make their lives easier. They can hold full-time jobs, and have families and children. But they are still deaf. Perhaps they don't feel that it disables them. So maybe they wouldn't be "disabled" but would still be deaf.
You might've been thinking of where I said this?
"Well, I do think that there should be a non-diagnostic autism-like personality-related identity label, as ZombieBride made a topic about. The point where I disagreed was that I don't think such a label should apply to high-functioning ASD people INSTEAD OF a diagnosis. It would be for diagnosed people in addition to their diagnosis, hypothetically for ASD people who are cured (if such a thing ever happened), and for non-disordered people. It would also be an non-ideal "next best thing" for disordered people who aren't quite impaired enough for a diagnosis of ASD. Compare introversion or Highly Sensitive Person."
I don't think it's a common opinion, so if you disagree, don't worry, I'm just a single loon.
Might as well talk about it now though. I think someone with ASD or other autism-related disorders who is actually cured of said would become BAP, as opposed to becoming a non-BAP NT.
Let me specify what I mean by "actually cured"... (This is all completely hypothetical, because a cure does not currently exist. However, I don't believe there's any magical property of autism that makes it inherently uncurable. Yes, it's a biological difference, but most curable things are biological differences.)
A cure is not an adaptation or coping technique. To continue with the analogy on deafness, a cure would be a deaf person becoming capable of hearing normally--not reading lips, not using a crappy hearing aid that doesn't even let you distinguish certain sounds, but actually just hearing.
Lots of charities/researchers/etc who talk about wanting a cure for autism are not aiming for what I'd consider an actual cure. By analogy, it's like they say they want to cure deafness, but they actually just want a deaf child to convincingly act like he can hear. He needs to be able to understand speech (by lip reading or any other method), talk normally, not make weird vocal sounds, and never use sign language. Whether or not he can hear is irrelevant. Or sometimes, they are looking for ways to do prenatal genetic testing so they could abort deaf fetuses.
An actual cure would get rid of your actual problems. Having normal sensitivity instead of hypersensitivity. Being able to focus on things normally as opposed to either lack of focus or over-focusing. Being able to plan and organize about as well as most people can. Once you have a topic to talk about, being able to speak isn't hard. Cooking, cleaning, and self-care stop might still be a bit of a hassle, but no more than they are to typical people. You can "switch gears" okay. You have adequate "spoons." Working memory actually works.
With both deafness and autism-related disorders, a cure would still naturally leave a person in a different situation than if they never had the condition. There's the whole Deaf culture thing. I've heard in Deaf culture, people are often more direct and open (what would be considered indiscreet and rude to most hearing people), which I think is a side effect of having ASL as a first language. Likewise, autistic people often have bad social anxiety from all the bad social experiences they've had in the past. Even if the underlying brain problem that makes communication so hard were to be fixed, it'd probably take a long time to recover from that anxiety.
The analogy is less applicable here: There are a lot of positive or neutral personality traits associated with autism. Introversion. Being logical. Fondness for consistancy. Disinclined to social chit-chat. Disinclined to eye contact. Unusual imagination. Like to collect and organize things and information. A lot of autistic people don't have all those traits, but I THINK they are more common in autistic people. Some of these are established BAP traits. You can have these traits without having autism; I actually know a lot of "normal" people who have a couple. If you have a lot of these traits but you live in an area where the traits are rare, you're probably going to feel a little abnormal and people may even be mean to you. (I've heard of NT introverts having a hard time because they're surrounded by people who just freakin' hate introverts for some reason, but where I live, introversion is common and advantageous.) I don't think that getting rid of hypersensitivity, executive dysfunction, and communication impairments would erase these traits. In other words, if you have ASD but get cured, your score on the aspiequiz probably wouldn't change much.
(All this could also apply to some types of treatment.)
I don't think that a cure is possible without vastly superior technology. An inborn physical difference would be extremely difficult to cure.
Like Down syndrome. There's actually a condition called mosaic Down syndrome, in which only a portion of cells have the trisomy 21 mutation. Over time, the person with mosaic Down syndrome will have the non-mutated cells take over, thus reducing the symptoms. Theoretically, if the mutation were removed from all the cells, the person would no longer have the condition. But would the person still be the same person with the same personality? Down syndrome is associated with certain personality traits (from what I've read), and with the condition removed, the person may be entirely different, not just without the deficits.
With autism, the "wiring" of the brain would have to be fixed in some way. Most types of autism are not caused by single genes, so altering a gene wouldn't be practical. Plus, it probably wouldn't necessarily help someone who has already developed too far for the gene change to be effective.
There are supposedly many types of autism, with similar symptoms, but perhaps dissimilar brains. The only thing I can think of as a practical cure is using the plasticity of the brain to make changes through mental exercises over long periods of time. Even then, it would probably not be a full cure. This idea is actually being researched at the moment with high-functioning ASD adults as the subjects.
However your point of the brains plasticity makes sense. It does make a difference. Look at how well some of the people here can communicate. Moving from say a level 2 to level 1. I think that I can be trained to do certain things better. But I don't think the problems will go away. Just get better at dealing with them and recognizing things before they become an issue.
_________________
Diagnosed April 14, 2016
ASD Level 1 without intellectual impairments.
RAADS-R -- 213.3
FQ -- 18.7
EQ -- 13
Aspie Quiz -- 186 out of 200
AQ: 42
AQ-10: 8.8
btbnnyr
Veteran
Joined: 18 May 2011
Gender: Female
Posts: 7,359
Location: Lost Angleles Carmen Santiago
I think that the more I do something, the better I become at it, not because my brain becomes more like NT training to do things in some way that most people use, but I chance upon my own way of doing things, so it's like adapting things to me, instead of me adapting to things, but of course it is still me adapting by finding these ways in the first place, but it wouldn't work well if I had to train in someone else's ways instead of my own ways that I found myself, and the only way to find these ways is to try to do some challenging things with the expectation and pressure that I will succeed in doing them in some way, doesn't matter which way. Basically, high challenge in a supportive environment is what I have now, so this is really perfect for me.
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Drain and plane and grain and blain your brain, and then again,
Propane and butane out of the gas main, your blain shall sustain!
The above is true if you go by the technical defintion which is "want to be". But the term has always had a negative connotation since it was first applied to teenage girls and young women who dressed exactly like singer Madonna in the mid 1980's. People who are described as wannabes are thought to be shallow, a follower of fads and trends. Autistic people who want to be neurotypical tend to do it out of a desperation to unburden themselves of thier Autism "curse" in order to be "normal". Quite different then an NT who wants to be cool like Sheldon.
Thanks!
I understand now, it's about the connotation of the term.
I did not know where that term came from, and I had no awareness of Madonna in the 1980's (or 1990's).
After I had awareness but no interest in having awareness.
Interesting fact though.
_________________
English is not my native language, so I will very likely do mistakes in writing or understanding. My edits are due to corrections of mistakes, which I sometimes recognize just after submitting a text.
Love da Bees!! ! That was so freakin' cool!!
I had an allergy for bees when I was little, got stung on several occasions, each time had to go to hospital because of respiratory distress,
so I remained always scared of bees, but last year I got stung again, but after an initial short, heavy pain everything remained normal, and I am glad I do not have to fear bees anymore!
And if I would write in pictures the way my mind thinks in pictures I would have more fun to write I guess.
_________________
English is not my native language, so I will very likely do mistakes in writing or understanding. My edits are due to corrections of mistakes, which I sometimes recognize just after submitting a text.
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 68
Gender: Male
Posts: 39,637
Location: Long Island, New York
The above is true if you go by the technical defintion which is "want to be". But the term has always had a negative connotation since it was first applied to teenage girls and young women who dressed exactly like singer Madonna in the mid 1980's. People who are described as wannabes are thought to be shallow, a follower of fads and trends. Autistic people who want to be neurotypical tend to do it out of a desperation to unburden themselves of thier Autism "curse" in order to be "normal". Quite different then an NT who wants to be cool like Sheldon.
Thanks!
I understand now, it's about the connotation of the term.
I did not know where that term came from, and I had no awareness of Madonna in the 1980's (or 1990's).
After I had awareness but no interest in having awareness.
Interesting fact though.
You are welcome. I do remember the term coming into to use to describe some Madonna fans in the mid 1980's
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“Self Acceptance is a process not a performance”
“You are autistic enough. And you always have been”
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
That is the kind of sensationalism and anecdotal evidence stuff I was talking about in sources like social media.
That is the kind of sensationalism and anecdotal evidence stuff I was talking about in sources like social media.
Becoming aware of how bad it can be.
_________________
Diagnosed April 14, 2016
ASD Level 1 without intellectual impairments.
RAADS-R -- 213.3
FQ -- 18.7
EQ -- 13
Aspie Quiz -- 186 out of 200
AQ: 42
AQ-10: 8.8
