Who is/has been HAPPY to hear you had AS?

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computerlove
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07 Oct 2007, 10:01 am

Zsazsa wrote:
At last I had an explanation for what has been going on all those years.


.


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holdsteady
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07 Oct 2007, 10:31 am

im verry happy at the moment, but my nerves are a bit shot and im running low on valium


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TheMaTrIx
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07 Oct 2007, 1:41 pm

Me: Happy as can be to finally understand why I obviously react differently and can't deal with things others take as normal. I sunk into quite the depression a few years back simply because I didn't understand what the heck was going on with me. Finding out I had aspergers has completely changed my life, pulled me out of depression in a heartbeat and helped me understand that some of the things I've always known I'm good at and with, are also part of aspergers (immediately knowing and realizing that what you have isn't ALL bad is imho the fastest way to acceptance and will also keep away the foolish thoughts and obsessions of trying to get "curred" of a genetic disorder)

Mom: happy and nearly instantly understood and accepted that I need help with certain things and with that quickly learning what things I need this help with.

Dad: at first disbelief, now, after seeing how my life turned around by having help in certain departments, very happy (I never in my life had such a good relationship with my dad as I do now)

Middle Sister: happy, also almost instantly having a new level of understanding and knowing that there are things I'm extremely good at and things I need help in.

Oldest Sister: always seems to have disliked me and now, while my other sister, who's half the world away, knows and understands, still isn't open to even speak about it. For now all she's heard is that I have aspergers, I don't know if she read about the subject, I don't know if she even cares to know. I would have to say she acts even worse towards me then before.

Other family members: some intrigued, finding understanding after reading about it, others don't really care, they accepted and loved me the way I am long time ago.

Work related: much more understanding then I had imagined.



OMGpenguin
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07 Oct 2007, 8:28 pm

I haven't told anyone about it, aside from privileged conversation or anonymity (like on here to a certain degree).

I think if I told someone and they responded "oh, that's why..." it would send me in to a rage.



Flismflop
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07 Oct 2007, 9:51 pm

TheMaTrIx wrote:
Oldest Sister:
-snip-
I would have to say she acts even worse towards me then before.

This is why I don't have any desire for anyone to know that I have AS. There are probably more people who will immediately take advantage of the situation, than there are people who will help. Parents are the only ones that you can trust to not screw you over after they learn of it.


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i_Am_andaJoy
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08 Oct 2007, 2:07 am

i was happy to discover the term AS


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Doc_Daneeka
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08 Oct 2007, 2:20 am

I suspect that my son was quite happy to hear of it. He apparently posts here as well, though I've been careful never to attempt to find out his user name. It would probably be hard to discuss your problems as a teenager were you to suspect to father to be reading them, lol.

At any rate, I do get the impression that our discussions of the autistic spectrum brought about some degree of relief for him.


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CeriseLy
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08 Oct 2007, 2:19 pm

I was kind of numb when I read that NYT article that matched everything that had been going on with me and my dad but years later now< i am finally focusing on myself including aspieness and I need help and I want help and I don't know where to start. I don't expect a miracle. I still have to live life based on my own initiative but I want more personalized information. This website is the only place I look at because ... I don't know ... I have never taken care of myself as a priority before. I am just glad I don't have to cloak and do what I call "customer service" anymore. haha I quit.



AnnabelLee
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08 Oct 2007, 3:16 pm

I was thrilled. I finally understood why I was different. I realized I was not just crazy and that my parents were wrong about me. My mom called it stubborness, laziness, or a need for attention (last thing I want!). My sensory was an "excuse" and my social issues were not "selfishness". Unfortunately, my mother now uses my disability against me. She questioned my ability to raise my 5 kids...though I've been raising them for many years without a diagnosis. How dumb! Suddenly having a name for it equals complete loss of parenting ability? LOL!


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TheMaTrIx
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06 Jan 2010, 1:24 pm

Girl I know understood many misunderstandings between us in the past once she truelly understood what aspergers means.

She's more tolerable for my lesser sides and seems to enjoy my good sides even more.



ursaminor
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06 Jan 2010, 2:24 pm

Icarus_Falling wrote:
I was happy to discover AS, for it led me to understand that there are others out there who share some similarities in, uh, mental peculiarities. For most of my life, I'd settled on the idea that I was entirely different from everyone else, not human, utterly unique.

I'm still utterly unique; but folks with AS are rather closer to what I am like mentally than the majority of so-called "neurotypical" folks out there which is somewhat reassuring. That's what I'm doing here after all.

Ana, has your diagnosis been changed to PDD?

Good fortune,

- Icarus Tries to Relate

PDD isn't a diagnosis.



AmberEyes
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06 Jan 2010, 4:02 pm

Absolutely nobody.

People desperately wanted me not to "have" it.
People were frightened and I was excluded from activities because I was labeled.
This is why I'm frightened of the idea that I "have" anything.

I am a person.

I would never ever say that I "have Aspergers" even if I was formally diagnosed: I would say that I was an AS person or an Aspie. That would put me in control of the situation and my identity, not be a "patient" or a "victim". The word "have" basically puts the medical establishment in control of your life.
"I am" on the other-hand is a statement that puts the speaker in control and not an authority figure.

People don't go around saying that they "have deafness" or "have colorblindness" or "I have Japaneseness".
They say: "I'm Deaf." or "I'm Colourblind" or "I'm Japanese".
I think it should be the same with AS, an expression of someone's identity, not an expression of something someone "has".

The word "have" is incredibly misleading and no one has ever fully explained to me what the thing I was allegedly supposed to "have" was.

I'm sorry, but given my past experiences, I find it very irritating and frightening when people say that they "have Aspergers" rather than saying a more reasonable "I'm an Aspie/Aspergian" or whatever.

It's amazing how much damage a little word like "have" can do.
The word "have" can lead some uninformed people to believe that what you "have" is removable, curable and pathological. So basically, people were saying that my personality was not acceptable to them and should be changed or removed. To them, I basically "had" a "disease" or "syndrome" that had to be changed to fit what they wanted. To them, I couldn't think for myself and didn't "have" a legitimate personality.

They didn't see AS as a state of being, they saw AS as a "problem" that I "had".

I'm very sorry but that's how it was.



Last edited by AmberEyes on 06 Jan 2010, 4:06 pm, edited 1 time in total.

KazigluBey
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06 Jan 2010, 4:05 pm

I was; it gave me an explanation for quite a few things as well as some direction. Now that I know, I can study and take measures to better adapt myself to my environment, whatever it may be.



machf
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06 Jan 2010, 4:21 pm

edal wrote:
I was.

At last I had an explanation for what has been going on all those years.

Ed Almos

Uh huh, I felt the same when I first learned about AS by chance some 5 years ago or so...



CockneyRebel
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06 Jan 2010, 4:39 pm

My parents were happy to hear that I was HFA and that it wasn't anything that was more serious.


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06 Jan 2010, 4:42 pm

I was neither happy nor sad. I was not shocked, but I did not know far in advance. I only had an idea because of my daughter's neurologist pointing out my mannerisms. If it weren't for him noticing, and pointing me in the right direction, I wouldn't have a diagnosis. I was unaware of many of my quirks, because family/friends, never brought them up. I was sheltered from myself.

I endured bullying, but did not connect the two.

Some people do not know of my diagnosis, even in my own family. Some people choose to look down on me, while others say it explains things.