Whats your opinion PDD-NOS and the new DSM-5 Criteria

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I find D) is very problematic

in combination with the severity criteria.

Now, when the logic is that people on autism spectrum (AS) are only getting diagnosed when they have sufficient restrictions and impairment (and thats what all countries would want)

then all people that dont get the diagnosis but still are on AS will think:
"OK it wasnt that. Im not on autism spectrum."
And that would be bullcrap!

Does the DSM 5 define the autism spectrum (AS) otherwise? That would be good.

I dont generally like the idea that you need to have a disorder to be able to get some kind of AS(D) related support when being on AS!

I am depending on how you would want to see it, either in or out.

I see a problem with treating depression and anxiety with people on AS the NT way when you have some issues there.
Thus, the criteria for lowest level ASD should be set really low, in principle...

anxieties and depression do not just come out of nothing, we are otherwise pretty resistive I think

It seems problematic to me too..

"I see your coping well with those crutches so you can't have a diagnosis of broken leg"

OTOH it does have the history clause... If you ever qualified under clause D in the past but not now you still qualify, in theory. I can imagine that being difficult to prove though.

The DSM-IV has a requiring of clinical impairment requirement too. That's not a new requirement.

If you are not clinically impaired, you don't have a disorder. It's that simple. Asperger's isn't just a personality type. It requires clinical impairment. It does now, the DSM-5 will require it. It's not new.

OK so this one I guess

http://www.dsm5.org/proposedrevisions/pages/proposedrevision.aspx?rid=465#

well at least there reads



which isnt found in the old one


well, what if you qualify for anxiety disorder but not for ASD but the actual cause of your anxiety disorder is being on the spectrum?
straaange

well it should be clinically impaired then but who knows how this is going to work out.
Strange people dont have a mental disorder is that what is probably in many peoples mind

Interesting is also this one

http://www.dsm5.org/proposedrevision/pages/proposedrevision.aspx?rid=407

so aspies cannot have that one. That's unfair. EDIT: Well I dont know what is the idea of that one in the context of all other disorders

I guess this is just so common with aspies...

If you really think about this, it makes a lot of sense too.

First off, PDD-NOS means Pervasive Development Disorder, Not Otherwise Specified.

Second, Autism and AS are Pervasive Development Disorders. But so are Rhett's Syndrome and Childhood disintegrative disorder.

Third: PDD-NOS, by all accounts is currently considered an Autistic disorder. (So then why is it named for the umbrella category all of the above fall under, some of which are not autism?)

So it shouldn't be too surprising that some kids with PDD-NOS aren't really autistic, but have the DX because whoever evaluated them just didn't know where else to put them because they didn't fit well enough into anything else. If you take a really good long look at all the different criteria as they are now, it's not all that surprising that at times the pros are confused as to where some of us really fit due to the subtleties of our symptoms.

I guess we'll have to wait and see how well the new system works in practice, but it's not too hard to see why they had to make some changes.

I don't know if I will be "on the Spectrum" now, or whether I won't be!
My counselor has been informed of my worries, though, and when I go back to see her (next month), she is supposed to be able to tell me whether I am or not, so here's hoping...
All these changes just fry my brains!.....

It's really not anything to be that concerned about. It's a label that tells them where to put your file.

We're still the same person, with the same issues no matter what they choose to call it. We'll still need the same of whatever it is we're already getting.

I'm just really not motivated to argue with you about this so here is the short version. There have been several studies that have looked at the reasons why people are categorized as PDD-NOS rather than Aspergers disorder. Lack of RRBs accounted for 25-52% depending on the study. Even if the number is 25% that's still a quarter of the people excluded from ASD automatically in the DSM 5. Next you have "does not meet enough criteria", "does not meet thresholds", and "other" which includes things like being more likely to get PDD-NOS dx if you are a minority and/or poor. So these people who are deemed by some 'professional' to not meet the criteria for Asperger's under the DSM 4 are all of a sudden going to be deemed to meet the criteria for ASD under the more restrictive DSM 5 definition? I don't think so.

This will matter most when someone applies for services and gets sent to a state contracted psychologist. I don't know who the "they" are that you referred to or the case studies that you mention but I do know what peoples experiences are with state contracted evaluations just from having read the posts on WP and elsewhere about 15 minute evaluations. Many of the psychologists that states contract do nothing but state contracts and create evaluations that are favorable to the people who print their checks. Many people will be placed in the SCD category (including people currently classified as Asperger's) simply because it benefits the state and the contracted doctor financially. That's just the way the real world works. To think that psychologists are all impartial, unbiased, and knowledgeable about ASD is fantasy. If the state's goal is to keep people off the programs, and your diagnosis is up to the discretion of doctors they pay for, do you think they will give you an ASD diagnosis or one of SCD which isn't in SSA's medical listings?

Excuse me for not replying to your reply which is surely coming but I'm highly medicated right now and will be for the rest of the day

Hei,

what is the problem here?
Cant access this link anymore.

Why???

They've redesigned their homepage. There used to be a link to the proposed revisions on there. It is gone now. Apparently they've locked up that part of the site.

Don't take this as truth, but my suspicion is that they may be redesigning that area of the site. It is getting much closer to DSM-V being officially adopted (2013).

I would keep checking back to the home page periodically. Next change may be a new link that just says, "DSM-V" instead of "Proposed Revisions."

Good to know- thx for that input

I think it, to be honest, sucks.
People with Aspergers, or PDD-NOS's aren't going to get the right help, and will finder it harder to meet others like them. We'll also experience less understanding from others, some people will think incorrect things about us, for example, that Aspergers is the same as high-functioning autism, when it isn't. Also, if you have Aspergers (or PDD-NOS for that matter), but an autism diagnosis, you can't get around the ignorant people (the people who think things like autism=mental retardation, and have never heard of Aspergers) by saying you have 'Aspergers' to avoid prejudice.

AS is a form of High Functioning Autism. Combining it all under "Autism" is exactly what is needed to stamp out ignorance regarding autism. Using different terms for various autistic forms is a large part of the reason the ignorance exists.

We should not be avoiding the ignorance. We should be correcting it. Using different terms and avoiding the use of the term Autism, which is what it is, only perpetuates the misconceptions by teaching people to make the incorrect assumption it isn't related to autism.

There is no evidence at all that people won't get the help they need just because the terminology usages change. We will still be who we are, and will still need the help we need.