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BelindatheNobody
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25 Jan 2009, 10:52 pm

Well, think about this: it goes the other way around, too.
For example here... me. I go on sites such as this, and sometimes I feel as if I don't quite fit in/slightly off/weird... because so many people seem to be "higher-functioning" than me...


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KazigluBey
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25 Jan 2009, 10:52 pm

Tim_Tex wrote:
I have found support groups to be way too organized, and you don't really get to interact with the other people, except for the topics that the facilitators bring up.

I have been to Houston and San Antonio meetups with people from WP, and found those settings to be more up my alley.


This one was pretty informal, but that's not a bad idea . . . surely there are others here on the forum who are in Charlotte, NC.



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25 Jan 2009, 11:02 pm

Ticker wrote:
Perhaps its a problem for all kinds of support groups and not isolated to just ASD groups. My therapist INSISTED I join a NAMI support group because she thought I needed to practice my social skills more. Well I went to the meeting place and was totally creeped out. There was people that looked stoned (probably on antidepressants), people so deeply depressed they were in dirty clothes & couldn't hold a conversation, the building was moldy and just a hang out for ret*ds to come watch tv and get of the street. Forget going there to have intellectually, stimulating conversation with anyone or to participate in any hobby. Apparently support groups aren't for higher functioning people of any kind.


NAMI? Do you mean "National Alliance on Mental Illness"? GIVE ME A BREAK! I would NEVER go to such a meeting. Yeah, I guess they will do ANYTHING to make money. Mold can cause illnesses, and trigger problems.

Frankly, for "high functioning" AS, they SHOULD have basically a get together where you can discuss problems and get to know one another. They should allow SOME HFA people, ADHD, etc... but refer other people to groups that are better suited to them.
To do otherwise is insulting and really doesn't help ANYONE.



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25 Jan 2009, 11:09 pm

I find it easier to find someone that I can at least partially relate to , is by going to a hobby group/club, etc. At least they will be discussing something that you feel you can add to it, and won't get bored to tears. The social part might be difficult, especially if others don't quite know how to relate to you, and you to them, but it is worth a try. You might be supprised to meet another aspie at a hobby group. There are many adults that are not diagnosed, so they don't go to the support groups. I find support groups very deprressing.
Everyone talking about depressing things makes me feel like life is hopeless and there is no happiness that i can possilbly find. I would rather go to group where all of the good aspects of mine and others abilities and interests is discussed. I leave feeling hopeful.



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25 Jan 2009, 11:12 pm

KazigluBey wrote:
marshall wrote:
I'm in the same boat. I've recently decided to join an aspergers support group. Sometimes I do okay but other times it's really awkward. I always have trouble getting a word in because some of the others are extremely opinionated and never stop talking. Other times I lose interest in the topic they're going on and on about. I don't know how to be polite about it. They don't notice if I'm bored/frustrated. At least in my group there are a couple 'higher functioning' aspies that are much easier to talk to. Is this your experience too?


I don’t think there are any ‘higher functioning’ aspies in this group (at least none tonight). I wouldn’t call them very low functioning, just lower than me. For example, a couple of the guys (in their 30s) were discussing how much they make per hour and I make twice that much—which potential to go higher. It’s not so much that I’m better, just in a position to do better. Again, this only is a problem in that it makes it difficult for me to feel like I am getting support for issues that I face.

Additionally, I was kind of bored with the fellow’s conversation that went on and on about music and what era he like, which years it spanned and so forth. Those just weren’t things that I find all that interesting—I pretty much stick to computers and technology.

I’ll probably go back from time to time, but I’m still feel short some support for meself and that kind of sucks.

I’m not sure how much money one makes is a true correlation for ‘functioning’. I was talking more in terms of how easy it is to carry on a conversation with the other person.

I know what you’re saying though, that those other people are mostly in a different position in their lives. I guess my purpose for joining a group was not so much for support on life issues as it was to connect with some people. When I went to graduate school I moved far away from all my old friends and relatives and found that making new friends at my age is nearly impossible, at least in the culture here. Nobody in this town goes out of their way to connect with new people. Seattle is weird like that.

I also have a problem finding people with the very same issues as me that I can relate to. They mostly have life issues that would make anyone depressed whereas I’ve been more successful in some ways but deal with a biological kind of depression. I feel like I would have the ability to learn to be more social if I had the energy but I just don’t. The others try very hard to be social but are constantly rejected. I don’t quite relate to that.



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25 Jan 2009, 11:14 pm

KazigluBey wrote:
This one was pretty informal, but that's not a bad idea . . . surely there are others here on the forum who are in Charlotte, NC.


I'll be in Knoxville this spring. Sometimes I do go up to Cherokee or Bryson City too.



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25 Jan 2009, 11:16 pm

2ukenkerl wrote:
Ticker wrote:
KazigluBey wrote:
. I mean one guy started asking me all kind of questions about being married and what my wife was like. He asked me how I thought an aspie could go about getting married.



Well dude I totally feel the same as you. But you gotta admit you are very advanced as an Aspie male just by having a wife. You are light years ahead of most. Even Einstein's marriage was arranged and was his freakin cousin!

You may do better finding a kindred spirit at some hobby group meeting whatever your obsession or interest may be than you ever will at an ASD meeting.


Having a wife does NOT mean you are that much better. Even some LFAs have a wife. I don't say this to denigrate anyone/anything, just saying that that shouldn't be used to determine how advanced you are.

As for me, I may not be married, but I wouldn't go on and on about my special interests, and I also wouldn't pursue such questions about marriage. The most I have done is a kind of informal survey. People tend to find their spouse at school, church, or work. Well, I haven't really pursued college, or gone to church, and am in a field where most people were male(that is only now really changing), and worked for smaller companies. That puts me at a disadvantage. My cautiousness and knowledge about potential problems, etc... creates more problems.

Still, I CAN say that Aspies aren't supposed to easily get married.


Aspies Getting married and living a good productive life is what isn't supposed to be easy. Marrying to another undiagnossed aspie, just because we can realate somewhat to eachother does'nt make it successful, and us much higher functioning ,even if we have stayed married and not divorcced. Neither me or my husband can hold a job. He can hold one for about 3 months at the most, and they walks off the job due to his inability to comminucate with his coworkers and his social difficulties..I can maybe last about 10 days, before my anxiety goes thhrough the roof and my depressions hits all time lows, and everyone on the job hates me. We're surviving, but not necessarirly like I would like to or anything simular to many NT sucessful couples



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25 Jan 2009, 11:23 pm

marshall wrote:
I’m not sure how much money one makes is a true correlation for ‘functioning’. I was talking more in terms of how easy it is to carry on a conversation with the other person.


That just happened to stick out in my mind. One of the fellows asked another guy how much he made and it was $x. The first guy made a similar wage and I was praying they wouldn't ask me because I make a significant more amount of money and felt really out of place. From the conversations, I gathered that such was possibly the max for these guys.

I do realize that it wasn't the best example, it's just what I was able to use as an example.



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25 Jan 2009, 11:26 pm

2ukenkerl wrote:
Having a wife does NOT mean you are that much better. Even some LFAs have a wife. I don't say this to denigrate anyone/anything, just saying that that shouldn't be used to determine how advanced you are.


I don't think in any way official it is being used to determine advanceness as the outside world lumps us all into same category. However I'm stating from my own observations few Aspies, especially men, ever get married so it is a major accomplishment when you see a male that is married. I've met lots of AS adults in person and only one was married and it was arranged. Also relatively few on WP are married and what few there are are mostly the females. Overcoming social awkwardness to even catch the interest of another person IS INDEED a major accomplishment for any of us.

2ukenkerl wrote:
People tend to find their spouse at school, church, or work. Well, I haven't really pursued college, or gone to church, and am in a field where most people were male(that is only now really changing), and worked for smaller companies. That puts me at a disadvantage. My cautiousness and knowledge about potential problems, etc... creates more problems.


While most couples do meet in school that doesn't make it any easier for Aspies to find a mate. Most Aspies continue on into college with the same social ineptness they had in high school, middle school and elementary school. People don't enjoy being around us. Few young people met in church these days because when you go to church its mostly old people that are there. Having said that I was pursued at church by an AS guy who no doubt was confused into thinking church was just a meat market. Which it is not. Neither is work. Few people meet at work and marry. Again I was stalked at work by a few AS men over the years but again few NT's ever hooked up at work and the AS guys seem to just be confused about appropriate behavior at work and church. And also confused about when/where they should be trying to get a date. Most folks meet up at social outings like when college students all get together at parties or on group dates.



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25 Jan 2009, 11:33 pm

marshall wrote:
When I went to graduate school I moved far away from all my old friends and relatives and found that making new friends at my age is nearly impossible, at least in the culture here. Nobody in this town goes out of their way to connect with new people. Seattle is weird like that.


It's not your town. Its the age you (and I) are. Once out of college people get married and have families. Then any free time they have outside work is spent with spouse or kids. People don't go out of their way to make new friends from about 25-65. Once the kids leave nest and spouse either divorces them or dies then they start looking to attend social groups and make new friends. Its not you, its not your city; its the culture. People have so little free time outside of work it all goes to family and have no time for friends who are single. If you have family they might hang out with you though because the kids could play with your kids. If you're single you're not welcome part of society.



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25 Jan 2009, 11:36 pm

I've noticed that my AS son has very little interest in the other AS kids at school. He tends to find them too self-focused, only interested in what they want to be interested in, and not that interested in what he wants to talk about. Even without talking about function level, there just isn't any "there" there, for him. I've tried to direct him to other AS kids (without mentioning why or that they are AS), but it's never worked. His best friends are NT.

I should note that to my eyes the kids I've directed him to are similar functioning to him. All very high. But he still sees nothing in them. If asked, I bet he would say they weren't as smart as him, but he'd be wrong; they just aren't as smart as him in the specific areas he cares most about. So how much is reality and how much is perception, when it comes to function level, is tough to say.

A group like this is different. We're not face to face, and the net that is cast is far wider. We choose what to respond to, and what to read, all of which acts as a natural filter from the get-go. Real life isn't set up quite that efficiently, when it comes to finding a conversation of interest. Which is why this is such a fabulous resource. People need to find someone they can connect with over issues, but finding that in real life is much more difficult.

I would give it a few meetings before deciding if there is any value in it or not. Sometimes the value comes where we weren't expecting it. Now that your preconceptions have to be tossed aside, you might be able to approach the group in a more open way, sitting back to see what might be there for you, instead of looking for something specific. But it is hard, I know that. It isn't comfortable, isn't uplifting. But that doesn't mean value can't be found.


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25 Jan 2009, 11:39 pm

KazigluBey wrote:
marshall wrote:
I’m not sure how much money one makes is a true correlation for ‘functioning’. I was talking more in terms of how easy it is to carry on a conversation with the other person.


That just happened to stick out in my mind. One of the fellows asked another guy how much he made and it was $x. The first guy made a similar wage and I was praying they wouldn't ask me because I make a significant more amount of money and felt really out of place. From the conversations, I gathered that such was possibly the max for these guys.

I do realize that it wasn't the best example, it's just what I was able to use as an example.

I think the fact that the topic of asking other's how much money they make came up shows that these people weren't that socially aware. I mean, I think I would know that some people aren't comfortable being asked about that kind of thing.



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25 Jan 2009, 11:44 pm

2ukenkerl wrote:

NAMI? Do you mean "National Alliance on Mental Illness"? GIVE ME A BREAK! I would NEVER go to such a meeting. Yeah, I guess they will do ANYTHING to make money. Mold can cause illnesses, and trigger problems.

Frankly, for "high functioning" AS, they SHOULD have basically a get together where you can discuss problems and get to know one another. They should allow SOME HFA people, ADHD, etc... but refer other people to groups that are better suited to them.
To do otherwise is insulting and really doesn't help ANYONE.


Yes, I'm ashamed to say but was indeed the same National Alliance on Mental Illness aka NAMI. Though I wholeheartedly insist at nearly every meeting with my therapist that Aspergers is not a mental illness but a developmental disability. But then she gets the DSM 2-4 off the shelf and points where ASD is called mental illness. They also call my brain injury a mental illness which is stupid. Its not an illness its a freakin injury from getting kicked in the head then whacking my head on an icy parking lot a few months later.

But I digress, the NAMI group catered only to major depression types, bipolars and street people it seemed. They didn't even have a token schizo that would at least have proved interesting to talk to as would a DID patient. I once worked with a lady that had DID and have to say she was the most interesting people I've ever known, all 8 of her. This NAMI group was boring and the place smelled bad of ramen noodles and mold which set off all my sensory issues. NAMI should be renamed NASTY. I'm going off on my therapist tomorrow for suggesting I go to that nasty place. Yuck... I'd prefer meeting people with a little more intellect!



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25 Jan 2009, 11:46 pm

I met mine at a Haunted House. My friend dragged me there to volunteer, and I somehow came across my now husband. Something about him made me latch on and put forth a great deal of effort to not loose him as a friend(like I do with many others). I for some reason, felt that this is THE person. We have been married 8 years and have 2 kids,none of it anywhere near easy.



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25 Jan 2009, 11:52 pm

Ticker wrote:
marshall wrote:
When I went to graduate school I moved far away from all my old friends and relatives and found that making new friends at my age is nearly impossible, at least in the culture here. Nobody in this town goes out of their way to connect with new people. Seattle is weird like that.


It's not your town. Its the age you (and I) are. Once out of college people get married and have families. Then any free time they have outside work is spent with spouse or kids. People don't go out of their way to make new friends from about 25-65. Once the kids leave nest and spouse either divorces them or dies then they start looking to attend social groups and make new friends. Its not you, its not your city; its the culture. People have so little free time outside of work it all goes to family and have no time for friends who are single. If you have family they might hang out with you though because the kids could play with your kids. If you're single you're not welcome part of society.


http://seattletimes.nwsource.com/pacificnw/2005/0213/cover.html

I thought it was just me at first but now I don't think so. People act polite but nobody goes out of their way. "stuffy" is the best word I can think of to describe it. It's true that I don't go out of my way to reach out to people but with me it's due to social awkwardness. I get bitter because it seems like with everyone else they could try to be friendly if they really wanted to but they just choose not to. They're NT after all. Also the statistics show that there's lots of single people over 25 here as well.



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26 Jan 2009, 12:37 am

Ticker wrote:
This NAMI group was boring and the place smelled bad of ramen noodles and mold which set off all my sensory issues. NAMI should be renamed NASTY. I'm going off on my therapist tomorrow for suggesting I go to that nasty place. Yuck... I'd prefer meeting people with a little more intellect!


First, just to make it clear, since I didn't really realize it later, I wasn't doing the yelling at you, but the idea that some "psychiatrist" would actually dare to direct anyone to such a general place. And I could see AS as technically being a syndrome or disorder, but not a disease or illness. So we are wired differently, SO WHAT?

I really hope they try to REFINE the idea of AS, and make it clear, as opposed to the generalizing they are apparently considering.