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skibum
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05 Jan 2019, 12:10 pm

Joe90 wrote:
Because it's OK for NTs to not understand us and they don't have to even try, but it's not OK for an Aspie to not understand NTs and we are expected to try all the time. Then NTs use the old "oh you hurt our feelings" cliche, because they know that "lack of empathy" is an autism thing (which it is not), and so try to rub it in. And then if an Aspie is offended or has hurt feelings, we are told to stop being so sensitive.

PS. This is not an us vs them generalization, I'm just using it to explain certain situations where this occurs when at least 1 Aspie and NT party are involved.
I agree with you 100%


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05 Jan 2019, 12:12 pm

Keladry wrote:
skibum wrote:
Keladry wrote:
Maybe what they are really saying is, "I don't understand"......why you are leaving this place, us, and the "fun." They don't have the same perception as you, and what for you is unbearable is really only a slight irritation for them - they cannot comprehend what it actually is like for you, and therefore see you leaving only for petty reasons. (I know you already get this and are more venting). I understand your frustration completely. I've also had experiences like this, where the people I went end up blaming ME and are upset at ME for leaving an environment that, were they to experience it the same way as me, would never willing go to, nor would stay in should they happen to it. I suspect I've even lost a couple of friends to this.

I understand.

It is not you who needs to understand, it is them.
I totally agree with you. Thank you. I have also lost friends for this. It is really pathetic. I guess they were not really friends to begin with.


Now that's a scary thought. If they were not really friends to begin with, then...I really have no idea what friends are.
Real friends don't abandon you because you are disabled.


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05 Jan 2019, 12:13 pm

skibum wrote:
Keladry wrote:
skibum wrote:
Keladry wrote:
Maybe what they are really saying is, "I don't understand"......why you are leaving this place, us, and the "fun." They don't have the same perception as you, and what for you is unbearable is really only a slight irritation for them - they cannot comprehend what it actually is like for you, and therefore see you leaving only for petty reasons. (I know you already get this and are more venting). I understand your frustration completely. I've also had experiences like this, where the people I went end up blaming ME and are upset at ME for leaving an environment that, were they to experience it the same way as me, would never willing go to, nor would stay in should they happen to it. I suspect I've even lost a couple of friends to this.

I understand.

It is not you who needs to understand, it is them.
I totally agree with you. Thank you. I have also lost friends for this. It is really pathetic. I guess they were not really friends to begin with.


Now that's a scary thought. If they were not really friends to begin with, then...I really have no idea what friends are.
Real friends don't abandon you because you are disabled. We have a friend who is allergic to shellfish. We don't stop being his friend because my husband loves seafood. When we are with him, we eat something else. We don't tell him to risk going into shock so that we can always eat seafood because it's what my husband likes.


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05 Jan 2019, 12:21 pm

quite an extreme wrote:
Keladry wrote:
Same for me here :( :( :( and people turn up the bass everyone SO LOUD! :(

The bass beat gives the rythm for dancing. Just for swinging your body towards the emotions that come with the music. That's why NTs like it. (Btw: I don't like rap too.) The question is how the bass is to you. The problem could be that the rhytm is very near to common rhytms of the heart beat. If you let influence it your heart beat it becomes dangerous.
In this case you would have to learn to step or swing towards the beat but never let it influence your heart beat.
I think this is possible. You need to hear very short sequences of about 5 seconds of such music. Afterwards you have to repeat the rhytm mentally only and should try to move and dance towards this rhytm without letting it influence your heart. You have to repeat this until you get used to be that way that it is always a movement rhytm and not a heart rhytm. But you need to check your pulse that it doesn't starts to match the beat.
It's not about the dance rhythm and that is not why they like it. It changes the electrical pattern of your body and mimics a high like when you are on cocaine and the wavelengths create deep muscle stimulation. That is why they like it. You can get the same deep muscle stimulation with a good hug and you can regulate your electrical patterns with grounding by walking in grass and in nature. Because my natural electrical patterns are different, the bass heightens mine to the equivalent of a drug overdose. Theirs are so muted that they use the bass to heighten theirs to normal levels. Because people spend all their days in the electronic world rather than the natural world, we would roll around in the grass when we were kids and the electronics did not exist, we were much more electrically grounded. These kids are not so they need to try to get that grounding and stimulation artificially and bass vibrations is one way to get it and to get deep muscle stimulation. But if your body is already naturally at a higher level and you don't have the ability to filter, you will go into overload shock just like someone having a cocaine overdose.


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F84.9
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05 Jan 2019, 12:54 pm

@skibum

You did your part well, but you found his response to be unfavorable.
And thats okay.

Introduction:
I think it has to do with his "image of self". I'll try to explain -
Main assumption: Everything we do is 'communication'.
But NT and Non-NTs just don't speak the same language. That's where things get fun :roll:

We as social beings are adaptable and as such are open to have feedback communicated to us about our actions (communication being verbal or nonverbal, direct or covert, implicit or explicit).
~ Each of these forms of communication has Pros and Cons (at least for the person using it), that is why it remains in existence.

Message body:
The person probably thought "this person is leaving" EQUALS "I am doing a bad job and I should change my ways", i.e. he thought that your actions Communicated something about him.

As such, he felt it was necessary for him to defend his position by communicating back to you that his way of doing things are good enough (i.e. arguing that for their purposes it's not in need for change; not a deviation from the average).

Conclusion:

A leaves.
B thinks: A leaves EQUALS A tells B (in front of everybody): "You're doing a bad job and should change your ways."
B thinks: "I am not doing a bad job, and I refuse to change. I base this conviction on established ways of doing things. (I have support of the group), and I choose to communicate that to A."
B tells A: (reprimanding tone) "It's hockey season and that's going to happen all the time."

Maybe I'm wrong... lol, it's just my guess how things go :D I'm also not saying that this thought processes are explicit in their mind... it's just how I think that people's logic goes sometimes. Of course there are many other thought processes that can be considered...

Best wishes!
My suggestion: Keep your responses simple. Such as "I have autism", and they'll rest assured in their ways...
Unless your intention really *is* to change their ways. In such case, I suggest approaching it systematically, otherwise it can be a very emotional and less effective process, leading to alot of stress.

You are good enough! =) Please know this always.
But they also are good enough, it's just, they are ignorant of your condition, and the world is in big need of being more sensible, sensitive,... I hope you can find ways to communicate with those who work from an incomplete mind frame that doesn't include autism in their mind... to maybe try gently inform people about this condition... to turn anger into understanding and love .



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05 Jan 2019, 6:59 pm

F84.9, I think you are absolutely right on all points


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shortfatbalduglyman
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05 Jan 2019, 10:03 pm

You "have to understand" because you are in the minority.



Keladry
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06 Jan 2019, 3:56 pm

skibum wrote:
Keladry wrote:
skibum wrote:
Keladry wrote:
Maybe what they are really saying is, "I don't understand"......why you are leaving this place, us, and the "fun." They don't have the same perception as you, and what for you is unbearable is really only a slight irritation for them - they cannot comprehend what it actually is like for you, and therefore see you leaving only for petty reasons. (I know you already get this and are more venting). I understand your frustration completely. I've also had experiences like this, where the people I went end up blaming ME and are upset at ME for leaving an environment that, were they to experience it the same way as me, would never willing go to, nor would stay in should they happen to it. I suspect I've even lost a couple of friends to this.

I understand.

It is not you who needs to understand, it is them.
I totally agree with you. Thank you. I have also lost friends for this. It is really pathetic. I guess they were not really friends to begin with.


Now that's a scary thought. If they were not really friends to begin with, then...I really have no idea what friends are.
Real friends don't abandon you because you are disabled.


I am not that disabled and function well most of the time, which actually seems to make it worse when I DO have problems. This was also before I knew I had autism and what was causing my problems.



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06 Jan 2019, 4:00 pm

F84.9 wrote:
@skibum

You did your part well, but you found his response to be unfavorable.
And thats okay.

Introduction:
I think it has to do with his "image of self". I'll try to explain -
Main assumption: Everything we do is 'communication'.
But NT and Non-NTs just don't speak the same language. That's where things get fun :roll:

We as social beings are adaptable and as such are open to have feedback communicated to us about our actions (communication being verbal or nonverbal, direct or covert, implicit or explicit).
~ Each of these forms of communication has Pros and Cons (at least for the person using it), that is why it remains in existence.

Message body:
The person probably thought "this person is leaving" EQUALS "I am doing a bad job and I should change my ways", i.e. he thought that your actions Communicated something about him.

As such, he felt it was necessary for him to defend his position by communicating back to you that his way of doing things are good enough (i.e. arguing that for their purposes it's not in need for change; not a deviation from the average).

Conclusion:

A leaves.
B thinks: A leaves EQUALS A tells B (in front of everybody): "You're doing a bad job and should change your ways."
B thinks: "I am not doing a bad job, and I refuse to change. I base this conviction on established ways of doing things. (I have support of the group), and I choose to communicate that to A."
B tells A: (reprimanding tone) "It's hockey season and that's going to happen all the time."

Maybe I'm wrong... lol, it's just my guess how things go :D I'm also not saying that this thought processes are explicit in their mind... it's just how I think that people's logic goes sometimes. Of course there are many other thought processes that can be considered...

Best wishes!
My suggestion: Keep your responses simple. Such as "I have autism", and they'll rest assured in their ways...
Unless your intention really *is* to change their ways. In such case, I suggest approaching it systematically, otherwise it can be a very emotional and less effective process, leading to alot of stress.

You are good enough! =) Please know this always.
But they also are good enough, it's just, they are ignorant of your condition, and the world is in big need of being more sensible, sensitive,... I hope you can find ways to communicate with those who work from an incomplete mind frame that doesn't include autism in their mind... to maybe try gently inform people about this condition... to turn anger into understanding and love .


Is this really how people think? If so, their conclusions have zero basis in logic, and how on earth are we supposed to guess/know this? It almost seems like it is true though as it would explain their rational. I just have no hope of ever being able to guess or know this rational when it is happening in practice :(



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06 Jan 2019, 5:08 pm

First of all it's disgusting that those of us who are in physical pain because of sensory things do have to understand. It should be on other people to understand and avoidance of physical pain should come first (or second only to the very dramatic, life threatening things you've mentioned here for which you've got my sympathy).

However, we live in a world of majority rules :(

Contrary to what others have suggested, I'd say 'I have autism and it affects me like...' and explain. Say 'I know this is unusual and nobody set out to hurt me'. Write it in an email and edit it afterwards so that it says what happens to you explicitly but so that you also don't exaggerate. Use concrete examples from the past which are nothing to do with the thing in question so they know it's not just them. In fact, say 'it's me not you'.

When I tell people I'm autistic, they don't understand enough to change. When I tell people 'I'm autistic and if I'm around bright lights I can't function for days and get a bad headache and pain in my eyes', they tend (only tend :( ) to listen.

Autism affects people differently and I would have just been a bit annoyed by that music if acknowledging it at all, so saying what the consequences are for you as an individual and explaining it's caused by autism is a bit more memorable/understandable than just saying 'I'm autistic' and expecting them to know what it's like for you.

Not sure if this is feasible and if your particular autism would be OK with the change, but maybe an alternative venue or time could then be suggested.

And yes, most people are highly egocentric and think everything relates back to them, especially if they're the leader.



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07 Jan 2019, 1:48 am

I'd try "I do understand that noises will happen, quite clearly. What I don't have is a way to cope with it."



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07 Jan 2019, 11:50 am

shortfatbalduglyman wrote:
You "have to understand" because you are in the minority.
I know right?! Doesn't help that am a black female either!


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skibum
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07 Jan 2019, 11:51 am

Keladry wrote:
skibum wrote:
Keladry wrote:
skibum wrote:
Keladry wrote:
Maybe what they are really saying is, "I don't understand"......why you are leaving this place, us, and the "fun." They don't have the same perception as you, and what for you is unbearable is really only a slight irritation for them - they cannot comprehend what it actually is like for you, and therefore see you leaving only for petty reasons. (I know you already get this and are more venting). I understand your frustration completely. I've also had experiences like this, where the people I went end up blaming ME and are upset at ME for leaving an environment that, were they to experience it the same way as me, would never willing go to, nor would stay in should they happen to it. I suspect I've even lost a couple of friends to this.

I understand.

It is not you who needs to understand, it is them.
I totally agree with you. Thank you. I have also lost friends for this. It is really pathetic. I guess they were not really friends to begin with.


Now that's a scary thought. If they were not really friends to begin with, then...I really have no idea what friends are.
Real friends don't abandon you because you are disabled.


I am not that disabled and function well most of the time, which actually seems to make it worse when I DO have problems. This was also before I knew I had autism and what was causing my problems.
I understand what you mean. It does make it worse.


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skibum
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07 Jan 2019, 11:57 am

Keladry wrote:
F84.9 wrote:
@skibum

You did your part well, but you found his response to be unfavorable.
And thats okay.

Introduction:
I think it has to do with his "image of self". I'll try to explain -
Main assumption: Everything we do is 'communication'.
But NT and Non-NTs just don't speak the same language. That's where things get fun :roll:

We as social beings are adaptable and as such are open to have feedback communicated to us about our actions (communication being verbal or nonverbal, direct or covert, implicit or explicit).
~ Each of these forms of communication has Pros and Cons (at least for the person using it), that is why it remains in existence.

Message body:
The person probably thought "this person is leaving" EQUALS "I am doing a bad job and I should change my ways", i.e. he thought that your actions Communicated something about him.

As such, he felt it was necessary for him to defend his position by communicating back to you that his way of doing things are good enough (i.e. arguing that for their purposes it's not in need for change; not a deviation from the average).

Conclusion:

A leaves.
B thinks: A leaves EQUALS A tells B (in front of everybody): "You're doing a bad job and should change your ways."
B thinks: "I am not doing a bad job, and I refuse to change. I base this conviction on established ways of doing things. (I have support of the group), and I choose to communicate that to A."
B tells A: (reprimanding tone) "It's hockey season and that's going to happen all the time."

Maybe I'm wrong... lol, it's just my guess how things go :D I'm also not saying that this thought processes are explicit in their mind... it's just how I think that people's logic goes sometimes. Of course there are many other thought processes that can be considered...

Best wishes!
My suggestion: Keep your responses simple. Such as "I have autism", and they'll rest assured in their ways...
Unless your intention really *is* to change their ways. In such case, I suggest approaching it systematically, otherwise it can be a very emotional and less effective process, leading to alot of stress.

You are good enough! =) Please know this always.
But they also are good enough, it's just, they are ignorant of your condition, and the world is in big need of being more sensible, sensitive,... I hope you can find ways to communicate with those who work from an incomplete mind frame that doesn't include autism in their mind... to maybe try gently inform people about this condition... to turn anger into understanding and love .


Is this really how people think? If so, their conclusions have zero basis in logic, and how on earth are we supposed to guess/know this? It almost seems like it is true though as it would explain their rational. I just have no hope of ever being able to guess or know this rational when it is happening in practice :(
That is the problem. We are dealing with people who are social and emotional thinkers. All of their conclusions and decisions are based not on facts and logic but on what is the socially acceptable soup du jour and whatever their emotions dictate to make them feel good about themselves. That is why we have social issues. We don't have social difficulties because we are socially decrepit, we have them because our thinking and understanding processes are mostly based on concrete things like facts and logic. Theirs are not so they are constantly changing. They have no stability and we do not have the intuitive powers that they do to be able to keep up with all the illogical stuff. It makes no sense to us when people base their convictions on social standards and emotions. But it also makes no social/emotional thinkers when we base our convictions on facts and logic. They will change the facts of a situation to suit whatever emotional and social needs they have. To us, the facts are the important things and do not change. So no, their thinking will never make any sense to us if that is how they base it.


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07 Jan 2019, 12:00 pm

TUF wrote:
First of all it's disgusting that those of us who are in physical pain because of sensory things do have to understand. It should be on other people to understand and avoidance of physical pain should come first (or second only to the very dramatic, life threatening things you've mentioned here for which you've got my sympathy).

However, we live in a world of majority rules :(

Contrary to what others have suggested, I'd say 'I have autism and it affects me like...' and explain. Say 'I know this is unusual and nobody set out to hurt me'. Write it in an email and edit it afterwards so that it says what happens to you explicitly but so that you also don't exaggerate. Use concrete examples from the past which are nothing to do with the thing in question so they know it's not just them. In fact, say 'it's me not you'.

When I tell people I'm autistic, they don't understand enough to change. When I tell people 'I'm autistic and if I'm around bright lights I can't function for days and get a bad headache and pain in my eyes', they tend (only tend :( ) to listen.

Autism affects people differently and I would have just been a bit annoyed by that music if acknowledging it at all, so saying what the consequences are for you as an individual and explaining it's caused by autism is a bit more memorable/understandable than just saying 'I'm autistic' and expecting them to know what it's like for you.

Not sure if this is feasible and if your particular autism would be OK with the change, but maybe an alternative venue or time could then be suggested.

And yes, most people are highly egocentric and think everything relates back to them, especially if they're the leader.
Those are excellent suggestions. Thank you. I will definitely use them and thank you so much for your kind words of sympathy. I also feel for you with the lights. I know what it feels like to have those debilitating and crippling moments that can last many days.


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Keladry
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07 Jan 2019, 1:16 pm

skibum wrote:
Keladry wrote:
F84.9 wrote:
@skibum

You did your part well, but you found his response to be unfavorable.
And thats okay.

Introduction:
I think it has to do with his "image of self". I'll try to explain -
Main assumption: Everything we do is 'communication'.
But NT and Non-NTs just don't speak the same language. That's where things get fun :roll:

We as social beings are adaptable and as such are open to have feedback communicated to us about our actions (communication being verbal or nonverbal, direct or covert, implicit or explicit).
~ Each of these forms of communication has Pros and Cons (at least for the person using it), that is why it remains in existence.

Message body:
The person probably thought "this person is leaving" EQUALS "I am doing a bad job and I should change my ways", i.e. he thought that your actions Communicated something about him.

As such, he felt it was necessary for him to defend his position by communicating back to you that his way of doing things are good enough (i.e. arguing that for their purposes it's not in need for change; not a deviation from the average).

Conclusion:

A leaves.
B thinks: A leaves EQUALS A tells B (in front of everybody): "You're doing a bad job and should change your ways."
B thinks: "I am not doing a bad job, and I refuse to change. I base this conviction on established ways of doing things. (I have support of the group), and I choose to communicate that to A."
B tells A: (reprimanding tone) "It's hockey season and that's going to happen all the time."

Maybe I'm wrong... lol, it's just my guess how things go :D I'm also not saying that this thought processes are explicit in their mind... it's just how I think that people's logic goes sometimes. Of course there are many other thought processes that can be considered...

Best wishes!
My suggestion: Keep your responses simple. Such as "I have autism", and they'll rest assured in their ways...
Unless your intention really *is* to change their ways. In such case, I suggest approaching it systematically, otherwise it can be a very emotional and less effective process, leading to alot of stress.

You are good enough! =) Please know this always.
But they also are good enough, it's just, they are ignorant of your condition, and the world is in big need of being more sensible, sensitive,... I hope you can find ways to communicate with those who work from an incomplete mind frame that doesn't include autism in their mind... to maybe try gently inform people about this condition... to turn anger into understanding and love .


Is this really how people think? If so, their conclusions have zero basis in logic, and how on earth are we supposed to guess/know this? It almost seems like it is true though as it would explain their rational. I just have no hope of ever being able to guess or know this rational when it is happening in practice :(
That is the problem. We are dealing with people who are social and emotional thinkers. All of their conclusions and decisions are based not on facts and logic but on what is the socially acceptable soup du jour and whatever their emotions dictate to make them feel good about themselves. That is why we have social issues. We don't have social difficulties because we are socially decrepit, we have them because our thinking and understanding processes are mostly based on concrete things like facts and logic. Theirs are not so they are constantly changing. They have no stability and we do not have the intuitive powers that they do to be able to keep up with all the illogical stuff. It makes no sense to us when people base their convictions on social standards and emotions. But it also makes no social/emotional thinkers when we base our convictions on facts and logic. They will change the facts of a situation to suit whatever emotional and social needs they have. To us, the facts are the important things and do not change. So no, their thinking will never make any sense to us if that is how they base it.


This actually makes a lot of sense (as an explanation).