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goofygoobers
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13 Feb 2016, 11:53 am

I'm VERY reluctant to tell people about my AS diagnosis because a lot of people don't understand what it is. It seems like people still equate autism with an intellectual disability.

I also hope that non-autistic people will understand what while people with ASDs aren't "normal," they're still people. We have differences but we still have some things in common. I may be an aspie, but it doesn't mean I'm not human.



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13 Feb 2016, 5:31 pm

Ashariel wrote:
You are 'rigidly open-minded', in that your logic code dictates that you update your viewpoint, if new evidence presents itself. I think that's a good way to be.

A lot of people just want to insist they're right, regardless of evidence or logic. To me, that is the disorder.

And yes, we have a long way to go, in getting the public to understand the reality of autism. I think we're in a better place now, than 10 years ago - and over the next 10 years, I hope it will improve even more.


This is exactly the problem I have with people in my life. I go with logic, reason, common sense. I am willing to hear other viewpoints. But I use my own brain and think for myself. Apparently, that's bad.

So is not automatically understanding everything that people do. Then I'm just doing it on purpose, to them. And, I also seem stupid if I don't understand, because "all normal people would get it, it would be obvious to them." Yes, I was told that today.

That was among other awful things that just indicate to me that people hate me, and think the worst.



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13 Feb 2016, 5:32 pm

A lot of people don't understand my sensory issues, which can be quite difficult [especially at school].


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Yigeren
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13 Feb 2016, 5:42 pm

I don't know why people have to be so mean about it. I'm not like this on purpose. I really try hard. Sometimes I can't do things. But I was accused of using autism as an excuse, when what I was trying to do is explain why I don't understand things.

I can't make myself understand things. I have to be told things to get them, especially things concerning socializing, but also things like how someone might be feeling.



zkydz
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13 Feb 2016, 5:44 pm

Yigeren wrote:
I don't know why people have to be so mean about it. I'm not like this on purpose. I really try hard. Sometimes I can't do things. But I was accused of using autism as an excuse, when what I was trying to do is explain why I don't understand things.

I can't make myself understand things. I have to be told things to get them, especially things concerning socializing, but also things like how someone might be feeling.
It's that 'hidden disability' thing. People have a hard time believing what they see. But, for some reason, will believe every screwball theory out there.


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Ashariel
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13 Feb 2016, 6:20 pm

Yigeren wrote:
I don't know why people have to be so mean about it. I'm not like this on purpose.


I hear you. That's something I'm learning to accept as well. I'm okay with people thinking I'm 'quiet and awkward' or a 'quirky space cadet'. But the reality is, I also can't hide my emotional immaturity, so I have to add 'annoyingly hypersensitive' to the list of labels that will always be put on me, and I just need to come to terms with it.



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13 Feb 2016, 7:56 pm

Oh, yeah, media-perpetuated stereotypes are definitely a problem. It's not just a matter of the media making autism seem more high-functioning or cool; people have also run into problems because someone expects all autistic people to be like the Rain Man guy.

(Sherlock from Sherlock seems like a weird example for autism. He is totally non-disabled in every way except his social interaction and nicotine addition, and his social interaction problems seem so different from what most autistic people seem to deal with. There were a couple examples where he was confused, but for the most part, it seemed like his social skills and communication skills were great and he was just apathetic about other people's feelings.)

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So it seems that some people are saying that if those that are autistic overcome their difficulties and become successful that they no longer consider them to be autistic?

Autism is a brain abnormality. It doesn't go away as far as I know. It's not like recovering from an illness. It's an actual biological difference in the way the brain developed. If I were to find a way to be happy, and to learn to socialize, get a full-time job, and have a real life, how would that change my brain?

...

It makes absolutely no sense to me. There's no cure for autism.

A deaf person can use sign language, read lips, and learn to speak. They can use numerous devices to make their lives easier. They can hold full-time jobs, and have families and children. But they are still deaf. Perhaps they don't feel that it disables them. So maybe they wouldn't be "disabled" but would still be deaf.


You might've been thinking of where I said this?

"Well, I do think that there should be a non-diagnostic autism-like personality-related identity label, as ZombieBride made a topic about. The point where I disagreed was that I don't think such a label should apply to high-functioning ASD people INSTEAD OF a diagnosis. It would be for diagnosed people in addition to their diagnosis, hypothetically for ASD people who are cured (if such a thing ever happened), and for non-disordered people. It would also be an non-ideal "next best thing" for disordered people who aren't quite impaired enough for a diagnosis of ASD. Compare introversion or Highly Sensitive Person."

I don't think it's a common opinion, so if you disagree, don't worry, I'm just a single loon. :lol:

Might as well talk about it now though. I think someone with ASD or other autism-related disorders who is actually cured of said would become BAP, as opposed to becoming a non-BAP NT.

Let me specify what I mean by "actually cured"... (This is all completely hypothetical, because a cure does not currently exist. However, I don't believe there's any magical property of autism that makes it inherently uncurable. Yes, it's a biological difference, but most curable things are biological differences.)

A cure is not an adaptation or coping technique. To continue with the analogy on deafness, a cure would be a deaf person becoming capable of hearing normally--not reading lips, not using a crappy hearing aid that doesn't even let you distinguish certain sounds, but actually just hearing.

Lots of charities/researchers/etc who talk about wanting a cure for autism are not aiming for what I'd consider an actual cure. By analogy, it's like they say they want to cure deafness, but they actually just want a deaf child to convincingly act like he can hear. He needs to be able to understand speech (by lip reading or any other method), talk normally, not make weird vocal sounds, and never use sign language. Whether or not he can hear is irrelevant. Or sometimes, they are looking for ways to do prenatal genetic testing so they could abort deaf fetuses. :cry:

An actual cure would get rid of your actual problems. Having normal sensitivity instead of hypersensitivity. Being able to focus on things normally as opposed to either lack of focus or over-focusing. Being able to plan and organize about as well as most people can. Once you have a topic to talk about, being able to speak isn't hard. Cooking, cleaning, and self-care stop might still be a bit of a hassle, but no more than they are to typical people. You can "switch gears" okay. You have adequate "spoons." Working memory actually works.

With both deafness and autism-related disorders, a cure would still naturally leave a person in a different situation than if they never had the condition. There's the whole Deaf culture thing. I've heard in Deaf culture, people are often more direct and open (what would be considered indiscreet and rude to most hearing people), which I think is a side effect of having ASL as a first language. Likewise, autistic people often have bad social anxiety from all the bad social experiences they've had in the past. Even if the underlying brain problem that makes communication so hard were to be fixed, it'd probably take a long time to recover from that anxiety.

The analogy is less applicable here: There are a lot of positive or neutral personality traits associated with autism. Introversion. Being logical. Fondness for consistancy. Disinclined to social chit-chat. Disinclined to eye contact. Unusual imagination. Like to collect and organize things and information. A lot of autistic people don't have all those traits, but I THINK they are more common in autistic people. Some of these are established BAP traits. You can have these traits without having autism; I actually know a lot of "normal" people who have a couple. If you have a lot of these traits but you live in an area where the traits are rare, you're probably going to feel a little abnormal and people may even be mean to you. (I've heard of NT introverts having a hard time because they're surrounded by people who just freakin' hate introverts for some reason, but where I live, introversion is common and advantageous.) I don't think that getting rid of hypersensitivity, executive dysfunction, and communication impairments would erase these traits. In other words, if you have ASD but get cured, your score on the aspiequiz probably wouldn't change much.

(All this could also apply to some types of treatment.)


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Eloa
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13 Feb 2016, 8:13 pm

ASPartOfMe wrote:
Autistic wannabees


I had to think about the term Neurotypical wannabees this night, it is late night in my country now, derived from the term Autistic wannabees but have no more thought about it than the expression itself.
But the expression Neurotypical wannabee (it is a weird word as bee means an black-yellow striped flying eventualy stinging insect, and I wonder about the difference of a Neurotypical bee or Autistic bee) is imprinted into my mind tonight.


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Dennis Prichard
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13 Feb 2016, 8:23 pm

Eloa wrote:
ASPartOfMe wrote:
Autistic wannabees


I had to think about the term Neurotypical wannabees this night, it is late night in my country now, derived from the term Autistic wannabees but have no more thought about it than the expression itself.
But the expression Neurotypical wannabee (it is a weird word as bee means an black-yellow striped flying eventualy stinging insect, and I wonder about the difference of a Neurotypical bee or Autistic bee) is imprinted into my mind tonight.


I like the way that you talk, though I didn't quite understand it. You seem like the kind of person who takes language as seriously as I do.


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13 Feb 2016, 8:28 pm

Dennis Prichard wrote:
Eloa wrote:
ASPartOfMe wrote:
Autistic wannabees


I had to think about the term Neurotypical wannabees this night, it is late night in my country now, derived from the term Autistic wannabees but have no more thought about it than the expression itself.
But the expression Neurotypical wannabee (it is a weird word as bee means an black-yellow striped flying eventualy stinging insect, and I wonder about the difference of a Neurotypical bee or Autistic bee) is imprinted into my mind tonight.


I like the way that you talk, though I didn't quite understand it. You seem like the kind of person who takes language as seriously as I do.
That was a typo. It is phonetically correct. But the actual spelling is 'wannabe", a mash up and contraction of 'Want to be'.

https://en.wikipedia.org/wiki/Wannabe


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Dennis Prichard
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13 Feb 2016, 9:55 pm

Yes I should have known she didn't understand want to be, its just I dreamily fall into people's posts sometimes. Its just my thing.


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13 Feb 2016, 10:24 pm

Dennis Prichard wrote:
Yes I should have known she didn't understand want to be, its just I dreamily fall into people's posts sometimes. Its just my thing.
That was my mistake on the quoting. That was supposed to be for Eola's benefit to clear up confusion. Duuuurrrrrhhhhhhh.....


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Eloa
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14 Feb 2016, 7:46 am

zkydz wrote:
Dennis Prichard wrote:
Eloa wrote:
ASPartOfMe wrote:
Autistic wannabees


I had to think about the term Neurotypical wannabees this night, it is late night in my country now, derived from the term Autistic wannabees but have no more thought about it than the expression itself.
But the expression Neurotypical wannabee (it is a weird word as bee means an black-yellow striped flying eventualy stinging insect, and I wonder about the difference of a Neurotypical bee or Autistic bee) is imprinted into my mind tonight.


I like the way that you talk, though I didn't quite understand it. You seem like the kind of person who takes language as seriously as I do.
That was a typo. It is phonetically correct. But the actual spelling is 'wannabe", a mash up and contraction of 'Want to be'.

https://en.wikipedia.org/wiki/Wannabe


So there is no bee! :D
Still the phonetics causing the image, but also I understand the meaning of a wannabe(eee). (Linguee helps).
Still wondering if an autistic person tries to "fit in" with neurotypical society, would that make them a neurotypical wannabe(eeeeee) (The "eeeeee"'s are a bee passing in my mind). (If it would be a bee buzzing around it would be a wannabe(e...ee..eee...e..eeee.eee...e...etc.)


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14 Feb 2016, 8:17 am

Eloa wrote:
zkydz wrote:
Dennis Prichard wrote:
Eloa wrote:
ASPartOfMe wrote:
Autistic wannabees


I had to think about the term Neurotypical wannabees this night, it is late night in my country now, derived from the term Autistic wannabees but have no more thought about it than the expression itself.
But the expression Neurotypical wannabee (it is a weird word as bee means an black-yellow striped flying eventualy stinging insect, and I wonder about the difference of a Neurotypical bee or Autistic bee) is imprinted into my mind tonight.


I like the way that you talk, though I didn't quite understand it. You seem like the kind of person who takes language as seriously as I do.
That was a typo. It is phonetically correct. But the actual spelling is 'wannabe", a mash up and contraction of 'Want to be'.

https://en.wikipedia.org/wiki/Wannabe


So there is no bee! :D
Still the phonetics causing the image, but also I understand the meaning of a wannabe(eee). (Linguee helps).
Still wondering if an autistic person tries to "fit in" with neurotypical society, would that make them a neurotypical wannabe(eeeeee) (The "eeeeee"'s are a bee passing in my mind). (If it would be a bee buzzing around it would be a wannabe(e...ee..eee...e..eeee.eee...e...etc.)
Well, I am who and what I am. But, I could easily be called an NT wannabe. I want to exist in society without fear everyday. I want to have friends. I am not cloistered because I don't like people. I don't get them, but for the most part, I like them and would like to be able to do what they do naturally. I would like to not have sensory input issues so I could understand things better.

But, I am realistic and know that it can't be.


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Eloa
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14 Feb 2016, 10:26 am

zkydz wrote:
Eloa wrote:
zkydz wrote:
Dennis Prichard wrote:
Eloa wrote:
ASPartOfMe wrote:
Autistic wannabees


I had to think about the term Neurotypical wannabees this night, it is late night in my country now, derived from the term Autistic wannabees but have no more thought about it than the expression itself.
But the expression Neurotypical wannabee (it is a weird word as bee means an black-yellow striped flying eventualy stinging insect, and I wonder about the difference of a Neurotypical bee or Autistic bee) is imprinted into my mind tonight.


I like the way that you talk, though I didn't quite understand it. You seem like the kind of person who takes language as seriously as I do.
That was a typo. It is phonetically correct. But the actual spelling is 'wannabe", a mash up and contraction of 'Want to be'.

https://en.wikipedia.org/wiki/Wannabe


So there is no bee! :D
Still the phonetics causing the image, but also I understand the meaning of a wannabe(eee). (Linguee helps).
Still wondering if an autistic person tries to "fit in" with neurotypical society, would that make them a neurotypical wannabe(eeeeee) (The "eeeeee"'s are a bee passing in my mind). (If it would be a bee buzzing around it would be a wannabe(e...ee..eee...e..eeee.eee...e...etc.)
Well, I am who and what I am. But, I could easily be called an NT wannabe. I want to exist in society without fear everyday. I want to have friends. I am not cloistered because I don't like people. I don't get them, but for the most part, I like them and would like to be able to do what they do naturally. I would like to not have sensory input issues so I could understand things better.

But, I am realistic and know that it can't be.


I wonder, if very mildly affected people, very high-functioning, more like BAP-people: if they identify more with their autistic symptoms, even though they do not really impair, but they are present, they can get called autistic wannaImage's but noone would call them neurotypical wannaImage if they'd try to blend in as good as they can with the non-autistic society.


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ASPartOfMe
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14 Feb 2016, 10:28 am

Based on reading posts here IMHO the percentage of Autistic NT wannabes is way way higher then the percentage of neurotypical Aspie wannabes.

The above is true if you go by the technical defintion which is "want to be". But the term has always had a negative connotation since it was first applied to teenage girls and young women who dressed exactly like singer Madonna in the mid 1980's. People who are described as wannabes are thought to be shallow, a follower of fads and trends. Autistic people who want to be neurotypical tend to do it out of a desperation to unburden themselves of thier Autism "curse" in order to be "normal". Quite different then an NT who wants to be cool like Sheldon.


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Last edited by ASPartOfMe on 14 Feb 2016, 11:07 am, edited 1 time in total.