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goldfish21
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19 Mar 2015, 3:34 pm

rugulach wrote:
goldfish21 wrote:
rugulach wrote:
All this is fine. My point is that you are coming on too strong in your posts, sounding almost like a salesman. Temper that a little bit and you will get your points across better.


I've been accused on these forums of lying, that it's a hoax, or that I'm trying to sell something to people.

Nope. Nope. Nope - I haven't asked for anything in return & have nothing to sell, only my story & information to share freely - which I have.

I don't know how I'd describe it exactly as I can't think of quite the right words, but, yes, I am "energetic" about it because, as I've said for over a year now, I've reduced my ASD & other symptoms by ~95% from the severity they were a couple short years ago and I'm living a second, much happier healthier, life for it. If you experienced this, you'd be a little excited about sharing it with people it could help, too.


"Energy" isn't bad in and of itself but it can put people off. Tone down the "energy" and post more links as you find them to relevant scientific research backing up your points. That is the best way to convince people on a site like this where many pride themselves in being rational.


I've been doing that for more than a year now. Some people have come around to the idea that maybe, just MAYBE, I'm telling the God's honest truth and there's something to my story. Several have pm'd me. It's those people who are open minded enough to accept new information that I'm willing to communicate with. Then there are others who are just as adamant today that I'm wrong because I haven't conducted a double blind medical study - which I've never ever claimed to have done, so w/e.


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rugulach
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19 Mar 2015, 5:58 pm

goldfish21 wrote:

I've been doing that for more than a year now. Some people have come around to the idea that maybe, just MAYBE, I'm telling the God's honest truth and there's something to my story. Several have pm'd me. It's those people who are open minded enough to accept new information that I'm willing to communicate with. Then there are others who are just as adamant today that I'm wrong because I haven't conducted a double blind medical study - which I've never ever claimed to have done, so w/e.


What exactly do you mean when you say you treated your ASD? Because irrespective of the efficacy of what you claim, there is a big debate about whether ASD can even be "cured" in the first place.



goldfish21
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19 Mar 2015, 6:10 pm

rugulach wrote:
goldfish21 wrote:

I've been doing that for more than a year now. Some people have come around to the idea that maybe, just MAYBE, I'm telling the God's honest truth and there's something to my story. Several have pm'd me. It's those people who are open minded enough to accept new information that I'm willing to communicate with. Then there are others who are just as adamant today that I'm wrong because I haven't conducted a double blind medical study - which I've never ever claimed to have done, so w/e.


What exactly do you mean when you say you treated your ASD? Because irrespective of the efficacy of what you claim, there is a big debate about whether ASD can even be "cured" in the first place.


I mean that a couple of years ago my symptoms were very strong and severely interfered with the quality of my life. After doing what I've done, and what I do to maintain myself, I've reduced the severity of my symptoms by approximately 95% from their worst and am living a happier, healthier (and wealthier) second life for it. I still have traits & symptoms, but they're minimal compared to what they were.

As I said when I shared my story here over a year ago, I've found that ASD symptoms are either caused or exacerbated by antibiotic induced intestinal dysbiosis. Last October I took a strong course of antibiotics and thought nothing of it.. until I started getting critical feedback from others about my behaviour. I realized full well in that moment that the antibiotics had killed off the probiotics I had built up and that was causing my ASD symptoms to be amplified again, and knew what I had to do to treat myself - did it - and regained the digestive balance I had going, which in turn improved my symptoms once again. That experience was secondary confirmation proof that I'm correct in what exacerbates my symptoms, especially since I didn't even think about it and was not anticipating the change in symptoms - it just happened, and I wasn't self aware of it until I was on the receiving end of some constructive criticism. In hindsight, another time I took antibiotics last Summer increased my symptoms a bit, too. It was so much more noticeable in October because the course of meds was a lot stronger and I was in a lot more social situations vs. the Summer before, so the changes were noticed by others a lot more in addition to actually being more severe.

If you'd like to read the post I made here on wrongplanet in January 2014, I have the original text from it and will gladly email it to anyone who pm's me for it.


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FallingDownMan
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20 Mar 2015, 5:04 pm

EyeDash wrote:
Does anyone else here have abdominal migraines? I've always had gut problems and pain, but over the last couple of years they've greatly increased. After six recent trips to the ER, the doctor said she believed it was abdominal migraines, and I got started on an anti-migraine medication, Sumatriptan, which helps a little. The pain is unreal and the episodes can last days. When they happen, all I can do is lie down in a dark room and gut it out. I found a number of studies which find that there's a higher incidence of migraines in autistic people, including: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2211386/
I'd be very interested in anyone's experience with migraines in general, and with abdominal migraine in particular.


I have problems with migraines of multiple types. I will have to admit to that I've never had an abdominal migraine. Vestibular migraines are my biggest problem. Vestibular is also know as a silent migraine, meaning no pain. Even though there is no, or little pain, it's still debilitating, try walking while your vestibular system is out of whack due to a migraine. (Hence my screen name... lol) I also get all of the other migraine symptoms, sensitivity to light, sound and motion, auras, nausea, and so on.

I recently discovered the root to my migraines is stress and anxiety.


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EyeDash
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20 Mar 2015, 5:20 pm

Thank you FallingDownMan. :) I suspect stress and anxiety is contributing.to mine too. Interesting about vestibular migraines. Back in college, I went through a period of getting sudden vertigo that would put my face right into the ground. It felt like the earth would jump up and smack me, lol. Was very scared it would happen when I was on my motorbike. I still get the dizzy spells occasionally, but not so.bad that I fall down...

Being autistic with an anxiety disorder makes it hard to release anxiety for me. Would you share how you got stress and anxiety under control?



FallingDownMan
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20 Mar 2015, 5:41 pm

I got my anxiety and stress under control when my ex-wife filed for divorce and kicked me out of the house. I also don't work thanks to disability from my migraines. Not the type of stress management that everyone can apply... lol.


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The_Face_of_Boo
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21 Mar 2015, 9:01 am

I had it for many years during my childhood, it was so severe that I became so skinny to the point as if I am famine victim, every bone was visibile in great detail.

Symptoms started when I was very young, about 6, it was amid the war, and doctors kept misdiagnosing me.

It was cyclic, like once in month, I enter a phase of "attack", like a severe woman's period, a phase of non-stopping vomiting, abdominal pain and strong allergy against light -each phase lasted sometimes for a week, and extreme fatigue in few days afterward.

What made it harder for doctors that it doesn't cause headache, so they never thought that the brain may be the cause, and always thought it was something wrong in the stomach instead (and I had ulcers there due to over vomiting, it was the consequence, not thr cause).

One doctor did doubt about the brain, she did EEG for my head and got weird readings but she couldn't determine the case.


When I was at age 12, by mere coincidence my father heard a speech by a neurologist (who came temporarily from the US) talking about this particular non-stopping vomiting case in children (Abdominal Migraine) - dad quickly recognize the symptoms he was talking about and sent me to him the next day.
The neurologist got a MRI scan for brain to check if I had tumor, it turned out I have Abdominal migraine; the cure was simple and cheap: Periactin for children, it was green syrup and tasted like sweet mint.

And it worked like magic.



EyeDash
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21 Mar 2015, 10:39 am

Thank you The_Face_of_Boo :) Possibly that could work better than the Imitrex I'm on now. I'm glad it helped you - abdominal migraines - I guess really any type of migraine - wipe you totally out. Periactin and ciproheptadine sound promising; I'm about.to talk with the doctor and will ask if they work in adults too. I actually have given it to cats before, to help digestion and stop vomiting.



rugulach
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22 Mar 2015, 10:43 pm

goldfish21 wrote:
Quote:
What exactly do you mean when you say you treated your ASD? Because irrespective of the efficacy of what you claim, there is a big debate about whether ASD can even be "cured" in the first place.


I mean that a couple of years ago my symptoms were very strong and severely interfered with the quality of my life. After doing what I've done, and what I do to maintain myself, I've reduced the severity of my symptoms by approximately 95% from their worst and am living a happier, healthier (and wealthier) second life for it. I still have traits & symptoms, but they're minimal compared to what they were.

As I said when I shared my story here over a year ago, I've found that ASD symptoms are either caused or exacerbated by antibiotic induced intestinal dysbiosis. Last October I took a strong course of antibiotics and thought nothing of it.. until I started getting critical feedback from others about my behaviour. I realized full well in that moment that the antibiotics had killed off the probiotics I had built up and that was causing my ASD symptoms to be amplified again, and knew what I had to do to treat myself - did it - and regained the digestive balance I had going, which in turn improved my symptoms once again. That experience was secondary confirmation proof that I'm correct in what exacerbates my symptoms, especially since I didn't even think about it and was not anticipating the change in symptoms - it just happened, and I wasn't self aware of it until I was on the receiving end of some constructive criticism. In hindsight, another time I took antibiotics last Summer increased my symptoms a bit, too. It was so much more noticeable in October because the course of meds was a lot stronger and I was in a lot more social situations vs. the Summer before, so the changes were noticed by others a lot more in addition to actually being more severe.

If you'd like to read the post I made here on wrongplanet in January 2014, I have the original text from it and will gladly email it to anyone who pm's me for it.


I've been doing some research about this past couple of days. There's some stuff that looked promising but nothing conclusive.:?

What exactly were your symptoms? Were these mainly (or only) external physical ones are were these also internal (in your mind)?

You could PM me the info if it is easier.



EyeDash
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24 Mar 2015, 2:12 pm

Hi rugulach :) The symptoms turn on almost like a switch. I'll first .notice a vibration right in my visual field, then I get anxious, nauseous and sweaty, about in that order, at which point it either passes or it turns into a burning pain on my lower left, with abdominal general soreness and mental fog. The burning pain can last from a half hour to several days and can get so intense it puts me in the ER (eight times over as many weeks). IV haloperidol and dilaudid helped stop it. When it's going on, I can't remember ever being out of pain and dropping dead starts to sound like.blessed relief. It stops as abruptly as it starts, at.which point it's hard to remember the pain. I get those bizarre migraine aura scintillating scotomas and some headache, but thankfully not transcranial migraines like my sis did.



rugulach
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24 Mar 2015, 9:23 pm

EyeDash wrote:
Hi rugulach :) The symptoms turn on almost like a switch. I'll first .notice a vibration right in my visual field, then I get anxious, nauseous and sweaty, about in that order, at which point it either passes or it turns into a burning pain on my lower left, with abdominal general soreness and mental fog. The burning pain can last from a half hour to several days and can get so intense it puts me in the ER (eight times over as many weeks). IV haloperidol and dilaudid helped stop it. When it's going on, I can't remember ever being out of pain and dropping dead starts to sound like.blessed relief. It stops as abruptly as it starts, at.which point it's hard to remember the pain. I get those bizarre migraine aura scintillating scotomas and some headache, but thankfully not transcranial migraines like my sis did.


Wow...that is really horrible. Do you get optical migraines too?