I don't even fit the DSM-IV criteria for Asperger's anymore

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simfish
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06 Oct 2010, 8:25 pm

(1) marked impairment in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body postures, and gestures to regulate social interaction

Okay I'm still handicapped with respect to reading body language and gestures. But I know I can learn them with enough practice - and if that happens, this no longer fits as diagnostic criteria.

(2) failure to develop peer relationships appropriate to developmental level

I don't have any real life friends, and I screwed over all my past friendships. But I don't think that this is the result of Asperger's, but more so the result of social anxiety+ADD. And the fact that very few people are compatible with me. It's something normal people feel too.

(3) a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest to other people)

Uh, does this really define Asperger's? The problem with us Aspies is that we frequently share this too much with other people, even when it's clear that others aren't even interested.

(4) lack of social or emotional reciprocity

Yes I am reciprocal with people. I try to be so.

B. Restricted repetitive and stereotyped patterns of behavior, interests, and activities, as manifested by at least one of the following:
(1) encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus

Definitely happened when I was a child. But now I don't even know if my interests are abnormal in intensity or focus. My interests are very diverse now. And a lot of professors have issues with this too.

(2) apparently inflexible adherence to specific, nonfunctional routines or rituals

None of this

(3) stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole-body movements)

I fidget and pace, but that's more related to ADD+anxiety.

(4) persistent preoccupation with parts of objects

Not really.

===========
===========

Okay my theory of Asperger's is that it has to do with the fact that we just don't subconsciously (and naturally) pick up social gestures/cues from the gestures/cues of others - we have to consciously learn them. And also, that we don't naturally "synchronize" with people (this might be the result of mirror neurons) in the way other people do. In other words, we have to consciously learn signals, not subconsciously so. And so our movements (and attempts to mimic others) are very "unnatural" and forced. If this theory is correct, then the DSM-IV criteria for Asperger's don't necessarily even follow from it. They're just a lot more likely due to it.

Anyways, I e-mailed Simon Baron-Cohen and he said that my theory was probably correct.

===

So I'm confused. Is it very common for people to grow out of the DSM-IV criteria but to still consider themselves Aspie? (and socially impaired in a different way?) I still feel like social situations are far more difficult for me than for other people, but my comorbidities of ADD and social anxiety explain much of it (though I think some of it still comes from my autistic tendencies). I was diagnosed at age 11 and it was far more obvious at that time.

and my problems are still far more severe than the vast majority of "Aspies" I know - I'm pretty sure they hardly fit the DSM-IV criteria anymore too


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Tollorin
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06 Oct 2010, 8:43 pm

Quote:
(1) marked impairment in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body postures, and gestures to regulate social interaction

Okay I'm still handicapped with respect to reading body language and gestures. But I know I can learn them with enough practice - and if that happens, this no longer fits as diagnostic criteria.

Aspies can learn to read body language and gestures, it's just that it come much less naturally to us. The fact that you still have to learn them mean it's didn't come naturally to you.

Quote:
(2) failure to develop peer relationships appropriate to developmental level

I don't have any real life friends, and I screwed over all my past friendships. But I don't think that this is the result of Asperger's, but more so the result of social anxiety+ADD. And the fact that very few people are compatible with me. It's something normal people feel too.

I've pretty much got the same.

Quote:
(3) a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest to other people)

Uh, does this really define Asperger's? The problem with us Aspies is that we frequently share this too much with other people, even when it's clear that others aren't even interested.

True

Quote:
(4) lack of social or emotional reciprocity

Yes I am reciprocal with people. I try to be so.

The fact is that you try. It's not completly true anyway, we mostly lack to share those with others, not feeling for others.

Quote:
B. Restricted repetitive and stereotyped patterns of behavior, interests, and activities, as manifested by at least one of the following:
(1) encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus

Definitely happened when I was a child. But now I don't even know if my interests are abnormal in intensity or focus. My interests are very diverse now. And a lot of professors have issues with this too.

If you're got great curiosity and intelligence this can happen, even if you're asperger.

Quote:
(3) stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole-body movements)

I fidget and pace, but that's more related to ADD+anxiety

As you do it you can't be out of this criteria though.


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simfish
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06 Oct 2010, 8:50 pm

Ah thanks for the reply so far.

Hm, here's a question I'd like to ask: how much of this forum doesn't even fit most of the DSM-IV criteria anymore, but still considers themselves Aspie?



uisart
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06 Oct 2010, 9:47 pm

Quote:
Hm, here's a question I'd like to ask: how much of this forum doesn't even fit most of the DSM-IV criteria anymore, but still considers themselves Aspie?


Autism symptoms trend to disapear with the age. Not because the brain becomes typical, but the person learns to behave ahd to understand the others ways.

The better to learn this issues; the better to fit.

The proof is that some NT´s can learn to fix a computer.



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06 Oct 2010, 9:56 pm

simfish wrote:
Hm, here's a question I'd like to ask: how much of this forum doesn't even fit most of the DSM-IV criteria anymore, but still considers themselves Aspie?

The DSM-IV criteria is for symptomatic diagnosis of a condition that is most probably genetic or epi-genetic based and is probably exacerbated by unknown environmental stimuli. Having said that just because the symptoms wax and wain doesn't mean the condition goes away. I know I wouldn't be formally diagnosable by a strict DSM-IV criteria on my symptoms right now or at any single point in time, yet I've met all the criteria at different times.


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06 Oct 2010, 11:00 pm

what does epigenetic mean?



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06 Oct 2010, 11:16 pm

I've become way, way, better overtime especially since meeting my wife. I sometimes feel like I never had it in the first place or I'm loosing something that makes me unique, but I think people with aspergers can improve over time.



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06 Oct 2010, 11:21 pm

simfish wrote:

(3) a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest to other people)

Uh, does this really define Asperger's? The problem with us Aspies is that we frequently share this too much with other people, even when it's clear that others aren't even interested.



Totally.



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07 Oct 2010, 1:04 am

Ravenclawgurl wrote:
what does epigenetic mean?
Non-genetic factors that interact with genetics to produce a different outcome. For example, an autistic child with a predictable environment, low levels of sensory chaos, and competent teachers will do better than his identical twin being warehoused in an institution where he is constantly drugged and restrained for reacting to the high levels of unpredictability and overload. Their autism will be caused by the same genes but express itself differently because the two had different environments.


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07 Oct 2010, 4:19 am

simfish wrote:
(3) a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest to other people)

Uh, does this really define Asperger's? The problem with us Aspies is that we frequently share this too much with other people, even when it's clear that others aren't even interested.


I think this item is there simply because the criteria of AS is the criteria for autism without the "impairment in communication"; then, the "social criteria" for AS is a copy of the "social criteria" for autism



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07 Oct 2010, 4:24 am

simfish wrote:
Okay my theory of Asperger's is that it has to do with the fact that we just don't subconsciously (and naturally) pick up social gestures/cues from the gestures/cues of others - we have to consciously learn them. And also, that we don't naturally "synchronize" with people (this might be the result of mirror neurons) in the way other people do. In other words, we have to consciously learn signals, not subconsciously so. And so our movements (and attempts to mimic others) are very "unnatural" and forced. If this theory is correct, then the DSM-IV criteria for Asperger's don't necessarily even follow from it. They're just a lot more likely due to it.

Anyways, I e-mailed Simon Baron-Cohen and he said that my theory was probably correct.



And how this explain the "restricted interests" thing?



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07 Oct 2010, 6:28 am

During my school years I was exhibited AS traits very strongly. I was socially comatose. Would only speak when spoken to and never could figure out what the heck was going on around me regarding people. I was fixated on surfing. Was always yelled at for fidgeting. Could NOT discuss my emotions. I only lacked OCD type rituals. I was a major klutz - the butt of many jokes by my family. Looking back, I was almost non-functional. I even ended up homeless for a very brief period shortly after high school.

I've learned over many years how to be more social. I pretty much suck at it, but now instead of being freaky, scary weird, I'm just freaky weird.

So am I less 'AS' like than before? I suppose, except that it take a remarkable amount of mental energy for me to maintain the facade, constantly having to edit my behavior and speech. On the outside I may appear quasi-normal, but on the inside, I know it's a rather fragile veneer.

Caveat - I am not officially diagnosed with AS. I seem to fit the DSM-!V for HFA somewhat better that AS, but since AS is going away as an official diagnosis, that's just an academic distinction. I am going for a professional evaluation in December. Supposedly the person specializes in autism. We'll see how that goes.



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07 Oct 2010, 6:28 pm

I'm nearly 30 years old and was just diagnosed this year. My AS symptoms were much more apparent when I was younger, but my NT wife has coached me and helped me to "fit in" a lot better before we'd even heard of Asperger's. She is somewhat resentful that I didn't seek professional help towards the beginning of our marriage when she urged me to do so because she was insistent there was something "off" about me but alas, we now have a name and a reason for my "oddities". Anyways, back to the subject, I do feel as if my AS traits have become less apparent and we are talking about a spectrum so it makes sense that there is sliding room, if you will, both ways but that doesn't change our neurological makeup. I'm sure I'll still be an "Aspie" late into my golden years but it's nice to be able to conform more so with the general populace albeit, in a fabricated way as opposed to an instinctual one.



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07 Oct 2010, 8:10 pm

simfish wrote:
Ah thanks for the reply so far.

Hm, here's a question I'd like to ask: how much of this forum doesn't even fit most of the DSM-IV criteria anymore, but still considers themselves Aspie?


Interesting post...it supports the notions that one can "grow out" of their diagnosis or have their traits becomne less severe over time.

We're in no way "cured" though as we still will have difficulties: albeit in differnt areas and to a lesser degree of severity.

I would definitely fall into this category...I've trained myself, through years of dedication, to overcome the specific difficulties outlined in the DSM-IV. However, I feel my mind is hard-wired with "Aspie" programming though, as none of what I have trained myself to do comes naturally or even feels natural, as if I'm wearing a mask.


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Given a “tentative” diagnosis as a child as I needed services at school for what was later correctly discovered to be a major anxiety disorder.

This misdiagnosis caused me significant stress, which lessened upon finding out the truth about myself from my current and past long-term therapists - that I am an anxious and highly sensitive person but do not have an autism spectrum disorder.

My diagnoses - social anxiety disorder and obsessive-compulsive disorder.

I’m no longer involved with the ASD world.


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07 Oct 2010, 10:41 pm

anneurysm wrote:
simfish wrote:
Ah thanks for the reply so far.

Hm, here's a question I'd like to ask: how much of this forum doesn't even fit most of the DSM-IV criteria anymore, but still considers themselves Aspie?


Interesting post...it supports the notions that one can "grow out" of their diagnosis or have their traits becomne less severe over time.

We're in no way "cured" though as we still will have difficulties: albeit in differnt areas and to a lesser degree of severity.

I would definitely fall into this category...I've trained myself, through years of dedication, to overcome the specific difficulties outlined in the DSM-IV. However, I feel my mind is hard-wired with "Aspie" programming though, as none of what I have trained myself to do comes naturally or even feels natural, as if I'm wearing a mask.
Same with me. I can 'act' almost naturally, but underneith most of my actions are more for the benefit of others then they are for myself. Otherwise I can come across as almost unemotional or aloof. And it doesn't mean that I do it perfectly either, as it can and does feel somewhat 'off' to other people (or so I've heard), because it is artificial.


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08 Oct 2010, 2:13 am

simfish wrote:
(3) a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest to other people)

Uh, does this really define Asperger's? The problem with us Aspies is that we frequently share this too much with other people, even when it's clear that others aren't even interested.


This point actually made me think that I could not have Asperger (therefore that everything was caused by my dyspraxia, which could still be true) because I shared too much my enjoyment, interests and achievements with other people, sometimes even people I did not know. I think I still do it but I try to control myself and to do this with the right people.
This is one of the behaviour that had prevented me from having friends in primary school (last year, because I had enthusiastic followers before that) apparently.