Do you stay home or do you go?
I was married when I was 19 & felt like I was always cramming for an exam I hadn't even taken the class for. The only reason I said yes was because -- well there were a few reasons: being young & stupid wasn't my fault & wasn't really a decision I made -- it was thrust upon me as a choice between being which captivity environment did I want to be in >> the family I was born into (which included several other families) or this one guy who has family but they lived far away. That is how I saw it -- a choice between 2 zoo cages. I chose the cage that I believed I had a key to the door & could have more freedom. Was wrong about that, but I won't go into the details. It is too long of a story.
Anyway, I got through most of it by retreating into my own mind -- not on purpose, but that is just how it happened. When his family visited I was like a zombie -- retreated into my mind & couldn't hear or see much of the details around me. Would end up sneaking out at night & sleeping on the floor of the small laundry room, because my husband would make me sleep with him in the dark. The spare room was actually my room, except when his family visited my room was taken. I sleep with the lights on, & that is why I always slept in the spare room -- he slept with lights off. I'd lay in the dark, sweating & trying not to cry. Soon as I heard him breathing deeply, I got out of there & slept on the laundry room floor.
It took me 2 years to get out of the marriage. I was going to kill myself. He had me committed a few times, & used that as a way to control me. Am much better now that I have independence. I never understood anyone who says they wished they could go back to being younger -- I love aging, because am learning new things about being a person all the time. The real truth of this site is how much I have always felt I'm not really human. Do understand now that I am, just a different kind of human & am forced to learn how to be me undercover & perform trickery in public to conform so am not locked up ever again.
Anyway, I got through most of it by retreating into my own mind -- not on purpose, but that is just how it happened. When his family visited I was like a zombie -- retreated into my mind & couldn't hear or see much of the details around me. Would end up sneaking out at night & sleeping on the floor of the small laundry room, because my husband would make me sleep with him in the dark. The spare room was actually my room, except when his family visited my room was taken. I sleep with the lights on, & that is why I always slept in the spare room -- he slept with lights off. I'd lay in the dark, sweating & trying not to cry. Soon as I heard him breathing deeply, I got out of there & slept on the laundry room floor.
It took me 2 years to get out of the marriage. I was going to kill myself. He had me committed a few times, & used that as a way to control me. Am much better now that I have independence. I never understood anyone who says they wished they could go back to being younger -- I love aging, because am learning new things about being a person all the time. The real truth of this site is how much I have always felt I'm not really human. Do understand now that I am, just a different kind of human & am forced to learn how to be me undercover & perform trickery in public to conform so am not locked up ever again.
That sounds truly sh***y. I'm glad you're in a better life situation now.
I like your comment about cramming for an exam. More and more, I just feel blank when people talk to me, and I just don't have the foggiest how to respond.
It's struck me a few times what a difference a loving and supportive family means to any child, whether on the spectrum or not. With some WP members, one gets the feeling that their biggest challenges are not really autism related but family related, and that given a better childhood, their social struggles might not have been so great.
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I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.
Update: husband and I had a chat about this, and he himself proposed that I only come for two weeks maximum, and that one of those weeks ought to be spent on various day trips and visits to nearby cities. I have a good friend who will certainly put me up a little.
I can't have a relationship with all these people. I will go insane. Add global warming and my sensitivity to heat, and there's a recipe for disaster.
I'll just have to pull back a little. Every year I tell myself it won't be so bad and that I need to be there for my kid, but this is going too far.
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I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.
2 weeks is a long time, but if the trip was going to be longer than it is better than the original plan. Didn't know funerals & wakes lasted so long. I've only been to 2 funerals - 1 for my maternal grandmother & 1 for a father figure I got along with very well. I didn't go to my mother's funeral because I didn't know she had died. I learned about it 3 months afterward in a letter from the funeral home. Not sure I would have gone, even if I did know about it, because had stopped talking to everyone in my family 5 months before she died. The 2 funerals I attended was only 1 day long each & both were in Florida. I live in Tennessee. Both funerals were before 9/11, so flying was still ok. The airports were not as bad as they are now. Have only flown 1 time after 9/11 (it was a round trip, so maybe I should say 2 times), & that experience made me decide to never fly again.
High-Functioning Autism is kind of a cyclical issue. The autism can make people treat me bad, which makes the autism worse. I grew up in the 80's & 90's like you, so you would be familiar with the terms spaz, ret*d, & the general attitude toward anyone who wasn't "normal". There was very little tolerance -- similar to the older brother of Elliott in the movie ET, or the older brother of Keven in the television show The Wonder Years. Most people, including adults in my family, had their attitude & beliefs & simple-minded thought processes. If a person wasn't like everyone else, then they were considered bad & had to be corrected or picked on.
I have hindsight, age, several inpatient & outpatient experiences to help me now. Had no way of understanding why the world hated me so much as a child. Was told, that is why I developed the coping skill to retreat into my mind. Nothing I did on the outside was ever correct. There is hope though, because if HFA can be made worse, it can be made better. Knowledge & strategy, like for any sport, needs to be learned & applied. I got better by adapting a few different personalities -- took characters from TV & movies I knew really well, & become them when I need to interact with people for an extended period of time. I pick which character to become based on the character the person I'm interacting with reminds me of.
No one in person knows the real me, because I know they wouldn't like the real me -- no one ever has. Only people who watch my YouTube channel for a long time has a small window into who I really am. As long as I don't show anything other than me working on projects -- that is who I am, a worker & helper. Not a social person. I want very much to be useful & not seen as a burden.
Could the idea of becoming a fictional character be helpful to you?
LOL, yeah, it's hard to imagine how anybody gets used to that, and yet, if somebody didn't, we'd all starve.
I'll never forget going with my folks out to the farm (which could have been any of several relative's homes, my folks are both from country families) one summer day, when I was about 8 years old, where I got chased by an itinerant goat, and first watched a chicken slaughtered - it's neck snapped like a wet towel, then it's head laid across a butchering block and lopped off with an axe. When you hear the expression "running around like a chicken with it's head cut off" - that's not just an expression, they really do that - run around in circles, with their neck spouting blood like a Quentin Tarantino flick, until finally their heart stops, and they just fall over. Quite a show for an elementary-school age city kid. But that's life - Without dead things rotting underground, there'd be no plants.
It wasn't as bad as the time we went camping, and after a day of fun catching fish, I finally watched my dad clean them for dinner. I still can't eat seafood after that, and I used to love shrimp.
And I never developed a taste for squirrel and dumplings, but I loved wearing their tails as a hat. Sounds like you have your coping cut out for you in that community, I wish you well. But if I were you, and you feel you MUST attend certain functions to maintain acceptance in the community, I'd recommend skipping the wake process as often as possible, and just going to the funeral instead. That way you're acknowledging the family's grief, without dealing with the attendant sensory melee.
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"I don't mean to sound bitter, cynical or cruel - but I am, so that's how it comes out." - Bill Hicks
I really like meditation for quieting my inner emotional state. I've been practicing many years and do it several times daily, even if only for 5-7 minutes, it really helps. I decided not to have kids to keep my life overwhelm to a minimum, I live solo, no boyfriend or husband, very very quiet home with an amazing kitty cat. Do what you need to do to take care of yourself and do not feel bad or apologize, everyone has different physical and emotional makeups and different levels of tolerance to stress. Who says you have to accomplish a certain number of things in a day? Get a babysitter to take your kid to the park and wear him out. Do what you can and do not feel bad about it!
I'll share a little of my tolerance level for reference point, and by the way, being around certain animal smells (even though I love animals) can be such a strong stimulant to me that it can make my body feel quite ill for hours if I am breathing it all in for a long time. The killing of the pig sounds horrible.
I do nothing but work during the week, 40 hours, and I make sure to get about 10 hours of sleep on the average night. I save my shopping and errands for the weekend, do some house chores after work, then read or use computer or watch TV til sleep. I exercise midday. On the weekends, if I have a stressful outing as I did two weekends ago, it wears me out for the entire work week. I am finding it is taking two weekends of zero plans and just doing what I want to feel like my energy levels are back up where I like them after the stressful outing. Seriously, I do not go by what everyone else does, I was constantly fighting off colds, stomach aches, you name it. I am healthy and happy now but I do A LOT less than the average person(yet I am super intense at work)! !! My friends and family rarely see me because of it but my independence is my highest priority, along with my health, and I am doing those two things.
High-Functioning Autism is kind of a cyclical issue. The autism can make people treat me bad, which makes the autism worse. I grew up in the 80's & 90's like you, so you would be familiar with the terms spaz, ret*d, & the general attitude toward anyone who wasn't "normal". There was very little tolerance -- similar to the older brother of Elliott in the movie ET, or the older brother of Keven in the television show The Wonder Years. Most people, including adults in my family, had their attitude & beliefs & simple-minded thought processes. If a person wasn't like everyone else, then they were considered bad & had to be corrected or picked on.
I have hindsight, age, several inpatient & outpatient experiences to help me now. Had no way of understanding why the world hated me so much as a child. Was told, that is why I developed the coping skill to retreat into my mind. Nothing I did on the outside was ever correct. There is hope though, because if HFA can be made worse, it can be made better. Knowledge & strategy, like for any sport, needs to be learned & applied. I got better by adapting a few different personalities -- took characters from TV & movies I knew really well, & become them when I need to interact with people for an extended period of time. I pick which character to become based on the character the person I'm interacting with reminds me of.
No one in person knows the real me, because I know they wouldn't like the real me -- no one ever has. Only people who watch my YouTube channel for a long time has a small window into who I really am. As long as I don't show anything other than me working on projects -- that is who I am, a worker & helper. Not a social person. I want very much to be useful & not seen as a burden.
Could the idea of becoming a fictional character be helpful to you?
Sorry for the confusing info: husband, child and I spend summers in husband's home country. We don't have a lot of money, but the price of the tickets is sort of evened out by lower living costs if we stay long. Child is having a blast, and since everyone they hang out with is a friend of the family, she is safe and happy, and any trouble is reported to us.
Yes about the cyclical thing: I'm starting to have trouble working now because I'm anxious about people, and guess why I'm anxious about people?
I didn't grow up in the US, but here, if kids used similar words like 'spaz' and 'ret*d', they'd earn themselves a trip to the principal's office, plus the disapproval of everyone around, adults and kids. I've never heard adults talk like that. I had a mother who explained some things to me. She badgered me for years about my walking, but she did it in a pedagogical way. It drove me nuts, and I couldn't understand why this was so important, but she never scared me about it, and I only every thought she did it so I would get better at physical activities. The sum of all the 'improvements' was damaging to my self esteem, but it did allow me to pass.
This is what I mean about the importance of a good childhood. I had every advantage of a safe, middle class upbringing. I did extremely well in school. I had nice adults around me, who did some damage because they didn't understand, but I also had some great teachers who created a very safe enviroment. My country has very low levels of violence. I was never beaten as a kid. These things make a huge difference in the mental health of an adult.
I have a couple of people with whom I can be myself, again something that makes a huge difference.
I've been starting to use masking more selectively; only when it's fun or important. Otherwise it's too exhausting. I can't be a mom and play a role simultaneously. I think nobody has the strength for that.
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I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.
LOL, yeah, it's hard to imagine how anybody gets used to that, and yet, if somebody didn't, we'd all starve.
I'll never forget going with my folks out to the farm (which could have been any of several relative's homes, my folks are both from country families) one summer day, when I was about 8 years old, where I got chased by an itinerant goat, and first watched a chicken slaughtered - it's neck snapped like a wet towel, then it's head laid across a butchering block and lopped off with an axe. When you hear the expression "running around like a chicken with it's head cut off" - that's not just an expression, they really do that - run around in circles, with their neck spouting blood like a Quentin Tarantino flick, until finally their heart stops, and they just fall over. Quite a show for an elementary-school age city kid. But that's life - Without dead things rotting underground, there'd be no plants.
It wasn't as bad as the time we went camping, and after a day of fun catching fish, I finally watched my dad clean them for dinner. I still can't eat seafood after that, and I used to love shrimp.
And I never developed a taste for squirrel and dumplings, but I loved wearing their tails as a hat. Sounds like you have your coping cut out for you in that community, I wish you well. But if I were you, and you feel you MUST attend certain functions to maintain acceptance in the community, I'd recommend skipping the wake process as often as possible, and just going to the funeral instead. That way you're acknowledging the family's grief, without dealing with the attendant sensory melee.
Yeah, I'll definitely avoid wakes from now on. Husband forgets to warn me because he's so used to it, and I used to function better.
Also, I'm planning to spend less time here so less of this will be an issue. Truth to be told, I'm not that sensitive to sound, I think it's mostly the hyperempathy kicking in. I never wanted to be the sort of person who wants to eat meat but can't handle the butchering, but I'm starting to understand that not everyone is cut out for everything. I console myself that those pigs live happy piggy lives with their families in a clean pigsty as opposed to pigs that grow up in industrial meat production plants.
I'm giving up a bit on this community, and leaving it to husband to deal with. If I'm not here, nobody will blame me for not attending things. The summer heat is becoming brutal with global warming and all, which is bringing on anger and irritability - I usually only have shutdowns. It's kinda funny; everybody believes me when I tell them I can't handle the heat because I'm Scandinavian.
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I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.
I need to start meditating. Have been telling myself to do it and never getting around to it. Should work on a rountine that includes exercise and meditation. Will do once I get back to cool weather.
I finally gave up on trying to accomplish what other people accomplish. I think that if I'm a good mother and take care of my family, and I earn a little bit of money, that should be enough. If people don't respect that, I have no time for them.
I need a lot more alone time now than I used to. It's so funny; people have this idea of me as this raging extravert, but they have no idea how much time I need alone.
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I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.
Last edited by underwater on 29 Jul 2017, 1:30 am, edited 1 time in total.
I do nothing but work during the week, 40 hours, and I make sure to get about 10 hours of sleep on the average night. I save my shopping and errands for the weekend, do some house chores after work, then read or use computer or watch TV til sleep. I exercise midday. On the weekends, if I have a stressful outing as I did two weekends ago, it wears me out for the entire work week. I am finding it is taking two weekends of zero plans and just doing what I want to feel like my energy levels are back up where I like them after the stressful outing. Seriously, I do not go by what everyone else does, I was constantly fighting off colds, stomach aches, you name it. I am healthy and happy now but I do A LOT less than the average person(yet I am super intense at work)! ! ! My friends and family rarely see me because of it but my independence is my highest priority, along with my health, and I am doing those two things.
I totally get you about doing less that the average person. It's the only way to survive I think.
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I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.
BirdInFlight
Veteran
Joined: 8 Jun 2013
Age: 64
Gender: Female
Posts: 4,501
Location: If not here, then where?
This article starts out with the writer saying she too is perceived by others to be a cheerful extrovert but it's only because she can do that in limited spurts, and her true inner reality is the opposite:
https://introvertdear.com/news/highly-sensitive-introvert/?utm_campaign=coschedule&utm_source=twitter&utm_medium=IntrovertDear&utm_content=What%20It%27s%20Like%20Being%20a%20Highly%20Sensitive%20Introvert
I hate being stuck at home. This is one reason I have a nice motor scooter that I can ride pretty much anywhere. Call it the adult version of wandering. I go to garage sales, antique malls and flea markets. I keeps costs low as it gets nearly 75 miles per gallon of gas used. I get very restless if I spend to much time sitting around the house. Mike
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AQ score 43
RAADS-R 221
Your Aspie score: 153 of 200
Your neurotypical (non-autistic) score: 59 of 200
You are very likely an Aspie
This article starts out with the writer saying she too is perceived by others to be a cheerful extrovert but it's only because she can do that in limited spurts, and her true inner reality is the opposite:
https://introvertdear.com/news/highly-sensitive-introvert/?utm_campaign=coschedule&utm_source=twitter&utm_medium=IntrovertDear&utm_content=What%20It%27s%20Like%20Being%20a%20Highly%20Sensitive%20Introvert
Sorry for the late reply - I think my record late reply so far. I fall off WP at times and just struggle with getting back into conversations with people. In this case it was time for me to travel home, then came the usual anxiety over switching environments, and then life happened.
Thank you for the link. I am a bit skeptical about the whole HSP thing - I sometimes think it's just a fancy way of saying BAP, but who knows, I may be wrong. I certainly identify with a lot of the traits, but autism makes a lot more sense to me. And I wasn't at all bubbly as a child, it came later.
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I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.
I have both, which is why I'm so messed up. I get restless at home, love travelling, particularly to new countries, and when I get there, I have anxiety. But I love travelling..... I'm such a basket case.
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I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.
