People for whom their ASD is clearly a disability...

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Verdandi
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06 Oct 2011, 12:32 am

I don't think anyone should feel obligated to not be miserable. If you're not getting what you want out of life, it's pretty insensitive to say "suck it up" or whatever.

For me, it's more that I view autism as the part of the explanation as well as part of the cause, and not having an explanation for so long, it's a relief to know.



Sibyl
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06 Oct 2011, 12:44 am

Verdandi wrote:
I don't think anyone should feel obligated to not be miserable. If you're not getting what you want out of life, it's pretty insensitive to say "suck it up" or whatever.

For me, it's more that I view autism as the part of the explanation as well as part of the cause, and not having an explanation for so long, it's a relief to know.


What it is you're doing wrong is completely in your blind spot (if it weren't, you'd change it!) I wish that I had read "A Field Guide to Earthlings", by Ian Ford, fifty or sixty years ago. But of course, he wasn't born then. I did have a roommate who was perceptive enough to notice the inappropriate facial expressions (she called it "mugging", and thought that I was trying to be a comedian and get attention away from the person who was talking: I wasn't. I did learn to keep my face simply _still_, in the hope that I might give an impression of mysterious "serenity") and the mechanical walk. I think I've always had empathy and sympathy, but those weren't enough, and I didn't have a clue as to how much body language and facial expression I was missing out on, and neither did she.



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06 Oct 2011, 1:27 am

Most humans are prone to black n white thinking. Those of us with AS are more prone to black n white thinking than the average population.

For me AS is a disability and gift. Perhaps because I am more philosophically minded I am more able to hold the two and live well within that context.

Just because we have one aspect our nature does not mean it cancels out or minimizes the other.

The autistic mind loves to cut out and analyze. If this way of thinking is at the expense of our interconnectedness to all things it can be very disabling indeed.



Callista
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06 Oct 2011, 1:49 am

Disability is not a bad thing or a good thing. It's neutral. It's a normal part of my life.

I guess if you were to become disabled suddenly, it would be a very hard adjustment to make. But for me there was no adjustment. This has always been my life. I don't think it's the disability that frightens people so much; it's the thought of how they would cope if they suddenly had it, because they have built their lives around the fact of not being disabled. But that was never part of my life. Even for people who do become disabled after having not been, things go back to normal after they figure things out, and within a year they tend to judge their lives to be similarly happy as a non-disabled people do.

Living with a disability is neither worse nor better than any other sort of life. I don't think I am any more courageous or tough than anybody else, because everybody has problems. I think it is probably just as hard for an NT to go through a breakup with a boyfriend as it is to be an autistic person going through autistic burnout.

Maybe it's just the unfamiliarity that scares people. They don't know how they would cope, so they assume that they couldn't, and they think you are "inspirational" because you do. In reality, of course, they would figure things out and muddle through it. They can't think that a life so different from theirs could ever be just as good... they have difficulty seeing things from such a different perspective.


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06 Oct 2011, 2:37 am

zen_mistress wrote:
I guess a lot of people are content having AS because they are introverted and like to potter around with their interests etc. I am not really so happy because I am not introverted, and my personality type is completely at odds with my AS personality traits, to the point where I feel both take off in completely different directions.

On one hand there is the party girl who loves clothes and trashy novels and on the other hand there is the bookish nerd who spouts facts and anecdotes. It is hard to be that social party girl when you open your mouth and stuff about insects comes out, baffling the NTs. And it is hard to be the person researching on the computer when you long to be out with friends.

Also I am finding the stress of the last 10 years is culminating in some noticeable problems with my neurological setup right now. And on top of the other problems I have it is hard to handle it all.


Wow, I totally get where you're coming from. I have that divide too.



Todesking
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06 Oct 2011, 2:39 am

I cringe everytime I hear some schmuck call it a gift. I was not born with a photographic memory, I am not good at math, I am not some great artist, and I only have rudimentory computer skills. I have all the bad traits and none of the good ones. People hate me for no reason I don't have to say a word or do anything for them to despise me. My brother asked several people when we were in high school why they hated me and not one of them could come up with a reason. When I was smaller than everyone I was a target of hate but once I got bigger and meaner people did not respect me but they learned to fear me and that was enough to make the persecution to stop.

Just changing my work area around and my routine was enough to trigger a near fatal congestive heart failure for me. The stress and anxiety caused my already high blood pressure to constantly spike throughout the day. Having to endure this for several months nearly killed me. I was in ICU for five days. I fear starting a new job due to the anxiety I will run into having to get use to new people, a new work environment, and waiting for the first shoe to drop when the other emplyees discover I am weird and start to do or say things to drive me out like on everyother job I ever have worked in the 18 years I have worked.


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Jediyoda
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06 Oct 2011, 3:11 am

I'm happy with who I am. I am glad that I know what was wrong with me and that it gave me a piece of mind to know that everythings ok.



Verdandi
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06 Oct 2011, 3:32 am

Sibyl wrote:
Verdandi wrote:
I don't think anyone should feel obligated to not be miserable. If you're not getting what you want out of life, it's pretty insensitive to say "suck it up" or whatever.

For me, it's more that I view autism as the part of the explanation as well as part of the cause, and not having an explanation for so long, it's a relief to know.


What it is you're doing wrong is completely in your blind spot (if it weren't, you'd change it!) I wish that I had read "A Field Guide to Earthlings", by Ian Ford, fifty or sixty years ago. But of course, he wasn't born then. I did have a roommate who was perceptive enough to notice the inappropriate facial expressions (she called it "mugging", and thought that I was trying to be a comedian and get attention away from the person who was talking: I wasn't. I did learn to keep my face simply _still_, in the hope that I might give an impression of mysterious "serenity") and the mechanical walk. I think I've always had empathy and sympathy, but those weren't enough, and I didn't have a clue as to how much body language and facial expression I was missing out on, and neither did she.


Could you explain what you mean there?



Simonono
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06 Oct 2011, 3:45 am

It utterly destroyed me.



Ai_Ling
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06 Oct 2011, 3:56 am

yeah I dislike having aspergers, I do wish I could relive my life as an NT. Its very self-isolating at times, I worry about every new social situation I encounter because people might dislike me. I often find ways to mess it up but things are getting better. Its almost always, I want friends but I have trouble making them.



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06 Oct 2011, 4:11 am

I'd say I'm mostly ok with it except for two things.

1. I need an income but don't know how to get one. When I do move my rent will go up a lot (I'm kind of rent controlled in a way, my landlord doesn't raise rent unless you move out and new people move in) and money will be tighter than ever, plus what will I do when my mother isn't here to support me any more? I seriously have no idea on how to make money and collecting cans won't get you much and there is competition for that in my area. Anything I've tried online failed.

2. It would be nice if I had something to take when I have a panic attack, like half a valium or a whole valium. I got to try those a few times and it really helped.



glider18
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06 Oct 2011, 6:41 am

Todesking wrote:
I cringe everytime I hear some schmuck call it a gift......People hate me for no reason I don't have to say a word or do anything for them to despise me.


I suppose I am one of the ones you are calling a "schmuck"? I have challenges too as I said in my post. And I carefully address the gifts of autism as my autism. It isn' anyone else's autism. Each one of us has a unique personal experience with autism. Yes, I have gifts...and I have challenges. But I am not a schmuck. I am a human being with autism who has come to this website to communicate with others in a respectful environment. Believe me, I have had my share of dealing with disrespectful people throughout the years (in school, in the workplace). But here we have rules to make this a positive experience for all of us. And the rules clearly state not to insult others...and I feel you have insulted me.


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Wayne
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06 Oct 2011, 8:05 am

zen_mistress wrote:
I guess a lot of people are content having AS because they are introverted and like to potter around with their interests etc. I am not really so happy because I am not introverted, and my personality type is completely at odds with my AS personality traits, to the point where I feel both take off in completely different directions.

On one hand there is the party girl who loves clothes and trashy novels and on the other hand there is the bookish nerd who spouts facts and anecdotes. It is hard to be that social party girl when you open your mouth and stuff about insects comes out, baffling the NTs. And it is hard to be the person researching on the computer when you long to be out with friends.


Oh dear God yes! I could totally get sucked into some awesome programming projects if this damned longing for friends and connections didn't keep distracting me! Arrrgh!

At any rate, I would characterize my condition as "a pain in the ass". Seriously, it isn't "tragic" or anything (except when it is, like when I see NTs reveling in their networks and their bonding and I get jealous), but it's a huuuuge pain in the ass.



Joe90
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06 Oct 2011, 12:15 pm

It's disabling for me and I'm very miserable about it.


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Callista
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06 Oct 2011, 2:00 pm

If I met someone who opened their mouth and facts about insects came out, I would likely open my mouth and start asking questions about insects.

I seriously find people like that interesting. They're walking textbooks. Where else can you get a totally free lecture by a specialist? Just find yourself a Spectrum person and get them going.


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06 Oct 2011, 2:49 pm

Find the off button first 8)

I genuinely like myself, and have fun with people. I'm not without problems with other people, but approach it like Bill Hicks.

It is their problem not mine.

I am authentic to myself, others can come next, I do not want to be like you



Last edited by Surfman on 06 Oct 2011, 2:52 pm, edited 1 time in total.