I told someone I have AS and it was a mistake

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higgie
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12 Mar 2013, 7:59 pm

Yes, when she said "I don't want to get into an argument about it," I think that translates into "I don't want to hear the truth." Shutting down the discussion the way she did was an evasion tactic. Well, fine. If she can't deal with it I won't bring it up again. But I'm disappointed in her.

redrobin62 wrote:
That's the big problem right there. I told my brothers but they didn't believe me. After all, I don't talk like Rain Man, walk in circles like Rain Man, or count cards like Rain Man, so I can't be autistic. Yeah, you try to explain that it's a spectrum - some are mild like myself, some are non-verbal and completely inward. Some can go out to social functions, some can't. Sigh. All I can do is minimize, or completely avoid, the naysayers. My hands are tied.

I just remembered something. I told my optician I was on the spectrum. He'd known me for years so he didn't believe it. Calmly, I pointed out some of the symptoms and behaviours I've had in the past. Eventually, he believed me.



higgie
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12 Mar 2013, 8:15 pm

It's interesting. I thought having a nephew with AS would make her more understanding rather than less. You know what else? Each time she mentioned him she kept telling me over and over what a sweet, sweet young man he is (he's 21). Now I think she said that because she felt the need to defend him -- you know, like, "he has AS but he's nice anyway!" You're right; I should avoid the subject, and I will.


Nonperson wrote:
Sounds like you touched on something she has strong opinions about because of her nephew. This stuff can be almost political. It sucks that she couldn't respect your choice of terminology and knowledge about the subject when you are in a position to know what you're talking about, but that's what people will do when they have baggage surrounding a topic. I've run into that kind of thing with other subjects where I have personal experience and someone discounts it if it contradicts their preconceived ideas.

I would just avoid the subject from now on, it seems she's too sensitive about it for a reasonable discussion.



higgie
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12 Mar 2013, 8:16 pm

Thank you so much for helping me understand her reaction better.


whirlingmind wrote:
It sounds to me that she doesn't understand that Asperger's syndrome is actually autism. She is hung up on the word autism and can't get that Asperger's itself is a form of autism.

She clearly can't know much about autism anyway, because she seems unaware of high functioning autism. If her nephew has Asperger's then she should totally get what it's about. Having said that, it's possible her nephew's parents are refusing to acknowledge that AS is autism and have indoctrinated everyone in the family to not treat it as such.

People have such huge egos and many parents take affront at their child being anything less than perfect and are terrified of stigma.



Solidus
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12 Mar 2013, 8:29 pm

I wouldn't want to be called autistic either... to me this would make as much sense as a person wearing glasses being blind because he's on the 'blind' spectrum. I wouldn't mind it if it were used with the understanding that it's a spectrum. But where I live (french part of Canada) people use the word autistic without distinction; few people know about AS. I don't want to be associated will all kinds of traits and issues that I have nothing to do with.



higgie
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12 Mar 2013, 8:29 pm

You're quite right. I thought she was just being unkind, but you've made me see what is very likely the real reason. Thank you.


Ettina wrote:
I think the thought of her nephew having 'autism' upsets her, and she'd like to think of it as Asperger Syndrome instead because that seems less scary to her.

Nothing against you, it's all her own issues.



MathGirl
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12 Mar 2013, 9:05 pm

I wonder why she doesn't want to accept that her nephew has AS. It's possible that she has negative preconceptions about it and all it might take is to try to break the negative preconceptions. It also seems like she's a very sensitive and close-minded person. Ugh.


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BlackSabre7
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12 Mar 2013, 9:49 pm

I doubt this ended for her as soon as you stopped talking about it. She probably still thinks about it, and maybe will poke around on the internet and try to understand more. But even if she does, acquiring information and accepting it are two different things. Over time, she may come to understand things differently.
Or she may be emotionally not strong enough to change how she thinks, and may opt to live with her head in the sand. My cousin is like that, and it is due to her own insecurities.

I just don't understand how people CHOOSE to remain ignorant. That is SO against my 'religion'.



League_Girl
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13 Mar 2013, 12:13 am

Not everyone thinks aspies are autistic. My parents are the same way and I just accept it. I can remember being 15 years old and I had looked up AS online and autism pages popped up. I asked them if I was autistic and they said no. I then asked them why did they pop up then when I looked up AS and they said it was a form of it. My mother thinks autistic and asperger's are two different things and I have heard her talking about it to a person she has known since before I was born saying how those two are different. She compared it to how someone can have a cold but not have something else that is more severe. You can be throwing up but that doesn't mean you have a virus. So you can have autistic traits but that doesn't make you autistic and you have Asperger's instead.

I have even seen people say online how their kid is on the autistic spectrum but they are not autistic.

Perhaps your neighbor doesn't think Asperger's is autism and thinks those two are two different things like my parents think.


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LilFlo
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13 Mar 2013, 6:37 pm

I told a colleague that I had AS, he answered "Please don't say bad things about yourself!"... It makes me sad to realize how people are misinformed about autism :?
I can't even say if it was a mistake to tell him about it but it certainly threw a damper on the conversation...



GiantHockeyFan
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14 Mar 2013, 7:04 am

I don't bother telling anyone because they can't seem to understand Autism is a spectrum and yes, you can be autistic and still speak, hold down a job and drive a car. Even 'experts' other than my Family Doctor seem to have this attitude. When I went for my assessment the psychiatrist kept mentioning how I have a great attention to detail and high IQ almost as if the word "Asperger" means unable to function in society.



chlov
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14 Mar 2013, 7:43 am

Never had a similar experience.
Every time I told someone I had AS and ADHD, their only replies were "so, that's the reason why you act like that", or "I had alredy understood it", or "it's so evident you have those".



glow
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14 Mar 2013, 1:37 pm

the whole business with having an autistic trait doesn't mean you will be treated fairly or unfairly it is merely a term to describe what you've got in the whole light of being a person on the spectrum. most people of todays world have deluded themselves into thinking it is just a minor issue that will simply go away, given the options to reduce stress hence minimizing the impact of reluctance and confusion inside the workplace. well, whether it seem you are diagnosed or not at the time of work say, in you're everyday life just seems like a point of zero confidence to the average non-believer who's in a critical state of denial about themselves and to hear unkind words from another colleague for instance, is like a stab in the back. to put it bluntly. just because the modern workforce is being supplied by immigrants or pen-pushers shouldn't mean that the whole system has to fail on the disabled.



higgie
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14 Mar 2013, 1:55 pm

You would think so, wouldn't you? But she really let me down.

Solidus wrote:
But then, if she knows you as a good person, shouldn't that be a positive model for her nephew? :roll: