What's the most challenging thing about your dissabiliy

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Bondkatten
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12 Apr 2015, 12:52 am

Doubts!

What did they mean by that? Did I say the correct thing? Did I give the right response? Did I understand it correctly? Am I still worth the same as “normal” people?



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12 Apr 2015, 1:33 am

Two things:
#1: Figuring out how to survive in a world that highly values social interaction.
#2: Worrying and obsessing too much, about everything



r2d2
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12 Apr 2015, 2:12 am

I suppose though officially diagnosed with Level 1 ASD - I am on the more mild end of the spectrum. The difficulties that I face the most, are nervousness, anxiety and despair/depression. It is also very difficult for me to handle unscheduled/non-routine activities that are necessary. I realize that compared to some people on the spectrum I probably have it easy in that I can live a relatively normal life albeit with some difficulties.


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traven
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12 Apr 2015, 3:04 am

Staying alive,
oh nearly droven over from behind by my friendly nb, to find out my breakfest has become sugar-coated :mrgreen:



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12 Apr 2015, 8:55 pm

animalcrackers wrote:
I'm not sure.

I think my executive functioning problems might be the most disabling (e.g. forgetting/losing stuff, working memory problems, problems keeping track of time, difficulties regulating attention and inner states, information retrieval, task switching).

Sensory issues and language/communication problems are a very close second.


That's exactly further explains my struggle too.


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Rocket123
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12 Apr 2015, 9:53 pm

infilove wrote:
...I think my executive functioning problems might be the most disabling...

Before I was diagnosed, I had no idea that there was a word to describe the seemingly bizarre challenges I had with certain types of information processing (e.g. following verbal instructions, dealing with novel unstructured situations, etc.). It wasn't until I was diagnosed that the clinical psychologist made we aware that these challenges were all inter-related.

Believe it or not, I also didn't realize I was detailed oriented before my diagnosis. I just figured I that my overly detail-oriented nature was normal.



ToughDiamond
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12 Apr 2015, 10:15 pm

Rocket123 wrote:
infilove wrote:
...I think my executive functioning problems might be the most disabling...

Before I was diagnosed, I had no idea that there was a word to describe the seemingly bizarre challenges I had with certain types of information processing (e.g. following verbal instructions, dealing with novel unstructured situations, etc.). It wasn't until I was diagnosed that the clinical psychologist made we aware that these challenges were all inter-related.

Believe it or not, I also didn't realize I was detailed oriented before my diagnosis. I just figured I that my overly detail-oriented nature was normal.

I always suspected I should have got more advice than the standard one-hour post-diagnostic session I had. But it's rather expensive unless you can somehow get the authorities to do it for free, and that would require a good advocate, which is also rather expensive. Still, I've learned a lot here on WP.



nick007
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13 Apr 2015, 11:11 pm

Being too much in my own head to notice things going on around me.


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CanisHumanis
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14 Apr 2015, 12:14 am

Dealing with Cluster B people.

Interacting with most NT types are nothing like these.

Both of my parents and one sibling are Cluster B.



Kiriae
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14 Apr 2015, 6:24 am

I have huge problem with bureaucracy.

Other people seem to remember they are supposed to bring a paper to the office or that they already brought a paper and they know what to do to get one without much trouble.

I must ask other people exactly what kind of paper it is, what it is for, when we were supposed to bring it before I even know what they are talking about. And I have to go to the office and ask workers if my paper is already there and what should I do to bring it if it is not.

If it involves just filling a form they give me directly it's OK but if they say "you must go to the other office for confirmation then bring it here before filling the form" another bunch of questions appears: I go to the other office(which office, where it is, who do I talk to there?) and then what? How I ask for the paper? Should I tell them what kind of paper I need or they already know? How do I explain it to them if they don't? What if they refuse to give it to me?
...

And worst in the worst: Sometimes when you go to another office for a paper the another office tells you they will give you a paper if you go to one more office and then one more and one more. In the end I have no idea what kind of paper I needed in the 1st place and I don't remember which office to to with the paper I got to get the paper I need.

When I get a bureaucracy task I feel like this even if other people consider the task relatively easy ("Just go there and get it, no big deal."):



Misery
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14 Apr 2015, 6:56 am

Anxiety is the worst, I think; often a fear of things that makes no sense. There are times when I get frustrated with it and it just feels like I'm afraid of EVERYTHING.

Constant confusion is also pretty bad at times, as I space out way too easily and will then do things like try to open a hotel room door with my car key remote, and then stand there for 5 seconds wondering why it's not working before realizing what I just did. When I can manage to stay focused, it cant happen, but.... of course, managing that is the difficult part!

And of course, all of the usual social problems.

And back when I used to work, well.... just LOTS of problems, and constant failure.



kraftiekortie
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14 Apr 2015, 6:58 am

What's a "Cluster B" person?

1. I wish I could always come up with the right word at the right time.

2. I wish I could apply myself better to improving my knowledge-base through study.

3. I wish I didn't have difficulties conversing with people in a group setting.

4. I wish I didn't get all frazzled all the time when "multi-tasking."

Many others.



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14 Apr 2015, 7:44 am

kraftiekortie wrote:
What's a "Cluster B" person?


Cluster B's

I's not the impulse control part of Cluster B's that I have a problem with. It's the more malignant parts of these disorders I've had to deal with my whole life that gets to me.



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14 Apr 2015, 8:07 am

I have serious problems in spiritual area. I had "scary' scrupulosity when I was about 16 - 18 years old. Now I have problems with confessing sins. Confessing sins, obligatory examination of conscience and idea of eternal damnation are not logical and senseless to my wimpy, "sensitive" and atypical mentality. I have problems with confession again. I did many very stupid things as a child and young adolescent. Some of them might result in large tragedy. "Traditional" religions are "not natural for me", but not monotheism itself. I believe in afterlife. But some requirements in religions are scary and (or) senseless to my "childish" mentality. I have fear of eternal damnation and pain is very large evil for me.

A priest said me something like that it is very probably that people like me are not able to commit sacrilege because of lack of the matter due to their disorders. The same priest said that it is very probably that I will never be able to be in marriage. It would mean that I am "sentenced" to celibacy to the end of my earthly life. It is bad that I have serious need of having the wife, the female partner (even since quite early childhood). But I agree with the opinion that it is really probably that I will never be able to be a husband. A priest also said something like that I can have care allowance (I can't translate the phrase "należy ci się zasiłek pielęgnacyjny" precisely), so it means that I would have not so small disability.

My religion is in some aspects VERY HARD for me. I have diagnosis of Asperger's and schizotypal at the moment, I get paroxetine (just 10 mg per day, but it may make me significantly more "slower" or "drowsy"). I have no friends and my family is mildly dysfunctional in my opinion. I have (almost) no help in the area of my disorders from parents. My parents may think that I am lazy, even my sister (who is about 14 years old) sometimes called me "moron".



Kiriae
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14 Apr 2015, 9:35 am

nca14 wrote:
I have serious problems in spiritual area. I had "scary' scrupulosity when I was about 16 - 18 years old. Now I have problems with confessing sins. Confessing sins, obligatory examination of conscience and idea of eternal damnation are not logical and senseless to my wimpy, "sensitive" and atypical mentality. I have problems with confession again. I did many very stupid things as a child and young adolescent. Some of them might result in large tragedy. "Traditional" religions are "not natural for me", but not monotheism itself. I believe in afterlife. But some requirements in religions are scary and (or) senseless to my "childish" mentality. I have fear of eternal damnation and pain is very large evil for me.

A priest said me something like that it is very probably that people like me are not able to commit sacrilege because of lack of the matter due to their disorders. The same priest said that it is very probably that I will never be able to be in marriage. It would mean that I am "sentenced" to celibacy to the end of my earthly life. It is bad that I have serious need of having the wife, the female partner (even since quite early childhood). But I agree with the opinion that it is really probably that I will never be able to be a husband. A priest also said something like that I can have care allowance (I can't translate the phrase "należy ci się zasiłek pielęgnacyjny" precisely), so it means that I would have not so small disability.

My religion is in some aspects VERY HARD for me. I have diagnosis of Asperger's and schizotypal at the moment, I get paroxetine (just 10 mg per day, but it may make me significantly more "slower" or "drowsy"). I have no friends and my family is mildly dysfunctional in my opinion. I have (almost) no help in the area of my disorders from parents. My parents may think that I am lazy, even my sister (who is about 14 years old) sometimes called me "moron".


Wow. That sounds really bad.
It makes me happy that I dropped religion when I was 13 year old.

Religion scares people, especially literal thinking people. I was always trying to live the best I could but the church was constantly reminding me that I will go to hell just because I refuse to follow some illogical rules and don't consider some of the "sins" evil (as a kid I had trouble confessing sins because I was never doing anything I considered wrong). So after a while I said: "Enough". If some kind of God decides to damn me just because I refuse to do stupid things despite living my life the best I can it just means the God himself is a stupid being.

And I become an atheistic agnostic. I live my life the best I can (not because I am afraid of punishment - I just don't like being a bad person) and I am not afraid that I will go to hell if a smart God exist because a smart God wouldn't sent me to hell for my lifestyle. And I seriously doubt that a stupid God exists so it isn't a problem either.



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14 Apr 2015, 9:43 am

The most difficult things involve convincing others that I know what I'm talking about.

Although there is some gratification in being able to say, "I told you so" after the spit hits the Spam.