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Should I get a second opinion?

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BillyTree
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08 Jul 2026, 2:53 pm

In the case that you are not autistic I am curious about what kind of problem having a documented autism diagnosis is for you in practice. My experience is that the people that I meet, being medical doctors, health providers, my boss at the job or regular people, occasionally if anything need to be reminded that I'm autistic and cut me some slack when they think I act rude or weird.


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CockneyRebel
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Yesterday, 8:56 am

You should do what you think is right for you.


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steve30
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Yesterday, 12:03 pm

squeeker wrote:
On a second note, I find it a bit amusing we joined Wrong Planet the same date, apparently. I find that kind of interesting! lol


Hehe. That's funny. And in all these years I think this is the first post of yours that I've seen :D.

Tamaya wrote:
My diagnosis was revealed to everybody against my consent because I was a helpless child at the time with no say, and we all know that labels stick.


Thanks. I read your diagnosis story a while back before the site failed. I'm sorry to hear what happened, but at the same time it is reassuring to know that I'm not the only one who had things done in dubious circumstances. Whether the diagnosis is correct or not, being 'labelled' is one of the things that I objected to. All anyone saw was the label. This is still the case (albeit to a lesser extent), and is one of the main reasons why I want rid of it.

fishyfisherton wrote:
I hope you can appeal their decision because it's total BS that they won't even consider it. People can go their whole adult lives before getting a diagnosis so it's clearly optional. It might be worth going private if that's at all feasible. Would it make much difference if you "cleverly" worded it by saying you want to be reassessed for possible comorbids or something like that?


I think the problem from a medical point of view is that AS is not curable/treatable. So in that sense, one could just ignore it. Its not like they are giving you the wrong tablets, or operating on the wrong body part. Also, our NHS waiting list is over three years long, and a private appointment would probably cost well over £1000. So again, its easy to see why one could just ignore the diagnosis rather than revisit it.

In my case I'm doing it more as a matter of principle. But the NHS probably won't want to fund that.