Dx April 14, 2016

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Lifelexia----good one!

Yep...that's what we have: Lifelexia!

It almost seems like we can't read/interpret life.

Then again, lifelexia could be interpreted as being a lifelong love of reading--research, learning in general.

Last edited by kraftiekortie on 15 Apr 2016, 9:24 pm, edited 2 times in total.

It took over a year finding "it is only mild autism" is quite disabling, contrasting no autism.

Yeah, it's given me a new perspective. Just how a few things that go wrong creates such a landslide of trouble that affects not only your life, but those around you in profound ways.

It's not a nice realization to see things for what they really are in many cases. Meltdowns and the severity of the effect it has on others. It is a nice realization as to the mechanisms that are being revealed and now can correct things before it's too late to do good things in my life. Doesn't have to be big things. Just good things.

Here is an example of why I am afraid of certain things until I get a grip on things. Everybody has a damned cell phone of some sort and they will put anything up these days for public ridicule and then makes the news. This is not the first time I have seen this happen. I have been lucky so far. But, I don't want to depend on luck.

http://www.foxnews.com/travel/2016/04/1 ... ntcmp=hpff

So, even the police got called. But a meltdown in public may not be so easily solved and cause worse legal troubles. But the public ridicule and exposure would be traumatic for me.

You can't do anything these days without someone shooting it and posting it......

Congratulations on your diagnosis! It always feels validating to get a reason as to the way you are. I got my, well, kind of "diagnosis", at age 20. My grandma was more happy than I was, she always suspected I have Asperger's (the psychologist I saw used the DSM-IV).

Thank you....It's been a bit funny. I talked to my Mom about this at length on Thursday. I was telling her some of the things I learned such as the body language and facial expressions being disconnected to other expressions. She just said, "Huh, I just always thought that was you." I about fell out of myself with laughter.

I know my mom. She was not being dismissive or anything. It was just like I was when I would say to myself, "Huh, so that's a thing, eh?"

And, this is the woman who loves, tolerates and supports my father, who is far worse than me, myself and brother.

So, for all you NT people with ND spouses and children, My mom understands. LOL

Wait, zkydz, it says level 1 without intellectual impairment, so where's the intellectual impairment come from? [/tease] Oh snap! (I think this is an NT saying akin to a magic spell, if one doesn't say it the spell doesn't go off, and thus the put down does not take-- as far as my understanding).

Oh wow...I am totally lost...can you please explain? I get that it's not offensive (Like the [/tease] BTW...makes it clear ) I just don't follow. Sorry.

I got a PM from someone and they said something profound that it took a day or two to fully process:
They said that they were feeling as if everything was their fault. I remember going into rehab. At that time I thought everything in my life was my fault and I became the sin eater for everything and everybody. I took on too much sufferage that I didn't really need to.

I am not going to make this mistake this time. I am much more in control of my faculties than a person going into rehab after severe clinical depression and suicidal ideation.

The NT world does bear some responsibility. If you see someone melting down, why the hell do they keep pushing and then blame you for everything? Some of it I will accept. But if a so called 'rational person' does not evaluate when someone is losing it, and just keeps pushing, I have to wonder who is really the more at fault. The irrational person has lost control. The rational person hasn't.

So, trying to find balance and learn to better adapt is my goal.

Lol, your diagnosis was "ASD without intellectual disability"...so if the autism isn't causing the intellectual disability, what is causing it? (I was calling you stupid, which we both know you're not, hence the reason I made sure to [tag] it as such). It's more a riff on the diagnosis itself, since to have autism intellectual disabilities have to be ruled out as a cause of the symptoms-- it's unnecessary to include that in the diagnosis, almost like a back handed compliment from every clinician that diagnoses, lol.

I can understand why she would get so upset. She had booked a Disney cruise and she couldn't miss thew departure so she wasn't even sure if she would make it. What would satisfy me is if they reimbursed my tickets. There, problem solved and I am happy and money isn't wasted. I wonder if she would have acted any different if she wasn't waiting for another departure. One of the stressful things about flying and if you have to catch other flights or be somewhere by a certain time, you never know if there will be any delays and I have had experience where computer systems mess up and they can't find your seat booking so it acts like as if you had cancelled your flight and then you are on standby. I have had meltdowns at airports but never acted that way but probably would have if it were me alone. My dad would just tell me it's part of flying so get used to it and this is normal stuff. But yet he acted a similar way when he and my mom went to Mexico so my mom had to tell him to shut up and then announce his diabetes in front of the woman who checks passports and asks you questions just so she would know why my dad was acting the way he is. He was low blood sugar so that affects how he acts and he wouldn't eat anything on the flight. He did shut up and my mom handled the rest. She said part of it is his ADHD. They also had a delay and then they had a half hour to catch their next flight so my dad acted the way he did and it wasn't the woman's fault because she had no control of the situation and she was just doing her job and his behavior would have made them not be able to board the plane. Then when I was going to fly out to Wisconsin my mom was worried about it because I have anxiety and if I have a meltdown, they also won't let me board. I wonder if the woman in the video had anxiety. I think I would have been anxious too in that situation. What I think is a good idea is always not booking things so close together so I can make room for delays and I wouldn't have to get so anxious even if it means waiting a few hours between flights. The longest I have waited was five hours when my mom and I went to London. I had my music and video games and latch hook kit and airports have stores to look in and books to read and magazines.

And sometimes flight delays are good lol because my parents went on a trip and they read their tickets wrong so they were late and if the flight were on time, they would have missed it and their two seats were about to be given up when they arrived so they had to call to let them know the two people had arrived.

The "intellectual disability" part makes it sound like it's part of autism so hence why they have "without intellectual disability." Same as for language impairments.

I'm saying it's redundant. If there are intellectual disabilities or language impairments then that should go into the diagnoses (and does), stating that it doesn't is redundant because it's assumed one does not have other impairments for the diagnosis unless specified.

Edit: As an example, there's seasonal affective disorder, major depression, and bi-polar under the "depression" spectrum, do you see any of those diagnoses with a qualifier? "I was diagnosed as bi-polar without intellectual disability." Of course you don't because intellectual disability is a completely different issue, as it should be with autism.

Last edited by Aristophanes on 16 Apr 2016, 11:18 am, edited 1 time in total.

OOOOOhhhhhhh....LOL...I gotcha now!! I now, literally, have the Three Stooges version of "Three Blind Mice" playing in my head.

I think it has to do with how they write up support notes though. BTW...their notes on support are so cool. That was the most exciting part. It mirrored most of what I thought I needed but have trouble convincing people because of the mask and apparent intelligence. They also identified areas that I did not know I could get assistance on. A lot of executive functioning stuff, of which I knew I was bad, but found out it's worse.

And I managed, through help of a lovely lady at the mobile crisis unit, to start to consolidate all my medical under one roof since I'm being treated outpatient at a hospital that has full clinic medical services. It's quiet. Calm. Not the crazy things you face in most other places. And, I don;t get pinged around the city so much. Getting lost, leaving early so I have time to find my way, trying to account for transportation failures, etc. And, it's not far. So limited outside, amongst the people of NYC.

BTW, for those who live in or been to NYC, imagine Guangzhou, where I was in China for three weeks. It's about the size of the 5 boroughs of NYC. With six times the population. No wonder I was bouncing off the walls for a while. I literally spent almost the entire time in a small room trying to avoid people, the smells, the pollution, and they are so packed in, they do not have any personal space. *shudder* But, you gotta go out and do the social thing to save face for the family. It is duty.

I get what you;re saying. But they post anything without regard to privacy or other concerns. Everything is fodder to frame you and your actions for the rest of your life. There actually was a time when you could make the basic mistakes or get angry without worrying about someone taking something out of context, making it public and having that frame you as a certain type of person just because they found it 'entertaining.'