DSM change justified due to pandemic of AS misdiagnosis
btbnnyr
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Some autistic people seem too attention-seeking and whiny to be autistic, because if you complain about your problems and your feelings of upset constantly, then you can't be autistic, because autistic people don't communicate things about themselves and only say things like the sky is green and the grass is blue.
Also, if you know that you are being bullied, then there is no way that you are autistic, because autistic people are not socially aware enough to know about being bullied.
See, based on these, my personal criteria for autism, I used to be autistic, but I'm not anymore.
My autism is in remission.
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daydreamer84
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Professional psychiatrists, after reviewing empirical evidence, decided to make the criteria a little stricter in some ways in DSM 5 and decided to keep the requirement of "severe impairment" for a diagnosis of ASD and to add the option of saying ASD is" in remission". I'm not saying that what professionals say is always right. Of course it's not and of course what scientists believe changes with new evidence ect. My point is this: This isn't some wild proposal that the OP or I came up with based on jealousy of people who are un-impaired. You guys are saying things like "The OP's criteria" or "The OP and daydreamer'84s' criteria". It's not our criteria. This is what the DSM requires. We're just saying we agree with it.
When the OP was talking about bullying she wasn't saying bullying should be criteria for autism or that it is. I'm quite sure she knows it's not. She was describing her childhood and her severe impairment in social interaction, giving an example of it. She never said everyone else's impairment should be exactly the same and they should be just like her to be diagnosed. I likewise did not propose any criteria for autism different from the criteria that currently exist.
btbnnyr
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I agree with the DSM-5 criteria too.
I think they are fine, and I agreed with them all along.
A valid point that multiple people have made in this thread is that no one knows eggsacly what are other people's impairments, and sometimes, people themselves are not aware of themselves having impairments that they have.
I was unaware that I had any social impairments before diagnosis, but I had more then than I do now, since I learned some ways to improve communication and social since.
Also, some people tend to be quiet about their impairments, and their personalities are such that they don't talk about successes or failures much, and perhaps even dont' consider either to be big deals.
I tend to have one of these even-tempered personalities, and I don't say much about problems due to lacking instinct to communicate about problems to people.
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daydreamer84
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I think they are fine, and I agreed with them all along.
I guess we partially agree then.
Obviously though, impairments can be observed by others even if one doesn't communicate about them or isn't aware of them. If not then doctors wouldn't be able to say a non-verbal autistic *(who didn't communicate in any other way) is impaired. Doctors , caregivers, educators ect. can observe impairments in individuals with whom they work. I never talked about being bullied to anyone either (referring to something you said in another post) but my mum observed it when she came to drop me off and pick me up from school and teachers noticed (they mentioned it on my report cards). I had no idea I had social problems but my mum sure did and so did my teachers because I did very inappropriate things, had no friends, was teased, didn't interact properly ect. Again, I'm not saying people diagnosed with ASD should be like me in these ways. I'm just using myself as an example of how impairments can be detected even if a patient doesn't communicate about them.
btbnnyr
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I think they are fine, and I agreed with them all along.
I guess we partially agree then.
Obviously though, impairments can be observed by others even if one doesn't communicate about them or isn't aware of them. If not then doctors wouldn't be able to say a non-verbal autistic *(who didn't communicate in any other way) is impaired. Doctors , caregivers, educators ect. can observe impairments in individuals with whom they work. I never talked about being bullied to anyone either (referring to something you said in another post) but my mum observed it when she came to drop me off and pick me up from school and teachers noticed (they mentioned it on my report cards). I had no idea I had social problems but my mum sure did and so did my teachers because I did very inappropriate things, had no friends, was teased, didn't interact properly ect. Again, I'm not saying people diagnosed with ASD should be like me in these ways. I'm just using myself as an example of how impairments can be detected even if a patient doesn't communicate about them.
My point is about detecting impairments of others through forum, not direct observation, like how would I know what impairments someone really has?
Also, some people who sat that they have severe impairments, maybe they are not, if their personality is to blow things up bigger than they are, again there is no way to tell on internetz.
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daydreamer84
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^^^
Okay, I get it , the OP's observation of people identifying themselves as AS or ASD and not being very impaired can't be trusted because you can;t tell over the internet. Okay, I'll agree with that.Nevertheless her assertion that PDDs might have been over- diagnosed is supported by the fact that the professionals did decide to make the criteria somewhat stricter and by the research that Peter Szatmari discussed (mentioned earlier in the thread).
Verdandi
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Okay, I get it , the OP's observation of people identifying themselves as AS or ASD and not being very impaired can't be trusted because you can;t tell over the internet. Okay, I'll agree with that.Nevertheless her assertion that PDDs might have been over- diagnosed is supported by the fact that the professionals did decide to make the criteria somewhat stricter and by the research that Peter Szatmari discussed (mentioned earlier in the thread).
Yes, this.
Well if that's all it's for then it should be solved by giving a diagnosis to people that have it, and adding a rider for those that are severe enough to need supports or whatever. Simple:
Diagnosis: Asperger's syndrome (no support required)
Diagnosis: Asperger's syndrome (support required = x x x x)
You either have the brain wiring or you don't. If I am an epileptic and I manage my condition with drugs and never have a seizure, I am still an epileptic. If I am an epileptic and go 2 years without a seizure, I am still an epileptic. Same for AS. As a neurological condition, just because environment may be conducive and your traits appear "gone" doesn't mean they are. As I keep saying, once you meet up with the wrong circumstances you will revert quickly. Your brain is wired the way it is.
I agree with whirlingmind but think it should be taken a bit further.
First, Asperger's syndrome is a neurological condition and doctors/shrinks should be able to diagnose it when appropiate and when requested.
The question of disability pension, govt. support etc is a separate question, and should be treated as such. It will depend on age, severity of symptoms etc.
In Australia, we have a: Disability Support Pension
Financial support for people who have a physical, intellectual, or psychiatric condition that stops them from working or who are permanently blind. So there are lots of rules, and there is a points system to to see if you can qualify. So unless you are permanently blind, there is no condition that automatically entitles you to the pension, your level of disabilty must be assessed by an appropriate person.
There are some schemes to aid diagnosed young children cope in school as well.
So, it is in fact better than I thought.
I was self diagnosed early this year, but I am also 64, so don't see the usefulness of getting an official diagnosis. I have managed to cope so far (not always very well). I see my self diagnosis as an extremely significant event, as it has enabled me to see myself in a very different light, and explain my behaviour.
So, here at least the diagnosis does not automatically get you any support from the govt.
Agreed with all of the above posters. I like the criterion proposed by whirling mind. Also, I should mention that I know bullying is not an official symptom of Aspergers Disorder as described in the DSM-IV. I was using it as an example for two reasons - firstly my initial post was "sparked" from the discussion in the bullying thread (as another poster said), which led me into a side topic sort of train of thought which I posted up as a new topic. My OP is not perfect, I'm sure if I spent a couple of hours writing it and linking multiple references I could make it a little more hole-proof - however, I preferred to initiate the conversation with a few ideas and have it develop as it went. I thought it to be a reasonable example because of its high commonality in people with AS and the cause effect relationship between social dysfunction and being bullied.
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I agree with whirlingmind but think it should be taken a bit further.
In my opinion:
If the type of support we are discussing involves things like medication, therapy, social skills training, etc., the Psychologist (or whoever is conducting the assessment) should include a set of recommendation along with the diagnosis. That could include additional assessments (e.g. a medical consultation with a psychiatrist).
If the type of support we are talking about is Government assistance, then a Government body should make a “needs determination” based upon the diagnosis + recommendations.
I think this is consistent with both whirlingmind and kabouter.
This too.
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Anomiel, since you happily chopped and pasted bits and pieces from my OP, re-assorted them completely out of context, and then made BIZARRE (no exaggeration here
) accusations and assumptions about me, after I had already wasted my time responding to the sensible part of your other comment, and politely explaining why my views are actually oppositional to just about every negative attribute you ascribed to me, I honestly don't think I can take anything you're saying seriously, or bother responding in context. I'll copy paste my favourite bits.
You word it like if AS is some brain parasite that controls it's hosts behavior.
You seem to view being NT as something extremely positive, and ASD as this horrible disorder because of the differences we have from NTs. Go sit with the other Autism Speaks eugenics supporters.
So for you AS is a horrible disorder based solely on peoples acts against you - is being gay inherently bad because you experience discrimination? Is being black?
Is being a woman a disorder? If a woman haven't been raped, or haven't told you that she have been raped, is she not a woman?
Any child would understand that if a texture offends you, you stop touching it. You should really go to a neurologist if your senses have been dampened, because that means you have some neurological trouble.
Constantly whining publicly enough for a complete stranger to take notice is often a sign of being a whiny person
I am offended by the implication that you, a stranger on the internet, have some sort of knowledge about people you haven't talked to that them or their diagnosticians haven't [note from sunshower: I'm pretty sure that it's hard for a person to have no knowledge about something they are actually saying. Unless you're suggesting they've been hypnotized?.
Ok, so you've somehow managed to associated me with eugenics, racism, homophobia, misogyny, pro-rape, histrionic personality disorder, some form of neurological disorder, and possibly other things I've missed in a single relatively short post.
Impressive and quite amusing.
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I only read the first post and I widely agree, however: due to the complexity and plasticity of human intelligence its effectively impossible to prove or reliably pinpoint any of the claims. So to speak they can only be realized by some immense pool of coherent knowledge and rational conclusions as well as the appropriate personal experiences (like a 30-year-experienced doctor in the field would have). Or in other words, its just unarguable. Someone non-verbal 50 years ago might cope and never visit a doctor nowadays, only because he has internet access. The power of intellectual effort is not to be underestimated given the appropriate environment. What a child can understand now in grade school used to be unimaginable by the most brilliant scientists 1000 years ago. Access to precompiled knowledge frees up immense amounts of cognitive capacity, capacity that can be used for everything.
But anyway, diagnosing mental disorders is and always was just widely guesswork. Its basically to mental health what used to be shamanism to physical health. The theories make some sense, but then not really and the effective outcome rarely leads to a cure. In that sense, its kind of pointless to argue rationally with a widely irrational framework. But we got nothing better currently, so something (however nonsensical) is likely better than nothing.
I see basically the same thing happening with AS as with BPD (borderline personality disorder) or bipolar and even just plain depression. By my observation, they even seem to sometimes diagnose just because they believe the therapeutic measurements would help although the diagnosis itself is extremely misfit. Imagine a person had some unknown infection and you could only get antibiotics if you knew what the infection was: it makes a whole lot of sense to misdiagnose. Same thing can possibly be true for mental disorders.
Doctors diagnose just more and people keep coming up with their problems to health care more frequently. It used to be that diagnoses were only done if it was dead obvious, if even an educated layman could see what it was, so to speak the person was the near-exact cliché of the very diagnosis. That just changed. In simple numbers, even if a diagnosis fits only 20%, you are probably better off tackling that 20% than to do nothing (even if there could be collateral damage, e.g. by medication). That is the real pragmatism behind diagnosing more loosely. But the whole framework still works with the notion that it is either on or off, that the diagnosis is true or false, applies or does not apply and people get confused, understandably, because like I said and like it would become obvious to you too, if you had years and years of knowledge and experience with mental health, its because its basically all still BS, very much in its infancy. Don't take it too serious.
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I have mainly read the original post and a few others.
As someone who is awaiting a possible diagnosis at age 30, I must say I am ambivalent about some of the claims. Firstly, being bullied is not the foundation for any form of diagnosis. No, I was not bullied as a child to a disabling degree, but I was still hurting. Secondly, very few people would seek out a diagnosis or help if they did not feel the massive disadvantages of being on the spectrum. It is much like with personality disorders: Most people can relate to a few of the characteristics, but when it becomes disruptive to your life it calls for a clinical diagnosis.
In regards to the diagnostic criteria; I have no issues with that. As a psychology student I have learnt to adjust to the forever changing diagnostic manuals without batting an eyelid. But it is also important to recognize that autism in most forms presents slightly differently in females than in males. My social skills as a child were probably slightly better than yours, but I was still unable to interact with my peers in a satisfying manner. My sensory issues did not cause me to wretch (reactions like these do not necessarily show the severity of your sensory issues or physical sensations, but rather your inability to deal with them), but I struggle to wear clothes to this day. I have numerous issues in every day life. If I had no issues, I would not bother seeking a diagnosis. I really doubt many young or old adults would put themselves through the scrutiny simply to wear an autistic badge.
That many are proud of who they are, including their autistic traits, is fantastic. That they stand up for themselves and say: "I am different, not wrong", "I can function and thrive in the right environment", "I have more to give than you think" is nothing short of amazing. I am sorry if you cannot relate to this.
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btbnnyr
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As for ackshul misdiagnosis based on real life observed traits instead of internet-eggspressed impairments, that is probably happening particularly in children, with the super loose and vague PDD-NOS criteria from DSM-IV, but they have fixed that in DSM-5.
However, research has not yet reached clear conclusions on what is the meaning of the many people with PDD-NOS who don't meet criteria for ASD, but show social and communication traits very similar to ASD.
New NIMH approach and studies suggest that autistic traits of people with PDD-NOS are same as those in people with ASD.
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whirlingmind
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However, research has not yet reached clear conclusions on what is the meaning of the many people with PDD-NOS who don't meet criteria for ASD, but show social and communication traits very similar to ASD.
New NIMH approach and studies suggest that autistic traits of people with PDD-NOS are same as those in people with ASD.
And that doesn't surprise me at all. I think the laziness of clinicians using PDD-NOS simply speaks to how little they truly understand the autism spectrum. PDD-NOS is a kind of stupid label anyway, instead of understanding that all autistics are different with their own blend of the traits and their own personalities, and that personalities and life experiences will often affect how the traits appear or are expressed at assessment, coupled with the likelihood of at least a degree of alexithymia meaning they may have trouble identifying things in themselves to clinicians, means they have just failed to delve deep enough to understand and just slapped such a stupid and meaningless label on people.
"Not Otherwise Specified" is pathetic really, it could just be taken to mean they didn't have that exact description in the manual, it doesn't mean it wasn't AS or HFA or whatever. It just means science hadn't got to understand it well enough yet.
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