The earlier you're diagnosed the better the outcome ?

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IsabellaLinton
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08 Feb 2020, 5:54 pm

firemonkey wrote:
There was a lot of high expressed emotion going on .

https://en.wikipedia.org/wiki/Expressed_emotion


Oh. My. God. firemonkey, thank you. I've never heard this term before but it describes my mother and her verbal / emotional abuse to a tee. She is an alcoholic like your mother. Is the term "high expressed emotion" still applicable for me when my disorders weren't so much psychiatric, but included undiagnosed ASD & ADHD, major depression, agoraphobia, mutism and later, trauma -- all for which she bullies me? I've never seen any article that describes so clearly what I've experienced with my mother.

Thank you again, and hugs for posting.


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firemonkey
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08 Feb 2020, 5:58 pm

From entrez pubmed "Expressed emotion" "autism"

https://www.ncbi.nlm.nih.gov/pubmed/?te ... 2autism%22 56 entries


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IsabellaLinton
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08 Feb 2020, 6:02 pm

firemonkey wrote:
From entrez pubmed "Expressed emotion" "autism"

https://www.ncbi.nlm.nih.gov/pubmed/?te ... 2autism%22 56 entries


I can't thank you enough. This is unbelievable. I'm speechless and feel like you just changed my life.


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BTDT
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08 Feb 2020, 6:12 pm

Looks like this is an example right here where a label helps!



Last edited by BTDT on 08 Feb 2020, 6:25 pm, edited 1 time in total.

firemonkey
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08 Feb 2020, 6:12 pm

I know I went up a step or two functioning wise when I stopped living with my parents , and after a 22 month stay in a psych hospital left there with another patient who later became my wife .


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IsabellaLinton
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08 Feb 2020, 6:14 pm

BTDT wrote:
Looks like this is an example right here were a label helps!


It definitely helps me. I realise I'm not all the terrible things my mother has said. I had no idea this was a "condition" or common disorder in my mother. I assumed I was at fault for being mute and not sticking up for myself.


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magz
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09 Feb 2020, 5:33 am

Joe90 wrote:
I think my mum was disappointed with me being on the spectrum. She was understanding and supportive with me, but secretly she wished I was "normal" like all of her nieces and nephews.

You see, my mum has a sister who has 2 children that are basically me and my brother in a parallel universe. The son is the same age as my brother and the daughter is the same age as me. But both me and my brother have Asperger's that has held us back from being happy and achieving what we could have achieved, and our 2 cousins are both very extroverted NTs with lots of confidence, are both popular and are both into sports, and have well-paid jobs.
And being so my mum has always been close to her sister, it's hard NOT to compare her children to her sister's children. My mum has experienced me and my brother suffer with depression and low self-esteem, while her sister has experienced her children succeed socially, emotionally and academically.
And no, it's not due to "bad parenting", because my parents weren't bad parents. My 2 cousins were just born to be confident, as it's hardwired into their personalities. Me and my brother were born depressives.

Repetitively comparing a child to more successful siblings or cousins is bad parenting. Simple as that.


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rowan_nichol
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09 Feb 2020, 6:33 am

BTDT wrote:
rowan_nichol wrote:
I think I would have benefited from knowing the stronv points I had and the blind spots more than I would have bdnefitted from having a label, especially one which would likely be used against me by any bullies.


Do kids really get told that info? There are lots of stories about parents hiding diagnoses from kids. Do parents let their kids read their full diagnoses? Every page of a long document? And explain what it really means in terms they can understand?


That would depend on the family and to a degree the point in history.

My memory is that my mother wrnt partly there, focusing on abilities, but neihther of us haf the extra information to guard against using yhe evidence of strong points as a readon to reprimand weak points rlsewhete as laziness rather than a reason to give some focusresed extra briefing or help on "How To" do the stuff which showed the weak points.



magz
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09 Feb 2020, 6:45 am

Given my family?
If I was diagnosed as a child, it would be most likely be met with the same denial every my problem met and I would probably be highly pressured to prove I was "normal" by masking even more than I actually was, to fulfil this denial culture I grew up in.
Or I could have become the Identified Patient.

Nope, for me an early diagnosis would not be helpful. I think being diagnosed at 21 would be perfect in my case.


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09 Feb 2020, 7:02 am

If my mothers reaction a couple of years ago is anything to go by its likely she would have burned any records of a diagnosis if it had happened against her will in childhood.

She moved us from a healthcare service after one professional suggested that I could have dyslexia.

Its likely my autism would have been seen as a negative reflection on her parenting and on of course her excellent genes.
She's better about it now, I refused to let her make it about her and had to make her face reality.



magz
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09 Feb 2020, 7:16 am

Amity wrote:
She moved us from a healthcare service after one professional suggested that I could have dyslexia.
I can perfectly imagine my mother doing the same. Thought she was perfect in ignoring such suggestions and convincing others to ignore them as well - that's what she did with teachers informing her of my signs of severe depression in high school. She convinced all of them there was no problem and I "just needed to get over it".


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blazingstar
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09 Feb 2020, 7:59 am

magz wrote:
Given my family?
If I was diagnosed as a child, it would be most likely be met with the same denial every my problem met and I would probably be highly pressured to prove I was "normal" by masking even more than I actually was, to fulfil this denial culture I grew up in.
Or I could have become the Identified Patient.

Nope, for me an early diagnosis would not be helpful. I think being diagnosed at 21 would be perfect in my case.


Reading the identified patient, I can see this describes many of the families I have seen. This clarifies some of the problems I have understanding there situations. Thank you.


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magz
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09 Feb 2020, 3:47 pm

blazingstar wrote:
Reading the identified patient, I can see this describes many of the families I have seen. This clarifies some of the problems I have understanding there situations. Thank you.

I believe my uncle was one.
I'm afraid it's quite common.
You're welcome.
WP is a funny platform for studying clinical psychology, isn't it?


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darkwaver
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09 Feb 2020, 6:05 pm

In my case, growing up undianosed was bad but being diagnosed might well have been worse. I might have thought I could never do many of the things I have done in life. I might have blamed myself for all of the bullying instead of blaming the bullies. The way I got treated at at home would likely have been even worse, and it was quite bad enough as it was.



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11 Feb 2020, 10:39 pm

My 2 year old grandson shows many of the early signs I've read about for autism (he talks so aspergers). I am self-diagnosed aspergers and can't read people, situations, and I'm really bad at guessing outcomes but here is my two cents worth...

I am very glad he is in a daycare and being socialized, exposed to chaos, etc at such a young age. He seems happy and I think he will be better adjusted because of the exposure. My NT son plays a game where he exaggerates his face and asks what he's feeling. The daycare reports examples of empathy and evidence of other "normal behaviour". Maybe my grandson has been diagnosed and my son just isn't telling me, and it looks they don't plan on telling him either. Good!

My other son has aspergers too most likely - not even 30 and head of R&D at a large company. He was always smart and a hard worker and I always gave him my encouragement and the tools to delve into his interests. I think he excelled because he could be himself, and our home was relaxing to him because of my sensory needs and aversions.

I think it's about the environment, not the diagnosis. And people need to stop thinking of it as being so negative.



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12 Feb 2020, 12:14 am

QuantumChemist wrote:
I agree. There is a stigma about being on the spectrum that follows you once you are diagnosed and is disclosed to others. It changes how others see you and not in a positive way. Too many people just do not understand. It can end careers before they can be started.

In my own chemistry department, I have witnessed other professors discriminate against those on the spectrum (former students). I work with PhDs that seem to have never left junior high based upon their behavior. What do you think would happen if they suspected a coworker was also on the spectrum? (blood in the water) Unfortunately, I cannot report them to the administration because my boss is one of the worst offenders.

We need someone to create an organization for autistic scientists, and/or for autistics in academia more generally. It could start as just an informal online forum and/or chatroom. Hopefully eventually it could evolve into an organization that could effectively shame academic departments into not discriminating against autistic and other disabled people.

You might be interested in the following articles if you haven't seen them already:

Autistic academics give their thoughts on university life
February 10, 2017
http://theconversation.com/autistic-aca ... life-72133

Autism as Academic Paradigm
By Tyler Cowen July 13, 2009
https://www.chronicle.com/article/Autis ... digm/47033


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