What do you think of the self-diagnosed?

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Your opinion of the self-diagnosed on WP?
I believe them, they have the ability of self-examination. 70%  70%  [ 50 ]
They have some other psych disorder(s), but not AS. 1%  1%  [ 1 ]
They are NTs who want to have a neat sounding diagnosis. 3%  3%  [ 2 ]
They are tadpoles, just one step above the "not sures." 23%  23%  [ 16 ]
Only the clinically diagnosed belong on WP. 3%  3%  [ 2 ]
Total votes : 71

Corvus
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28 Dec 2006, 5:45 pm

Although I dont disagree with that (people not actually knowing themselves) that doesn't mean they can't 'learn to' and 'learn the skills' required. I never went into fine detail about 'being able to read yourself' but yes, I giant lesson in 'self awareness' would be a requirement. You must be able to not only view your faults but 'accept them' and 'change them' if that is a needed. You can view yourself from an 'objective viewpoint.' I criticize myself all the time and I know when I'm in the wrong. In other words, I own up to my faults (I kind of always did but never to my level I do now)

When I first started meditating, there were many things I realized that *I* did or was 'wrong' on. One of the hardest things to do was accept that and change my 'belief' on them (so to speak). Hell, during last nights meditation I realized even more. Its an ongoing process and just the same, a doctor telling you 'how you act' can be easily met with the same resistence. If I went and told someone something about themself, I'd be met with resistence. I guess if you seek it then you may be more open to hear about your 'faults' but I dont know. In my experience with that, most people just don't want to hear it even when they ask for it.



SteveK
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28 Dec 2006, 5:57 pm

Good point Pluto. That is just what I mean when I talk about the age of me and my mother. as for diagnosing liver damage, NO, the chemical balance isn't right! Not that I was looking for liver damage, but my last "complete physical" left ME with the reports(NO diagnosis or even explanation) and trying to make sense of the whole thing. I went back to the doctor to see if I was right about everything. I was.

I DID figure out that I had a magnesium deficiency when the doctors thought I was nuts. I guess I was right because pain went to practically nothing, headaches dissappeared, immunity went back up, etc... Turns out it is VERY common problem often diagnosed in death. Who knows, if I hadn't done that, my heart problem may have been myocardial infarction(One possible symptom) instead of a dissected aorta.

Speaking of the dissected aorta, I referred to a cutting pain accross my upper chest. I guess THAT is what saved me. You can bet that I will remember that, not that it would help ME again(The part that caused the pain is now dacron). It turns out there are four main possible problems. 2 are VERY obvious! 1 is the myocardial infarction which we all know about. The other was the one I had. Just my luck huh.

BTW it would be funny if one of the diagnosed found out he/she didn't have it. I don't know, kind of like soccerfreak!(She determined the diagnosis was wrong, and the SAME doctor agreed!) I was apparently diagnosed with ADHD because of my social problems. They DID test my intelligence, and I tested high. They didn't apparantly take any sensory skewing into account. I don't recall them ever asking about my reading early, speaking well, or the extreme interests I had. The stimming behaviour would have been normal for my age. Th IQ ruled out autism though. Also, AS wasn't even known about in the US!

Steve



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28 Dec 2006, 7:16 pm

There are vey good physical test for liver damage: high liver enzymes in the blood,
biopsy , and I assume MRI. It something routine screened by doctors with basic blood work done before and after starting meds with potential for liver damage.
Or if someone test postive for hepatitis or is an alcoholic it can be expected.


If one does have liver damage their maybe treatment options such as low protein diet to keep ammonia production down, diuretics(to aid posion removal), dialysis , transplant. Failure to get treatment could shorten ones life.

Its also a largely preventable condition, Hepatits vaccination, moderate drinking,
liver enzymne testing before and after starting meds.

In the case of ASD there are no physical test, no treatments, not life threating
(do not mention depression/ suicide because thats a treatable comorbit), and not
preventable. There is no value in getting a dx.



ElectricBlue
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28 Dec 2006, 7:32 pm

In my own case I have a strong feeling that I am an Aspie but I refuse to self-diagnose myself as one , even if my profile might say otherwise. I just think that its best for the people who specialise in the field to say for certain wherever it is or not, and put it in their trust to tell me.



logitechdog
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28 Dec 2006, 7:44 pm

36 years old ye? you got what about 35 years more on a average persons life span of a male...
12 783.477 days, You did not know about the diet thing about autism, I am sure you don't know allot more, allot of the thing's that go along with ASD can be helped and shaped into a more manageable life - you can access more stuff than what you can on a none referral....

No treatments as in the hole Genetic thing and that - I can see 1 thing that will benefit you & that is to look at your Attitude - I do think you are Scared like T said....

I know you said somewhere else you had a d something -self dx- You didn't say if you went along to get a MRI scan which is a proven method of detecting it....

Don’t know how this work’s in us but are you just on out of work pay or disability living allowance kind of thing, can’t remember if you said you live at home or not… or do you work?

So your telling me your just going to sit they and do nothing?



TheMachine1
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28 Dec 2006, 8:10 pm

logitechdog wrote:
You did not know about the diet thing about autism,


Diet treating autism is not FDA approve treatment. At best it will provide mild action
in a small number of people.


logitechdog wrote:
allot of the thing's that go along with ASD can be helped and shaped into a more manageable life -


"go along with ASD" sounds like comorbit problems. What comorbit problems will a person with ASD have that will not be painfully obvious to themselves?

logitechdog wrote:
I can see 1 thing that will benefit you & that is to look at your Attitude .


I'm 99% certain I have aspergers in my mind I doubt any doctor is going to
get me to 100%.

logitechdog wrote:
You didn't say if you went along to get a MRI scan which is a proven method of detecting it....


Your going to have to provide address to a hospital that does this in America. I when I
get it I will e-mail them and post the reponse here. Though I know the answer will be.


logitechdog wrote:
Don’t know how this work’s in us but are you just on out of work pay or disability living allowance kind of thing, can’t remember if you said you live at home or not…


I worked most the time between 1997-2004 and saved enough money to last many years without work. I doubt I would every draw SSI till I was in my 60's.

logitechdog wrote:
So your telling me your just going to sit they and do nothing?


No I'm going to get some stimulant meds to treat my ADHD-I and I'm going to get
a job that can use my mind instead of my body. Other than that I have no issues I need help with.



logitechdog
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28 Dec 2006, 8:48 pm

http://www.dyspraxiausa.org/index.php?link=dyspraxia shift through that site and see if you can find anything... not doing the looking for you....

thats the uk one http://www.dyspraxiafoundation.org.uk/s ... _brain.php



Last edited by logitechdog on 28 Dec 2006, 9:13 pm, edited 2 times in total.

Who_Am_I
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28 Dec 2006, 8:54 pm

Quote:
Self DX males (n=4)
-------------------
computerlove
who_am_i
Zenmiester
fuzzy


I'm female!

As for being self-diagnosed- I didn't wake up one day, read one book on Asperger's syndrome and suddenly decide that I was Aspergian because of a few difficulties fitting in with people. I had a lifetime of being lost with anything to do with people, having other people constantly tell me that I was strange, weird, different (a sign that my difference was not all in my head), a lifetime of being focused on music and a few other interests to the exclusion of everything else, a lifetime of people thinking I was being rude or impatient because I was constantly tapping my fingers, bouncing my knee or staring at clocks...
A lifetime of wondering how I could be so good academically but so stupid socially and so horribly disorganised.
I read about autism for years. At first, I only read books about low-functioning non-verbal autistics that were written by neurotypicals observing the autistic people. I didn't connect myself with them, but the reasons for their behaviour seemed obvious to me and I wondered why the people writing the books were so blind.
Then I read every book I could by autistic people, and I found that here were people who I could identify with.
Next, I started reading about Asperger's syndrome, and a light began to go on in my head. It was as though the authors of these books had been in my head all the time. I began to suspect that this might explain me, but because I had only heard of any form of autism as a "severe, disabling disorder" I thought that I would be far more impaired if I were to have it.
When I met a person who was diagnosed with Asperger's syndrome on a forum (I've since met him in person) and he made more sense to me than anyone else there, my suspicions became stronger.
Finally, I came here and read. And read, and read. And got more excited with every sentence, because here was finally a community of people who I could identify with!

Before I came to AS, I spent a lot of time trying to work out what it was that made me different. I considered
Depression
Bipolar disorder
ADD, predominately inattentive type
Obsessive-compulsive disorder

I have some symptoms of all of those. However, AS is the only thing that I completely fit the diagnostic criteria for.

Further evidence:
I was held back in preschool (despite being more than ready for school academically) because my teachers felt I wasn't socially ready for school.

I had occupational therapy, physiotherapy and speech therapy in preschool (the speech therapy continued on and off until I was 11.) This fits it with the common observation that Aspergian's tend to have poor motor control.

One of my friends has an autistic sister, and he says that I have an incredible amount of things in common with her and that he is sure that I'm autistic.

My G.P. thinks that I have Asperger's syndrome.

This link http://com3.runboard.com/brachelsmusicplace.f24.t133 is to something that I made up when I was 17 to explain why I was so strange. One of my friends has a boyfriend who is Aspergian, and she said to me that it sounds like what she understands Asperger's to be. The last person to reply, the one who says it sounds very familiar, is diagnosed with residual Asperger's by Michelle Garnett.


_________________
Music Theory 101: Cadences.
Authentic cadence: V-I
Plagal cadence: IV-I
Deceptive cadence: V- ANYTHING BUT I ! !! !
Beethoven cadence: V-I-V-I-V-V-V-I-I-I-I-I-I-I-I-I-I-I
-I-I-I-I-I-I-I-I! I! I! I I I


28 Dec 2006, 10:26 pm

I don't know what to put down. I know people can say they have it just because they think it give them speciel rules and excuses or they say they have it because they finally found out what was wrong with them. Some don't go for a diagnoses because they have learned to live with it and many of the bad parts of it have disappeared so the doctors could say they don't have it and plus they might not have any records of their childhood or know anytting about it and can't get any information on it. Or some feel they don't need a diagnoses because they are living a normal life and they are holding down a job well and have no troubles getting one either.



TheMachine1
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29 Dec 2006, 1:08 am

logitechdog wrote:
http://www.dyspraxiausa.org/index.php?link=dyspraxia shift through that site and see if you can find anything... not doing the looking for you....

thats the uk one http://www.dyspraxiafoundation.org.uk/s ... _brain.php


What am I suppose to be looking for?



TheMachine1
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29 Dec 2006, 1:23 am

Who_Am_I wrote:
I'm female!





Sorry :oops:
Yeah I had fancy shorthand after everybodies name that I should have left on the list
to avoid mistake (self DX F). My purpose of the list was to find the person who voted
to deny people like me and yourself access to WP. Oh in the case of the troll Zenmiester I remember his profile from my memory so I'm sure on it.



Corvus
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29 Dec 2006, 1:39 am

Hey, I went on a mystical spiritual quest to find myself. "Fighting wizards" and an intriguing escape from "a dungeon involving a 'dragon' key" were just some of my personal adventures.

(OK, maybe not. The actual journey is still occuring and is very much more real)



TheMachine1
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29 Dec 2006, 2:11 am

Corvus wrote:
Hey, I went on a mystical spiritual quest to find myself. "Fighting wizards" and an intriguing escape from "a dungeon involving a 'dragon' key" were just some of my personal adventures.

(OK, maybe not. The actual journey is still occuring and is very much more real)


Let me guess you ment to post this in another thread :D



JulieArticuno
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29 Dec 2006, 5:26 am

Who_Am_I wrote:
I didn't wake up one day, read one book on Asperger's syndrome and suddenly decide that I was Aspergian because of a few difficulties fitting in with people. I had a lifetime of being lost with anything to do with people, having other people constantly tell me that I was strange, weird, different (a sign that my difference was not all in my head), a lifetime of being focused on music and a few other interests to the exclusion of everything else, a lifetime of people thinking I was being rude or impatient because I was constantly tapping my fingers, bouncing my knee or staring at clocks...
A lifetime of wondering how I could be so good academically but so stupid socially and so horribly disorganised.
When I met a person who was diagnosed with Asperger's syndrome and he made more sense to me than anyone else there, my suspicions became stronger.
Finally, I came here and read. And read, and read. And got more excited with every sentence, because here was finally a community of people who I could identify with!


Who-am-I-you have just described something so similar tio events and experiences in my life that I was amazed. i am constantly flabbergasted when I come here, read a post and thingk "I thought i was the only one who did that! I didn't know it was associated with Asperger's!" From types of stim to overriding ovsessions to undecipherable handwriting to toe walking-and that's just a small sample! This was a big factor in giving me the confidence to get diagnosed, because every time I looked for more evidence to say I WASN'T (Trying to disprove my theory-accepted scientific technique), everything pointed more and more the the fact that I was. And got a DX-I was right.

Who_Am_I wrote:
My G.P. thinks that I have Asperger's syndrome.


Fore your GP to say that, s/he nust have done some reading. It IS a medical diagnosis of a sort.

JulieArticuno



Corvus
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29 Dec 2006, 10:55 am

TheMachine1 wrote:
Corvus wrote:
Hey, I went on a mystical spiritual quest to find myself. "Fighting wizards" and an intriguing escape from "a dungeon involving a 'dragon' key" were just some of my personal adventures.

(OK, maybe not. The actual journey is still occuring and is very much more real)


Let me guess you ment to post this in another thread :D


I figured I've mentioned meditation crap enough on here, I figured I'd take a stab at myself since people are probably sick of it and want to destroy me :wink:



SteveK
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29 Dec 2006, 1:58 pm

Corvus wrote:
TheMachine1 wrote:
Corvus wrote:
Hey, I went on a mystical spiritual quest to find myself. "Fighting wizards" and an intriguing escape from "a dungeon involving a 'dragon' key" were just some of my personal adventures.

(OK, maybe not. The actual journey is still occuring and is very much more real)


Let me guess you ment to post this in another thread :D


I figured I've mentioned meditation crap enough on here, I figured I'd take a stab at myself since people are probably sick of it and want to destroy me :wink:


I almost asked you about the meditation stuff, but WHY are you so into drugs? As I recall, you're the one.

Steve