How many of you have a carer?(who are level 1)

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I don't need a carer.

I need an accountability buddy.
Not that I actually want one.


And if I ever need a carer... There's nothing formal about it, just socially expected.

I already have a few lined up for me.
But the same goes the other way around -- I'm also lined up to be someone's carer in the future.

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I'VE been the carer.
By definition Level 1 doesn't need any support or assistance (related to autism).
I'm self diagnosed autistic level one. My autism made me a GREAT carer because I didn't let emotions run me down or get the best of me or have "breakdowns" that so many NTs have when they emotionally can't handle the stress of being a carer. I caught details that others missed in the caretaking process. I was blunt and to the point, straightforward, which is important when dealing with a mess of doctors and nurses and hired help. I was almost like a dictator. Very tactical and "held it together." I came across as "strong," but looking back, having a blunted affect was a superpower. We've all heard stories of NT women breaking down into sobbing, screaming, "losing it," becoming "unraveled." I held it together like a Vulcan.

I have a support worker visit 2 days a week.

^ i've only had one visit so far.
This is a new thing.
I wasnt expecting to be approved for funding, so its all come as a surprise.

They will help with organisation, reminders, phone calls, appoinments, housework, shopping, transport, work issues, anything within reason.

Hope you're not too disgusted with that.
I find it ok.
But i like people, usually
Unless theyre real c***s.

I have received so little care that it never occurs to me to ask for help, and I don't expect helpers to actually be helpful. Sometimes the problem is that what helps others often hurts my cause. There have been exceptions, but not enough to make seeking them worthwhile.

I was diagnosed before the levels came about, but I'd meet Level 1/mild from my understanding of it all. I require some help with things, but nothing substantial. I don't have any friends in the real world, but I could. I currently don't work, and that's where I need help the most.

No, no carer, albeit I'm a carer for someone else. I kinda don't like asking for help either.

I'm sort of a halfway "carer" for my mother at this point.

maybe a quarter-way carer.

I might do some shopping for her, or some other thing (e.g., getting her mail, taking her to the doctor) for her. But I wouldn't be able to take her to the bathroom should she need that. I don't have the skills to lift her up and all that. She needs an aide or a nurse for that.

I'm a Level 2 with ADHD and mutism. I've also had two strokes.
I used to get OT, PT, VRT, Speech, Social Work, and Psych support (free)
Now I only have support from OT and Psychology but I have to pay on my benefits.

I'm interested in looking at what other services are available.
When I look for ASD carers I only see children's respite services.
There has to be something available?
I'd like what Raleigh has - practical hands-on support with EF, phone calls, organisation, etc.
I don't really want a person in my house but that's something I'll have to get used to.

^ I was supposed to be re-assessed for possible level 2 ASD but owing to very poor organisational skills and an inability to make appointments I didn't follow up on it.
The support worker makes all my appointments now, it's great.

My planning and organising ability isn't very good. I struggle when it comes to multistep tasks.

I have my husband. He does all shopping, all dishes, most laundry. He stays close by when I am extremely stressed and need a presence. I have "Level 1" friends who have a resource visit once a week for executive function support: one has his support person help him prioritize his lists, the other has her support person merely sit and read a book while she goes through her list. Similarly when my (ASD) mom was stuck, I scheduled twice a week "parallel sort" where we get on a video call and do hard things (likely cleaning/repairing the house or sorting clutter). She loves it!! (and my husband does also - since it's helping me get things done I wouldn't otherwise do).

I have trouble with spelling. I keep reading the name of this thread as “How Many Of You Have A Career?”

My spelling is so it is like a bad stutter. Like Porky Pig I sometimes have to pick an entirely different word because even the spell-checker cannot help me.

Ok that is all for my tangent

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