Mental Health System Nightmare.
AardvarkGoodSwimmer
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AardvarkGoodSwimmer
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AardvarkGoodSwimmer
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http://www.amazon.com/Boy-Alone-ebook/d ... =8-1-fkmr0
in the book Boy Alone, Karl's excellent book about his brother Noah. Karl relates how his mother said that lots of people wanted to cure Noah, but no one really wanted to care for Noah. And people seemed to want the ego trip of making a big dramatic cure
AardvarkGoodSwimmer
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Thank you very much.
And yes, I have noticed this in a variety of settings. Recently, in a walk, I saw that a fence around a retention pond was unsafe (had a ditch uneroded under it that a child could easily crawl under), and so I asked a fellow politico, Would you like to possibly help with a project? I mean, how much more clear can I be, Would you like to help . . . ? And how much more clear can you get with the situation.
And he ends up telling me who I need to call (!) (!) (!)
Oh, I think it's like school. People viscerally know what it's like to be labeled and excluded, and don't want to even come close to taking the chance
(and not to say there weren't arguments on the side, given the circumstances, the war was the least lousy choice. but most people seemed to find it tedious and frustrating to have this kind of conversation)
I guess its different for me. Never was included so I have nothing to loose. lol
I never followed wars before until this one and is this close to what is going on? I saw in this war that we became what we said they were bad for being. We became oppressors. Not us specifically but the war itself. I am not judging the troops. I still have no clue why they are even still there. So definitely not a war expert. Just dont like that we have crossed some lines I did not think US would have done.
I dont know . You hear one group discussing it and they make the people we fight against sound horrible then you hear another group discussing it and they make us sound the same. Sort of out of my league here but one thing you say I get -- no one likes to even think about it. Do I want the troops back home.. Yes. I have made/edited several videos for people who's loved ones have died over there. Really sad stuff.
Thank you very much.
And yes, I have noticed this in a variety of settings. Recently, in a walk, I saw that a fence around a retention pond was unsafe (had a ditch uneroded under it that a child could easily crawl under), and so I asked a fellow politico, Would you like to possibly help with a project? I mean, how much more clear can I be, Would you like to help . . . ? And how much more clear can you get with the situation.
And he ends up telling me who I need to call (!) (!) (!)
I have had that kind of response for years now. Driving me nuts too.
Thanks so much for sharing. I needed that today was sick of dealing with this on my own.
Bookmarked the book you shared. To look into.
cyberscan
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The original poster and I sound like we are in the same position. We are somewhere between high and low functioning, been correctly diagnosed, and are ignored for most of the rest of the part. I don't go to "mental health professionals" simply because it has not been a good experience. Most know very little about autism and worse yet, are not willing to listen to what we have to say. I think that when they hear of someone out of the "norm," they become a "patient" whose "insight" depends upon how much they agree with the "professional" line of thought. Fortunately, there are a few who are willing to learn from us. When I run into the ones that are, I am happy to talk to them and help them in any way I can. In fact, I was requested by a mental health professional to give a talk to her support group, and I am going to.
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AardvarkGoodSwimmer
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And we're not bad people, not by a long stretch. We're just very regular people. This is simply a frequent dynamic of war. Whatever principles we start off fighting for, as many people have said, can easily end up being lost in a sea of blood. (yes, once we know the pattern, we can choose differently, but it's not easy, and frankly, like so many other worthwhile things in life, may require a degree of luck to one extent or another)
AardvarkGoodSwimmer
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And good for you. These videos sound like they might be a combination of art and journalism and memoir for the family. Most of all, important to the family. You have shown kindness to people in need.
AardvarkGoodSwimmer
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Something that has taken me a long time to understand, and something I do not reconcile myself to, in fact refuse to reconcile myself to, is that most 'normal' people just go through the motions on jobs. Most workplaces are deadened, numbed out. It takes an exceptional boss to give people permission to play their best game.
And yes, it can drive me crazy. They have a chance to do some real human good, and it's not that they consciously are choosing not to follow up on this. It's not even registering at all.
(And I feel this is a major difference between 'Normal' and Aspie, and one where we can clearly see that most sides have strengths. And so a 'normal' person can do a number of bureaucratic tasks because none of it really registers and they're just skimming across. That's a strength. In certain situations, that's a strength. We as Aspies feel the significance of things and do things mindfully. That's a strength. In a wide range of situations, that's a strength (but not a majority of situations, certainly not in a world which seems to favor bureaucracy, institutions, predictability) And so, Wow. But there are openings. There are possibilities, and I'm going to share one next, which may or may not work, but is bracing even to think about)
AardvarkGoodSwimmer
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a group of case workers, those with more sever autism, and those with medium autism who are leaders, either formally or informally, within the group (I often do better as an informal leader). And so the group is about 50-50 between non-autistic leaders and autistic leaders, and yes, about half the formal leaders have autism
AardvarkGoodSwimmer
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AardvarkGoodSwimmer
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AardvarkGoodSwimmer
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And if they say they can't, won't whatever, that's fine. We graciously let it go. They have done what we have asked them to do. They have considered doing it. If only in imagination, they have walked a mile in someone else's shoes
You see, walking into a restaurant where some of the people in the group are autistic and some aren't, a little on edge, sure, socially, of course it is, the employees of the restaurant and the other customers, not sure how they're going to judge you.
So, maybe just shaking/fanning your fingers by your ear for eight seconds. Don't overdo it. One thing I learned playing poker, let it stay subtle. So, one occasion of stimming. So now, you Mr. or Ms. 'Normal' Person might be judged as a person with autism. And see how the server treats you and how unnecessary it is, or even the prospect of being treated in this fashion. And how it puts you on guard, and how it's this wall of nonacceptance, all of it.
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And you know, the funny thing, a normal person might agree to do this! In large part because it doesn't involve reports and scheduling and memorandum and all that officialdom, which 'normal' people can apparently handle, but are very chary of taking on more. So, ask with a light touch, just never know.
Something that has taken me a long time to understand, and something I do not reconcile myself to, in fact refuse to reconcile myself to, is that most 'normal' people just go through the motions on jobs. Most workplaces are deadened, numbed out. It takes an exceptional boss to give people permission to play their best game.
And yes, it can drive me crazy. They have a chance to do some real human good, and it's not that they consciously are choosing not to follow up on this. It's not even registering at all.
(And I feel this is a major difference between 'Normal' and Aspie, and one where we can clearly see that most sides have strengths. And so a 'normal' person can do a number of bureaucratic tasks because none of it really registers and they're just skimming across. That's a strength. In certain situations, that's a strength. We as Aspies feel the significance of things and do things mindfully. That's a strength. In a wide range of situations, that's a strength (but not a majority of situations, certainly not in a world which seems to favor bureaucracy, institutions, predictability) And so, Wow. But there are openings. There are possibilities, and I'm going to share one next, which may or may not work, but is bracing even to think about)
This behavior of "neuro's" does not even compute in my brain. It is devoid of any real individual thought of mind. I can't even compute being that way. How can complete ignorance of peoples needs not register? Sounds like brain damage. Not kidding, I mean something has to be going wrong if people cant see even the basics. I am not sure of your age but I am 45 and people where not this stupid when I was young. Sorry if I offend anyone on how i word things but on autism boards I dont waste my time using the flowery words which just disguise what I am saying anyways behind fake nice terms.
Want to add that it is so kewl to hear you have a support group. Non exist by me at all.
I agree with you cyberscan. I have met some good professionals who have shared with me that what "I think I see in the system" is real. They see it too. My therapist told me that it is all about money and nothing about helping me as a client. He cant do anything about it. He would just get fired.
He told me once this: That a team is supposed to get together to discuss a clients treatment plan... But what they really do is just pass it from office to office and sign it and no one even reads it... Here is the illegal part: Instead of getting paid for one treatment plan discussed in one meeting for the one client. Each time it goes from office to office --- they charge for each signature... = One treatment plan gets signed by like 5 people and tax payers pay for 5 treatment plans. Now imagine that they do that for ALL the clients. Hope I said that clear to understand.
I have been seeing, hearing so much crap like this for years and instead of leaving it makes me want to see the system get in trouble for doing this to people. Its all about drugging and money. I mean they want to try to get me to say I am hearing voices when I am not - just to drug me. Even my family has said that I do not have those issues. I mean I dont think my family would not say I was behaving in certain ways if I was. Even if I did not know it. Something like that. And well duh - I guess If I was hearing voices I would sort of want help to stop it...
But I am not - It ASD and they are completely ignoring it.
Sorry about spelling errors.
