Do Most People You Meet Need To Be Informed?

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ike
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10 Jan 2009, 10:52 pm

Padium wrote:
I want people to know, because I want people to understand and accept me for who I am, but as soon as I say it is like autism, most people who know what that is just cringe and bite their tongues.


If they're familiar with the TV show MythBusters, you might just suggest that you may behave a lot like Jamie Hyneman.


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Padium
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10 Jan 2009, 10:54 pm

ike wrote:
Padium wrote:
I want people to know, because I want people to understand and accept me for who I am, but as soon as I say it is like autism, most people who know what that is just cringe and bite their tongues.


If they're familiar with the TV show MythBusters, you might just suggest that you may behave a lot like Jamie Hyneman.


Wow, thats a good comparison I never thought about.



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10 Jan 2009, 11:46 pm

ike wrote:
Padium wrote:
I want people to know, because I want people to understand and accept me for who I am, but as soon as I say it is like autism, most people who know what that is just cringe and bite their tongues.


If they're familiar with the TV show MythBusters, you might just suggest that you may behave a lot like Jamie Hyneman.


Is Jamie an Aspie? Are you really serious?



ike
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11 Jan 2009, 2:21 am

Ticker wrote:
ike wrote:
Padium wrote:
I want people to know, because I want people to understand and accept me for who I am, but as soon as I say it is like autism, most people who know what that is just cringe and bite their tongues.


If they're familiar with the TV show MythBusters, you might just suggest that you may behave a lot like Jamie Hyneman.


Is Jamie an Aspie? Are you really serious?


I honestly am not sure... but the thought had occurred to me before and then Tiff and I were watching a special show they did -- it was a "the Making of MythBusters" in which they talked more about what the people on the show are like as individuals. And there were a number of comments that were made about Jamie that really seemed to support the idea that he might be. They made the comment that he tends to tell long stories about his past experiences and that they're invariably details that nobody's really interested in but he generally doesn't seem aware that people aren't interested...

They showed a brief clip that had been cut from an episode where he started into a story and Adam said sarcastically, "regale us o' boring one". Jamie didn't seem to even notice that Adam had just called him "boring", he just continued on with the story as though Adam had said "that's interesting, so how did you handle that situation?" Meanwhile Adam's looking at the camera with this "he just doesn't shut up" expression on his face (that Jamie didn't see because he was looking down at what he was working on).

Apparently they pick on him for this kind of thing all the time. But he's the boss and he just sort of tolerates it.

He collects magnets... how's that for an aspie-ish habit? :)


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11 Jan 2009, 2:31 am

ike wrote:
Ticker wrote:
ike wrote:
Padium wrote:
I want people to know, because I want people to understand and accept me for who I am, but as soon as I say it is like autism, most people who know what that is just cringe and bite their tongues.


If they're familiar with the TV show MythBusters, you might just suggest that you may behave a lot like Jamie Hyneman.


Is Jamie an Aspie? Are you really serious?


I honestly am not sure... but the thought had occurred to me before and then Tiff and I were watching a special show they did -- it was a "the Making of MythBusters" in which they talked more about what the people on the show are like as individuals. And there were a number of comments that were made about Jamie that really seemed to support the idea that he might be. They made the comment that he tends to tell long stories about his past experiences and that they're invariably details that nobody's really interested in but he generally doesn't seem aware that people aren't interested...

They showed a brief clip that had been cut from an episode where he started into a story and Adam said sarcastically, "regale us o' boring one". Jamie didn't seem to even notice that Adam had just called him "boring", he just continued on with the story as though Adam had said "that's interesting, so how did you handle that situation?" Meanwhile Adam's looking at the camera with this "he just doesn't shut up" expression on his face (that Jamie didn't see because he was looking down at what he was working on).

Apparently they pick on him for this kind of thing all the time. But he's the boss and he just sort of tolerates it.

He collects magnets... how's that for an aspie-ish habit? :)


I never thought about it...but that does make sense. I'd like to see that episode (not that you can really help me with that, just saying).

Magnets? Gee, that sounds familiar. :P (I don't avidly collect them, but they certainly enthrall me to no end.)


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11 Jan 2009, 4:11 am

It seems that this thread has gone off-topic but I'm gonna answer the OP's question anyways.

I don't talk about it because almost everyone I know outside of my family is from school, and people at school have a very limited view of everything including, of course, autism, Asperger's etc. therefore, telling people at school would only give them more ammunition for potential jokes.

I think they know that I have some sort of special needs but they probably think it's just do to with writing (they have seen me in the SEN room and I use a laptop for writing in most classes) and some people use that to apparently come to the conclusion that I'm stupid even though I am a lot smarter than them.

Everyone I know outside of school are either family, who obviously know, or other Aspies who I have met online who obviously know too.



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11 Jan 2009, 5:45 am

I'll say, while many know, it's my parents that tell them, not me. I would like students in my school to know, but I myself barely tell anyone as I don't really like mentioning it. But now they just think I'm weird. When I do tell (which has only happened a few times) I don't say I'm an aspie, but I say I'm autistic. People seem to understand more that way.


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11 Jan 2009, 5:48 am

SpongeBobRocksMao wrote:
I'll say, while many know, it's my parents that tell them, not me. I would like students in my school to know, but I myself barely tell anyone as I don't really like mentioning it. But now they just think I'm weird. When I do tell (which has only happened a few times) I don't say I'm an aspie, but I say I'm autistic. People seem to understand more that way.


If I used the term "autistic" they would probably start thinking of Rain Man type stuff... I know this because I heard a conversation they had about it.



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11 Jan 2009, 7:31 am

no but i have to carry medical bracelet because of meltdowns when im at city or driving just in case there has accident even i control those whith meds


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ike
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11 Jan 2009, 2:07 pm

SpongeBobRocksMao wrote:
I'll say, while many know, it's my parents that tell them, not me. I would like students in my school to know, but I myself barely tell anyone as I don't really like mentioning it. But now they just think I'm weird. When I do tell (which has only happened a few times) I don't say I'm an aspie, but I say I'm autistic. People seem to understand more that way.


I saw this youtube video recently... brave kid...

http://www.youtube.com/watch?v=rbgUjmeC-4o

There are some things I would have preferred he described differently, like "childlike behavior"... It's really not a question of the behavior being "childlike" -- the issue is that the behavior isn't always constrained or condemned into a specific pattern. It may be childlike or it may not. But it's not that way because it's "childlike", it's that way because it's their preference and the person hasn't been belittled into behaving some other way.

Also he's describing how autism works for him, not how autism works in general. He apparently has some visual sensory issues with reading, which is why they give him video instruction. That's why he says "normally people say books are good and TV rots your brain, but for me it's the opposite". True for him, but not for everyone on the spectrum. And I think it may be unfortunate that viewing that video a lot of people might assume that his description of that specific visual issue is a consistent symptom of autism.

But given that this particular video has been voted up to 4.5 stars by nearly 9k people, and there are a bunch of positive comments, I guess there's something good going on here.

I hadn't sat down and done a search for asperger syndrome on youtube before... there's a bunch of good stuff here tho... I like this documentary clip

http://www.youtube.com/watch?v=WAfWfsop1e0&NR=1

I think this girl named Emily has done a good job too:

http://www.youtube.com/watch?v=hKzY3u_cUhk

I was thinking that if you went through all the AS videos on youtube, you might find one that works for you as an example to give people if you want to help them understand.


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