Should I bother getting a diagnosis?
I think others here have already asked this before, but I'd really like to know if it's even worth getting an official diagnosis.
For starters, the psychiatrist I went to was vey unsure about a lot of things. She initially prescribed me with concerta because I was diagnosed with ADD when I was younger, even though she said she didn't think I actually have AD(H)D at all, and (horror of horrors!) when I went to get the script filled, the pharmacist told me she'd prescribed the wrong medication, and had to call her up to change it.
The next time I saw her, she started asking me questions pertaining to Asperger's, but she was really unfamiliar with the content and had to pause a few times to re-read it herself. Then she told me to bring a family member along with me to the next session because she wanted to ask them questions. I told her that wasn't possible because I didn't want my family to find out I was trying to get a diagnosis, and she got really rude and started "snapping" at me, telling me she HAD to see someone in my family. I explained that my family is unsupportive of me getting any kind of psychiatric help, and she just got even angrier and said unless I brought a family member along with me, she wouldn't be able to do anything. I will never ever let my family find out, because when I was diagnosed with ADD, they most of them treated me like I was possessed. My grandfather wanted to get a pastor to "pray for the evil spirit to leave" me, and I NEVER want to go through that again.
Besides all this, I'm a poor university student and I can't afford $35 (after subsidisation) to see the doctor each time, and my school is very unsupportive of people on the spectrum. They actually refused help to an autistic boy, and he had to drop out because he couldn't cope. They also refused to let me do a double degree because I had to declare my medical record and they found out that I was diagnosed with ADD.
Right now I don't know if it's even worth my time and money to get a diagnosis. I wanted to know for sure at first, but now I feel like I can live without that because I don't think the risks of getting a diagnosis in a society like this one are worth it. Still, I can't help but feel that an official diagnosis would make me feel a lot better because it would explain so much, like why I can't look people in the eye, and all the meltdowns.
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Aspie score: 153 of 200
NT score: 60 of 200
What would getting a diagnosis provide you with?
I've suspected for a long time that I have an ASD, but it's only recently that I've felt that a diagnosis would benefit me.
Can you access the help you want without a diagnosis? Would getting a diagnosis help you personally (ie with understanding) or can you gain this understanding without a formal diagnosis?
If you had no family at all, they wouldn't say they can't help you. It's just easier for them. I'm in a similar situation - I can't get my parents involved. I've been reassured by a lot of people (including my support worker from the group I go to) that it's not absolutely necessary.
For starters, the psychiatrist I went to was vey unsure about a lot of things. She initially prescribed me with concerta because I was diagnosed with ADD when I was younger, even though she said she didn't think I actually have AD(H)D at all, and (horror of horrors!) when I went to get the script filled, the pharmacist told me she'd prescribed the wrong medication, and had to call her up to change it.
The next time I saw her, she started asking me questions pertaining to Asperger's, but she was really unfamiliar with the content and had to pause a few times to re-read it herself. Then she told me to bring a family member along with me to the next session because she wanted to ask them questions. I told her that wasn't possible because I didn't want my family to find out I was trying to get a diagnosis, and she got really rude and started "snapping" at me, telling me she HAD to see someone in my family. I explained that my family is unsupportive of me getting any kind of psychiatric help, and she just got even angrier and said unless I brought a family member along with me, she wouldn't be able to do anything. I will never ever let my family find out, because when I was diagnosed with ADD, they most of them treated me like I was possessed. My grandfather wanted to get a pastor to "pray for the evil spirit to leave" me, and I NEVER want to go through that again.
Besides all this, I'm a poor university student and I can't afford $35 (after subsidisation) to see the doctor each time, and my school is very unsupportive of people on the spectrum. They actually refused help to an autistic boy, and he had to drop out because he couldn't cope. They also refused to let me do a double degree because I had to declare my medical record and they found out that I was diagnosed with ADD.
Right now I don't know if it's even worth my time and money to get a diagnosis. I wanted to know for sure at first, but now I feel like I can live without that because I don't think the risks of getting a diagnosis in a society like this one are worth it. Still, I can't help but feel that an official diagnosis would make me feel a lot better because it would explain so much, like why I can't look people in the eye, and all the meltdowns.
I have no idea how much a diagnosis might help you, as I don't have one myself. But after reading this, if I were you I'd definitely find a new psychiatrist.
For starters, the psychiatrist I went to was vey unsure about a lot of things. She initially prescribed me with concerta because I was diagnosed with ADD when I was younger, even though she said she didn't think I actually have AD(H)D at all, and (horror of horrors!) when I went to get the script filled, the pharmacist told me she'd prescribed the wrong medication, and had to call her up to change it.
The next time I saw her, she started asking me questions pertaining to Asperger's, but she was really unfamiliar with the content and had to pause a few times to re-read it herself. Then she told me to bring a family member along with me to the next session because she wanted to ask them questions. I told her that wasn't possible because I didn't want my family to find out I was trying to get a diagnosis, and she got really rude and started "snapping" at me, telling me she HAD to see someone in my family. I explained that my family is unsupportive of me getting any kind of psychiatric help, and she just got even angrier and said unless I brought a family member along with me, she wouldn't be able to do anything. I will never ever let my family find out, because when I was diagnosed with ADD, they most of them treated me like I was possessed. My grandfather wanted to get a pastor to "pray for the evil spirit to leave" me, and I NEVER want to go through that again.
Besides all this, I'm a poor university student and I can't afford $35 (after subsidisation) to see the doctor each time, and my school is very unsupportive of people on the spectrum. They actually refused help to an autistic boy, and he had to drop out because he couldn't cope. They also refused to let me do a double degree because I had to declare my medical record and they found out that I was diagnosed with ADD.
Right now I don't know if it's even worth my time and money to get a diagnosis. I wanted to know for sure at first, but now I feel like I can live without that because I don't think the risks of getting a diagnosis in a society like this one are worth it. Still, I can't help but feel that an official diagnosis would make me feel a lot better because it would explain so much, like why I can't look people in the eye, and all the meltdowns.
Hey, you have the same Aspie score as me!
Well, looking at your situation, I would say logic points to NOT getting a diagnosis, because you have a useless psychiatrist, unsupportive family, and an unsympathetic university. Getting a diagnosis would seem to do you more harm than good.
But I can totally understand wanting to have a diagnosis to have peace of mind and validation and closure, that sort of thing. Still, I feel that since you are not going tell anyone about the diagnosis anyway, and no one is going to ask for prove of it, then it's good enough for you to self-diagnose. You know the symptoms, you know whether you fit, that sounds about enough for your purposes.
If it looks like a duck and quacks like a duck, well you know the rest.
Diagnosis can be useful for getting services and such, but the line between ASD and non-ASD is extremely broad. That a medical professional decides you fall on one side of a somewhat arbitrary side of how to define "normal" vs. "autistic" behaviour doesn't (IMO) mean more than that they've decided your behaviour fits their model. Can be useful, yes. But you know more about yourself than any doctor can, and even doctors don't really actually know "what" autism is.
Here's something I can recommend: finding some sort of support/social group for adults with Aspergers - not children with it, nor Autism in general (which will end up being parents and LFA folks), but people you can relate to. It helped me a ton, and helped me feel so much more sane and comfortable and normal to relate to others who I could relate to on an equal level. Viewing it from the psychiatrist/patient dynamic can lead to condescension and confusion. Find others you can relate to who can validate your experience via their own rather than a textbook (which they apparently skimmed over and had no actual understanding of).
