im starting to want a cure..
PwoperNereguar
Yellow-bellied Woodpecker
Joined: 10 Jan 2016
Age: 28
Gender: Male
Posts: 51
Location: Nottinghamshire, England
Like I said, lucky you. Your version of autism is what I would hope for if they cured me. To me what you are describing sound more like quasi-autism or maybe even pseudo-autism, compared to how it effects me.
Wetting yourself if left alone is not part of Aspergers. The things I've said are all the very definition. Physical disabilities, such as say immobile legs, are not part of AS, it's just another part of who you are. Just because you have something others don't doesn't chuck it unto AS. By definition, there are perks to AS. AS is mainly sensory and social things.
Like I said, lucky you. Your version of autism is what I would hope for if they cured me. To me what you are describing sound more like quasi-autism or maybe even pseudo-autism, compared to how it effects me.
Wetting yourself if left alone is not part of Aspergers. The things I've said are all the very definition. Physical disabilities, such as say immobile legs, are not part of AS, it's just another part of who you are. Just because you have something others don't doesn't chuck it unto AS. By definition, there are perks to AS. AS is mainly sensory and social things.
I'm afraid things like wetting myself is very much due to my autism. A lot of the kids I attend a special ed school for kids with autism have similar issues. All the problems I described are due to cognitive impairments due to autism. I have been tested and evaluated umpteen times by experts in the fields of neurology and psychology specializing in autism. On a scale of 1 to 10, maybe your autism is a 2. For others it's a 6 or even a 10. It's really not some simple mild cut and dry thing. You may have it to a mild degree, but you don't really seem to have any real practical knowledge about it. Which is fine, because most people don't due to its complexity. But at the same time I don't think you should make statements as fact, when they are actually closer to subjective anecdotes.
Like I said, lucky you. Your version of autism is what I would hope for if they cured me. To me what you are describing sound more like quasi-autism or maybe even pseudo-autism, compared to how it effects me.
Wetting yourself if left alone is not part of Aspergers. The things I've said are all the very definition. Physical disabilities, such as say immobile legs, are not part of AS, it's just another part of who you are. Just because you have something others don't doesn't chuck it unto AS. By definition, there are perks to AS. AS is mainly sensory and social things.
If your sensory difficulties mean that you cannot tell when you need the toilet, or if you get stuck on one task and are unable to change and go to the toilet, etc, then toileting needs can be related to ASD. Lots of more severely affect ASDers have this difficulty.
_________________
Diagnosed with:
Moderate Hearing Loss in 2002.
Autism Spectrum Disorder in August 2015.
ADHD diagnosed in July 2016
Also "probable" dyspraxia/DCD and dyslexia.
Plus a smattering of mental health problems that have now been mostly resolved.
There are people who are severely disabled with individual personalities who have good qualities and bring joy to other people's lives.
Stephan Hawking was very disabled and yet he also contributed impressive amo
Luckily nobody said that.
A disability is a lack of ability. Not having something others do. But the abilities AS people have cancel out the disabilities. If anyone who has a disability is disabled, then literally everyone who has ever lived has had a disability.
Disability, as it is used by the medical and social models of disability and as it is defined by many governing bodies, is not simply lack of ability. If I want to play the flute, but cannot I may lack that skill but in itself does not mean I am disabled.
In Britain, you are defined as disabled if 'You’re disabled under the Equality Act 2010 if you have a physical or mental impairment that has a ‘substantial’ and ‘long-term’ negative effect on your ability to do normal daily activities.'
'What ‘substantial’ and ‘long-term’ mean
‘substantial’ is more than minor or trivial, eg it takes much longer than it usually would to complete a daily task like getting dressed
‘long-term’ means 12 months or more, eg a breathing condition that develops as a result of a lung infection
There are special rules about recurring or fluctuating conditions, eg arthritis.'
It doesn't matter whether you also have 'good' qualities, as long as the difficulties are there.
This document here provides a very long explanation of what a disability is. https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/85038/disability-definition.pdf
Here are the autism case studies, which I assure you have explanations for.
'A six-year-old child has been diagnosed as having autism. He has
difficulty communicating through speech and in recognising when
someone is happy or sad. When going somewhere new or taking a
different route he can become very anxious. Each of these factors
amounts to a substantial adverse effect on his ability to carry out
normal day-to-day activities, such as holding a conversation or
enjoying a day trip, even for such a young child.'
'A man has Asperger’s syndrome, a form of autism. He finds it hard to
understand non-verbal communications such as facial expressions,
and non-factual communication such as jokes. He takes everything
that is said very literally. He is given verbal instructions during office
banter with his manager, but his ability to understand the instruction
is impaired because he is unable to isolate the instruction from the
social conversation.
This has a substantial adverse effect on his ability to carry out
normal day-to-day communication.'
_________________
Diagnosed with:
Moderate Hearing Loss in 2002.
Autism Spectrum Disorder in August 2015.
ADHD diagnosed in July 2016
Also "probable" dyspraxia/DCD and dyslexia.
Plus a smattering of mental health problems that have now been mostly resolved.
You also write amazingly well. Most 15-year-olds cannot write like you write.
And you have good insight into human nature.
You're not a total loss, Sir.
Just continue to work on yourself....and you will get better at the things which you describe.
I know you have lots in your head that's good.
I have picked up a few little trouble shooting tricks when it comes to forums. But a comprehensive knowledge of them is beyond my abilities. As far as writing goes, not meaning to be argumentative, I believe my abilities in that area exist in spite of my autism, rather than because of it. The things I am good at, I am good at because those are the few things not effected by my autism, or less effected by it. But even with writing, I have an extremely limited ability to understand rules of grammar and phonetics. But thank you, you are a very encouraging in the things you say and most kind.
Last edited by EzraS on 21 Jan 2016, 8:46 am, edited 1 time in total.
Always keep in mind that autism is a spectrum.
One autistic person could have virtually "normal" functioning, while exhibiting various symptoms some of the time.
Another requires the constant use of a helmet because of self-injurious behaviors. And is not able to communicate verbally or use the toilet.
Of course, both of these are the extremes.
Be that as it may--whether it's owing to your autism or not owing to your autism, you do have certain abilities.
The possession of these abilities, in and of itself, enables you to expand upon those abilities as you gain experience in life.
Your autism might impair you in this expansion of your abilities--or it might not.
Honestly, I see you as a person who learns readily--especially if something interests you. I've seen the change in your writing since you started here about two years ago. I've seen the expansion of your knowledge.
There are many people who can be useful citizens even while under the care of others.
The possession of these abilities, in and of itself, enables you to expand upon those abilities as you gain experience in life.
There are many people who can be useful citizens even while under the care of others.
No argument there. I plan to push and expand as far as I can go and be as useful as possible.
But as far as an autism cure goes, for me personally, I don't see having my autism removed, removing any if my abilities. Only my inabilities and disabilities because of it, allowing me fully flourish rather than only partially flourish.
If you don't have any clinically significant traits and show no impairment then I would question your diagnosis. Maybe you're just a weirdo that doesn't like certain textures and sounds, the whole social impairment is pretty integral to autism. I don't need to list all the pro's about myself, since one they're not the same as yours and two, I do not have this delusion that I am somehow special or have super powers. There are no abilities that "cancel out" the impairment that ASD brings, socialization is humanity and being able to focus on a bunch of stuff nobody besides you cares about doesn't change it. I know quite a bit about a lot of things, none of it does me any good. I am struggling, I need help, sorry for not sitting around all day thinking about the positives. It's a very therapist thing to do, "make a list of things you like about yourself" which is something I hate since it's vain at best or just sad. Perhaps I'm at a different point in my life, it sure as hell is a disability to me.
I'm really pretty socially impaired. I make lots of social mistakes.
If I try to place myself within "normal" groups under their terms, I would be "found out" quickly.
I set myself apart, and come across as the "court jester" or "village idiot" or something like that. I'm halfway successful in this.
Over my life, I've learned about people and how they tick. Despite this, I still don't really have any "best friends," per se.
I was quite severely autistic until age 5. Then I became Aspergian in presentation. I don't know why this happened. I had a speech delay--didn't speak till age 5 1/2. I caught up quickly, though, though not in "social" speech.
I feel impaired in life--but I'm fortunate that I was able to find a suitable job.
No one is asking you to think of positives. Just quit questioning others who do find positives. Quit demeaning them because they make list of things they like about themselves. Quit questioning their diagnosis because they don't completely hate their autism and think exactly like you.
No one is asking you to think of positives. Just quit questioning others who do find positives. Quit demeaning them because they make list of things they like about themselves. Quit questioning their diagnosis because they don't completely hate their autism and think exactly like you.
Denying it is a disability disenfranchises me, it makes my life harder, I do not care about how it makes you feel about yourself since real life is more important than feelings.
Sweetleaf
Veteran
Joined: 6 Jan 2011
Age: 36
Gender: Female
Posts: 35,278
Location: Somewhere in Colorado
However, it could be worse. I know a 19 year old who broke his neck in a trampoline accident when he was 17 and is now a C5 quadriplegic. His situation is a lot worse than mine, so I'm thankful I'm not that bad off. The thing he's most thankful for is he can breath without a respirator.
It's actually rather funny when you think about it. NTs label us as having special needs because they don't know what to think. I mean, do we have special needs? Or do they? What do we need that they don't? Because from what I've seen they need more things than we do. We've grew up tolerating being left out and with few friends. Grown up having to deal with hypersensitivity. But we got through it. On our own. We didn't 'need' anything. Whenever I see an NT my age who's left out they go crying to Facebook about it. I just find it humorous because you're upset that you're always going to be considered as special needs, but who's considering you as that? NTs are. We don't have a say in that. They like to think of us as less than able, 'disabled', but we're just as able to function, if not more so, than they are. So why let their opinion hurt you? I mean, you're just as able to see them as special needs as they are you. Do we really have more flaws than them?
I certainly did not tolerate being left out and not having any friends too well, nor did the hypersensitivity that no one understood help matters. So for me at least it would be a stretch to say I got through all that entirely on my own...I tried to off myself when I was 15 it it wasn't for that concerning people I might have tried again and succeeded. People in general cry about stuff on facebook, I prefer not to put personal feelings and such up but not sure that is an autism thing since not all neurotypicals like posting that sort of stuff either.
I am certainly not better at functioning than NTs...this Nts are inferior and Autistics are better crap is obnoxious, and if you don't have any struggles how do you have a diagnoses?
This has nothing to do with one being superior. If anyone's suggesting one's superior here it's you thinking that neurotypicals are superior. I do struggle, but I've handled it. Without 'special needs' If you're saying you have 'special needs' because you get upset and need help, then everyone has special needs. My argument is that we don't have special needs and it's not a disability because we have things they don't as well. Being socially not as good does not mean we're disabled and inferior. We're more driven and calculating, so does that make them inferior? No, so it's ridiculous to say that our flaws make us disabled but their flaws make them superior. What needs do we have that they don't? Special needs is really pushing it. It seems that anyone who suggests that we have pros as well as cons is someone who thinks they're superior, yet thinking that we're 'disabled' and aren't capable of things NTs are is fine.
-The sensory issues have always been fairly problematic and it was even worse before I understood anything about them...I'd find what people took as normal volume or a normal amount of light to be painful and then get accused of whining about nothing if I complained, having no knowledge it was a real sensitivity I took that to heart.
But we can hear, see and feel things others can't. I can hear people talking from rooms away, and it's really helped in situations. NTs cannot do that. Nor can they see minute details.
That's anxiety. AS is just not being good at socialising. And not being good at socialising is just as much a disability as not being able to focus intensely on something and think things through at a fast rate.
And that's a flaw? NTs can't analyse and focus on a subject like we can. Our intense obsessions are just as much a disability as not being able to intensely obsess and analyse. It's a difference. Pros and cons to both, just like every other aspect of AS.
Nobody is motivated when being forced to do something they don't want to. Like school; nobody's motivated. But we're calculating. Analysing things and people at a fast and intense rate is calculating. NTs just focus on the bigger things, which is a good thing as well, but being able to analyse the small things is a pro too. And everyone gets really upset and needs help a lot. My mother has depression and has to look after the whole family, stressing out all of the time, and she has no 'disabilities'.
No, I was saying that we have pros too. People are quicker to get at someone for saying that we're just different than at someone who says we're worse off. NTs define what's a disability and what's 'normal'. They like to make us feel bad about it, but there a pros too. See how you've been conditioned to be defensive when someone says that we're not disabled and have pros that NTs don't. It's like some people willingly ignore the pros just to feel bad, when they're so clearly there.
I didn't say the sensory issues were all bad, it does seem to make senses a bit stronger....but at the same time it can make normal environmental stimuli to overwhelming, which makes it difficult to even think. NTs have normal senses which allow them to sense things adequately though no extra sensing abilities, but they also don't have to deal with being too overwhelmed by surroundings to the same degree as we do.
Also my not being able to approach people actually is not anxiety, it is not accompanied by any anxious thoughts....I am not worried what the person will do/say I just cannot approach them. Like some block in my brain, I will want to but its like whatever brain process makes one go and approach another person doesn't activate in my brain. If it was just anxiety that would make it easier.
And I struggle with motivation even for things I want to do........I guess you are right on the calculating thing though.
_________________
Tis the time to melt the Ice.
No one is asking you to think of positives. Just quit questioning others who do find positives. Quit demeaning them because they make list of things they like about themselves. Quit questioning their diagnosis because they don't completely hate their autism and think exactly like you.
Denying it is a disability disenfranchises me, it makes my life harder, I do not care about how it makes you feel about yourself since real life is more important than feelings.
Agreed. If people are flat out saying that autism is not disabling in many respects then I would disagree with them (I haven't left my house in days). However, I also can't find fault with people who are trying to find positives in their experience. I don't believe that is disenfranchising at all. A disability doesn't have to have a 100% negative effect on your life to still qualify as a disability.
If I try to place myself within "normal" groups under their terms, I would be "found out" quickly.
I set myself apart, and come across as the "court jester" or "village idiot" or something like that. I'm halfway successful in this.
Over my life, I've learned about people and how they tick. Despite this, I still don't really have any "best friends," per se.
I was quite severely autistic until age 5. Then I became Aspergian in presentation. I don't know why this happened. I had a speech delay--didn't speak till age 5 1/2. I caught up quickly, though, though not in "social" speech.
I feel impaired in life--but I'm fortunate that I was able to find a suitable job.
That's really interesting. Stories like that make me want to read some more research studies on autism.
I always thought I had a normal early childhood. Then I found out from my parents how different I was. I was not very interested in social interactions and didn't really use facial expressions. There were a lot of other behavioral differences, too.
I spoke very early, however, and was very advanced in language skills for my age. I wonder why?
Those things really interest me and make me want to find out why symptoms can be so different from person to person.

