The earlier you're diagnosed the better the outcome ?
ASPartOfMe wrote:
LoraAdora wrote:
magz wrote:
LoraAdora wrote:
I've spoken to my family about changing schools but "I can deal with it" is what they said so I'm looking into ways to cope better whilst I'm there. I have that dream as well, starting afresh, somewhere where people don't know. But I don't see that happening sadly. My family aren't interested.
Damn, being dependent on your family sucks! Those all little decisions you aren't allowed to make because you're not 18 yet :/ I used to be where you are.
I wonder if there is some Identified Patient dynamics in your family. I've mentioned it before in this thread because it's one of possible downsides of early diagnosis - the family finally has someone to blame for all their trouble so they don't need to deal with their own issues.
I know it does suck doesn’t it?
It’s possible yes. I mean they do seem to really dislike me now, especially my mum, every time something goes wrong she blames me. She really hates me since I was first diagnosed and I don’t know why. It makes home life really unbearable and then actual school life is equally as bad.
In your parents generation Autism was universally considered a disease and any mental issues were stigmatized. So because they act like they dislike you like does not mean they don’t love you. It probably means they do not know how to handle you.That does not make it any less painful for you.
It seems moms and teenage daughters often come into conflict. Often this gets better when one gets older.
I guess it probably is that they don't know how to handle me then. It feels like they don't like or want me in their lives though but maybe that's just me overreacting. My mum and I used to get on really well when I was a young child. After the diagnosis things changed and now every day we seem to drift further apart. I've tried talking to her, trying harder to be more 'normal' but nothing works. Half the time it feels like I'm invisible.
I'm hoping sooner or later we will be like we used to. I'd hate for her to not be a part of my life.
magz wrote:
LoraAdora wrote:
magz wrote:
LoraAdora wrote:
I've spoken to my family about changing schools but "I can deal with it" is what they said so I'm looking into ways to cope better whilst I'm there. I have that dream as well, starting afresh, somewhere where people don't know. But I don't see that happening sadly. My family aren't interested.
Damn, being dependent on your family sucks! Those all little decisions you aren't allowed to make because you're not 18 yet :/ I used to be where you are.
I wonder if there is some Identified Patient dynamics in your family. I've mentioned it before in this thread because it's one of possible downsides of early diagnosis - the family finally has someone to blame for all their trouble so they don't need to deal with their own issues.
I know it does suck doesn’t it?
It’s possible yes. I mean they do seem to really dislike me now, especially my mum, every time something goes wrong she blames me. She really hates me since I was first diagnosed and I don’t know why. It makes home life really unbearable and then actual school life is equally as bad.
Now it's better, moving away from my parents was a huge relief - yet after having children, I went through a big breakdown and now I'm sorting things out in therapy. Apparently, in addition to AS, I'm much more traumatized by my childhood and yougth than I ever suspected. Seeing unhealthy patterns when growing up in them is extremely hard.
I wonder if something my first therapist told me would resonate in you, too:
"No one took your side."
I'm glad things got better for you though so sorry that you had a breakdown. That can't have been easy for you to deal with especially as you had children at the time. Are things ok now? I hope so. Yeah what your therapist told you is how I feel a lot of the time. No one ever sees it from my side and as I told the user above they often act like I'm not here. I say something they ignore it or just nod in response. It's awful and makes me feel worthless. But I'm hoping that will change but I don't think so. There's an empty cold feeling in my family and life and I don't think that's going to go away until I move out. I might try and see my gp soon and see if I can see a professional therapist, someone I can talk to and trust. I feel that may help a little.
LoraAdora wrote:
Joe90 wrote:
Well the teacher wasn't the one who blabbed it out. It was a girl who was supposed to be my friend. Our mum's knew each other and she had a younger sister who had autism, so obviously my diagnosis got mentioned. Then one day when I was 10 she rounded up all the girls in the class and told them all that I had Asperger's, right in front of me. And somehow even the boys knew, because 3 or 4 years later a (NT) boy in my class joked and said, "I'm so autistic" (relevant to some social error he'd made), and the boy sitting next to me leaned over to him and said, "she's autistic" (meaning me). He didn't mean any harm, but I just rather everyone not know about it. I felt ashamed. I wanted to be one of them, and not "the kid with the label".
Omg that must have been really horrible for you. I'm so sorry. I've never really had a friend so I can only imagine how horrible that must have been to see and hear your own friend telling everybody. I remember when my teacher told my class, I'd never gone so red and felt so awful for being me. I'm not sure if it was the same for you but I hated myself that day for being different. I've had the jokes of people saying they acted or did something Autistic, always loud enough for me to hear. I'm glad the boy you heard at least didn't mean any harm and completely agree with you, I also, wished that no one had ever found out. I think school would have been better.
Most people (even other Aspies here) tell me that I'm lucky to get a diagnosis so early because it meant that I got the support I needed and that I knew the answer to why I was different.
But I was getting the same support at school BEFORE my diagnosis, and I was happy. My parents were forced to get me diagnosed. And it's not much use to me now because ever since I turned 18 I've been turned down from any support. Luckily for me I'm high-functioning enough to be able to live with no outside support, but one day I might need some support if I ever became jobless.
I'm glad you know how I feel.
_________________
Female
LoraAdora wrote:
I'm glad things got better for you though so sorry that you had a breakdown. That can't have been easy for you to deal with especially as you had children at the time. Are things ok now? I hope so. Yeah what your therapist told you is how I feel a lot of the time. No one ever sees it from my side and as I told the user above they often act like I'm not here. I say something they ignore it or just nod in response. It's awful and makes me feel worthless. But I'm hoping that will change but I don't think so. There's an empty cold feeling in my family and life and I don't think that's going to go away until I move out. I might try and see my gp soon and see if I can see a professional therapist, someone I can talk to and trust. I feel that may help a little.
We're managing... but three decades of living detached from my feelings have done more damage than I thought they would.
If I could suggest you something - what makes you feel safe? Any activity or topic where you feel safe is a chance to keep your sanity alive and you need it with all this lonliness you experience.
_________________
Let's not confuse being normal with being mentally healthy.
<not moderating PPR stuff concerning East Europe>
Teach51
Veteran
Joined: 28 Jan 2019
Gender: Female
Posts: 2,808
Location: Where angels do not fear to tread.
magz wrote:
LoraAdora wrote:
magz wrote:
LoraAdora wrote:
I've spoken to my family about changing schools but "I can deal with it" is what they said so I'm looking into ways to cope better whilst I'm there. I have that dream as well, starting afresh, somewhere where people don't know. But I don't see that happening sadly. My family aren't interested.
Damn, being dependent on your family sucks! Those all little decisions you aren't allowed to make because you're not 18 yet :/ I used to be where you are.
I wonder if there is some Identified Patient dynamics in your family. I've mentioned it before in this thread because it's one of possible downsides of early diagnosis - the family finally has someone to blame for all their trouble so they don't need to deal with their own issues.
I know it does suck doesn’t it?
It’s possible yes. I mean they do seem to really dislike me now, especially my mum, every time something goes wrong she blames me. She really hates me since I was first diagnosed and I don’t know why. It makes home life really unbearable and then actual school life is equally as bad.
Now it's better, moving away from my parents was a huge relief - yet after having children, I went through a big breakdown and now I'm sorting things out in therapy. Apparently, in addition to AS, I'm much more traumatized by my childhood and yougth than I ever suspected. Seeing unhealthy patterns when growing up in them is extremely hard.
I wonder if something my first therapist told me would resonate in you, too:
"No one took your side."
It resonates with me totally. That is an enormous deficit to start out in life with. You are strong magz and a hero. I start each day as if it is a new lifetime.
_________________
My best will just have to be good enough.
Joe90 wrote:
LoraAdora wrote:
Joe90 wrote:
Well the teacher wasn't the one who blabbed it out. It was a girl who was supposed to be my friend. Our mum's knew each other and she had a younger sister who had autism, so obviously my diagnosis got mentioned. Then one day when I was 10 she rounded up all the girls in the class and told them all that I had Asperger's, right in front of me. And somehow even the boys knew, because 3 or 4 years later a (NT) boy in my class joked and said, "I'm so autistic" (relevant to some social error he'd made), and the boy sitting next to me leaned over to him and said, "she's autistic" (meaning me). He didn't mean any harm, but I just rather everyone not know about it. I felt ashamed. I wanted to be one of them, and not "the kid with the label".
Omg that must have been really horrible for you. I'm so sorry. I've never really had a friend so I can only imagine how horrible that must have been to see and hear your own friend telling everybody. I remember when my teacher told my class, I'd never gone so red and felt so awful for being me. I'm not sure if it was the same for you but I hated myself that day for being different. I've had the jokes of people saying they acted or did something Autistic, always loud enough for me to hear. I'm glad the boy you heard at least didn't mean any harm and completely agree with you, I also, wished that no one had ever found out. I think school would have been better.
Most people (even other Aspies here) tell me that I'm lucky to get a diagnosis so early because it meant that I got the support I needed and that I knew the answer to why I was different.
But I was getting the same support at school BEFORE my diagnosis, and I was happy. My parents were forced to get me diagnosed. And it's not much use to me now because ever since I turned 18 I've been turned down from any support. Luckily for me I'm high-functioning enough to be able to live with no outside support, but one day I might need some support if I ever became jobless.
I'm glad you know how I feel.
I’m glad you were getting support at school before your diagnosis. I’m hoping to try and get some support when I go back to school next week if I can. If not I’ll approach my gp, see if they can suggest any coping methods for me.
I wonder if being diagnosed later would have made a difference. Do you think it would have for you?
I’m so sorry you’ve been turned down from any support since you were eighteen. I really hope that doesn’t happen with me, though I’m hoping I’m high-functioning and will be able to cope as well. Finding work might be hard, there’s not a lot of jobs here.
I think you and I have had the same experiences or very nearly the same so I think we understand each other better. I’m sorry it’s been so hard for you. I hope things are a lot better now and that you’ll always be able to support yourself.
magz wrote:
LoraAdora wrote:
I'm glad things got better for you though so sorry that you had a breakdown. That can't have been easy for you to deal with especially as you had children at the time. Are things ok now? I hope so. Yeah what your therapist told you is how I feel a lot of the time. No one ever sees it from my side and as I told the user above they often act like I'm not here. I say something they ignore it or just nod in response. It's awful and makes me feel worthless. But I'm hoping that will change but I don't think so. There's an empty cold feeling in my family and life and I don't think that's going to go away until I move out. I might try and see my gp soon and see if I can see a professional therapist, someone I can talk to and trust. I feel that may help a little.
We're managing... but three decades of living detached from my feelings have done more damage than I thought they would.
If I could suggest you something - what makes you feel safe? Any activity or topic where you feel safe is a chance to keep your sanity alive and you need it with all this lonliness you experience.
I’m so sorry you’ve been so badly effected
Do you get any support still or are you having to do it all alone?
Not a lot to be honest. I don’t feel safe or happy at all when I leave my bedroom, that’s my safe place where I feel completely at ease. In my room I do a lot of art and drawing and that relaxes me and reminds me that I’m ok. Other than that I do some writing but not as much as I used to. I’m hoping to see a therapist later this year as I’m having a few mental issues so want to get them seen to before long. I do my drawing every day and that’s a big help to me and keeps me relaxed.
Teach51 wrote:
It resonates with me totally. That is an enormous deficit to start out in life with. You are strong magz and a hero. I start each day as if it is a new lifetime.
Hugs to you! Especially in this time ((((((Teach51))))))LoraAdora wrote:
magz wrote:
We're managing... but three decades of living detached from my feelings have done more damage than I thought they would.
If I could suggest you something - what makes you feel safe? Any activity or topic where you feel safe is a chance to keep your sanity alive and you need it with all this lonliness you experience.
If I could suggest you something - what makes you feel safe? Any activity or topic where you feel safe is a chance to keep your sanity alive and you need it with all this lonliness you experience.
I’m so sorry you’ve been so badly effected
Do you get any support still or are you having to do it all alone?
LoraAdora wrote:
Not a lot to be honest. I don’t feel safe or happy at all when I leave my bedroom, that’s my safe place where I feel completely at ease. In my room I do a lot of art and drawing and that relaxes me and reminds me that I’m ok. Other than that I do some writing but not as much as I used to. I’m hoping to see a therapist later this year as I’m having a few mental issues so want to get them seen to before long. I do my drawing every day and that’s a big help to me and keeps me relaxed.
Draw. That's your breathing.
_________________
Let's not confuse being normal with being mentally healthy.
<not moderating PPR stuff concerning East Europe>
