how many aspies here are undiagnosed or unsure

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StreetlightFancies
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17 Mar 2013, 7:26 pm

I'm pretty sure, but not positive. I was diagnosed autistic at 3 1/2, but I know I'm not. I was in special speech classes for my entire school career, and my teachers in said classes basically assumed I had Aspergers, but since they were the "diagnosing everything that walks" types, and I sure didn't see myself in the other Aspies I met, I still wasn't sure. Looking back, almost all the other Aspies/autistics I knew were male, and I've heard that female Aspies are better at "masquerading" as NTs than male ones, so that was probably a lot of the difference. But my therapist says I probably have it, and she isn't the gratuitously-labeling sort, so maybe I do.

At any rate, I'm sure I have some tendencies, thus why I'm here.

Actually, sometimes I kind of wish I was more blatantly autistic, because that way people would give me the benefit of the doubt when I did something socially daft or whatever. Being good at memorizing social protocol, despite having little to no intuition in that area, is kind of a curse, because when you reach a situation you haven't memorized the "rules" for and do something inappropriate, people just assume you're deliberately being obnoxious. Despite being very emotional, when I'm engaging in the social dance, I feel almost like a robot imitating a human. All that eye contact, "don't eat before everyone is served," "don't take the last thing without asking" stuff just doesn't come intuitively to me at all. (And it's not just me being thoughtless, either, because I don't mind a bit when people disobey those rules around me.)



Chloe33
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17 Mar 2013, 9:07 pm

Diagnosed with HFA, bipolar, ADHD



GiantHockeyFan
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18 Mar 2013, 11:57 am

StreetlightFancies wrote:
Actually, sometimes I kind of wish I was more blatantly autistic, because that way people would give me the benefit of the doubt when I did something socially daft or whatever. Being good at memorizing social protocol, despite having little to no intuition in that area, is kind of a curse, because when you reach a situation you haven't memorized the "rules" for and do something inappropriate, people just assume you're deliberately being obnoxious. Despite being very emotional, when I'm engaging in the social dance, I feel almost like a robot imitating a human. All that eye contact, "don't eat before everyone is served," "don't take the last thing without asking" stuff just doesn't come intuitively to me at all. (And it's not just me being thoughtless, either, because I don't mind a bit when people disobey those rules around me.)

That's a great way to summarize my feelings. I have done a great job emulating others and learning the 'rules' but I have no intuition in situations that I have never encountered before that likely makes others think I am selfish and thoughtless. A good example was going 'out' with my older brother at the age of 20. First I was told I was 'a cheap bastard' for not tipping the bartender which made no sense to me since I don't tip the McDonalds cashier for doing essentially the same thing just not as ridiculously priced. As well, we went to a party and his apartment and the music was so loud it was painful to my ears. I naturally turned it down a bit (especially since it was an apartment building and it was past the 9:30pm cutoff for loud music) to the scowls of everyone and my brother told me off (and stopped inviting me) after everyone left. I saw and to a degree still don't see what I did as being wrong: I was in pain and I stopped that pain like any rational person would do.
I still don't get the 'wait until everyone is served before eating' silliness. If I'm hungry and the food is getting cold, why the heck should I wait for people who are taking their sweet #%% time?



whirlingmind
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18 Mar 2013, 1:26 pm

I am diagnosed by a private psychologist, but the NHS had previously failed to diagnose me. Now, I am fighting for the NHS to recognise my diagnosis as valid. I contacted them as a general enquirer to ask for their official position, and got a typically non-committal, sit-on-the-fence type of answer.


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Ames76
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18 Mar 2013, 10:13 pm

Pretty much self diagnosed. One doctor said that I "probably do have Asperger's" but I'm talking to another to see what he thinks. I believe that I do.



Leola
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19 Mar 2013, 12:30 am

Undiagnosed, but have OCD and either Tourette's or chronic tic disorder. I used to think I had AS before finding out I had OCD, but now I still find the topic of AS and Autism very interesting and I enjoy learning more about it. I have a few AS traits such as poor social skills, hard time making conversation and eye contact, and sometimes hard time reading people's emotions/behavior.



Kinme
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19 Mar 2013, 1:45 am

Although I am undiagnosed, I am positive that I am an Aspie after meeting the people I did, my boyfriend, and it running in my family (it has been diagnosed in my family).