My Son Echolalia Scripting: need some answers and help

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Callista
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20 Jun 2012, 9:19 pm

I do know a lot of kids learn to use echolalia in a functional way--like if they're upset, they might quote a line from a character in a movie when that character is upset.


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MeshugenahMama
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20 Jun 2012, 9:47 pm

Callista wrote:
I do know a lot of kids learn to use echolalia in a functional way--like if they're upset, they might quote a line from a character in a movie when that character is upset.

This is exactly how it works. Maybe your son will be watching a tv show and the mother is upset with the child at the breakfast table and yells "Don't drop the pancake!!" So what happens at school, is that maybe it is lunch time and someone is upsetting your son, and so what does he do? He yells "Don't drop the pancake!!" at the other kid and of course no one gets it. He needs to be given the new script of "stop" or "leave me alone" for that circumstance instead of "Don't drop the pancake!!".



AutismDad
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20 Jun 2012, 10:51 pm

Thanks everyone for responding to my post. I greatly appreciate your comments and insights. I would like to give a bit more detail. My son, Tristan, has very good language ability. He has trouble with grammar and still sometimes talks in phrases more akin to a 5 or 6 year old, but he can easily communicate via language. He is very bright and does have a remarkable memory (he loves memory games and puzzle games).
He is in several therapies for language, social and motor skills. We are all for therapy or anything that will help him or support him. I do understand that his echolalia and stimming behavior are a large degree comforting mechanisms for him. The problem is that exposure to media (videos, games, or online games) specifically seems to increase the scripting.

I appreciate the comments of those like naturalplastic who say that if he is going to script, give him something like Shakespeare or a foreign language to script. I have tried this. Believe me I have tried (with Shakespeare, Carl Sagan, documentaries, poetry…you name it). But, the problem is that Tristan is fixated on mostly one thing – Thomas the Train. He does not show much interest in anything else. I realize that concentrating like a laser on one thing is typical of spectrum behavior. Though it can be used to facilitate especially high expertise in an area, in Tristan’s case (at least currently), his total fixation on Thomas the Train at 12 years old is not helping him intellectually or certainly socially. When he is with boys his age who are talking about Spiderman and the Avengers, for Tristan to begin spouting Percy and other T the Train characters in perfect narrative style does not get him interactive conversations. On top of that Tristan’s ability to have a give and take conversation is practically nil anyway. He lacks any ability to interact socially. Nor does he understand how to have a conversation. After all he is autistic.. and that is after all what autism is all about.

And I have often tried the tactic of joining with him when he scripts, trying to make an interactive game of it as someone here suggested. Tristan either runs away or gives me a grin and says, “you can go away now dad, I don’t want you to talk with me anymore.” One telling thing is that he seems to see his scripting is a very private thing. He does not want anyone to watch him or try to talk with him when he is doing it, which is most of the time.

On car trips he drives his little 9 year old sister batty by going word for word through every Thomas the Train episode he has seen and heard (which is all of them). A common thing from the back seat is his sister saying, “Dad, will you please tell Tristan to quit talking about Thomas the Train. He is making me crazy.”

We constantly tell Tristan to “talk to yourself in your own head.” Usually, if this works at all it is only for a few minutes before it starts bubbling out of him with increasing volume. We usually don’t force him to stop, but after hours of this it gets nerve wracking. When he is home he combines this scripting with walking in circles around a tree in our back yard.

What we are concerned about is that this scripting (and pacing) interferes with and completely stops any attempt at social interaction or regular communication..or learning. Tristan really is zoned out and oblivious to any outside influence when he is scripting. He is home schooled so his mother tries all day long to break into his mind and practically interact with him. We had to take him out of public school after his second stab at third grade when things started getting too abstract for him to deal with. It is a constant uphill battle and it is wearing all of us out.

It sure is a great deal easier to just let him veg out in front of a screen (tv or computer) for hours at a time. And he would sure just love to do that. But, the more such screen time he gets the greater his stimming and scripting. Also, he also goes into rages anytime he tries to get on the computer or play a video and we stop him. Even when we set a timer (and he agrees ahead of time to stop when time is up), it’s like he is on a drug and he does not stop and can not stop. It usually turns ugly. In fact, it if he can’t get it, he freaks out and tantrums (as he gets older the tantrums get more intense of course). Add to this the fact that the hormones of the teen age years are starting to kick in, and our lives are getting very interesting.

Our A. Spectrum doc has advised us to get rid of all media if it causes him such zoning. “If you don’t want the wolf around,“ she says, “then don’t feed it.” This is very difficult in today’s world. I find it hard to do myself. I am still not completely convinced that denying him all media is the fully correct thing to do. Of course, admittedly I am a bit “addicted” to media myself, so denying Tristan media is also denying it to me (at home anyway). But, I am willing to do this if it helps Tristan. My wife is truly convinced that all media is greatly exacerbating the problem, if not the root cause, and it is causing Tristan’s inability to focus and learn.

I know there is no clear answer. But, I appreciate any insights and ideas that the folks on this forum have. Thanks.



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20 Jun 2012, 11:16 pm

AutismDad wrote:

Our A. Spectrum doc has advised us to get rid of all media if it causes him such zoning. “If you don’t want the wolf around,“ she says, “then don’t feed it.” This is very difficult in today’s world. I find it hard to do myself. I am still not completely convinced that denying him all media is the fully correct thing to do. Of course, admittedly I am a bit “addicted” to media myself, so denying Tristan media is also denying it to me (at home anyway). But, I am willing to do this if it helps Tristan. My wife is truly convinced that all media is greatly exacerbating the problem, if not the root cause, and it is causing Tristan’s inability to focus and learn.

I know there is no clear answer. But, I appreciate any insights and ideas that the folks on this forum have. Thanks.


The pacing is very common in ASDs, I know, I've been doing it for 30+ years. I can relate to the state he's in, it's like what athletes call being in the zone, the difference is we can slip into this state of mind very easily while professional athletes require years of training to do it. I don't know if you'll ever be able to stop it because I believe the zoning is part of how our brains are structured. If you take everything away from us we will still do it. For me it was with numbers, things I read, things I created in my head; things nobody could take that away from me. It only occurred to me after you pointed it out how frustrating this must be for you and your wife. With all sincerity, I wish you and your family luck and peace of mind.



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20 Jun 2012, 11:59 pm

double post-please remove or ignore



Last edited by MeshugenahMama on 21 Jun 2012, 12:06 am, edited 1 time in total.

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21 Jun 2012, 12:03 am

AutismDad wrote:
But, the problem is that Tristan is fixated on mostly one thing – Thomas the Train. He does not show much interest in anything else. I realize that concentrating like a laser on one thing is typical of spectrum behavior. Though it can be used to facilitate especially high expertise in an area, in Tristan’s case (at least currently), his total fixation on Thomas the Train at 12 years old is not helping him intellectually or certainly socially. When he is with boys his age who are talking about Spiderman and the Avengers, for Tristan to begin spouting Percy and other T the Train characters in perfect narrative style does not get him interactive conversations. On top of that Tristan’s ability to have a give and take conversation is practically nil anyway. He lacks any ability to interact socially. Nor does he understand how to have a conversation. After all he is autistic.. and that is after all what autism is all about.
Do you know if your son has a desire to be social? This can vary greatly. There's people that have no desire for social contact and people that have the desire but the autism generally messes things up. If he has no desire-there's not a lot you can do. If he has the desire but lacks the skills-that's another story. My son always wanted friends-but never had until recently. He has a group of 3 or 4 boys that he gets together. All they ever do is play video games, but he greatly values their friendship. I don't think the other boys are autistic, but I know they have their issues.
On car trips he drives his little 9 year old sister batty by going word for word through every Thomas the Train episode he has seen and heard (which is all of them). A common thing from the back seat is his sister saying, “Dad, will you please tell Tristan to quit talking about Thomas the Train. He is making me crazy.” What if you tried getting him a walkman that was for the car, and he could pick what he wanted to listen to. You could make it a special "car thing". Another option would be a video game, but I understand you're trying to cut back on that.What we are concerned about is that this scripting (and pacing) interferes with and completely stops any attempt at social interaction or regular communication..or learning. Tristan really is zoned out and oblivious to any outside influence when he is scripting. He is home schooled so his mother tries all day long to break into his mind and practically interact with him. We had to take him out of public school after his second stab at third grade when things started getting too abstract for him to deal with. It is a constant uphill battle and it is wearing all of us out. I would really really strongly suggest that you enroll him in school, at least on a trial basis. There is special education, and programs can be modified so he can move through the grades. This will take him away from his special interests and limit his zoning for 7 or 8 hours a day. It will put him around other children, not to mention other teachers. You can't do this on your own. Unless there was a much bigger reason for pulling him out, I would strongly suggest putting him back in. It is not unusual for parents of kids with special needs to move in order to find a better school if they have to. I just contacted a realtor today myself, because the neighboring district has the best spec. ed. in the state, and we are going to try & sell our house and move a mile away, so he can go to high school there.
You seem to be an extremely dedicated father, but sometimes a home is too safe and comfortable to be able to break down walls there. School can be really difficult for a child and many including myself have horrible memories of it, but if what you are doing is not working, maybe its time to try something new.



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21 Jun 2012, 12:16 am

Rascal77s wrote:

The pacing is very common in ASDs, I know, I've been doing it for 30+ years. I can relate to the state he's in, it's like what athletes call being in the zone, the difference is we can slip into this state of mind very easily while professional athletes require years of training to do it. I don't know if you'll ever be able to stop it because I believe the zoning is part of how our brains are structured. If you take everything away from us we will still do it. For me it was with numbers, things I read, things I created in my head; things nobody could take that away from me. It only occurred to me after you pointed it out how frustrating this must be for you and your wife. With all sincerity, I wish you and your family luck and peace of mind.


Totally agreed. After 15 years the zoning and pacing still drives my husband crazy. I do them both often.



beneficii
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21 Jun 2012, 12:51 am

AutismDad wrote:
Thanks everyone for responding to my post. I greatly appreciate your comments and insights. I would like to give a bit more detail. My son, Tristan, has very good language ability. He has trouble with grammar and still sometimes talks in phrases more akin to a 5 or 6 year old, but he can easily communicate via language. He is very bright and does have a remarkable memory (he loves memory games and puzzle games).
He is in several therapies for language, social and motor skills. We are all for therapy or anything that will help him or support him. I do understand that his echolalia and stimming behavior are a large degree comforting mechanisms for him. The problem is that exposure to media (videos, games, or online games) specifically seems to increase the scripting.

I appreciate the comments of those like naturalplastic who say that if he is going to script, give him something like Shakespeare or a foreign language to script. I have tried this. Believe me I have tried (with Shakespeare, Carl Sagan, documentaries, poetry…you name it). But, the problem is that Tristan is fixated on mostly one thing – Thomas the Train. He does not show much interest in anything else. I realize that concentrating like a laser on one thing is typical of spectrum behavior. Though it can be used to facilitate especially high expertise in an area, in Tristan’s case (at least currently), his total fixation on Thomas the Train at 12 years old is not helping him intellectually or certainly socially. When he is with boys his age who are talking about Spiderman and the Avengers, for Tristan to begin spouting Percy and other T the Train characters in perfect narrative style does not get him interactive conversations. On top of that Tristan’s ability to have a give and take conversation is practically nil anyway. He lacks any ability to interact socially. Nor does he understand how to have a conversation. After all he is autistic.. and that is after all what autism is all about.

And I have often tried the tactic of joining with him when he scripts, trying to make an interactive game of it as someone here suggested. Tristan either runs away or gives me a grin and says, “you can go away now dad, I don’t want you to talk with me anymore.” One telling thing is that he seems to see his scripting is a very private thing. He does not want anyone to watch him or try to talk with him when he is doing it, which is most of the time.

On car trips he drives his little 9 year old sister batty by going word for word through every Thomas the Train episode he has seen and heard (which is all of them). A common thing from the back seat is his sister saying, “Dad, will you please tell Tristan to quit talking about Thomas the Train. He is making me crazy.”

We constantly tell Tristan to “talk to yourself in your own head.” Usually, if this works at all it is only for a few minutes before it starts bubbling out of him with increasing volume. We usually don’t force him to stop, but after hours of this it gets nerve wracking. When he is home he combines this scripting with walking in circles around a tree in our back yard.

What we are concerned about is that this scripting (and pacing) interferes with and completely stops any attempt at social interaction or regular communication..or learning. Tristan really is zoned out and oblivious to any outside influence when he is scripting. He is home schooled so his mother tries all day long to break into his mind and practically interact with him. We had to take him out of public school after his second stab at third grade when things started getting too abstract for him to deal with. It is a constant uphill battle and it is wearing all of us out.

It sure is a great deal easier to just let him veg out in front of a screen (tv or computer) for hours at a time. And he would sure just love to do that. But, the more such screen time he gets the greater his stimming and scripting. Also, he also goes into rages anytime he tries to get on the computer or play a video and we stop him. Even when we set a timer (and he agrees ahead of time to stop when time is up), it’s like he is on a drug and he does not stop and can not stop. It usually turns ugly. In fact, it if he can’t get it, he freaks out and tantrums (as he gets older the tantrums get more intense of course). Add to this the fact that the hormones of the teen age years are starting to kick in, and our lives are getting very interesting.

Our A. Spectrum doc has advised us to get rid of all media if it causes him such zoning. “If you don’t want the wolf around,“ she says, “then don’t feed it.” This is very difficult in today’s world. I find it hard to do myself. I am still not completely convinced that denying him all media is the fully correct thing to do. Of course, admittedly I am a bit “addicted” to media myself, so denying Tristan media is also denying it to me (at home anyway). But, I am willing to do this if it helps Tristan. My wife is truly convinced that all media is greatly exacerbating the problem, if not the root cause, and it is causing Tristan’s inability to focus and learn.

I know there is no clear answer. But, I appreciate any insights and ideas that the folks on this forum have. Thanks.


Get the Mandarin/Cantonese version of Thomas the Train. Here's the Japanese version:

http://www.amazon.co.jp/%E3%83%88%E3%83 ... 836&sr=8-1



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21 Jun 2012, 1:06 am

AutismDad wrote:
Our A. Spectrum doc has advised us to get rid of all media if it causes him such zoning. “If you don’t want the wolf around,“ she says, “then don’t feed it.” This is very difficult in today’s world. I find it hard to do myself. I am still not completely convinced that denying him all media is the fully correct thing to do. Of course, admittedly I am a bit “addicted” to media myself, so denying Tristan media is also denying it to me (at home anyway). But, I am willing to do this if it helps Tristan. My wife is truly convinced that all media is greatly exacerbating the problem, if not the root cause, and it is causing Tristan’s inability to focus and learn.


We have seen two psychologists and they both recommend taking away stimuli such as computers, i-pads and TV and turning our daughter's attention to wither physical activity or social interaction. One thing I will say is psychologists typically have a "one size fits all" approach to dealing with issues of fixation. For our daughter forcing her to go and do an activity when she is not ready or is in the middle of a "fix" is in my view counterproductive as she will simply either not comply or (if forced) refuse to be enthusiastic about the alternative activity.

I have decided to ignore the psychs and allow her to to have her fix of electronic media providing she spends a little time in the evenings doing reading/writing and math. She currently does a lot more academic activity in her school than kids her age so my main priority is to maintain her happiness.

I am not all that convinced over the developmental brain plasticity stopping after 12 yrs of age. Actual developmental psychology theory actually states the brain continues to develop in terms of cognitive maturity and emotional development till at least 30. With this in mind I agree with a previous poster that there is no point torturing your child, let them develop at their own pace. The critical factor here is the child is showing academic abilities that indicate they have an above average IQ, according to Attwood and Baron-Cohen this is major determinant in a child becoming independent and socially functional in later life.

So from what you have indicated you really shouldn't panic and don;t deprive your son of computer time if he is finding it stimulating. Psychologists often contradict themselves, computer games also lead to good hand-eye coordination, especially Wii interactive sports games which get the child physically as well as mentally active.



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21 Jun 2012, 8:35 am

I went through all of this. I still do the scripting/repeating thing. I'm 36.

I only had therapy and special classes and two parents till I was seven, after that I didn't have a parental unit that had the tools to be able to raise a disabled child, I had to figure out everything else on my own from that point. After much abuse I was truly on my own at thirteen. Most of the social programs I have learned, I learned from movies and TV... I imagine my parents went through hell trying to deal with me. Might have even been the catalyst for their break up, that and if my mother is anything like I am, I'm sure that didn't help either..

Radio and TV commercials used to really mess with me, they still bother me to this day, I just don't listen to them. I'll mute the TV or walk out of the room for a smoke for commercials. I don't listen to broadcast radio ever because of the commercial jingles. Computer game voice overs, catchy phrases from TV shows and movies I still do to some extent. TV and movie intro themes. Music. Natural sounds. Animals. Essentially everything in our surroundings.

I use them as expressions now, little highlights. Like in the game BattleField2, the MEC guy gets hurt and he screams for a medic by saying "Mobooboola!!" so when I stub my toe or I drill my elbow into something for the third time in a day, I scream "Mobooboola!" Makes me feel better. Actually, I use a lot of lines from that game... My sig line comes from the movie Serenity, I use it all the time to express displeasure when something or someone fails on me or lets me down.


I can usually redirect it, like when I'm on the phone by pacing or trying to talk to someone in person by internalizing it or fidgeting, rocking. Around the house though is a different story. My poor boyfriend... Sometimes I'll get whistling something and I won't know what it is so I'll say "What The Hell was that?!?!" He'll reply "Archie Bunker!" from another room. I haven't seen Archie Bunker in over twenty years. Or when he wants me to go shopping with him at Walmart or some other evil place I'll hum or whistle the Imperial Death March from Star Wars, then I'll start dropping quotes from Darth Vader and The Emperor(my special subtle way of saying I'd rather stay home and hit myself in the teeth with rocks). Or I'll start drumming the rhythm of a song that's going through my head over and over. It's not nearly as bad as when I was a child. I hardly notice it... Others do sometimes, though I've yet to hear anyone complain about it.

I tried Rosetta Stone language software. I could learn new languages all day long if I had the full package(I only have the demo), though I tend to mimic the voice overs accent.. Maybe get Tristan to try out Rosetta Stone. He could be a polyglot in no time. I mean rosetta stone won't teach him entire languages, but it would get him started.

We can mimic fairly well, I learned how to order two beer in Spanish just by listening to people at a wetbar in Venezuela, mimicked the order so well that the bartender started speaking Spanish to me... <Insert deer in the headlights look here>. Figuring out how to ask for the washroom was a bit more difficult.

I had essentially no help and I manage semi okay. Your son has loving caring parents, he's off to a good start already. As to what to do to cope, have you looked into therapy for yourself and your wife? Maybe a therapist might be able to help you both figure out some coping mechanisms.


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21 Jun 2012, 8:42 am

beneficii wrote:
Get the Mandarin/Cantonese version of Thomas the Train. Here's the Japanese version:


Get them with english subtitles so he can correlate eaier.


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Callista
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21 Jun 2012, 9:20 am

Thomas the Tank Engine... ah, good memories. I loved that when I was a kid, too--never a true passion, but I was very fond of it. My grandma would let me watch it when I went to her house.

How good is your son at communicating within a conversation? Have you tried talking to him, finding out what he likes about repeating his scripts? You might start with the idea that he is entertaining himself; like any sort of entertainment, it has its time and place. You could teach him under which circumstances it distracts others (for example: People in the same room having a conversation, watching a different show on TV, working on homework).

I was raised mostly without TV as a child. My mom used to send me to church to take part in children's musicals. I would memorize the entire musical, script and all the different parts of the music, and perform it for my parents. There's nothing about media that really predisposes us to want to memorize it--if we can't memorize that, we'll memorize other things. I'd chant the preamble to the Constitution or the Gettysburg Address. I remember being at a restaurant with my grandparents--I was in my teens--and reciting Brutus's speech about Ceasar's death from Julius Ceasar. I'd read all those for school, of course. I knew at least a hundred songs, all the verses, all the way through. Sometimes when I couldn't sleep, I'd sing for hours, never repeating one. Mom was surprised when, in my twenties, I sang a song she used to sing as a lullaby when I was a toddler. I didn't think it was that unusual, but I guess it is.

When you're looking at an atypical autistic-style thing that your son's doing, don't just say, "That's autistic; he needs to stop," because... well, autistic people act autistic. That's just the way things are. We're not meant to act typical and we aren't happy if people force us. So rather than just automatically trying to damp it down, a better viewpoint to take is to ask yourself what that behavior does for him--is it fun? relaxing? a way of expressing himself? Just something he does when he's trying to think? (I learn best while rocking or pacing. Seriously. You try to stop me, I don't learn as well.) Depending on what it does for him, you can address it just like you would any other sort of behavior. Like for an NT child, say they are bouncing off the walls chattering at you when they get home from school--well, probably they're de-stressing from a day of learning and having to sit still. If your son were to, for example, lie under the window and look up at the dust motes in the air, he might be doing the exact same thing.

So yeah, forget for the moment that he's doing this kind of thing because he's autistic--just teach him how not to annoy other people with it. If people are trying to concentrate or listen, he can move to his room or somewhere else in the house; or he can wait until they're not trying to concentrate or listen. Teach him about what other people need, and how to get along with them when he wants to recite something. Maybe even work out a signal that you can use to tell him that he is in one of those situations where reciting may be annoying others.

One more thing: If your visitors give you funny looks and expect you to come down hard on your son for reciting Thomas scripts, you have our permission to chew them out thoroughly. That is your son, and your house, and they're just going to have to deal with it--you should never, ever let anybody make you or your son feel ashamed of who he is.


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21 Jun 2012, 9:24 am

AutismDad writes:

Quote:
Thanks everyone for responding to my post. I greatly appreciate your comments and insights. I would like to give a bit more detail. My son, Tristan, has very good language ability. He has trouble with grammar and still sometimes talks in phrases more akin to a 5 or 6 year old, but he can easily communicate via language. He is very bright and does have a remarkable memory (he loves memory games and puzzle games).
He is in several therapies for language, social and motor skills. We are all for therapy or anything that will help him or support him. I do understand that his echolalia and stimming behavior are a large degree comforting mechanisms for him. The problem is that exposure to media (videos, games, or online games) specifically seems to increase the scripting.

I appreciate the comments of those like naturalplastic who say that if he is going to script, give him something like Shakespeare or a foreign language to script. I have tried this. Believe me I have tried (with Shakespeare, Carl Sagan, documentaries, poetry…you name it). But, the problem is that Tristan is fixated on mostly one thing – Thomas the Train. He does not show much interest in anything else. I realize that concentrating like a laser on one thing is typical of spectrum behavior. Though it can be used to facilitate especially high expertise in an area, in Tristan’s case (at least currently), his total fixation on Thomas the Train at 12 years old is not helping him intellectually or certainly socially. When he is with boys his age who are talking about Spiderman and the Avengers, for Tristan to begin spouting Percy and other T the Train characters in perfect narrative style does not get him interactive conversations. On top of that Tristan’s ability to have a give and take conversation is practically nil anyway. He lacks any ability to interact socially. Nor does he understand how to have a conversation. After all he is autistic.. and that is after all what autism is all about.

And I have often tried the tactic of joining with him when he scripts, trying to make an interactive game of it as someone here suggested. Tristan either runs away or gives me a grin and says, “you can go away now dad, I don’t want you to talk with me anymore.” One telling thing is that he seems to see his scripting is a very private thing. He does not want anyone to watch him or try to talk with him when he is doing it, which is most of the time.

On car trips he drives his little 9 year old sister batty by going word for word through every Thomas the Train episode he has seen and heard (which is all of them). A common thing from the back seat is his sister saying, “Dad, will you please tell Tristan to quit talking about Thomas the Train. He is making me crazy.”

We constantly tell Tristan to “talk to yourself in your own head.” Usually, if this works at all it is only for a few minutes before it starts bubbling out of him with increasing volume. We usually don’t force him to stop, but after hours of this it gets nerve wracking. When he is home he combines this scripting with walking in circles around a tree in our back yard.

What we are concerned about is that this scripting (and pacing) interferes with and completely stops any attempt at social interaction or regular communication..or learning. Tristan really is zoned out and oblivious to any outside influence when he is scripting. He is home schooled so his mother tries all day long to break into his mind and practically interact with him. We had to take him out of public school after his second stab at third grade when things started getting too abstract for him to deal with. It is a constant uphill battle and it is wearing all of us out.

It sure is a great deal easier to just let him veg out in front of a screen (tv or computer) for hours at a time. And he would sure just love to do that. But, the more such screen time he gets the greater his stimming and scripting. Also, he also goes into rages anytime he tries to get on the computer or play a video and we stop him. Even when we set a timer (and he agrees ahead of time to stop when time is up), it’s like he is on a drug and he does not stop and can not stop. It usually turns ugly. In fact, it if he can’t get it, he freaks out and tantrums (as he gets older the tantrums get more intense of course). Add to this the fact that the hormones of the teen age years are starting to kick in, and our lives are getting very interesting.

Our A. Spectrum doc has advised us to get rid of all media if it causes him such zoning. “If you don’t want the wolf around,“ she says, “then don’t feed it.” This is very difficult in today’s world. I find it hard to do myself. I am still not completely convinced that denying him all media is the fully correct thing to do. Of course, admittedly I am a bit “addicted” to media myself, so denying Tristan media is also denying it to me (at home anyway). But, I am willing to do this if it helps Tristan. My wife is truly convinced that all media is greatly exacerbating the problem, if not the root cause, and it is causing Tristan’s inability to focus and learn.

I know there is no clear answer. But, I appreciate any insights and ideas that the folks on this forum have. Thanks.


Does your son's interest in Thomas The Train include more than just the videos ?

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21 Jun 2012, 12:58 pm

Quote:
Does your son's interest in Thomas The Train include more than just the videos ?


Yes, indeed. His favorite toy (outside of tv or computer) is his Thomas the Trains and miles of T the Train track. I have hopes that I can at least turn this obsession into a love of electric trains. So far, no luck. All his trains HAVE to have faces and be exactly like the Thomas the Train video...No exceptions allowed.



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21 Jun 2012, 1:13 pm

Oh, come on; why're electric trains better than Thomas the Tank Engine? They're both legit hobbies.


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21 Jun 2012, 3:09 pm

Callista wrote:
So yeah, forget for the moment that he's doing this kind of thing because he's autistic--just teach him how not to annoy other people with it. If people are trying to concentrate or listen, he can move to his room or somewhere else in the house; or he can wait until they're not trying to concentrate or listen. Teach him about what other people need, and how to get along with them when he wants to recite something. Maybe even work out a signal that you can use to tell him that he is in one of those situations where reciting may be annoying others.


This is so important!



My own two cents from working with kids on the spectrum in school and during their free-time (and from being autistic myself):

Throughout the next years, he needs to learn to regulate the behaviour to his best ability to stop it from interfering too heavily with whatever else he does that is important to learn/focus on and with whatever else he himself wants to do. That's his job to actively grow into to the best of his abilities over the next 15-20 years with your help and guidance, it's not your job to take over for all his life, of course.

Taking away (instead of restricting the access of media to an amount of time that is appropriate for that age as one would do for any child regardless of whether the child has autism or not) the current primary source for it (without even understanding why exactly he exhibits such prominent echolalia) won't help him learn anything about regulating his typically autistic repetitive behaviours in the long run. That's part of the problem right there.

That would be as impossible as teaching kids with regular outbursts of aggression how to handle those exclusively in a completely superficial environment that is so ridiculously suited to their needs and the needs of those who teach them that the kids do not experience a single almost-outburst or even as much as their temper flaring up. This works as a temporary "solution" to avoid worse outbursts and self-harm or other being harmed by outbursts but it's not helping the children to learn anything.

Learning to regulate a behaviour requires for the behaviour to be present at least some.

The same goes for repetitve behaviours; removing one part of trigger functions as a temporary solution (for example, to help retain your nerves or to stop him for a moment from obsessing to the exclusion of other activities such as learning, eating and answering basic, important questions) but it's not going to help him beyond even 1-2 weeks because it is not going to teach him just like that to be able to decide on when to exhibit the behaviour and when not to if he wants to do or think about something else.


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