Autism Speaks

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Thanks. I'll have to dig around there tomorrow if I've got the time. See if anyone's saying anything crazy.

I can understand a need to treat those with low functioning or have debilitating co-morbidities,
but there will never be a "cure" for autism. Let's concentrate on dealing with life threatening illnesses
such as cancer. In the meantime check this out: http://www.gettingthetruthout.org/

To quote Cockney Rebel's signature: "Autism Speaks Does not speak for me." Therefore I have nothing to say for Autism Speaks.

Their search function doesn't even seem to work. It needs you to type in the contents of an image, only there's no image.

I was going to search for "Asperger" and see if there was anything wacky said. Hey, they count us in order to get those super high numbers, so that gives us a say in the matter...

I agree with those of you who say that it is doing a bad job of representing those with autism and that it gives a horribly stereotypical veiw that almost portrays those who they support as circius freaks, BUT WE MUST TAKE NOTE THAT THEY ARE TRYING TO DO GOOD NO MATTER HOW BAD A JOB THEY ARE DOING. if i were to giZthem a tip, talk to families of those with autism and talk to those with a mild enough form that it has not preventing them from learning thus rendering them mentally ret*d and learn what they want them to support, and do that. that way there speaking for autism not about those who stare at them.

They don't want to listen to ANYONE! People have told them about CDD vs. ASD. People have told them about AS! HECK, DAVID LETTERMAN had ED ASNER on to talk about this. I HATE ED ASNER! But one interesting thing. He has a son that has AS, is in college, does VERY well, and Ed Asner RESPECTS him! When Ed Asner spoke up, they ignored it, and brushed by it.

This may offend some here, but the very IDEA that AS exists makes it clear that the spectrum is HUGE! GRANTED, some autistics may look similar to her kid, but NOBODY can know how many are even better than Ed Grants son! The idea of a diagnosis will always tend to find the worst.

That's right. I'm diagnosed with AS and I was college valedictorian. A large part of my graduating with a 4.0 can be attributed to my AS traits.

I'm with KingdomOfRats,

I wouldn't mind a pill to alleviate the overwhelming mental pain--torture I feel in the presence of people, it'd help me function much better in society.

I dont know a lot of what they stand for, though they seem to be interested in genetic testing for autistic genes. This could mean in a generation or two, an AS person or autistic person may end up terminated early in pregnancy.

The problem with that is that there have been tests for lots of other things like Downs, etc and people are still having babies anyway. I think it's a concern that people will view it as a way to eliminate autism from the gene pool and create a Gattaca like nightmare, but there are also those that would reproduce anyway in spite of the predicted outcome.

And would someone please tell me how the hell I walked out of my house without my allergy meds today? Sorry, momentarily distracted.

Autism is always likely to be more complex, though. It's already suspected that it's due to many, many different genes interacting, and Baron-Cohen has some convincing work that would indicate prenatal levels of testosterone also play a significant part, so it's a large combination of factors. While it might in the future be possible to eliminate the really obvious cases which would likely develop into very low functioning autism, I suspect that things will be fuzzy enough with the HFA/PPD-NOS/AS people that they'll be unlikely to be aborted for a questionably diagnosis. If we ever reach a future where everyone's sterilised, and embrios are selected and then implanted (possible, but I suspect enough people will always want to go au naturale that this will only be a small group) then you might see all Autism Spectrum Disorders eliminated, but that seems an unlikely future to me. Heck, I'd consider robots taking over the world and destroying humanity a more likely outcome than that.

OOOOhhhh. I vote for that!

Don't you remember? Gattaca ITSELF was baased on that! Vincent was born as an "invalid"(And treated pretty much like black slaves in the US used to be), and his brother was the other kind.

Same here. I have recieved a new warning today for a thread I made suggesting people roleplay their neurological opposite. That thread was deleted and I got a warning. This is my sixth warning.

Meanwhile I decided to report someone for their mean thread about aspergers. A person creates multiple screenames to bash aspies. I thought that thread was deleted but it was just moved and I got a warning for that thread too.

The thread they chose to not delete even though I think it's offensive what this person is doing repeatedly can be found here

http://www.autismspeaks.org/community/f ... php?t=2891


There are some people who attend that board that seem like okay people. Then there are people who you can tell really don't want to hear from you.

Thanks for linking to that. I'm still going to have to check out more of that site. I have no idea what you were "warned" for.

I skimmed over some threads you posted in, and it sounds like there's a lot of AS bashing in there. Trying to connect AS with being a sociopath, etc.

Keep us updated...

I just noticed the forum admin singled out another person in that thread. The poster did not say anything that wrong but the forum admin edited to put in their own two cents which is that person was "baiting" What I remember is the person was asking the poster why he or she was doing that to people with aspergers.

11-06-2007, 07:15 AM
4frankie
Member Join Date: Jun 2007
Posts: 58

What's your point???

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People from all walks of life commit suicide every day and murder people every day. That is the sad truth.

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Last edited by forumadmin : Yesterday at 12:11 PM. Reason: Baiting

I'm thoroughly pissed. This is my last thread there.

http://www.autismspeaks.org/community/f ... php?t=2961

(Sure it will get deleted) so here is what it says.

This will be my last thread here. This is my opinion of this board.

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After multiple tazerings from the admin, it's become way too obvious for me that the admin really does not like autistic people. Aspies are only tolerated if they supress their real thoughts. The last straw was getting a warning which I think was very unfair and proved that this admin is prejudice.

It revolves around this thread which is highly offensive towards aspies. If you look at the edited by the admin threads, you will see that me and Frank were edited and considered "baiting" when the author of that thread was the one baiting.

http://www.autismspeaks.org/communit...ead.php?t=2891

I reported that thread. The thread was moved and closed but it still remains undeleted and the admin chose to warn two people who went against the author who clearly is making multiple names to "bait" aspies.

There are a few members here that I've grown to like.

Matt, Margaret, Little bo peep, C. Darwin and Amber.

This isn't against members that are more open minded or the community members but I'm not sticking around a place that has revealed that perhaps the real reason why they want a cure is because they themselves aren't very tolerant and they don't like us.

I'm not one to hold back frustrations. I don't feel there is nothing wrong with that either. Maybe I don't speak or have the so called right approach but I don't have any inclination to conform to those that think everything should be just their way and can't be bothered to meet others half way. It's a sheer lack of tolerance at play here and it reminds me of that movie Revenge of the Nerds.

The leaders of the frat house being the admin of this board and the aspies being the nerds.

Yes, I am pissed. I'm not going to sugar coat it. For everyone else who were trying to be helpful and creative, you are awesome. Everyone else, bite me!