Page 3 of 4 [ 58 posts ]  Go to page Previous  1, 2, 3, 4  Next

MrMark
Veteran
Veteran

User avatar

Joined: 3 Jul 2006
Age: 68
Gender: Male
Posts: 8,918
Location: Tallahassee, FL

27 Dec 2007, 8:27 am

livsparents wrote:
I actually have no true claim to be here. ...

On this site, we are neurologically diverse. Neurodiversity is one of our values. The only requirement for participation, aside from general compliance with the spirit and intent of the rules, is an interest in discussing autism related issues.


_________________
"The cordial quality of pear or plum
Rises as gladly in the single tree
As in the whole orchards resonant with bees."
- Emerson


Inventor
Veteran
Veteran

User avatar

Joined: 15 Feb 2007
Gender: Male
Posts: 6,014
Location: New Orleans

27 Dec 2007, 11:17 am

livsparents wrote:
I actually have no true claim to be here. I have a 5 year old autistic girl and a 3 year old who is/may be PDD. I myself, I'm probably not AS, just a little geeky/antisocial. I just hope I can give you a more unbiased view of biomed therapies, and give you the disturbed view of a parent on the edge. I hope I can get a view from you of what my girls are going through, maybe see what they may face in next 10-60 years.

So tell me how I can advocate for you and I'll hopefully make you laugh and think...


Well after reading your www and the link contained, I see there are more points of view.

As an old Free Range Aspie who came up before any treatment, I might have something helpful to say. I have discovered the cure, of sorts. I eat a boring diet.

Many here on the, You might be an Aspie if, thread have mentioned that when you go to a restaurant, they say, the regular?

Fry on Futurama eats Bachlor Chow, from the bag with a spoon. I go for rice and beans, vegtables and rice, well cooked meat, and have been accused of being Chinese. I drink black coffee, and will eat the same thing everyday.

I saw the results of milk products, wheat, sugar, and cut them out of my diet long ago.

What I have found is likely what the biomed approch is about, symptoms related to food. A grilled cheese sandwich is the most horrible poison ever invented, right up there with Macaroni and cheese, which gives me migrains and a lot worse. It is the largest kid food group. Cereal with milk and sugar is in there.

I do not need drug companies to bash, I have the dairy industry, with their running dog US Dept. of Agraculture dairy support program. They also subsidise sugar, and milk and sugar are automaticly approved for any use. Fresh Frozen Green Beans, milk and sugar added.

It is not just gas, digestive problems, this stuff messes with my brain, and takes weeks to overcome a dose. Whatever it produces, I have no way to get rid of it, and that produces Autistic behavior.

This country's whole idea of diet comes from agracultural support programs for dairy, wheat, and sugar. Subsidies are paid, and the government becomes the advertising agency for what to me is poison. The four basic food groups are government support programs, not based on human needs.

I run well on bland food, rice, with veggies, or beans, and meat, seafood. Fresh fruit seems ok, the sugars do not have the same effect.

I am on the German Shepard Diet, eat all you want, once a day. The rest of the time it is black coffee, and water. In later years I did pick up an addiction to Gatoraid.

I recall the diet differances spoken of in James Mitchner's Hawaii, he compared the Anglo diet with the Asian diet, and the results, Anglos carried fifty pounds of lard, and suffered from many illnesses, and religious obsessions, the Asians did not, on their diet of basically rice. The Asians lived twenty years longer in good health, and could put out a good days labor. Rich Asians continued to live on rice.

I limit my food groups, and then eat the same thing for weeks, I do not get bored. My body likes dog food, same thing, same time, every day.

I am a machine, and the right fuel is clean burning, digests well, leaves me regular, and in a clear mental state. Sushi and green tea is likely the ultimate Aspie diet.

I would say I started life poisoned, and when I got away, my diet shifted on it's own, less, and plain shrimp and rice from the Chinese takeout. I grew up between 18 and 23. I do not have much good to say about my childhood, I was food poisoned and punished for the results.

It was the same at home and school. I went to work at 14. As soon as I was legal I left. My diet changed, and suddenly life improved.

I do not have any good memories of the first 18 years, they did everything they could to destroy me. I excelled in school, highest reading comprhension, highest in Science, but as I was not right in the head, I was punished for making the good little perfect kids look bad.

My self education was also taken badly. You can't just learn things, you have to be taught, by a teacher, in a school, or it does not count. I became very withdrawn from life, it was something about their god given right to beat me up, steal from me, because I was different.

I am, I work, save my money, buy tools, materials, study, and produce things to sell. I have owned several mechanic shops, and have had my tools stolen. It seems I am not a real person, I did not go to mechanic school, and me reporting theft to the police, I am seen as some crazy troublemaker.

Then I am called a paranoid, and I made up the story of having tools, my own business, and living in the world has just not worked for me. I cannot deal with a public that wants to have a reaction to my existance, of telling me they are going to beat me up, when both are adults. I am a social freebi, any one of you perfect people can do anything you like to me, and the rest of the perfect people will back you up. I cannot make a police report, testify in court, because I am different.

So I am my own law.

On the web I buy and sell with no problem, there I am just a human. I am sitting in a room with $25,000 in Repographis machines, and a gun, feeling lucky?

I cannot deal with anyone, for what they cannot steal, they try to destroy, for they have a real job.

I have found the US Patent and Trademark Office easy to deal with, I hold Patents, publish books, and any one of you perfect people would destroy me any way you could, because I am different.

I thought it was just me, but it is the common feeling of all business owners. Alexander the Great said, "He who subdues or surpasses mankind, must look down upon their wrath."

If it was not for the Internet I would have never been heard of again. I buy and sell worldwide, and following an AOL news article, "Ten medical conditions that give Superpowers," I found a link to WP, and was shocked. I joined within a day, the only forum I have ever joined.

I was sure I was the only one. After almost a year here, I still think so, but there are people who are close. There are other collections of driven talents, others who have had the same bad results trying to deal with Earthlings, and the strangest of all, I like some of them?

My best answer has been seclusion, silence, and a simple diet. Dealing directly with the world has never worked. My current plan is a hermitage in the mountains, with broadband. I would end my in person dealing with humans, they have not changed in the fifty years I have been watching.

All of this psychobabble from the pill pushing preists of the psychology religion, doctors, drug companies, the parents, schools, the electro shock, to help us fit someone else's view of what life is about, where we are always wrong, always punished, just does not work for me and never did. We do not belong with you.

I am my world. What joy I have found in living comes from within. I like some of the things made in the world, they are my customers, but I do not want to ever see any of them. Technohermit works!

I have no idea how you could advocate for me, or why you would think you could. It sounds insulting. Why would I need you? To whom would you Advocate? Why do you see me as incapable of managing my own affairs? Is your view that Autism = Mental ret*d?

What are your qualifications? Why do you feel fit to speak in anyone elses behalf? Are you perfect?

Do you draft and prosecute your own Patents, have you taken the Securities and Exchange Series 7 License course for Stock Broker, Corporate Governance? Do you run a publishing business, write books, or have an IQ higher than mine? Perhaps it is in the metal working factory I am setting up, can you program G Code for CNC machines? Can you design the tooling for plastic injection molding?

Is it just me, or are you going to Advocate for all of WP?



livsparents
Butterfly
Butterfly

User avatar

Joined: 14 Dec 2007
Gender: Male
Posts: 15

27 Dec 2007, 2:06 pm

Quote:
My best answer has been seclusion, silence, and a simple diet. Dealing directly with the world has never worked. My current plan is a hermitage in the mountains, with broadband.


I guess my rhetorical question is why do mountains have to be cold?

My dream would be to set up an IT 'outsurce' company, buy up a small town in the middle of nowhere, and create a help desk to kick B*tt on Mumbai...

You can subsist anywhere in the civilized world, as long as you have the internet. You don't even need refined social skills; just good grammar, a talent that works remotely and some rudimentary business skills...

Do the 'Aspie genetics' make you people designed for this new world? Maybe, but remember, it's only going to take one major solar flare or some kind of electro magnetic disturbance and this whole virtual tower of Babel comes crashing down. Just make sure you have some hard copies of 'Virtual Basic for Dummies' and 'How to Re-build a Network' handy...



cdarwin
Supporting Member
Supporting Member

User avatar

Joined: 12 Dec 2007
Age: 60
Gender: Male
Posts: 123
Location: central east coat USA

27 Dec 2007, 2:19 pm

Hey Livsparents, you said,

Quote:
Do the 'Aspie genetics' make you people designed for this new world? Maybe, but remember, it's only going to take one major solar flare or some kind of electro magnetic disturbance and this whole virtual tower of Babel comes crashing down. Just make sure you have some hard copies of 'Virtual Basic for Dummies' and 'How to Re-build a Network' handy...


Of course we back up our files. Don't you? As far rebuilding the network, who could do it better? In the future we will have robots to do all of the manual labor. Don't you watch Futurama??

Inventor, bachelor chow is just what we need! Yumm!

What ever happened to Selo? I thought she was going to be a part of this conversation. Selo where arrrrre you?


_________________
I believe in acceptance and equal rights.


TLPG
Veteran
Veteran

User avatar

Joined: 12 Nov 2007
Age: 61
Gender: Male
Posts: 693

27 Dec 2007, 4:08 pm

Quote:
My best answer has been seclusion, silence, and a simple diet. Dealing directly with the world has never worked. My current plan is a hermitage in the mountains, with broadband. I would end my in person dealing with humans, they have not changed in the fifty years I have been watching.


Inventor, that is my long term plan. At the moment I can't because of my interests - football (Australian that is) in particular and the project that I am engaged in. I also have aims in the world of pro wrestling as well. That unfortunately neccessitates human contact of a wide range.

Mind you the mountains don't appeal to me - and I do have a wife to consider.



Joeker
Deinonychus
Deinonychus

User avatar

Joined: 9 Aug 2007
Age: 37
Gender: Male
Posts: 361
Location: The Interwebs

27 Dec 2007, 4:32 pm

I thought this was Selo and Cdarwin's discussion? Not meaning any disrespect, but isn't it up to them to do the talking?


_________________
1234
FOUR
Four is the only number which is itself has the same number of letters as it itself is.


beau99
Veteran
Veteran

User avatar

Joined: 5 Nov 2007
Age: 39
Gender: Female
Posts: 1,406
Location: PHX

27 Dec 2007, 4:46 pm

Joeker wrote:
I thought this was Selo and Cdarwin's discussion? Not meaning any disrespect, but isn't it up to them to do the talking?

Read the first post carefully.


_________________
Agender person.

Twitter: http://twitter.com/agenderstar


Selo
Deinonychus
Deinonychus

User avatar

Joined: 15 Feb 2007
Age: 32
Gender: Female
Posts: 353
Location: MD

27 Dec 2007, 5:54 pm

Joeker wrote:
I thought this was Selo and Cdarwin's discussion? Not meaning any disrespect, but isn't it up to them to do the talking?

Other people are welcome to join the discussion as they see fit :)



Inventor
Veteran
Veteran

User avatar

Joined: 15 Feb 2007
Gender: Male
Posts: 6,014
Location: New Orleans

27 Dec 2007, 7:07 pm

Selo wrote:
Joeker wrote:
I thought this was Selo and Cdarwin's discussion? Not meaning any disrespect, but isn't it up to them to do the talking?

Other people are welcome to join the discussion as they see fit :)


Yes, but we still want to hear Selo's opinion.



Joeker
Deinonychus
Deinonychus

User avatar

Joined: 9 Aug 2007
Age: 37
Gender: Male
Posts: 361
Location: The Interwebs

28 Dec 2007, 3:01 am

Indeed.


_________________
1234
FOUR
Four is the only number which is itself has the same number of letters as it itself is.


Selo
Deinonychus
Deinonychus

User avatar

Joined: 15 Feb 2007
Age: 32
Gender: Female
Posts: 353
Location: MD

07 Mar 2008, 5:45 pm

I know this thread is like three months old, but I want to come back to it because I still haven't really answered a lot of the questions people were expecting me to. So apologies for the thread necromancy ^^;

But yeah, after all that people have pointed out, I'm still not convinced that autism is genetic. It occurs over so many different groups of people and manifests itself in many different ways, so I cannot see why there would be one set of genes that turn on and off through the generations and cause the symptoms.

As for Autism Speaks, they may not be as evil as you all think - there is a big chunk of their site with info on helping autistic children cope and succeed in an NT society, including sections on their adulthood as autistics. I'm poking around there now and I have yet to see anything mentioning eugenics as the cure they are searching for.



TLPG
Veteran
Veteran

User avatar

Joined: 12 Nov 2007
Age: 61
Gender: Male
Posts: 693

07 Mar 2008, 5:57 pm

Selo wrote:
As for Autism Speaks, they may not be as evil as you all think - there is a big chunk of their site with info on helping autistic children cope and succeed in an NT society, including sections on their adulthood as autistics. I'm poking around there now and I have yet to see anything mentioning eugenics as the cure they are searching for.


Whilst that may be true - here's the rub;

Autism Speaks wrote:
We are dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism


http://www.autismspeaks.org/goals.php

Prevention = eugenics, because that's the only way a genetic condition can be prevented. OK, I know you haven't accepted the genetic connection yet, but I'm sure you will one day. Because it's the truth. I have no issue with scepticism where you don't see evidence.



Selo
Deinonychus
Deinonychus

User avatar

Joined: 15 Feb 2007
Age: 32
Gender: Female
Posts: 353
Location: MD

07 Mar 2008, 6:33 pm

^ Though by "prevention" they may mean avoiding it from occurring in future generations, I think they are also focused on making sure current cases don't get worse, and to avoid some of the environmental factors that come into play. I think that prevention also means treatment in the context they're using.

I just thought of something. If autism is genetic, then in order for a child with two NT parents to be autistic, I think both parents would have to be carrying the autism gene as recessive and have that gene passed on from each parent. It seems to me that the chances of that are very small. Maybe I'm wrong, but it seems that the overwhelming number of cases of autistic children with NT parents is far greater than the chances of the kid getting two (rare) recessive genes. I'm probably making no sense, because I forget all the stuff I learned about genetics, but it's a thought :/



SilverProteus
Veteran
Veteran

User avatar

Joined: 20 Jul 2007
Gender: Female
Posts: 7,915
Location: Somewhere Over The Rainbow

07 Mar 2008, 6:37 pm

Selo wrote:
^ Though by "prevention" they may mean avoiding it from occurring in future generations, I think they are also focused on making sure current cases don't get worse, and to avoid some of the environmental factors that come into play. I think that prevention also means treatment in the context they're using.

I just thought of something. If autism is genetic, then in order for a child with two NT parents to be autistic, I think both parents would have to be carrying the autism gene as recessive and have that gene passed on from each parent. It seems to me that the chances of that are very small. Maybe I'm wrong, but it seems that the overwhelming number of cases of autistic children with NT parents is far greater than the chances of the kid getting two (rare) recessive genes. I'm probably making no sense, because I forget all the stuff I learned about genetics, but it's a thought :/


Hypothetically, if the genetics of autism are as you decribed (it's too simple, IMO) then the chances of an autistic child being born to two NT parents carrying a recessive gene for autism is 50%. Chances aren't too small...


_________________
"Lightning is but a flicker of light, punctuated on all sides by darkness." - Loki


Selo
Deinonychus
Deinonychus

User avatar

Joined: 15 Feb 2007
Age: 32
Gender: Female
Posts: 353
Location: MD

07 Mar 2008, 6:51 pm

SilverProteus wrote:
Hypothetically, if the genetics of autism are as you decribed (it's too simple, IMO) then the chances of an autistic child being born to two NT parents carrying a recessive gene for autism is 50%. Chances aren't too small...

Wouldn't putting everything together make it about 1.5%? I did the math:

Chance of both parents carrying the gene is 25%.
Chance of both having it be recessive is 25%.
Chance of the gene from each parent being carried on to the child is 25%.

Put all those together and you get 1.5625%, no? I agree that it's probably not that simple, but it's definitely not 50%.



SilverProteus
Veteran
Veteran

User avatar

Joined: 20 Jul 2007
Gender: Female
Posts: 7,915
Location: Somewhere Over The Rainbow

07 Mar 2008, 6:57 pm

Sorry, I was going into simple Mendel's first law considering both parents had the recessive gene already. And my bad, it is 25%.

Aa x Aa

AA, Aa, Aa, aa

i was counting the two Aa's. :roll:


_________________
"Lightning is but a flicker of light, punctuated on all sides by darkness." - Loki