Stupid things medical professionals have said to you

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Or: What's got outwards to do with inner qualities anyway?

Seriously, that's a messed up statement by a professional, either way.

So far I've been diagnosed with
Bipolar
Social Anxiety
Anxiety Disorder
Depression
Allergies to Sulfa ASA Penicillin

Things doctors haven't listened to me about:
Trichotillomania
OCD
AS
LD
Synesthesia
IBS
Lactose Intolerance (you'd think that would be simple)
Allergies/Sensitivities to: Pork, MSG, Perfume/scents

They look at you oddly whenever you mention something they didn't think up. So I provide them with enough symptoms to come up with it themselves....and then I cross my fingers.

I can help you with some of those. The dr probably looks at you oddly because he's probably wondering what you expect him to do about it. I have extreme environmental and food allergies, IBS, lactose intolerance & Synathesia.

For the Lactose Intolerance there is nothing the dr can do for you; you either take Lactaid with dairy products or avoid dairy products.

Allergies/Sensitivities to: Pork, MSG, Perfume/scents - there is no treatment but avoidance of the offending agents. There are no tests for perfume allergy.

IBS- there is no treatment but avoidance. If one has IBS-C the medication for that was taking off the market due to dangerous side effects. IBS-D the only medication is for extreme cases and since it is narcotic few drs would consider prescribing it. There are no tests for IBS.

Synathesia -There aren't any clinical tests for that so you can't really get diagnosed with it. There's no treatment for it.

As for the LD do you mean Lyme Disease? All I can say as someone diagnosed with Lyme and in treatment for years, few doctors can even diagnose it. I had to see a doctor from over 1000 miles away and the lab tests cost $2000 much of which was out of pocket expense.

Wow. That goes beyond the normal misunderstanding or perhaps stupidity a lot of us experience.

Have you found someone better to see?

The first time I mentioned autism, " You're not autistic, I think you're just trying to get pills off me." Very frustrating!

I was at an osteopathic clinic once and the lady told me to drink an amount of water that would be more appropriate for a six foot large male - she had clearly got this from a text book and did not take into account my diminutive stature.

I have been diagnosed AS by an educational psychologist with twenty years of experience.

My current psychiatrist (I have recently entered the adult, a.k.a. crap, services) who hasn't known me for long, is disputing this educational psychologist. He is also disputing three consultant psychiatrists who have known me for years about my schizophrenia diagnosis. He says that I'm "stressed".

Why have I spent my whole life finding social situations difficult, having panic attacks, being obsessed about certain topics, having "stereotyped movements", not understanding emotions, not understanding social cues, having to learn "social rules" like learning facts from a textbook, etc...?

Why am I functioning 70-80% ok in life while on antipsychotics, but when I stop taking them, I end up in hospital in dire circumstances?
Why, when I am not on medication, do I fall into an acute schiozphrenic episode criteria, according to both the ICD-10 and the DSM-IV-TR, according to at least six other doctors?

My adult psychiatrist is an imbecile. I would love to see him burnt at the stake.

Things he has said:
"You don't have Asperger's, you're just not outspoken enough."
(In reply to me saying that I still have hallucinations) "You have a good imagination, you'll grow out of it."
(In reply to me saying that I still hear voices) "You're not hearing things, they are your thoughts."
(After I had smashed my nose against the wall in a struggle a week ago) "I thought that by now, your nose would look like Pinocchio's."
(In response to me throwing my meds away in frustration) "Ok, that's good, you can stop taking your medication." - three weeks later I'm nearly sectioned.

Rant over.

Said to my mother: "She has a distorted sense of reality. Must take high doses of antipsychotics and everything will go back to normal."

I never saw the bigot ever again, and the person that tried to "help" me "redirect" my OCD-ness isn't a medical professional, per se, she was a therapist, and she sucked, and I never saw her again, either.

Ya that is very strange having a psychologist say that, heres the wiki on what they are supposed to know
Psychologist Wiki

I have been told I was hopeless and I should give up on my dreams, because they were unrealistic. This was long before AS was even recognized as a diagnosis.

I have also been told I am completely normal and have no problems.

A lot of the books I have read on AS are pretty depressing. They say most are unemployed or unemployable (not true in my case. I have been working at the library for almost six years. I do have to work on social and interviewing skills in order to get promoted, but I love the work I'm doing now), usually don't get married and can't understand relationships (maybe partly true in my case, as I'm 43 and single, but I don't think it will never happen), and are social misfits (true when I was younger, but not now. I am active on WP and the Siamese Internet Cat Club).

That's horrible.

I don't understand what I have or if I have anything at all. My son was diagnosed with HFA and I realize maybe there is something going on with me.

I find that I had to dumb myself down for years to talk with other people. The topics like the weather, where you are going on vacation etc. The truth is I don't give a damn about the weather or other people's lives. But it is socially acceptable for people to talk bull to pass the time and to show the good faith that you don't mean them harm. I find the chatter inconsequential. I like to get to the heart of the matter and have real conversations. But there are so many people that have never looked inside to know what the hell is in their heart. I work in a clinic with people who are trying to loose weight and many times I wish I could just tell them: look you have a compulsive disorder that is making you eat yourself to death. Treat the anxiety and get the f out. But people get all offended if you remotely tell them the truth about what's wrong with them. So I am back, talking about the f'ing weather and your vacation where you downed 5 margaritas a day while exposing yourself to cancer rays for a week and got 2nd degree burns. The whole trip was amazing and so relaxing.

Or the skinny perfectionist chick that is no longer 120 and now is 130 pounds. So I wish I could tell them, after you f'ing drink yourself under the f'ing table you don't expect to look like hell and start to swell up like a whale? Are you f'ing kidding me?

It is ironic I am counseling people when I find them so illogical. Every once in a while a person takes leave of their senses and actually listens to what I am saying. For the past few days I had very few of those. Can people be that clueless?

What do you mean I can't eat and drink like a pig and not loose weight? You must be out of your mind if you expect me to exercise and not pig out. F'ck you all, I say, and the f'ng receptionists too.

when i was little (around 5 or 6) my first molars came in and essentially started crumbling (for reasons that were not my fault) and i needed a lot of fillings... my dentist at the time decided not to give me enough numbing stuff to actually have any effect, and just started drilling. then he decided to call me a brat to my mother while i screamed and thrashed about from pain. whee!

also, i have scoliosis and sometimes have a LOT of pain from it (and am usually in at least some pain) so we went to some doctor who did an MRI and informed me that there was "no medical reason" for me to have back pain, and that i was just out of shape... excuse me, but while i am aware that i look ridiculously skinny and weak, i'm actually decently stronger than i look and am in okay shape... and i fail to see how turning wrong setting off enough pain that i have to sit down because i can't stand any more for several minutes is a result of being out of shape... (also, well, my mom has fibromyalgia. DURR, PEOPLE)

When I was around 13, I fell while roller-skating and broke my arm a few inches above the wrist.

When I got to the emergency room, the nurse told me "we won't be sure until we X-ray it. It may just be a sprain."

I laughed despite the pain and pointed out how my arm was now bending several inches away from any joints.

When I was 16, I had a filling put in. I had a very bad reaction to the anesthesia and went into anaphylactic shock. The dentist's reaction: "I'll come back in ten minutes when it's over and give you another shot."

This is what my mom was told when I was six years old by a neurological resident after setting up an appointment to assess me for motor skills impairment.

This is before AS and the other PDD's (besides autistic disorder) were included in the DSM.

My mom: "Do you think my child is autistic?” I am spinning in circles and talking to myself.

Neurologist: "Autistic? No! She speaks.......she speaks well. An autistic child is one in a corner banging his head and rocking back and forth and never saying a word. She will probably need a tutor and some social skills training "

My mom just told me this story recently. I wasn’t diagnosed until I was 13.

Last edited by daydreamer84 on 01 Apr 2011, 10:26 am, edited 1 time in total.