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marshall
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22 Jul 2010, 5:33 pm

Nice! I hope it'll also be beneficial for you.



DenvrDave
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22 Jul 2010, 5:36 pm

Congratulations Horus! I think it takes a tremendous amount of courage to volunteer for something like this and I admire your bravery.

I'd like to use this as an opportunity to point out an observation, and that is that most if not all of the people I've met on the spectrum are incredibly brave. I mean this as a compliment, because bravery is a quality I value and admire greatly.



wonders
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22 Jul 2010, 5:41 pm

Horus wrote:
Janissy wrote:
Oh Horus that's wonderful!

I've read all your posts about your quest to understand your brain and this seems like it will shed some light. :D




I hope it will...but I don't want to be overly-optimistic about that either. As much as i've been wanting to undergo some neuroimaging, I must admit i'm a bit apprehensive about it. I've never had an MRI and since i'm very claustrophobic, i'm hoping this is an Open MRI rather than a whole body scanning tunnel. I should've asked them, but with all the other questions I always have for them... I forgot. I'll ask them next time I talk to them and I will need to sometime before my actual participation.


I will undergo the MRI either way though....it will just very scary if it's a tunnel scan and I hope I don't have a panic attack :huh:


happy happy for you ! They can medicate you for the MRI if you are able to do downers .



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22 Jul 2010, 5:41 pm

Horus,

I hope they help you find what you are looking for. :D 8)


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Horus
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22 Jul 2010, 6:57 pm

Thank you all for your kind wishes ! !! :)


I will keep you all updated.



Horus
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22 Jul 2010, 7:03 pm

DenvrDave wrote:
Congratulations Horus! I think it takes a tremendous amount of courage to volunteer for something like this and I admire your bravery.

I'd like to use this as an opportunity to point out an observation, and that is that most if not all of the people I've met on the spectrum are incredibly brave. I mean this as a compliment, because bravery is a quality I value and admire greatly.




I really don't know why it takes alot courage....I don't feel brave for doing this in the least.


In fact....like I told Janissy, i'm slightly worried about the MRI.


If it's not i'm open MRI....i'm not exactly looking forward sliding into a scanning tunnel. That seems like nothing so much as a coffin to me. 8O I'll still do it even if it isn't an open MRI....it just won't be the most pleasant experience in world.


I doubt you'd admire me very much then......i'm the biggest chickens**t in the world.



Horus
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22 Jul 2010, 7:08 pm

wonders wrote:
Horus wrote:
Janissy wrote:
Oh Horus that's wonderful!

I've read all your posts about your quest to understand your brain and this seems like it will shed some light. :D




I hope it will...but I don't want to be overly-optimistic about that either. As much as i've been wanting to undergo some neuroimaging, I must admit i'm a bit apprehensive about it. I've never had an MRI and since i'm very claustrophobic, i'm hoping this is an Open MRI rather than a whole body scanning tunnel. I should've asked them, but with all the other questions I always have for them... I forgot. I'll ask them next time I talk to them and I will need to sometime before my actual participation.


I will undergo the MRI either way though....it will just very scary if it's a tunnel scan and I hope I don't have a panic attack :huh:


happy happy for you ! They can medicate you for the MRI if you are able to do downers .



I can....CNS stimulants of any kind are the only drugs I can't take. The trouble is...this place is far from where i'll be staying and i'll have to drive there. No one can drive me, a cab would be too expensive and there's no way i'm taking the bus.



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22 Jul 2010, 8:30 pm

Horus wrote:
DenvrDave wrote:
Congratulations Horus! I think it takes a tremendous amount of courage to volunteer for something like this and I admire your bravery.

I'd like to use this as an opportunity to point out an observation, and that is that most if not all of the people I've met on the spectrum are incredibly brave. I mean this as a compliment, because bravery is a quality I value and admire greatly.




I really don't know why it takes alot courage....I don't feel brave for doing this in the least.


In fact....like I told Janissy, i'm slightly worried about the MRI.


If it's not i'm open MRI....i'm not exactly looking forward sliding into a scanning tunnel. That seems like nothing so much as a coffin to me. 8O I'll still do it even if it isn't an open MRI....it just won't be the most pleasant experience in world.


I doubt you'd admire me very much then......i'm the biggest chickens**t in the world.


I was worried about freaking out about that when I had to have a MRI several years ago. I closed my eyes so I couldn't see how close everything was around me and I focused on my breathing to try to relax and distract myself. I laid so still the lady finished ahead of time. And I didn't open my eyes again until the lady told me I was out.



Horus
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23 Jul 2010, 5:37 pm

Taupey wrote:
Horus wrote:
DenvrDave wrote:
Congratulations Horus! I think it takes a tremendous amount of courage to volunteer for something like this and I admire your bravery.

I'd like to use this as an opportunity to point out an observation, and that is that most if not all of the people I've met on the spectrum are incredibly brave. I mean this as a compliment, because bravery is a quality I value and admire greatly.




I really don't know why it takes alot courage....I don't feel brave for doing this in the least.


In fact....like I told Janissy, i'm slightly worried about the MRI.


If it's not i'm open MRI....i'm not exactly looking forward sliding into a scanning tunnel. That seems like nothing so much as a coffin to me. 8O I'll still do it even if it isn't an open MRI....it just won't be the most pleasant experience in world.


I doubt you'd admire me very much then......i'm the biggest chickens**t in the world.


I was worried about freaking out about that when I had to have a MRI several years ago. I closed my eyes so I couldn't see how close everything was around me and I focused on my breathing to try to relax and distract myself. I laid so still the lady finished ahead of time. And I didn't open my eyes again until the lady told me I was out.


Provided it's not an open MRI, this is probably what i'll do. My dad lives in Pittsburgh, but he lives very far from Pitt campus (where this study takes place) and I doubt he'd be willing to drop me off and pick me up if I wanted to be drugged during the MRI. Unless he's willing to hang around in the area for several hours, he's not going to drive 30 miles each way. Especially considering he'd likely have to drive through the city during morning and afternoon rush. My grandfather lives significantly closer, but he's too old and frail to be carting me around. I will have a rental car and i'll just drive myself. Drugs will most likely be out of the question in that case, but i'm sure I can handle it.

I've had CT scans before and it wasn't too unpleasant. I just can't have any caffeine before the scans because then i'm likely to have a panic attack.



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23 Jul 2010, 6:28 pm

How did you score on the ADOS?

Also, how did they do it over the phone? I'm curious because they score a lot based on eye contact and facial expression and mannerisms, and there are quite a few activities that involve actions such as using a book, doing things with little toys, and acting out a sequence.



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23 Jul 2010, 7:44 pm

awesome!


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23 Jul 2010, 7:51 pm

Horus wrote:
If it's not i'm open MRI....i'm not exactly looking forward sliding into a scanning tunnel. That seems like nothing so much as a coffin to me. 8O I'll still do it even if it isn't an open MRI....it just won't be the most pleasant experience in world.

I've had an MRI before and it wasn't too bad. Mine was for my lower back so I was in the tunnel up to my hips, but I could still see out both sides of the tube and the room was well lit so it didn't feel too enclosed. If they're only doing an MRI of your brain then I think that only your head will be in the tube, and you will be able to see that it's open just past your chin. They gave me headphones with some soft music playing because the machine makes some banging noises, but the noises weren't overly loud. The whole thing took about 20 minutes.



Horus
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23 Jul 2010, 9:52 pm

SuperTrouper wrote:
How did you score on the ADOS?

Also, how did they do it over the phone? I'm curious because they score a lot based on eye contact and facial expression and mannerisms, and there are quite a few activities that involve actions such as using a book, doing things with little toys, and acting out a sequence.




They didn't tell me much of anything specific about my results on the ADOS. It was done over the phone. All the women who adminstered the test told me is that, based upon my answers, I seem like a good candidate for the study. I'm pretty sure she was a student intern and she told me a reseacher would have to go over my results. I mean I asked her a few questions about the results, but she really couldn't tell me much herself. I don't like to pester people like her with millions of questions they can't answer in any case.

They asked me alot about eye contact and mannerisms....not much about facial expression per se. They administered the ADI-R in person with my mother. She just happened to be in Pittsburgh visiting our family and it was convenient enough for her to go over there and do it. At one point they thought they might want a video of me when I was a kid. They obviously decided they don't need one because they said nothing else about it and just told me I have been accepted on Weds.



Horus
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23 Jul 2010, 10:11 pm

bee33 wrote:
Horus wrote:
If it's not i'm open MRI....i'm not exactly looking forward sliding into a scanning tunnel. That seems like nothing so much as a coffin to me. 8O I'll still do it even if it isn't an open MRI....it just won't be the most pleasant experience in world.

I've had an MRI before and it wasn't too bad. Mine was for my lower back so I was in the tunnel up to my hips, but I could still see out both sides of the tube and the room was well lit so it didn't feel too enclosed. If they're only doing an MRI of your brain then I think that only your head will be in the tube, and you will be able to see that it's open just past your chin. They gave me headphones with some soft music playing because the machine makes some banging noises, but the noises weren't overly loud. The whole thing took about 20 minutes.




I'm not TOO worried about it really. Since this is an fMRI, i'm pretty sure i'll be performing various tasks during the whole thing. Based upon the info about the study, one project involving the fMRI will study how people with autism process emotion. They take pictures of the brain while you're thinking during that particular study. This project also entails an eye-tracking device to better understand how people with autism perceive, understand, experience and express emotions.

Another project involving an fMRI studies brain structure and function in autism. Participants are asked to look at pictures and read short stories while in the MRI machine. Based on this information, I really can't be sure if this will be an open MRI or not. I'll ask them next time I talk to them. It just wasn't on my mind every other time i've talked to them.


No matter what....my eagerness to participate in this study will likely override whatever anxiety I might have about the MRI.



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23 Jul 2010, 10:53 pm

Great work, Horus.Keep us informed over-time.Good luck with it.



Horus
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24 Jul 2010, 12:07 am

jaspie wrote:
Great work, Horus.Keep us informed over-time.Good luck with it.




Thanks :) .....it didn't seem like "work" at all to me though. But I will keep everyone informed after it's all said and done.