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firemonkey
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14 Jul 2017, 2:42 pm

I am dxed with paranoid PD. Whilst freely admitting I'm prone to paranoia I hotly dispute the dx.
This is because text book definitions of such people describe them as aggressive and confrontational. I am actually avoidant and fearful.

My paranoia and social anxiety stemmed from bullying and peer rejection,especially as a teenager,due to my physical and social awkwardness.



When I mentioned ASD to the NP she offered up schizotypal as an alternative . Personally I think a combination of some ASD/NVLD and some schizotypal along with avoidant fits best.


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SaveFerris
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14 Jul 2017, 6:25 pm

firemonkey wrote:
When I mentioned ASD to the NP she offered up schizotypal as an alternative . Personally I think a combination of some ASD/NVLD and some schizotypal along with avoidant fits best.


Well that's a step in the right direction as far as I'm concerned , you doubted your Dx and your NP clearly agrees there's an alternative. Have you ever had an ASD assessment ?


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firemonkey
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14 Jul 2017, 7:46 pm

Never had an assessment. About a decade ago my then care coordinator got me an extra appointment with a pdoc to discuss my concerns.
It was a complete waste of time. He asked a couple of completely irrelevant questions and then dismissed the issue.

Since then I have been too nervous to really pursue things due to a past record of psychiatric abuse when I was labelled 'awkward,demanding and troublesome' for seeking more help and support.
Occasionally I'll drop hints but they invariably fall on deaf ears.

There is an Aspergers clinic at my mental health trust but it's roughly a 2 year wait for assessment . I should be moving out of the area before that time.

Previously when I mentioned things to my NP she did use the word autistic in relation to it but had said there was not much psych services could do. She did give me a leaflet to http://www.aspergers.org.uk/ but as I'm not officially dxed I don't think they'll be much help.

On their problem solving page they say:

Getting a Diagnosis in Adults

Quote:
NHS diagnostic services for adults are very patchy in Essex, and difficult to obtain. Please contact Carolann for updates because the Adult Autism Strategy is making it mandatory that a diagnostic pathway should be in place in the very near future. There are also private diagnostic options which Carolann can tell you about.


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SaveFerris
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14 Jul 2017, 8:48 pm

If your moving then that makes it awkward but you definitely need to get on a waiting list sooner than later. Can't you get on the waiting list where you are now and just travel for the assessment - have you talked to them about issues with you moving out of the county/borough.
I've looked at the private route and my GF wants to send me to the priory in London but at £1000 it's just a pipe dream.


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CharityGoodyGrace
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15 Jul 2017, 5:58 am

It's hard to have any diagnosis because of what people end up thinking due to stereotypes they have about the diagnosis due to symptoms of the diagnosis that it says SOME people have. I've so been there, but with my Aspie and Borderline Personality Disorder diagnoses. People assumed I had certain sensory, social, etc. problems I didn't have due to my AS diagnosis and people may have pegged me as manipulative due to my BPD diagnosis which my current shrink says is absolute rubbish.

Mad love from Montreal, Quebec, Canada. :)



starkid
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15 Jul 2017, 11:13 am

firemonkey wrote:
This is because text book definitions of such people describe them as aggressive and confrontational. I am actually avoidant and fearful.

That is not a legitimate reason to dispute the diagnosis unless those described traits are part of the diagnostic criteria.

Some people, for example, don't fit the descriptions of autistic people, but they are still autistic because they fit the diagnostic criteria.

Such descriptions are based on common presentation of the condition; there will always be people who don't present commonly. It's the diagnostic criteria that are the proper basis for diagnosis.



firemonkey
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15 Jul 2017, 11:32 am

Let's just say I don't fit the diagnostic criteria. I think you can be prone to a degree of what broadly might be defined as paranoia without necessarily fitting the specific criteria used to define a paranoid personality disorder.

I am not sure how I have upset you, but I sense you are not pleased with me based on a couple of replies you've made to posts I've made. If I have inadvertently upset you then I am sorry for doing so.


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SaveFerris
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15 Jul 2017, 11:46 am

firemonkey wrote:

I am not sure how I have upset you, but I sense you are not pleased with me based on a couple of replies you've made to posts I've made. If I have inadvertently upset you then I am sorry for doing so.


FWIW I see nothing wrong with starkids above post firemonkey

yeah there was a bit of heated debate and difference of opinion in the intellectual thread but that's todays chip paper and personally I thought that thread was all over the place IMO


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starkid
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15 Jul 2017, 12:11 pm

firemonkey wrote:
L
I am not sure how I have upset you, but I sense you are not pleased with me based on a couple of replies you've made to posts I've made. If I have inadvertently upset you then I am sorry for doing so.

Are you talking to me? I'd prefer that you didn't try to read my mind.



firemonkey
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15 Jul 2017, 5:03 pm

Disputing the diagnosis. It's less about the label than it is about a systemic failure to recognise all my issues/problems. There is a tendency due to intellectual laziness for mental health professionals not to look beyond the assigned psychiatric label to the whole person.

I also think current diagnostic labels fail to capture the complexity of a lot of us.

I would prefer the use of long hand descriptors. For example in my case primary anxiety with secondary mood and thought symptoms accompanied by signs of ASD/NVLD/learning difficulty.

This would have captured a much fuller picture and would have resulted hopefully in better quality help and treatment.


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